lab questions

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Kathleen808
Kathleen808 Member Posts: 2,342 Member
edited March 2014 in Colorectal Cancer #1
Hi Everyone,
**** goes in for his 4th Folfox treatment tomorrow. He had blood lab work done today and we have a few questions. His white blood cell count has been continually falling and today it was 3.5K/ul slightly in the low range. What number do most people get or need a boost? The doc didn't say anything about it this time and we just want to make sure he is OK to go ahead with Folfox tomorrow. Other labs:

HGB 11.8 (low)
HCT 35 (low)
AST 38 (slightly high)

Other than that he is doing very well. He is still running and surfing even though he gets tired more often. He has maintained his weight and he looks real healthy.
Thanks for any input on the labs.
Aloha,
Kathleen

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  • maglets
    maglets Member Posts: 2,576 Member
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    numbers
    Hi Kathleen ....good for **** ....sounds like he is doing well. I wish I could help but my numbers look so different...my hemoglobin was 126 my platelets 177 white cells 5.3 and Neutrophils 2.8 I have no idea if you can translate these.

    I am off for blood Wed and hopefully round 5 of oxy and xeloda on Thurs.

    good luck with those blood numbers ****

    hugs
    mags
  • dorookie
    dorookie Member Posts: 1,731 Member
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    Sorry
    I cant help with your question, but wanted to say hello and so glad to hear **** is continueing on with what he loves. I am sure this will help with his recovery and being NED. Glad to hear he is doing so well, keep up the great work. Hope you and your kids are doing as well too.

    God Bless
    Beth
  • taraHK
    taraHK Member Posts: 1,952 Member
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    neutrophil
    My oncologist looks at it all but, like ****, it was usually my white blood cells that got hammered. The "cut-off" for me was a neutrophil count of 1.5 (below = no chemo that week). Reference range around 1.4 - 8.5. But I don't know if your labs are using a similar scale/range.

    I guess HCT is hematocrit? Mine is 34.9 today (I'm looking at my results! Going to see my onc in a few minutes). Lab reference range is 35-47. I know my onc won't even blink at that. Can't help with the others. Woops If HGB is hemoglobin, mine is 12, ref range 11.5-16.5. Oh, and my overall WBC is 3.9 (ref 4-11). This wouldn't stop chemo for my onc.

    I'm not a doc, every lab is different -- but counts look pretty good to me :). Glad to hear **** is doing so well. Runny and surfing - yea! I'm on Xeloda alone at the moment. Some fatigue and some foot/skin problems but otherwise good, and still exercising.

    Good luck!

    Tara
  • PhillieG
    PhillieG Member Posts: 4,866 Member
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    Lab info
    I'm sorry that I really do not know what my blood work numbers are. I have never in my well over 150 chemo treatments had my treatment held up due to blood work. They always comment on how good my numbers look. I really would like to know just what they are. I will try to find out next time. I am sorry, I'm not trying to brag. I have my own issues and side effects. Who knows, maybe I'm borderline and they are pulling my chain.

    It's great that **** is surfing and running. that has to be doing a lot of good for him. I know when I do get my butt out there and kayak a bit, I always feel better for it. It is hard to be motivated or when I am, I feel too tired.

    I hope that you guys work on getting NED.
    Hopefully I can be more helpful on another topic or visa versa.
    -phil
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
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    thanks
    Hi,
    Thank you for your continued support. It is so good to know that you are there with support and good advice. **** is going to take Emend for the first time tomorrow so we'll see if it takes away some of the nausea he has that first week.
    Aloha,
    Kathleen
  • PhillieG
    PhillieG Member Posts: 4,866 Member
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    thanks
    Hi,
    Thank you for your continued support. It is so good to know that you are there with support and good advice. **** is going to take Emend for the first time tomorrow so we'll see if it takes away some of the nausea he has that first week.
    Aloha,
    Kathleen

    Emend
    Not for nothing (is that an expression??) I've tried it, it's OK but VERY expensive. There is an old herbal remedy that works a thousand times better that is grown in Hawaii I believe. No, and it's not pineapples either. Some (many states) outlawed it but it works the best. Hands down...
    Just my opinion.
  • taraHK
    taraHK Member Posts: 1,952 Member
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    thanks
    Hi,
    Thank you for your continued support. It is so good to know that you are there with support and good advice. **** is going to take Emend for the first time tomorrow so we'll see if it takes away some of the nausea he has that first week.
    Aloha,
    Kathleen

    Emend
    Good luck to **** with this round. And good luck with the Emend. That is what I was on. it was 'the best', for me -- but I still had some nausea. But no vomiting. GOOD LUCK! and best wishes

    Tara
  • maglets
    maglets Member Posts: 2,576 Member
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    taraHK said:

    Emend
    Good luck to **** with this round. And good luck with the Emend. That is what I was on. it was 'the best', for me -- but I still had some nausea. But no vomiting. GOOD LUCK! and best wishes

    Tara

    nausea
    I have been sick....just nausea but not vomiting all month. Unfortunatley my onc is away on mat leave. I want to ask for something else....i have been using meteclop///SP? and it does not help....I thought I might ask for zofran because so many people here seem to be on it .

    Also right at the end of my cycle....21 days.....I get really down and don't want to do much...I can't tell if this is depression about being infused with the oxy in another 2 days or the threat of doing blood and having it really low or just plain low at the end of the round.???

    any thoughts?
    mags
  • taraHK
    taraHK Member Posts: 1,952 Member
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    maglets said:

    nausea
    I have been sick....just nausea but not vomiting all month. Unfortunatley my onc is away on mat leave. I want to ask for something else....i have been using meteclop///SP? and it does not help....I thought I might ask for zofran because so many people here seem to be on it .

    Also right at the end of my cycle....21 days.....I get really down and don't want to do much...I can't tell if this is depression about being infused with the oxy in another 2 days or the threat of doing blood and having it really low or just plain low at the end of the round.???

    any thoughts?
    mags

    end of one round beginnin of another
    Hi Mags,

    I can't answer for you, but I used to get very low just before starting a new round -- that sort of "here we go again" feeling. It's hard. I used to cry, only in front of my husband, the night before I started a new round. It's hard. I'd tell myself: all I have to do is get myself to cross the threshhold of the hospital -- then it just unfolds. Could also be fatigue at ending one round, tho. Can you start a "happy ritual" right at this stage? I got some coupons for treatment at a spa and treated myself to a massage, facial or manicure right before each new round.....something like that??

    Love,
    Tara
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
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    PhillieG said:

    Emend
    Not for nothing (is that an expression??) I've tried it, it's OK but VERY expensive. There is an old herbal remedy that works a thousand times better that is grown in Hawaii I believe. No, and it's not pineapples either. Some (many states) outlawed it but it works the best. Hands down...
    Just my opinion.

    I hear you
    Hi Phil,
    Hawaii law is stuck in an unworkable place on this issue. I firmly believe the pharmacutical companies are behind the lack of supportive legislation in this area. Medical use is legal in Hawaii but there is no legal way to acquire it. (Go figure the fools who did this. )

    Thanks for always giving good input.
    Aloha,
    Kathleen
  • CherylHutch
    CherylHutch Member Posts: 1,375
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    maglets said:

    nausea
    I have been sick....just nausea but not vomiting all month. Unfortunatley my onc is away on mat leave. I want to ask for something else....i have been using meteclop///SP? and it does not help....I thought I might ask for zofran because so many people here seem to be on it .

    Also right at the end of my cycle....21 days.....I get really down and don't want to do much...I can't tell if this is depression about being infused with the oxy in another 2 days or the threat of doing blood and having it really low or just plain low at the end of the round.???

    any thoughts?
    mags

    Nausea and stuff
    Hey Mags,

    I'm trying to think back when I was on my FOLFOX treatments. I remember that the steroid they gave me for the days I was on the pump (which I can't pronounce the name, let alone spell it... but I think most of us have been on it)... that steroid really did the trick for me, in more ways than just nausea. But there were a couple of days or evenings where I could feel that darn feeling of nausea coming on. I had no idea if it was going to develop into full blown vomiting or just remain as nausea. On those times, I admit I would take a puff or two of the BC herb and in all seriousness, I could literally feel that ball of nausea in the pit of my stomach just dissolve and fade away. I didn't over do it, just a puff or two. I am NOT a smoker, so it's not something I make a habit out of. But then, I don't make a habit of taking steroids either :)

    Now... as for the mood swings, especially as you are getting close to starting a new cycle. Ha! Is it any wonder you don't get a case of the blues, knowing you are about to be infused with that darn oxy AGAIN?? The oxy was the worst chemo for me to handle... it created all sorts of toxicity in my system. No matter how upbeat one is normally (and you are one of the most upbeat people I have met on this here board!), one can not be upbeat about facing another round of the poison that is going to save us.

    I can't remember... have you tried "Ativan" at all? I am no doctor so I would not go by this one suggestion but see if you can talk to one while your onc is on Mat leave and get him/her to prescribe you a mild anti-depressant med. I have used Ativan and found it really helped with the mood swings... just sort of balanced everything out so that I didn't dread the next treatment.

    Something to at least talk to a doctor about and see if they think it might help.

    Hugggggggs to you my friend!!

    Cheryl
  • maglets
    maglets Member Posts: 2,576 Member
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    sorry **** and Kathleen
    I am so sorry kids for hogging your thread. Did I just say hogging? Now I am starting to fuss about swine flu and how vulnerable all we chemo persons must be.

    I will list and let you know tomorrow Kath how my labs are and maybe that will help you. I am so glad that **** is able to keep running and surfing...I know that activity helps for sure.

    Thanks Cheryl and Tara. fist i know you are right Tara ,once you get to hospital and get started usually the jitters are over. Maybe it is a good idea to try somethin nice for today....at least the sun is shining so that's good. And thanks to you Cheryl I think I will ask for an extended steroid period....it's just 2 days now but I know you can have them stepped down over the course of a few days and that should help with the nausea.

    best love to everyone
    mags
  • NWGirl
    NWGirl Member Posts: 122 Member
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    Emend and Steroids
    For me I couldn't have gotten through FOLFOX w/o Emend - it was a life saver. I still got nauseaus, but w/o Emend I was literally flat on my back - couldn't move a muscle, fatigued. As for the steroid I got, dexamethazone (sp?), it never seemed to do much for me. Then one day I realized I was experiencing bouts of short term depression - about 5 days in length after chemo treatments. This was after the doctor increased my dex in an attempt to relieve some of my nauseau. It was very upsetting - so I dropped it cold turkey. The depression went away immediately and the nausea was no worse. I know for a lot of people the dexamethazone really helps - but not for me.
  • maglets
    maglets Member Posts: 2,576 Member
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    dex
    wow! thanks NW....that is sometihing to think about. I have not had the heart to ask for emend. Our facility seems to think you have to be on your last legs to get it, As for the dex I know that is exactly what I take for the first 2 days and then I have a crash so I will have to give this stepping up the dex some thought.

    thanks so much for the help
    mags
  • CherylHutch
    CherylHutch Member Posts: 1,375
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    NWGirl said:

    Emend and Steroids
    For me I couldn't have gotten through FOLFOX w/o Emend - it was a life saver. I still got nauseaus, but w/o Emend I was literally flat on my back - couldn't move a muscle, fatigued. As for the steroid I got, dexamethazone (sp?), it never seemed to do much for me. Then one day I realized I was experiencing bouts of short term depression - about 5 days in length after chemo treatments. This was after the doctor increased my dex in an attempt to relieve some of my nauseau. It was very upsetting - so I dropped it cold turkey. The depression went away immediately and the nausea was no worse. I know for a lot of people the dexamethazone really helps - but not for me.

    Dex!
    Yes! That's the steroid I was talking about but couldn't remember the name or how to pronounce it (dex is so much easier) :)

    And, like any med, prescription or "natural", people are going to react differently, which is probably why doctors will say there are so many meds out there to combat side affects, it's just a matter of finding the ones that will work for you.

    The dex worked miracles with me. Not only were my bouts of nausea very minimal, what I really noticed was the dex totally eliminated my arthritis. Seriously! I could actually walk up and down stairs like a normal person, one foot in front of the other... vs the taking the stairs one stair at a time when not on the dex. The muscle/joint aches totally disappeared so I was probably one of the few people who became more active physically/mentally while ON chemo than off of chemo. I begged my oncologist to pleeeeeeeease let me stay on the Dex 3 days every two weeks even after I had finished the chemo because just being on it for 3 days out of 14, it kept me agile. But alas, she wouldn't go for it. She said that steroid use, over the long term, can cause more problems that it fixes. Apparently with long term use of Dex, it can cause diabetes (???). How a steroid causes diabetes is beyond me, but apparently that is so.

    So, to find out that it can cause depression, although I didn't experience that, it doesn't surprise me. I figure any med that is that impressive that I think of it as a miracle med, then it has to have some drawbacks.

    So Mags... like increasing or decreasing any med... it's best to give it some thought, find out the pros and cons and, if you only had a doctor that you could discuss this with right now. Grrrrr! We have to get you a doctor who isn't off birthin' babies or having babies themselves :):)

    Hugggggggs,

    Cheryl
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
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    maglets said:

    dex
    wow! thanks NW....that is sometihing to think about. I have not had the heart to ask for emend. Our facility seems to think you have to be on your last legs to get it, As for the dex I know that is exactly what I take for the first 2 days and then I have a crash so I will have to give this stepping up the dex some thought.

    thanks so much for the help
    mags

    Hi Mags
    Hi Mags,
    Don't be silly about "hogging the thread". The truth of the matter is I can't keep one thought in my head for long and I don't have the excuse of chemo-brain.
    **** is getting the dex and this time he took the Emend. Yesterday was day 1 and he says he doesn't feel a difference but he felt good enough that we took a 4 mile walk in the afternoon. It will be interesting to see how he feels the rest of the week. Usually he feels his worse on days 3 - 5 (I think the dex stays with him for a few days.). I'll let you know.
    I hope you start to feel better. Also, if you need the Emend...... ask for it! No need to suffer, really.
    Take care and enjoy the Spring!
    Aloha,
    Kathleen
  • maglets
    maglets Member Posts: 2,576 Member
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    Hi Mags
    Hi Mags,
    Don't be silly about "hogging the thread". The truth of the matter is I can't keep one thought in my head for long and I don't have the excuse of chemo-brain.
    **** is getting the dex and this time he took the Emend. Yesterday was day 1 and he says he doesn't feel a difference but he felt good enough that we took a 4 mile walk in the afternoon. It will be interesting to see how he feels the rest of the week. Usually he feels his worse on days 3 - 5 (I think the dex stays with him for a few days.). I'll let you know.
    I hope you start to feel better. Also, if you need the Emend...... ask for it! No need to suffer, really.
    Take care and enjoy the Spring!
    Aloha,
    Kathleen

    emend
    well I got up the nerve to ask for emend and I received it but I can't say I see a huge diff yet either. I am still on the dex but they did step it down over 4 days instead of the 2. I agree with **** my worst days seem to be 3 to 5 or 6ish....getting worse as the treatments go on. My blood counts were actually up yesterday...hemo. 131 platelets 190 white 5.9 and neutrphils 2.9

    cold here today so no walks....neuropathy just typing

    take best care,
    mags