Waiting for the comparison Pelvic Ultrasound results ....
It was kind of funny because when I got there and into the room to start the ultrasound I realized all of a sudden that the test itself isn't that pleasant - I was just so anxious to get the comparison done early and happy to have had the quick appointment I totally forgot. lol. Probably better that way as I had no time to get stressed about those stirups. Anywho it's done and now the WAIT, for results.
Because I have been and still am into so many waits to see a gyno and get this all biopsied I decided to push for more info as I wait so requested the CA125 on my own and got that result back - 20. Now this follow up ultrasound is another piece of the puzzle. Will let you know how it goes and once again thanks for all your support. I advocate for myself but get tired once in awhile and you guys keep me going. Hugs to all. Blessings, Bluerose
Comments
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Good For You
Blue, so glad to hear that you finally got the ultrasound you wanted. And your CA125 sounds hopeful. Now that waiting...I agree, it is hard doing all this alone. But it really is true...it makes you one strong lady! It is amazing what we can do if we really have to. You arte a survivor, girlfriend. Many hugs coming at you...Cindy0 -
It's true CindyCindy54 said:Good For You
Blue, so glad to hear that you finally got the ultrasound you wanted. And your CA125 sounds hopeful. Now that waiting...I agree, it is hard doing all this alone. But it really is true...it makes you one strong lady! It is amazing what we can do if we really have to. You arte a survivor, girlfriend. Many hugs coming at you...Cindy
It really is amazing what we can do, even on our own. I am getting really tired of doing the self advocating thing though but the idea of getting my GP to order a CA125 and do the 2 month follow up on my first pelvic ultrasound has given me at least some information for myself while I wait for another gyno, grrr. I plan to do another CA125 in another month or so based on what this second pelvic ultrasound says. I already know for sure that the node grew once before as the surgeon who did my kidney stone surgery said that the radiologist looked back at last years CT and it was there then but they missed it - double grrrrr. Between that one and this last CT in June it had grown but 'not by much' they said. So let's see what's happening now.
I may well go to the ER if I get no help. Now I have been told it will be at least another 6 months til I see the new gyno - OH COME ON - You know that will put it at a year and a half or more since it was first seen in Nov last year and it could have been there months earlier. No one is putting this big picture together. I see my GP next month, can't get in to see her either because of the fricken waits, and the whole visit
is going to be to push her to advocate for me too, based on my past cancer and it's aggressive treatments. I feel pretty abandoned and I can't believe we have come to this in our health care system.
Anywho thanks for the kind words, encouragement and hope. Hope you are doing well Cindy, talk to you soon. Hugs, Bluerose0 -
Update on continuing saga of 'Ah come on, just one biopsy?', lolBonnieR said:Hugs
Dear Blue, just sending lots of prayers ♥ hugs your way. Bonnie
So the update now is that the gyno/onc said I can't be seen there as I don't have a cancer diagnosis yet, that's even though my GP asked I be seen by them, sigh. So they shipped me back to 'benign gynecology', don't get me started on the word 'benign' at my stage. Anywho then last night my GP's office called and told me the name of the new gyno and said that the appt. would be Nov. 13th. That is the first appt so the biopsy itself - don't want to even think of when that will be. Nov 13 makes it one year exactly from when they first spotted the node and cyst but MISSED IT. I can't believe my situation myself.
Anywho I will call them today at the new gyno's office and make sure they have a copy of the latest ultrasound and ask if they have a cancellation list too. Here we go again. I should have recorded my begging I have done for earlier appointments to other docs offices and just hit 'play' when a new one comes on board. Sheeesh.
By the way thanks for the hugs and prayers Bonnie, back atcha. Blessings, Bluerose0 -
You won't believe thisbluerose said:Update on continuing saga of 'Ah come on, just one biopsy?', lol
So the update now is that the gyno/onc said I can't be seen there as I don't have a cancer diagnosis yet, that's even though my GP asked I be seen by them, sigh. So they shipped me back to 'benign gynecology', don't get me started on the word 'benign' at my stage. Anywho then last night my GP's office called and told me the name of the new gyno and said that the appt. would be Nov. 13th. That is the first appt so the biopsy itself - don't want to even think of when that will be. Nov 13 makes it one year exactly from when they first spotted the node and cyst but MISSED IT. I can't believe my situation myself.
Anywho I will call them today at the new gyno's office and make sure they have a copy of the latest ultrasound and ask if they have a cancellation list too. Here we go again. I should have recorded my begging I have done for earlier appointments to other docs offices and just hit 'play' when a new one comes on board. Sheeesh.
By the way thanks for the hugs and prayers Bonnie, back atcha. Blessings, Bluerose
So I had given up on the gyno/onc when I got a call last week saying that my appt will be in Sept with the gyno/onc. I said 'excuse me? I was told I couldn't see him' to which they answered that because the gyno's list was longer the gyno/onc would see me in the meantime. Yay. I made sure that the girl got him the report on the CT from Nov last year, the film I mean, as that is where the node and cyst were first seen and missed.
I still don't have the results of the second pelvic ultrasound so I am hoping that is a good thing because as soon as they see it and there is a glaring issue you would hope that the docs would call and up the appt at the very least. I wondered if that is really why the gyno/onc came aboard - he saw that scan but the girl said no and didn't even realize it had been done.
Anywho have to wait another 3 weeks or so and then with any luck at all that appt will get them moving. I just keep getting the feeling that pieces of information are not reaching the gyno/onc so I will be sure to have it all there for him when I see him.
I haven't been feeling well of late, sweating alot in the morning when I wake up but then again it has been very warm here and I am on morphine for my back which can make you sweat too, just seems like more. I feel queasy too, which I never do, so not happy about that either and my appetite seems way down. The pain in my back, ache really, comes and goes but never goes completely. I just wish they would biopsy already and put me out of my misery one way or another.
Hope this entry finds you all feeling better than yesterday. Blessings, Bluerose0 -
Canada?bluerose said:You won't believe this
So I had given up on the gyno/onc when I got a call last week saying that my appt will be in Sept with the gyno/onc. I said 'excuse me? I was told I couldn't see him' to which they answered that because the gyno's list was longer the gyno/onc would see me in the meantime. Yay. I made sure that the girl got him the report on the CT from Nov last year, the film I mean, as that is where the node and cyst were first seen and missed.
I still don't have the results of the second pelvic ultrasound so I am hoping that is a good thing because as soon as they see it and there is a glaring issue you would hope that the docs would call and up the appt at the very least. I wondered if that is really why the gyno/onc came aboard - he saw that scan but the girl said no and didn't even realize it had been done.
Anywho have to wait another 3 weeks or so and then with any luck at all that appt will get them moving. I just keep getting the feeling that pieces of information are not reaching the gyno/onc so I will be sure to have it all there for him when I see him.
I haven't been feeling well of late, sweating alot in the morning when I wake up but then again it has been very warm here and I am on morphine for my back which can make you sweat too, just seems like more. I feel queasy too, which I never do, so not happy about that either and my appetite seems way down. The pain in my back, ache really, comes and goes but never goes completely. I just wish they would biopsy already and put me out of my misery one way or another.
Hope this entry finds you all feeling better than yesterday. Blessings, Bluerose
Bluerose, are you dealing with the Canadian Healthcare system? Saundra0 -
Yuppers Saundrasaundra said:Canada?
Bluerose, are you dealing with the Canadian Healthcare system? Saundra
Yes I am in Canada, I thought I mentioned that, maybe it was in another area. With chemo brain being one of my issues it's hard to remember who I told what from board to board, topic to topic. Without our 'free' system I wouldn't have been able to get through the bone marrow transplant and all my treatments for the last 20 years for sure but after awhile, even with our high taxes really paying for most of our 'free' healthcare behind the scenes, sooner or later free is going to bite us in the butt and it is. We are losing doctors to the states and with the baby boomers starting to fall apart our waits are getting way up there.
I have had the same GP for almost 25 years and I used to be able to go in and see her sometimes in the same day I called and now I have to book at least 2 months in advance, it's very hard to get used to. At least now I know I will see a gyno/onc in Sept and that was a tough fight, that's for sure. I am getting new symptoms I don't like like frequent urination - even more than before - and I wrestle with that low back ache which is unusual for me since I went into premature menopause in 1989 during chemo treatments - the drugs flung me into it.
Actually I think I have waited long enough for the second pelvic ultrasound, think I will call my GP and leave a message for my doc to let me know when the pelvic ultrasound results come in and what they are. She usually lets me know right away but she's so busy she very easily might have let it slip by. I find a little comfort in the fact that no doc called me right after I had it done though as they would I am sure if the news was bad. I don't want to get to 'bad' though, but trying to catch it early has been a huge challenge as you have probably read on my posts. Today is a new day though so onwards and upwards. She says optimistically. lol. Have a good day Saundra. Blessings, Bluerose0 -
bluerosebluerose said:Yuppers Saundra
Yes I am in Canada, I thought I mentioned that, maybe it was in another area. With chemo brain being one of my issues it's hard to remember who I told what from board to board, topic to topic. Without our 'free' system I wouldn't have been able to get through the bone marrow transplant and all my treatments for the last 20 years for sure but after awhile, even with our high taxes really paying for most of our 'free' healthcare behind the scenes, sooner or later free is going to bite us in the butt and it is. We are losing doctors to the states and with the baby boomers starting to fall apart our waits are getting way up there.
I have had the same GP for almost 25 years and I used to be able to go in and see her sometimes in the same day I called and now I have to book at least 2 months in advance, it's very hard to get used to. At least now I know I will see a gyno/onc in Sept and that was a tough fight, that's for sure. I am getting new symptoms I don't like like frequent urination - even more than before - and I wrestle with that low back ache which is unusual for me since I went into premature menopause in 1989 during chemo treatments - the drugs flung me into it.
Actually I think I have waited long enough for the second pelvic ultrasound, think I will call my GP and leave a message for my doc to let me know when the pelvic ultrasound results come in and what they are. She usually lets me know right away but she's so busy she very easily might have let it slip by. I find a little comfort in the fact that no doc called me right after I had it done though as they would I am sure if the news was bad. I don't want to get to 'bad' though, but trying to catch it early has been a huge challenge as you have probably read on my posts. Today is a new day though so onwards and upwards. She says optimistically. lol. Have a good day Saundra. Blessings, Bluerose
I am really hoping to one day see your pretty bluerose and read that you've had all the necessary tests and scans, the biopsy or surgery and have finally seen all the necessary doctors.
I don't know how you hold it together, you're a strong lady and this treatment of you is criminal.
I just hope this "free and timely" health care never comes to the U.S.
Good luck and keep pushing them.
Jane0 -
Thanks Janejane65 said:bluerose
I am really hoping to one day see your pretty bluerose and read that you've had all the necessary tests and scans, the biopsy or surgery and have finally seen all the necessary doctors.
I don't know how you hold it together, you're a strong lady and this treatment of you is criminal.
I just hope this "free and timely" health care never comes to the U.S.
Good luck and keep pushing them.
Jane
Thanks for your thoughtful and sweet comments, I am hoping I see that day soon as well. It is getting closer to seeing the gyno/onc at least but still almost a month away and that doesn't mean a surgery date for biopsy either so who knows. My GP is a disappointment to me too, I have been with her for 25 years or so and I feel abandoned by her, hard to get in to see her about any of this except for once a month and then that is cancelled sometimes. Not sure how to do this.
Today I heard that some people here are actually seeing physicians in my city but getting surgery in small towns outside the main city as there are fewer demands on the ER's outside the city. First time I heard this, wish I would have known about that a few months back my my main problem really lies in the fact that the node/cyst were missed way back in Nov when they first appeared on the CT. I had no chance to search for help til June when it was seen again but bigger now, slightly. Still with the docs knowing that, still no quick biopsy. Hard to believe.
Anywho thanks for your kind thoughts, I truly appreciate them. Hope you are doing well Jane. Blessings, Bluerose0 -
why must u wait ti see gyn?bluerose said:Update on continuing saga of 'Ah come on, just one biopsy?', lol
So the update now is that the gyno/onc said I can't be seen there as I don't have a cancer diagnosis yet, that's even though my GP asked I be seen by them, sigh. So they shipped me back to 'benign gynecology', don't get me started on the word 'benign' at my stage. Anywho then last night my GP's office called and told me the name of the new gyno and said that the appt. would be Nov. 13th. That is the first appt so the biopsy itself - don't want to even think of when that will be. Nov 13 makes it one year exactly from when they first spotted the node and cyst but MISSED IT. I can't believe my situation myself.
Anywho I will call them today at the new gyno's office and make sure they have a copy of the latest ultrasound and ask if they have a cancellation list too. Here we go again. I should have recorded my begging I have done for earlier appointments to other docs offices and just hit 'play' when a new one comes on board. Sheeesh.
By the way thanks for the hugs and prayers Bonnie, back atcha. Blessings, Bluerose
i go whenever i want last week i saw my surgeon at 8:30 and at 1:30 the gyn that referred me to surgeon....
where do u live?0 -
HI Marilynmaryln3 said:why must u wait ti see gyn?
i go whenever i want last week i saw my surgeon at 8:30 and at 1:30 the gyn that referred me to surgeon....
where do u live?
I live in Canada. I haven't been diagnosed yet but am showing all the symptoms of ovarian and the node and cyst on my ovary was missed on a CT scan back in Nov. and the waits here are just huge. I have been fighting to see a gyno/onc because of a history of cancer and alot of treatment many years ago that caused alot of damage so I am told that I am a higher risk due to the lymphoma I had itself but also because of all the intense treatment - bone marrow transplant. Even with all those risks and my symptoms no one seems to want to bump me up, it takes appts made well in advance to even see my own GP who years ago I could get in to see in a day.
I see my GP in 3 weeks and this is going to be the main source of conversation, how to survive and be diagnosed early if God forbid that's what it is, well the early is too late already as this thing has been there for about a year now - missed til June. I am stressed to the max with it all, have tried everything. Now I have successfully got an appointment to see the gyno/onc so I have to carefully script my appointment with him so I give him the best overall view of my concern. People are going to the states to be seen earlier here, it's that bad, and some doctors are performing surgeries at smaller hospitals out side the city as OR room has become so hard to get. Just so hard to believe this is happening in my country. When I was first diagnosed with lymphoma in 1989 I was diagnosed and in treatment before I knew it. It's scarey.
Thanks for your note. Blessings, Bluerose0 -
Disappointed to say the least
Yesterday, which made it over a week since I had my second pelvic ultrasound which is so important for comparison, I called my GP's office to see if the results had come in. To my shock the girl at the front desk checked the computer and sure enough it had come in but my GP just signed off on it, which sounds like it meant she saw it and that was that. She didn't call me with the results, didn't have her nurse or clerks phone - nothing. Just left me hanging. It's not a matter of it being 'normal' or not like other tests, we already knows there is a cyst and node there so that's not 'normal', question is has it grown from 2 months ago? So to heck with it, I called again today and another message was left to call me with that answer. Why do I have to consistantly beg for answers?
I understand busy but she has been with me for over 20 years and has always been supportive and knows well what I am going through now with delays etc and yet no call to give me the update. I know that they won't give me results from the hospitals and the other gyno/onc I haven't seen yet so his office won't give it to me.
I just don't understand any of this, they all know my extensive cancer background and treatments, the type of cancer I had which is an automatic red flag for another cancer later, my symptoms, and the missed first sign of the node/cyst way back in Nov last year and no one seems to care. What is this all about? Long delays in health care? What? I seriously have never felt so abandoned in my own country in my life. How do they know it's benign til they go in and have a look and why is this look taking so long? A complete mystery to me. Blessings, Bluerose0 -
Update on 2nd pelvic ultrasound report
Just heard today that the cyst has grown a little in just under 2 months but only by 2 or 3 mms each side. The mural node is unchanged at 1 cm. which my doc is happy with as it is the node that she worries about the most. Still I know that a cyst can be cancerous too so suffice is to say I am not relieved by this report but at least all haven't doubled in size or anything. I am happy for small graces.
So two weeks til I meet with my GP then the gyno/onc and we will take it from there. My GP I don't think knows about the tissue in my uterus or if she does hasn't said anything and I must say that this ache in my lower back I am feeling is more about that then the node but then again what the heck do I know.
So just thought I would update you guys on it all. Hope you are having good days lately. Blessings, Bluerose0
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