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Where is Buzzard?

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

Buzzard? I haven't seen ya since I got out of the hospital, are you ok? whatcha been up too??

Hugssss!
~Donna

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

where he is i posted a thread wanting to ask him some questions on life after chemo and havent heard from him.hope all is well with him and you to donna,,,,,,Godbless ....johnnybegood

dorookie
Posts: 1736
Joined: Jul 2007

Hey Donna, How are you doing? Sorry I havent called lately, work has been keeping me real busy, and I am pretty much wiped out when I get home. How have you been feeling? WHats the newest news from your DOCs? Have you been able to start chemo again or any news on when you can?

Miss ya and hope all is well
Beth

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

I been doing good recuperating, not much of an appetite still, but it's getting better. The new meds I think make me feel a little loopy, but I like the diludin's, they're better then the morphines. I don't see my doctor till the 13th, no chemo planned on that day, but I hope soon, I want to keep killing this cancer already, though I heard this one other doctor in the hospital talk about how riddled my liver was of it, and it was inoperable, which got me scared, I don't think they can do anything about my liver, which is terrifying me, this will be something I talk to my oncologist about, since that was said by another doctor, last I heard the chemo was killing the cancer, now I overheard this doctor talking to another doctor about my liver, which if that's the case, I been crying alot scared of having a liver riddled with cancer.

I'll know something more next week Beth when I see my primary doctor, I need to hear some good news.

Talk soon!
Hugsssss~
Donna

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Donna, that IS terrifying! I'll be praying for this need. Did they do another scan while you were in for the blockage? Was he the surgeon who did that surgery? I wish these guys wouldn't say stuff like that.

Praying still!
Diane

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Donna,

I certainly can empathize with your fears of hearing doctors talk about your liver "being riddled" with cancer. Upon diagnosis, I had 12 tumors in my liver that showed up on my scan (it was discovered during my liver resection that there were 3 more that never showed up on any scans). Anyhow, yes, I did end up getting a liver resection after all, in May 2008. Chemo shrunk most of my liver tumors away & I had the liver resection when I was down to "just three" tumors (actually six, when they got in there and found the other three).

I just wanted to let you know that, to encourage you that you could still possibly become a candidate for liver surgery. My docs didn't think I ever would, but I did! Also, as you've heard numerous times on this board, you can always seek out the opinions of other liver specialists- what one thinks can't be done, another may agree to go ahead with.

I'll be thinking of you and praying for a good outcome for you.

Take care!
Lisa

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

It was so good to hear that from you, I have been in tears with hearing that my liverwas riddled with cancer, it was so scary to hear, and I remember my onc in the beginning of my dx tell me how she was able to send people up to liver surgery who she thought wouldn't ever be a candidate...thanks for the encouragement, it does lift my spirit knowing I may have a chance, I hope I do become one, the word "riddled" scared me so bad, I didn't know what to think, I hate how some of these docs talk like you aren't even in the room, thanks for responding to that, I really appreciate that!

Hugsss!
~Donna

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

You're welcome, Donna! It's nice that we can encourage each other here! It is definitely lousy that docs will talk to each other with you in the room without even thinking about what they're saying to each other and how it will affect you.
Just remember what you said your onc said in the beginning- about being able to send people to liver surgery who she thought wouldn't ever be a candidate. That will be you!!
On the chance that it doesn't happen, you may still be able to get your liver treated with other things such as RFa or cyberknife. Cyberknife is often used on patients who aren't surgicl candidates.

Be of good cheer and have a good rest of the day!

Hugs,
Lisa

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

...long as there are other options out there, that gives me hope, cyberknife sounds scary, but I just hope my liver can get treated, you put my mind at ease abit at least, I been stressing about that since I got out of the hospital last week!

THanks and have a great day as well!
Hugsss!
~Donna

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

First off it is good to see you back on the board Donna. Sorry about your liver but Lisa gave us both good news. They told my husband JR that his liver was full of cancer and from the first and only scan he has had it looked pretty bad. They have told him that they can tell from an exam that his liver is pretty much normal size. Lisa, You have given me hope that he will be able to have his liver resected. The spots on is lungs weren't as bright in color as the liver. Thanks for sharing.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi again Donna,

Just a comment on you saying "cyberknife sounds scary". I haven't had it done, but know of a couple people who have. In fact, a neighbor lady of mine is having it done next week on a brain tumor. (they used to do the "gamma knife" on brain tumors and now the improved version even on that is cyberknife. It's not a "knife"- it's an exact type of radiation. Google it for more information. Since the liver is an organ that moves when you breathe, traditional radiation could miss the mark, ending up less effective and possibly causing harm to surrounding tissue. In cyberknife, they insert a small gold bead (literally gold), called a gold "feducial" into the tumor to be targeted. Then, the radiation beam is drawn exactly to that bead in the tumor and not to anywhere else, even if you move. I believe it takes only 3 sessions of it for most people, wheras traditional radiation takes several weeks. Just thought I'd put your mind at ease on that one, too.

Take care!
Lisa

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Well said, Lisa

It might be a laprascopic procedure...or given its cancer, would be an open procedure in order to place the seed markers into and around the tumor. The surgeon needs some room in the cavity to move around.

They outfit you with a special vest that is hooked up by wires to the machine, so that when you breathe, the beam adjusts for your breathing and stays on target.

They will also create a body form for you to fit in for your treatment. You have to hold your hands up over your head for the treatment and your arms will go numb - and I mean numb.

Sessions are generally 3 to 5 and last about 2 hours - they went more in my case because I had ot get up to the bathroom a couple of times and when you do that, it takes them 30 minutes to recalibrate the unit to begin again - nurses just hated me for that. Plus, your arms will hurt so bad that you will have to call them in so that you can take your arms out of the form and try to get some feeling back into that - they hate that too, because it slows them down.

CyberKnife is a device that delivers highly concentrated radiation with surgical precison. It is actually considered and called "Radio Surgery." It is effective and RFA and CyberKnife cleaned up my liver tumor locally - the tumor was the size of a small orange. Ouch!

I believe in both procedures as I am here today partly because of those surgeries and my chemo regimen did the rest - although 8 months later, It has metastasized to the pleura of my lung - I've been waiting over 10 weeks since before joining the board to get this nailed down - the hammer will fall on me next week when the onc gives me the news that I already know - Cancer has returned for the 3rd time for me...an open Thoractomy awaits me.

Lisa - that is interesting that CyberKnife now can be done on the brain as well...when I was in for the liver, they had the GammaKnife device that they were using...but that was March 2008, so things must have changed. Thank you for the info on that.

Sorry to butt in, but just wanted to relay my experience with those procedures for you both.

Lisa, you continue to amaze me with your knowledge base - I'm going to have to keep getting up early just to stay up with you :)

I'll get outta here now...always a pleasure talking to you ladies.

-Craig

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

You can butt in whenever you want, thanks for chiming in on that, and it gave me a bit of a giggle, just picturing the nurses faces because you had to go to the bathroom and they had to outfit you all over again, I wonder why they just don't put you to sleep during it so you're not so uncomfortable, and it may end up going faster, but heck, if it works on the liver I'd be willing to give it a try, these are things that my onc hasn't even mentioned yet, probably because she's waiting to see how small these tumors can get with the chemo.

Hugssss,
~Donna

eric38's picture
eric38
Posts: 588
Joined: May 2009

There is a man that the oncologist introduced me too because he is on my same treatment regimen and is doing well. I have since gotten to know him because I see him often at the oncologists office. He had 20+ tumors in his liver and over 1300 cea level. I would call that pretty dadgum riddled, and now he is down to 1 small liver tumor after 5 months of treatments. There is always hope. As long as there is life there is hope. I know it is very scary and you are allowed to be scared. Everybody here loves you and we were concerned about you when you were in the hospital. There are alot of people that care about your welfare so hang in there. You are an inspiration. Stay strong.

Eric

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

... thanks so much for those kind words eric, you're very sweet, and when you think of having a liver riddled with cancer, I think of hepatic failure real soon, but man, that man you talk too is doing wonderful, and good luck to him in his treatments, it is a scary thing, but I am staying strong, I have too, I have 4 kids I have to see grow up, and I be darned that's taken away from me.

Hugssss!
~Donna

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Just kiddin'......Im around here kiddo, I have just been working constantly to pay the bills that are piling up here.....gettin there, just takin time...

Julie 44
Posts: 479
Joined: Oct 2008

Hey welocme back we missed you wisdom..lol lol I know what you mean with the bills.I had to leave my job of 15 years cause they outsourced the company and there went my insurance..So I start a new job at lower pay but I get full bebefits.Even with my husbands insurance and my new insurance we are going down with the ship!!!!!!
Nice to hear from you again..............JULIE

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

...You're still here! I worry when I don't see any of your wonderful posts, please don't leave to long, you're not allowed to just disappear LOL...kidding! I'm with you on the piling bills, man, I can't get over how overwhelmingly expensive these hospital and chemo bills are!

Hugsss!
~Donna

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