Gleevec experience wanted for DFSP

quebec09
quebec09 Member Posts: 4
edited March 2014 in Sarcoma #1
Has anyone out there had a regiment of Gleevec to curtail a DFSP mass? I know it is rather rare as surgery (wide local or MMS-Moh's) is generally first used. Gleevec is then used for metastatic or recurrent DFSP, but also at first, for UNRESECTABLE DFSP. In case someone has a very tricky location of the tumor, Gleevec is then recommended as a first line treatment. I read a few studies on it, from the net, but I am really seeking someone with personnal info. Thank you.

Comments

  • rubfred
    rubfred Member Posts: 1
    gleevac for dfsp
    I knew someone who had a tumor that had recurred so much that surgery could no longer be done as the bones were so weak.gleevac has arrested her tumor for over a year.she is really happy about this.