Fatigue and life

rjjj
rjjj Member Posts: 1,822 Member
edited March 2014 in Breast Cancer #1
I didn't know why..but i finally read the pint-out radiation sent home with me.. and i know it's true. It stated that although you are so tired it may not get better for a while. It said while you are going through treatment for cancer you do not react like the normal person to treatments.. even though you sleep you do not wake up rested like before ..you may still wake up tired as before!!! SUCKS but they did say fruits veggies and good nuitrion helps, along with stress free life etc.....we all no it.. but just to say we don't get the same rest we did/ love you, jackie

Comments

  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    At Least We Know
    Thanks for sharing this, Jackie. I didn't get a printout, just the standard ACS-type booklet with the same old stuff. Now I understand why I sleep all night and still feel tired. I was worrying about it. It's good to know I am reacting normally for a cancer survivor.

    How about you? I know you were fishing. How is the fatigue for you? Jeanne says she still feels more tired at times even now.

    By the way, I like the new photo of you and Jamie, too. It is dark, but I can still see you both. The mother-daughter resemblance is so clear. Beautiful smiles, both of you. But....did Jamie buzz cut her hair so you would have the same hairstyle, I cant' exactly tell...

    Love, Moopy the soon to be expert Napper
  • rjjj
    rjjj Member Posts: 1,822 Member
    Moopy23 said:

    At Least We Know
    Thanks for sharing this, Jackie. I didn't get a printout, just the standard ACS-type booklet with the same old stuff. Now I understand why I sleep all night and still feel tired. I was worrying about it. It's good to know I am reacting normally for a cancer survivor.

    How about you? I know you were fishing. How is the fatigue for you? Jeanne says she still feels more tired at times even now.

    By the way, I like the new photo of you and Jamie, too. It is dark, but I can still see you both. The mother-daughter resemblance is so clear. Beautiful smiles, both of you. But....did Jamie buzz cut her hair so you would have the same hairstyle, I cant' exactly tell...

    Love, Moopy the soon to be expert Napper

    I wonder how long
    it will be before i feel energy again!! I hope we will both bounce back quickly..i am tired of being tired. I am starting to learn how to spend my time and energy wisely, to let others help me and say yes only when i want to.

    I also try to get outside, fresh air and sunshine along with a little exercise (just walking so far) is supposed to help, along with good nutrition.

    I nap but wake up with no more energy than before. This will go away in time they say..i am just wondering how much time?
    jackie

    P.S. Jamie just has her long hair pulled back to a pony-tail.
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    rjjj said:

    I wonder how long
    it will be before i feel energy again!! I hope we will both bounce back quickly..i am tired of being tired. I am starting to learn how to spend my time and energy wisely, to let others help me and say yes only when i want to.

    I also try to get outside, fresh air and sunshine along with a little exercise (just walking so far) is supposed to help, along with good nutrition.

    I nap but wake up with no more energy than before. This will go away in time they say..i am just wondering how much time?
    jackie

    P.S. Jamie just has her long hair pulled back to a pony-tail.

    Me, Too
    Did you see the earlier post by Jan,Phoenixrising, about when will the fatigue end? Several responded. I am in the process of reading.

    It is just so hard, adjusting to this "new normal." Of course, you and I have just finished treatment--well, you have, and I am getting there--so we haven't had as much time to establish new habits. I sure never napped much before. Guess I will have to remember my grandmother. She was a napper, and lived until she was 84. Maybe we can nap our way to a healthy old age!
  • CR1954
    CR1954 Member Posts: 1,390 Member
    I believe......
    Boy, I believe that Jackie! I know that I never feel rested, even if I sleep eight hours.

    And HAHAHA to stress free!! OMG, I don't think I have had a stress free day in over a year. If stress is what kills you, I am not long for this world!

    CR
  • RE
    RE Member Posts: 4,591 Member
    CR1954 said:

    I believe......
    Boy, I believe that Jackie! I know that I never feel rested, even if I sleep eight hours.

    And HAHAHA to stress free!! OMG, I don't think I have had a stress free day in over a year. If stress is what kills you, I am not long for this world!

    CR

    Doubtful!
    Stress free????? Like one could have a stress free life after you are told you have cancer, not likely! I have a happy life, a joyous life, a fulfilled life, but not a stress free one it is always lurking in the inner most spots of my mind....it cannot have my joy though I simply refuse!

    Love you guys!

    RE
  • Jeanne D
    Jeanne D Member Posts: 1,867
    RE said:

    Doubtful!
    Stress free????? Like one could have a stress free life after you are told you have cancer, not likely! I have a happy life, a joyous life, a fulfilled life, but not a stress free one it is always lurking in the inner most spots of my mind....it cannot have my joy though I simply refuse!

    Love you guys!

    RE

    I agree with you RE!
    I am still carrying the fatigue after rads. And, it is just probably fatigue from just having bc again, losing my Mother and going thru all of the treatments, doctor appointments, you name it. But, I like RE, have a wonderful happy life and I enjoy each and every minute of it. I have the best husband in the world, a great family, wonderful friends and coworkers..I have it all! My faith in God also carries me thru my days and nights, always has and always will.

    I wish there was a way to get rid of all of the stress in our lives, mainly the occasional thought of when or where will the cancer rear its ugly head again. But, I choose to not let it affect my life nor my mood. I love my life too much and I won't let it ruin that! So, I just take it one day at a time, enjoying that day to the utmost. And, I cut out or leave behind the stuff that affects me badly. I just don't want it in my life. I choose to live, I choose to have the best and happiest life ever! And, I do!

    Love, Jeanne
  • Noel
    Noel Member Posts: 3,095 Member
    Jeanne D said:

    I agree with you RE!
    I am still carrying the fatigue after rads. And, it is just probably fatigue from just having bc again, losing my Mother and going thru all of the treatments, doctor appointments, you name it. But, I like RE, have a wonderful happy life and I enjoy each and every minute of it. I have the best husband in the world, a great family, wonderful friends and coworkers..I have it all! My faith in God also carries me thru my days and nights, always has and always will.

    I wish there was a way to get rid of all of the stress in our lives, mainly the occasional thought of when or where will the cancer rear its ugly head again. But, I choose to not let it affect my life nor my mood. I love my life too much and I won't let it ruin that! So, I just take it one day at a time, enjoying that day to the utmost. And, I cut out or leave behind the stuff that affects me badly. I just don't want it in my life. I choose to live, I choose to have the best and happiest life ever! And, I do!

    Love, Jeanne

    Ok, I am in! lol Tired, I
    Ok, I am in! lol Tired, I own up to it! But, I have been told that it is perfectly normal too for months or years also, after rads are done. There is nothing odd about that. It just happens. So, we just have to sleep when we can, nap if you can, and, take it easy. I think we all just try to get on with our lives so quickly after rads, that we forget what has just happened to our poor bodies. We need to pamper ourselves more!!!

    Hugs,Noel
  • CR1954
    CR1954 Member Posts: 1,390 Member
    Noel said:

    Ok, I am in! lol Tired, I
    Ok, I am in! lol Tired, I own up to it! But, I have been told that it is perfectly normal too for months or years also, after rads are done. There is nothing odd about that. It just happens. So, we just have to sleep when we can, nap if you can, and, take it easy. I think we all just try to get on with our lives so quickly after rads, that we forget what has just happened to our poor bodies. We need to pamper ourselves more!!!

    Hugs,Noel

    I wish.....
    I so wish that I could rest & pamper myself. But with my husband's health problems, I am having to do everything, from lugging trash cans to the curb, to mowing the lawn. Everything that he was doing has now become my job. Along with my own chores.
    I went from having time to nap and not having to carry anything heavy, to carrying 50 lb. bales of hay and napping once a week if I'm lucky.

    I have pretty much had to "get over it" in a hurry. However, I'm not liking it. There are days when I feel like I don't have the energy or the enthusiasm to get out of bed. I just get so tired that I could sit and cry. But you do what you have to do.
    Hopefully, I will last until my husband's health is restored.

    Okey dokey, have vented...lol!

    CR
  • padee6339
    padee6339 Member Posts: 763
    Jeanne D said:

    I agree with you RE!
    I am still carrying the fatigue after rads. And, it is just probably fatigue from just having bc again, losing my Mother and going thru all of the treatments, doctor appointments, you name it. But, I like RE, have a wonderful happy life and I enjoy each and every minute of it. I have the best husband in the world, a great family, wonderful friends and coworkers..I have it all! My faith in God also carries me thru my days and nights, always has and always will.

    I wish there was a way to get rid of all of the stress in our lives, mainly the occasional thought of when or where will the cancer rear its ugly head again. But, I choose to not let it affect my life nor my mood. I love my life too much and I won't let it ruin that! So, I just take it one day at a time, enjoying that day to the utmost. And, I cut out or leave behind the stuff that affects me badly. I just don't want it in my life. I choose to live, I choose to have the best and happiest life ever! And, I do!

    Love, Jeanne

    Me too RE!
    I was going to ask the same question - when do you stop feeling so tired? Everyone thinks that since treatment is over, I should be back to my old self, but I just get so tired and sleep so much. Nobody told me this would take so long to get over. I hope you are feeling better soon.
    Pat
  • jk1952
    jk1952 Member Posts: 613
    CR1954 said:

    I wish.....
    I so wish that I could rest & pamper myself. But with my husband's health problems, I am having to do everything, from lugging trash cans to the curb, to mowing the lawn. Everything that he was doing has now become my job. Along with my own chores.
    I went from having time to nap and not having to carry anything heavy, to carrying 50 lb. bales of hay and napping once a week if I'm lucky.

    I have pretty much had to "get over it" in a hurry. However, I'm not liking it. There are days when I feel like I don't have the energy or the enthusiasm to get out of bed. I just get so tired that I could sit and cry. But you do what you have to do.
    Hopefully, I will last until my husband's health is restored.

    Okey dokey, have vented...lol!

    CR

    CR, you have had enough

    CR, you have had enough stress lately for ten people! Any chance you could find a high school 'kid' who is out for the summer that might be able to help you out doing some things like slinging bales and mowing the lawn? The boys on break in our neighborhood are 'advertising' that they are available for hire. If they could just help a few hours a week, it might give you some break. Or, could you ask some of the people that say that they are always available to help, but you don't know what to ask them to do?

    Just a thought...

    Joyce
  • lolad
    lolad Member Posts: 670
    fatigue
    I am just 4 weeks out on having a double mastectomy and always feel exhausted. I havent even started my treatments yet, and it scares me to think my fatigue is going to get worse. How in the heck do we make it through all of this? It all is still so scary for me.
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    lolad said:

    fatigue
    I am just 4 weeks out on having a double mastectomy and always feel exhausted. I havent even started my treatments yet, and it scares me to think my fatigue is going to get worse. How in the heck do we make it through all of this? It all is still so scary for me.

    I think a lot of people do
    I think a lot of people do think that once our treatment is done, we should be back to normal, whatever that was. They just can't understand. And, I think we sometimes push ourselves to try and be that again, which we can't.

    We just need to give ourselves a break and take it easy.
  • CR1954
    CR1954 Member Posts: 1,390 Member
    jk1952 said:

    CR, you have had enough

    CR, you have had enough stress lately for ten people! Any chance you could find a high school 'kid' who is out for the summer that might be able to help you out doing some things like slinging bales and mowing the lawn? The boys on break in our neighborhood are 'advertising' that they are available for hire. If they could just help a few hours a week, it might give you some break. Or, could you ask some of the people that say that they are always available to help, but you don't know what to ask them to do?

    Just a thought...

    Joyce

    Thank you Joyce....
    That is a very good idea. I am going to ask around the neighborhood to see if there are any kids who would like to earn some extra money.
    Our daughter and her husband help when they can, but both work full time and have the two young kids.
    Our son, well, he hasn't been of much help.

    I console myself with the knowledge that this situation won't last forever. It's just temporary. And I really am sorry to complain here.

    Hugs,

    CR
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    CR1954 said:

    Thank you Joyce....
    That is a very good idea. I am going to ask around the neighborhood to see if there are any kids who would like to earn some extra money.
    Our daughter and her husband help when they can, but both work full time and have the two young kids.
    Our son, well, he hasn't been of much help.

    I console myself with the knowledge that this situation won't last forever. It's just temporary. And I really am sorry to complain here.

    Hugs,

    CR

    CR
    Oh, CR, you are not complaining but honestly sharing your life's concerns and worries as well as joys with us. You give so much of yourself to us without asking for anything in return. Please do bring your thoughts and feelings and, yes, burdens, here. How else can we help, or try to?

    Joyce does have a great idea. Also, local organizations may have services or can direct you, given your husband's condition. I am sure there are other heart patients who have similar limitations. At home, there is the Heart Institute; there may be something similar where you are. Kathi_M may have suggestions since Hans has a heart condition also. The ACS has all kinds of volunteers; surely the AHA does as well.

    Love, Moopy

    p.s. Too bad your Kenny is such a good boy. Otherwise, he could help by eating your lawn, as our Eefy does!
  • CR1954
    CR1954 Member Posts: 1,390 Member
    Moopy23 said:

    CR
    Oh, CR, you are not complaining but honestly sharing your life's concerns and worries as well as joys with us. You give so much of yourself to us without asking for anything in return. Please do bring your thoughts and feelings and, yes, burdens, here. How else can we help, or try to?

    Joyce does have a great idea. Also, local organizations may have services or can direct you, given your husband's condition. I am sure there are other heart patients who have similar limitations. At home, there is the Heart Institute; there may be something similar where you are. Kathi_M may have suggestions since Hans has a heart condition also. The ACS has all kinds of volunteers; surely the AHA does as well.

    Love, Moopy

    p.s. Too bad your Kenny is such a good boy. Otherwise, he could help by eating your lawn, as our Eefy does!

    Thanks Moopy......
    You are a sweetheart!

    I think that one of our biggest obstacles is in "asking" for help. Neither one of us is used to being incapacitated like we are. Very frustrating.

    I will be happy to pay someone to help me out. Otherwise, I'm not sure that I can ask anyone outside of the family.

    Thank goodness, hubby should be back on track in a couple of months. He can lift 10 pounds now...lol! I will be happy when he can lift a full garbage can!

    And I DO appreciate being able to vent a bit here because I would never say anything to hubby about not being able to do things. I've just been keeping it to myself until now...

    Haha! Kenny DOES nibble at the grass!

    Love ya!

    CR
  • DianeBC
    DianeBC Member Posts: 3,881 Member

    I think a lot of people do
    I think a lot of people do think that once our treatment is done, we should be back to normal, whatever that was. They just can't understand. And, I think we sometimes push ourselves to try and be that again, which we can't.

    We just need to give ourselves a break and take it easy.

    It would be nice if the
    It would be nice if the doctor's could tell us an exact date when our fatigue would leave. But, mine just says that it will take time. And, with rads, mine is only getting worse :(
  • susie09
    susie09 Member Posts: 2,930
    lolad said:

    fatigue
    I am just 4 weeks out on having a double mastectomy and always feel exhausted. I havent even started my treatments yet, and it scares me to think my fatigue is going to get worse. How in the heck do we make it through all of this? It all is still so scary for me.

    How in the heck do we make
    How in the heck do we make it thru all of this? That is a good question lolad. I don't know if there is a correct answer to that. We just do. And it is scary. I know I am still scared. :(
  • jk1952
    jk1952 Member Posts: 613
    susie09 said:

    How in the heck do we make
    How in the heck do we make it thru all of this? That is a good question lolad. I don't know if there is a correct answer to that. We just do. And it is scary. I know I am still scared. :(

    I think that we gain

    I think that we gain strength from the fact that we are doing whatever we can to kill the beast and prevent him from returning. If we didn't have a goal like that, I don't think that we could do it.

    Joyce
  • lolad
    lolad Member Posts: 670
    jk1952 said:

    I think that we gain

    I think that we gain strength from the fact that we are doing whatever we can to kill the beast and prevent him from returning. If we didn't have a goal like that, I don't think that we could do it.

    Joyce

    Amen
    Ha ha. I know im ready to fight it and beat it too. Whats wierd though is until i joined this discussion board, i didnt think i would be able to. But being able to share with people who know what its like and are so thoughtful and give great advise... all i can say is im so glad i found you all

    laura
  • Kylez
    Kylez Member Posts: 3,761 Member
    lolad said:

    Amen
    Ha ha. I know im ready to fight it and beat it too. Whats wierd though is until i joined this discussion board, i didnt think i would be able to. But being able to share with people who know what its like and are so thoughtful and give great advise... all i can say is im so glad i found you all

    laura

    Hi Lolad! I am so happy
    Hi Lolad! I am so happy that you feel that way. Yes, this group is amazing. And, welcome. Here you can say anything, ask anything, vent whenever or just read and learn.

    Hugs, Kylez