It never ends,does it?

outdoorgirl
outdoorgirl Member Posts: 1,565
edited March 2014 in Breast Cancer #1
I hate to bring this up,and I know that beyond getting tested,giving self exams,and trying to take care of ourselves-and praying(and I'm not using that lightly-believe me)-our hands are kind of tied-but sometimes I get a little frustrated every time I hear about a new cancer that we are susceptible to since getting bc.Guess there is not much I can do about it sometimes,but sometimes I think,"You know,I never bargained for that!!"And it seems like every time I go in for an appointment with any of my docs,they are telling me about something else to watch for or how much more at risk I am now for any kind of cancer.I know you all have heard it too! I am happy that my doctors are so thorough,but sometimes I do wish for those days when I thought I was so healthy and fit!
Guess this is my night to vent...
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Comments

  • chickad52
    chickad52 Member Posts: 497
    outdoorgirl
    It's good to vent, so vent away!! I think we all wish for the days to be only healthy and fit. Before I got my dx of bc , I lost 60 pounds and was feeling great. ,I was exercising and eating healthy, and then, WHAM!! I guess this will always be on our minds. How can it not be after what we are going through. This is my second time with the beast so I know it will be for me! Hugs to you, Diane
  • roseann4
    roseann4 Member Posts: 992 Member
    I hear you!
    It's a double sided sword.

    On the one hand, we know what "healthy" people don't always know. We understand that our lives can change in a diagnosis and that every day matters. All my family members and close friends know that I love them because I say it every chance I get. I am my authentic self because that's how I want people to know me. I know that material things are great but love is all that matters. I get that my feelings count and by expressing my feeling is healing for myself and others. I knew that before Feb when I was diagnosed, but I didn't live it. What a blessing.

    On the other hand, I know that how I take care of myself can be a life and death decision. I can't be casual about my nutrition, my doctor visits, my exercise, etc. I partner with my body is staying alive. I always said, "I am so healthy", and I miss that. I was very carefree where my health was concerned. I ate suger when I wanted it, had a drink when I wanted one, ate beef several times a week and only excersised when I felt like it. Oh for the days!

    We take the good with the bad but I have to admit, I am a better person since my BC diagnois.
    But still......

    God bless!

    Roseann
  • Wolfi
    Wolfi Member Posts: 425
    roseann4 said:

    I hear you!
    It's a double sided sword.

    On the one hand, we know what "healthy" people don't always know. We understand that our lives can change in a diagnosis and that every day matters. All my family members and close friends know that I love them because I say it every chance I get. I am my authentic self because that's how I want people to know me. I know that material things are great but love is all that matters. I get that my feelings count and by expressing my feeling is healing for myself and others. I knew that before Feb when I was diagnosed, but I didn't live it. What a blessing.

    On the other hand, I know that how I take care of myself can be a life and death decision. I can't be casual about my nutrition, my doctor visits, my exercise, etc. I partner with my body is staying alive. I always said, "I am so healthy", and I miss that. I was very carefree where my health was concerned. I ate suger when I wanted it, had a drink when I wanted one, ate beef several times a week and only excersised when I felt like it. Oh for the days!

    We take the good with the bad but I have to admit, I am a better person since my BC diagnois.
    But still......

    God bless!

    Roseann

    Sight
    Roseann,

    I "see" things differently since my bc diagnosis. I try not to let small things bother me (like I would have before). I try not to get worked up over things I have no control over. I notice the colors of the trees and the grass like I didn't before. I appreciate the time (no matter how little) that I spend with my kids, husband and cats. I look at our fish tanks and wonder what kind of lives the fish have in there - what do they think of while swimming in the same 40 gallons day after day?

    I don't worry too much about stuff at my job (although this is still a work in progress because I'm a recovering workaholic). I feel good when I know I've eaten enough servings of fruits, vegetables and fiber in a day but don't beat myself up on days when I don't make the count.

    Some exercise is better than none and I try to at least do a little each day no matter how bad I feel.
  • roseann4
    roseann4 Member Posts: 992 Member
    Wolfi said:

    Sight
    Roseann,

    I "see" things differently since my bc diagnosis. I try not to let small things bother me (like I would have before). I try not to get worked up over things I have no control over. I notice the colors of the trees and the grass like I didn't before. I appreciate the time (no matter how little) that I spend with my kids, husband and cats. I look at our fish tanks and wonder what kind of lives the fish have in there - what do they think of while swimming in the same 40 gallons day after day?

    I don't worry too much about stuff at my job (although this is still a work in progress because I'm a recovering workaholic). I feel good when I know I've eaten enough servings of fruits, vegetables and fiber in a day but don't beat myself up on days when I don't make the count.

    Some exercise is better than none and I try to at least do a little each day no matter how bad I feel.

    You're right!
    Wolfi,

    I went to my chiropractor for the first time since my diagnosis. Ten months ago, she said my shoulder muscles were tight and it was obvious that I was under a lot of stress. She expected to see me in worse condition because of all I had been through. My shoulder muscles were like mush. My adrenals were great, etc. I don't sweat the small stuff anymore. I do need to increase me excersise. Thanks for the tip of some is better than nothing.

    Roseann
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Healthy and Fit
    It wasn't that long ago! It seems that this is the hardest thing to except. I didn't feel "unhealthy" when I was diagnosed, but I sure do now! I felt fine when I was really sick, and feel terrible now that they are making me well? Does this make any sense? So should I worry when I start to feel good again that I may actually be sick? Arggggh, I hope we all find our balance! Pammy
  • tasha_111
    tasha_111 Member Posts: 2,072
    Akiss4me said:

    Healthy and Fit
    It wasn't that long ago! It seems that this is the hardest thing to except. I didn't feel "unhealthy" when I was diagnosed, but I sure do now! I felt fine when I was really sick, and feel terrible now that they are making me well? Does this make any sense? So should I worry when I start to feel good again that I may actually be sick? Arggggh, I hope we all find our balance! Pammy

    Oh No!
    Isn't this just so scary? I don't think i will ever feel healthy or good to go in my life. I am scared stiff, and more..........sorry.
    It's always there isn't it? Am I paranoid to be thinking this?...Or would I be stupid to NOT be thinking this way?
    Don't answer, I am just venting, I've had enough of this stuff. Hugs to you all esp Pammy......Jxxxxxxxxx
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    Border Guard
    Yeah, I feel the same, Patty. I'm glad you "vented" because what you describe is true for most of us, if not all. It's like we have been drafted and find ourselves posted as border guards (N. Korea maybe?). And we're on High Alert most of the time.

    Roseann, thank you for your reply. Your attitude and point of view are inspiring.

    And, Pammy, you will be healthy and fit again. We all will or can be. Daily exercise, good food choices (most of the time), and partnering with our docs/nurses in protecting our health--we can all do that.
  • ppurdin
    ppurdin Member Posts: 1,181
    never ending.
    Hi everyone.I am replying because these were my same thoughts when I woke up this morning.I had my second chemo treatment Weds.I woke up with joints hurting like crazy.And sick at my stomach.And I was thinking,is this ever going to end.And that my life like some of you said will never be the same.Every mamogram,any Dr. appointment will always be more of a worry.And I am just starting with my treatments.after Chemo I have 6 to 7wks. of Rads. to go.Right through winter.I guess I am venting also.But sometimes It just feels darn good to do this.Thanks for listning my dear friends.(Pat).
  • Marcia527
    Marcia527 Member Posts: 2,729
    I have other health problems
    I have other health problems that affect me more than breast cancer. I will never get better but worse so today will always be better than tomorrow. Each day I wonder if I will be able to do certain things for how much longer. I'm not on medication. I have Parkinson's. Have trouble cutting up potatoes, buttoning clothing, putting change away or even turning a key in the lock. I limp now. I've fallen twice in the past two years. Have to be careful and take my time. The hardest is it's hard to read because I shake the book. I use to sew and paint. I use to walk on the treatmill an hour a day. Had to stop because of toe curling.

    But your situation is still yours to deal with and that makes it difficult. So it's good you vented. I guess I just vented too.
  • mgm42
    mgm42 Member Posts: 491 Member
    The gift that keeps on giving ...
    Yes, I agree with the sentiments that all of you have expressed. I do believe that bc is the gift that keeps on giving. I hate going to any doctor now because of the admonishments as well as helpful and instructional conversations. My body now aches with pains, my muscles scream when I try to hook my bra or fix my waistband in the back or reach for something on a high shelf. Reminds me of a song - "body all aching and racked with pain." I do believe these pains are all related to aromotase inhibitors and tamoxifen. I know, I know. These are "wonder drugs" for bc patients and we are all greatful that they exist. But, in the wee small hours of the morning (what am I - on a musical lyrics kick here?) I cry for the days before breast cancer. I felt good, the world felt good, and my life was good. Sorry - I had to vent, too. Hugs, Marilynn
  • mgm42
    mgm42 Member Posts: 491 Member
    Marcia527 said:

    I have other health problems
    I have other health problems that affect me more than breast cancer. I will never get better but worse so today will always be better than tomorrow. Each day I wonder if I will be able to do certain things for how much longer. I'm not on medication. I have Parkinson's. Have trouble cutting up potatoes, buttoning clothing, putting change away or even turning a key in the lock. I limp now. I've fallen twice in the past two years. Have to be careful and take my time. The hardest is it's hard to read because I shake the book. I use to sew and paint. I use to walk on the treatmill an hour a day. Had to stop because of toe curling.

    But your situation is still yours to deal with and that makes it difficult. So it's good you vented. I guess I just vented too.

    Propsective
    You put things in prospective for me - and I thank you for that. You've reminded me that all my aches and pains will someday disappear when I complete my five year stint on meds. I wish you the very best and am hopeful that medical science will come up with a treatment for Parkinsons that will benefit you and all those who are currently suffering with that disease. God bless you. Hugs, Marilynn
  • padee6339
    padee6339 Member Posts: 763
    Marcia527 said:

    I have other health problems
    I have other health problems that affect me more than breast cancer. I will never get better but worse so today will always be better than tomorrow. Each day I wonder if I will be able to do certain things for how much longer. I'm not on medication. I have Parkinson's. Have trouble cutting up potatoes, buttoning clothing, putting change away or even turning a key in the lock. I limp now. I've fallen twice in the past two years. Have to be careful and take my time. The hardest is it's hard to read because I shake the book. I use to sew and paint. I use to walk on the treatmill an hour a day. Had to stop because of toe curling.

    But your situation is still yours to deal with and that makes it difficult. So it's good you vented. I guess I just vented too.

    Oh Marcia -
    I am so sorry you have Parkinson's added to the bc. I never knew too much about it until I saw Michael J. Fox and how his body is attacking him. I will keep you in my prayers and offer up my Sunday Mass to you this week. Vent all you want, you deserve to and this is the place to do it.
    Hugs and prayers - Pat
  • fauxma
    fauxma Member Posts: 3,577 Member
    Moopy23 said:

    Border Guard
    Yeah, I feel the same, Patty. I'm glad you "vented" because what you describe is true for most of us, if not all. It's like we have been drafted and find ourselves posted as border guards (N. Korea maybe?). And we're on High Alert most of the time.

    Roseann, thank you for your reply. Your attitude and point of view are inspiring.

    And, Pammy, you will be healthy and fit again. We all will or can be. Daily exercise, good food choices (most of the time), and partnering with our docs/nurses in protecting our health--we can all do that.

    Moopy,
    Yes, it is like

    Moopy,
    Yes, it is like border patrol, isn't it. And I like your healthy and fit suggestions. Simple and yet so true. You are such a bright light and I hope that all is well with you. Joe and you have always been here for everyone even when you were going through so much. How is work going and how are you doing?
    Stef
  • Marcia527
    Marcia527 Member Posts: 2,729
    padee6339 said:

    Oh Marcia -
    I am so sorry you have Parkinson's added to the bc. I never knew too much about it until I saw Michael J. Fox and how his body is attacking him. I will keep you in my prayers and offer up my Sunday Mass to you this week. Vent all you want, you deserve to and this is the place to do it.
    Hugs and prayers - Pat

    Thank you Pat. That is a
    Thank you Pat. That is a very thoughtful thing.

    My husband said, "Sometimes you're the bug and sometimes you're the windshield." We just have to cope with it. I've found I can always ask for help.
  • tgf
    tgf Member Posts: 950 Member
    Marcia527 said:

    Thank you Pat. That is a
    Thank you Pat. That is a very thoughtful thing.

    My husband said, "Sometimes you're the bug and sometimes you're the windshield." We just have to cope with it. I've found I can always ask for help.

    Stuff
    Since we've all be diagnosed with breast cancer I think I can truthfully say we are always going to be a bit paranoid about every little ache, pain, bump and bruise. But ... that may not abe so bad. Unlike some people ... we are VERY aware of our body and when something just might not "feel right." While some people may think we are being paranoid ... we need to look at it as pro-active. We want to have things checked out ... and catch things early. That is NOT a bad thing. It's just different from how we used to look at how our bodies worked before. But ... this is our new normal and we are strong ... and we will adjust to this "new" normal.

    big hugs,
    teena
  • roseann4
    roseann4 Member Posts: 992 Member
    tgf said:

    Stuff
    Since we've all be diagnosed with breast cancer I think I can truthfully say we are always going to be a bit paranoid about every little ache, pain, bump and bruise. But ... that may not abe so bad. Unlike some people ... we are VERY aware of our body and when something just might not "feel right." While some people may think we are being paranoid ... we need to look at it as pro-active. We want to have things checked out ... and catch things early. That is NOT a bad thing. It's just different from how we used to look at how our bodies worked before. But ... this is our new normal and we are strong ... and we will adjust to this "new" normal.

    big hugs,
    teena

    We're forever changed...
    Hi my friends,

    We have looked death in the face and lived to talk about it! Remember after diagnosis when we didn't know what to expect and thought we were on our way out. Well, we're still here. We are living our lives on purpose instead of having days go by unnoticed. I live each day a little more than I would have, I laugh a little louder, cry a little harder and most of all I love to the max. I am not my body (I'm glad because at 59 I'm no longer the hottie I used to be) and I am definately not my cancer. Excuse the soap box but it's Friday and I'm having a great day.

    Roseann
  • MAJW
    MAJW Member Posts: 2,510 Member
    roseann4 said:

    We're forever changed...
    Hi my friends,

    We have looked death in the face and lived to talk about it! Remember after diagnosis when we didn't know what to expect and thought we were on our way out. Well, we're still here. We are living our lives on purpose instead of having days go by unnoticed. I live each day a little more than I would have, I laugh a little louder, cry a little harder and most of all I love to the max. I am not my body (I'm glad because at 59 I'm no longer the hottie I used to be) and I am definately not my cancer. Excuse the soap box but it's Friday and I'm having a great day.

    Roseann

    ROSEANN
    LOVE YOUR ATTITUDE! Especially the "hottie" I can relate....I'm 58.....I have a brother in law and sister in law who live in a retirement community in Florida...a beautiful place.....we visit them, I think the average age is about 76........I love going there because at 58 I feel like a "FOX!"
  • dmc_emmy
    dmc_emmy Member Posts: 549
    MAJW said:

    ROSEANN
    LOVE YOUR ATTITUDE! Especially the "hottie" I can relate....I'm 58.....I have a brother in law and sister in law who live in a retirement community in Florida...a beautiful place.....we visit them, I think the average age is about 76........I love going there because at 58 I feel like a "FOX!"

    I have come to accept...
    It was not long ago, months really, when I felt that my world was falling apart. I was in a state of constant dispair and could not pull myself out of my on-going depression.

    Nothing has changed, really, in the last month or two except for my attitude. I, like all of us, have looked death and fear right in the face and said, "Not now," otherwise we would not be on these boards sharing our deepest inner feelings with people we have never met and may never meet during our lifetimes.

    As a cancer survior, I have come to appreciate my own mortality, but I have also come to appreciate my life. I have sought forgiveness for the wrongs I have done and the people who were hurt by those wrongs. I have come to realize that, though I have cancer and one that will likely return, that for the moment I am healthy in my mind and spirit. I am not the same person I was before the cancer; mentally, emotionally, spiritually, or physically, but I have evolved to become someone that can respect where I have been, where I am right now, and where I hope to be tomorrow.

    I was told that I have only a 30% change of living without cancer, these are not great odds, but I have no choice but to accept those odds. I have a choice to dwell on the other 70%, or fear the 30%. I, however, have chosen not to dwell on or to fear either.

    Do I become angry? Of course I do. I was angry on Friday when the copier at my school was broken again for the umpteenth time that week and I wasted my entire prep hour re-doing my work on another computer that was connected to a printer that DID work.

    Am I angry about having cancer? Not really. I wish I did not have these scars on my body, the pain, or the disappointment that I may not enjoy longevity and the good health that is typical in my family. But angry? No, I'm overjoyed that today when I awoke, the sun was just beginning to rise and my pup was eagerly greeting me at my bedside for our daily morning walk. I'm honored to have another day with those whom I love and who love me, and to awake to my pup licking my hand-what an unconditional love she has for me! I'm thankful that, for today, my pain is less than it was yesterday even after my half-hour workout and my mile or so walk with my pup.

    What's there to angry about; the fact that I have cancer? Shouldn't I be estatic that I'm alive to talk about it, regardless of how many months or years I have to live?

    I was given, as all of us, a disease that has the ability to cripple you emotionally and spiritually, but only if you allow it to happen. Physically, we may never be the same again, but I believe that what people see is merely a subsequential covering for the substance that really counts and is contained inside. This realization has taken me years to understand and accept-cancer, I suppose, helped to hasten my arrival to this realization. Instead of anger, I should be grateful that I came to this realization while I still have the opportunity to live it and to share it with others.

    On that note, I hope that everyone here has a most joyous day and can find something they are thankful for, too.

    dmc
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    dmc_emmy said:

    I have come to accept...
    It was not long ago, months really, when I felt that my world was falling apart. I was in a state of constant dispair and could not pull myself out of my on-going depression.

    Nothing has changed, really, in the last month or two except for my attitude. I, like all of us, have looked death and fear right in the face and said, "Not now," otherwise we would not be on these boards sharing our deepest inner feelings with people we have never met and may never meet during our lifetimes.

    As a cancer survior, I have come to appreciate my own mortality, but I have also come to appreciate my life. I have sought forgiveness for the wrongs I have done and the people who were hurt by those wrongs. I have come to realize that, though I have cancer and one that will likely return, that for the moment I am healthy in my mind and spirit. I am not the same person I was before the cancer; mentally, emotionally, spiritually, or physically, but I have evolved to become someone that can respect where I have been, where I am right now, and where I hope to be tomorrow.

    I was told that I have only a 30% change of living without cancer, these are not great odds, but I have no choice but to accept those odds. I have a choice to dwell on the other 70%, or fear the 30%. I, however, have chosen not to dwell on or to fear either.

    Do I become angry? Of course I do. I was angry on Friday when the copier at my school was broken again for the umpteenth time that week and I wasted my entire prep hour re-doing my work on another computer that was connected to a printer that DID work.

    Am I angry about having cancer? Not really. I wish I did not have these scars on my body, the pain, or the disappointment that I may not enjoy longevity and the good health that is typical in my family. But angry? No, I'm overjoyed that today when I awoke, the sun was just beginning to rise and my pup was eagerly greeting me at my bedside for our daily morning walk. I'm honored to have another day with those whom I love and who love me, and to awake to my pup licking my hand-what an unconditional love she has for me! I'm thankful that, for today, my pain is less than it was yesterday even after my half-hour workout and my mile or so walk with my pup.

    What's there to angry about; the fact that I have cancer? Shouldn't I be estatic that I'm alive to talk about it, regardless of how many months or years I have to live?

    I was given, as all of us, a disease that has the ability to cripple you emotionally and spiritually, but only if you allow it to happen. Physically, we may never be the same again, but I believe that what people see is merely a subsequential covering for the substance that really counts and is contained inside. This realization has taken me years to understand and accept-cancer, I suppose, helped to hasten my arrival to this realization. Instead of anger, I should be grateful that I came to this realization while I still have the opportunity to live it and to share it with others.

    On that note, I hope that everyone here has a most joyous day and can find something they are thankful for, too.

    dmc

    Thanks dmc
    I really needed to read that! I am feeling much better about things-really! I think I just needed to have my little cancer pity party,and now it is all out of my system.
    Marcia,I think it is so true that sometimes you only have to look at the troubles someone else is having to go through to realize that I am not so bad off with mine. I am sorry that you have to deal with Parkinsons on top of everything else-the fact that it is harder for you to do the same everyday tasks that I take for granted-it was a humbling experience for me to read your reply.
    And dmc,I am very happy and thankful to be alive! And I think that some of my greatest times are when I am so caught up in living that I forget that I've been afflicted by bc. Never thought that I would get to that point,but here I am!Hope that that sentence alone brings hope to you newbies out there who wonder if it will ever get better! I so much appreciate you all and am thankful for you-you guys are the best! You are my lifeline when I feel like no one else gets it !
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    Moopy23 said:

    Border Guard
    Yeah, I feel the same, Patty. I'm glad you "vented" because what you describe is true for most of us, if not all. It's like we have been drafted and find ourselves posted as border guards (N. Korea maybe?). And we're on High Alert most of the time.

    Roseann, thank you for your reply. Your attitude and point of view are inspiring.

    And, Pammy, you will be healthy and fit again. We all will or can be. Daily exercise, good food choices (most of the time), and partnering with our docs/nurses in protecting our health--we can all do that.

    Border guard,
    what a fitting term,my friend! Truly,I think we are!