taste changes and chemo

confused123
confused123 Member Posts: 251
edited March 2014 in Breast Cancer #1
Hey all of you, just curious...I know tastes can change during chemo. I did 4 AC treatments and then 4 Taxol treatments with Herceptin. Finished Taxol last Tues!! Still on Herceptin. Since I started the AC I have not wanted any coffee...AAAAHHH it is my my lifeline, I need it. Will I get the taste for it back? Has this happened to anyone else? It happened to me for the first 5 months of all of my pregnancies but came back?
Thanks,
Kim

Comments

  • CR1954
    CR1954 Member Posts: 1,390 Member
    #2
    Hi Kim.......
    I also lost my taste for most foods, and I too am a coffee-holic! But nothing tasted right....except for baked potatoes.
    For some reason, they still TASTED like baked potatoes. And so, there were times when they were all I ate.
    Eventuallly, my taste came back. Awhile after finishing chemo. And I am still on Herceptin also.

    CR
  • confused123
    confused123 Member Posts: 251
    #3
    CR1954 said:

    Hi Kim.......
    I also lost my taste for most foods, and I too am a coffee-holic! But nothing tasted right....except for baked potatoes.
    For some reason, they still TASTED like baked potatoes. And so, there were times when they were all I ate.
    Eventuallly, my taste came back. Awhile after finishing chemo. And I am still on Herceptin also.

    CR

    I ate a ton of baked
    I ate a ton of baked potatoes! That is funny. I wanted them all the time with salt, butter and sour cream.
    thanks
    Kim
  • mgm42
    mgm42 Member Posts: 491 Member
    #4
    No Taste
    I had 4 infusions of Cytoxan/Taxotere. I developed a strange taste in my mouth so nothing tasted right. Everything was off. However, after about a month of being off chemo, my taster started working again. So, be patient. It should come back. Hang in there. Hugs, Marilynn
  • dyaneb123
    dyaneb123 Member Posts: 950
    #5
    mgm42 said:

    No Taste
    I had 4 infusions of Cytoxan/Taxotere. I developed a strange taste in my mouth so nothing tasted right. Everything was off. However, after about a month of being off chemo, my taster started working again. So, be patient. It should come back. Hang in there. Hugs, Marilynn

    I'm experiencing this right
    I'm experiencing this right now myself....can't drink coffee, tea, juice, fresh fruits and salad, it all tastes bad...the only thing that tasted good to me the first week after chemo was milk! white milk, chocolate milk, cottege cheese, yogurt....but I gave myself a bad case of diarea and the doc said no more dairy...LOL! So now it's bland white foods, potatoes,( I ate mashed potatoes for 3 days, bread, chicken soup,rice etc. for the most part but I'm starting to add back other random things...today I ate some fried chicken and it seems to be digesting ok...
  • confused123
    confused123 Member Posts: 251
    #6
    dyaneb123 said:

    I'm experiencing this right
    I'm experiencing this right now myself....can't drink coffee, tea, juice, fresh fruits and salad, it all tastes bad...the only thing that tasted good to me the first week after chemo was milk! white milk, chocolate milk, cottege cheese, yogurt....but I gave myself a bad case of diarea and the doc said no more dairy...LOL! So now it's bland white foods, potatoes,( I ate mashed potatoes for 3 days, bread, chicken soup,rice etc. for the most part but I'm starting to add back other random things...today I ate some fried chicken and it seems to be digesting ok...

    I still can't drink water
    I still can't drink water either. And besides coffee that is all I used to drink. Now I use drink mixes like crystal lite and 4c which have sweetner in the which i think are bad for us. Oh well what can we do.
  • dyaneb123
    dyaneb123 Member Posts: 950
    #7
    confused123 said:

    I still can't drink water
    I still can't drink water either. And besides coffee that is all I used to drink. Now I use drink mixes like crystal lite and 4c which have sweetner in the which i think are bad for us. Oh well what can we do.

    Yeah, I dont want water
    Yeah, I dont want water either....and I want REAL cokes...not diet which I NEVER DRINK!!!!
    But they taste pretty good now...
  • tasha_111
    tasha_111 Member Posts: 2,072
    #8
    dyaneb123 said:

    Yeah, I dont want water
    Yeah, I dont want water either....and I want REAL cokes...not diet which I NEVER DRINK!!!!
    But they taste pretty good now...

    Taste
    I too was a coffeholic prior to chemo, now I can't stand even the smell of it. I am 11 months out of treatment and still have the most vile taste in my mouth, I can now taste food and eat pretty much anything and everything.
    It might be the tamoxifen?

    Hugs Jxxxxxxxxxxx
  • confused123
    confused123 Member Posts: 251
    #9
    Oh boy Tasha, As a fellow
    Oh boy Tasha, As a fellow addict to coffee I feel your pain on that one. I do have to say I have gotten my taste back for lattes which helps in the caffeine department, now just need a latte maker! Anyway I need to take Tamoxifen so not looking forward to that as a possible side effect.
    Thanks for the info though
    Kim
  • Jan_M
    Jan_M Member Posts: 116
    #10
    confused123 said:

    Oh boy Tasha, As a fellow
    Oh boy Tasha, As a fellow addict to coffee I feel your pain on that one. I do have to say I have gotten my taste back for lattes which helps in the caffeine department, now just need a latte maker! Anyway I need to take Tamoxifen so not looking forward to that as a possible side effect.
    Thanks for the info though
    Kim

    During chemo I could not
    During chemo I could not stand coffee, now I am back to normal with that, but I use to love salmon and can not stomach it still.
  • jnl
    jnl Member Posts: 3,869 Member
    #11
    I didn't have to have chemo,
    I didn't have to have chemo, and, I am so happy that I didn't. I just want to tell all of you how very brave you are and how I admire you for going thru it. I can't imagine what all you went thru! You are truly brave warriors! :) Leeza
  • confused123
    confused123 Member Posts: 251
    #12
    jnl said:

    I didn't have to have chemo,
    I didn't have to have chemo, and, I am so happy that I didn't. I just want to tell all of you how very brave you are and how I admire you for going thru it. I can't imagine what all you went thru! You are truly brave warriors! :) Leeza

    Thank you. It always
    Thank you. It always surprises me when people call me brave. They say they couldn't do it. I say yes you could because it is not a matter of bravery for me it is a matter if survival and being here to watch my three duaghters growing up. No choice really in it for me anyway.
    Kim

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