Waiting for dx

Let me just start by saying I'm very glad to have found this discussion board!

I don't have a diagnosis yet...I go for an abdominal and pelvic ct scan w/contrast this afternoon and basic bloodwork. I have a surgery scheduled for august 12th to remove my right ovary and biopsy it. Here's my story:

I have been sick for over a year and a half. Last year I spent the majority of the year shuttling between doctors (nuerologists, rhuematologists, internists). Some told me I was depressed (not freakin likely) and finally one told me I had fibromyalgia. I went with this diagnosis as we had already ruled out MS through a spinal tap. I happily started taking my fibro meds and working out a schedule where my life was manageable. Things were not so bad. Then in March I started noticing alot of gas, nausea, indegestion and bloat. My lower back had been hurting ever since the spinal tap in January. I thought maybe it was the meds so let it go. Around the same time I started noticing some vague cramping in my pelvic area and my periods pretty much stopped altogether. Didn't bother me a bit after years of really heavy painful ones! But all my symptoms seemed like pregnancy even though that was an impossibility! In May I began to have some pain in my upper right quadrant right under my ribcage. It would hurt really bad for a day or two then go away for weeks.

Finally in June, I went to see my gyn and told her that I was having some pelvic pain and my periods had all but disappeared and (sex) was completely out of the question due to pain. She said the nonexistant periods were due to the bc pills she had me on. But I'd taken the same ones before without that result. I told her I thought I had a cyst on my right ovary, I'd had small ones before and that's what it felt like. She then asked if I wanted an ultrasound or to just let it go. I opted for ultrasound just to see. A couple of days after they called and said I had a cyst on both ovaries and scheduled a repeat ultrasound for july. I saw my GP shortly after that and he read me the ultrasound report...6cm cyst on the right ovary and 2 on the left. Well I'd had 2cm ones before and knew they hurt...why wasn't that 6cm one killing me? He was concerned but we opted to wait.

Fast forward to last week...my jeans no longer fit...I can only wear elastic waist pants because everything else is uncomfortable. I've noticed in pictures I look pregnant! The gyn office called first thing the morning after my 2nd ultrasound to schedule surgery to remove my right ovary. Very little explanation. I saw my GP yesterday, who again read me the report (bless that man!) Right cyst is a complex cyst (with fluid and solid) it is now 7cm and there is a suspicious nodule also growing in it. CT was indicated. Suspected cystadenocarcinoma. Suggest removal of ovary and biopsy. Because of the other symptoms my GP is sending me for the other tests. So here are my questions...

Does my gyn seem incredibly laid back or is that normal? I mean how did we get from "do you want an ultrasound" to "we need to remove your ovary" in one month???

Why are they just planning on removing the ovary? Doesn't that mean if it is malignant they have to open me back up and look for more?? I hate surgery!

I don't mean to sound "whiny" I know that many of you have been through hell and back and I'm either just starting the journey or only peeking inside. I have just tried to blow it off so much for family and friends so that they don't worry. I need someone I can be "real" with.

And really...I'm not given to hypochondria...in fact I hate being sick. But for months my gut instinct has been that something is really really wrong. And everyone keeps saying "think positive". But I just want to find out what's going on so I can "think positive" about the best treatment and getting well!

Thanks for reading this. I'm sorry it was so long but I wanted to paint an accurate picture. I would be very interested to read anyone else's experience. Thanks again.

momspot