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pancreatic lymphoma

Posts: 2
Joined: Apr 2009

I have pancreatic lymphoma, which apparently is very rare, although potentially a better prognosis than the usual pancratic adenocarcinoma. However, I can't find much information asbout this. Anyone out there with any experience with this?

cbates's picture
Posts: 1
Joined: Feb 2010

October 2008, I went in to the doctor for my routine blood work to re-nu my blood pressure medicine. I was a healthy 49 year old male other than high blood pressure. My liver enzymes were off the chart so they did a sonogram. The test reveled a mass on my pancreas. After a cat scan, my doctor informed me I needed a surgery called a Whipple Surgery. We scheduled the surgery for 10 days later, November 12, 2008. The best day of my life was the day before surgery that I spent with my wife. We laughed, cried, prayed and cried some more. My last meal before surgery was with my wife at a greasy bait shop/restaurant. The surgeon told me my surgery should take about 3 hours. I remember the doctor said if the cancer had spread too bad he would just close me up and start Chemo and radiation. I saw the clock before they put me under and was relieved when they woke me up and I saw it had been about 3 or so hours. I remember a nurse telling me in ICU that the first 3 days would be really tough. After that, each day would be better and better she said. ICU was the worst experience for me. I did not sleep and spent most my time watching the clock and waiting until my wife and children could come see me. My recovery has been remarkable. It was not easy but God has really answered prays in my favor. I remember crying after 10 days when they put that beautiful piece of jello in front of me. I remember crying the first time I got to sleep in my own bed. We celebrated every time they removed a tube. I had trouble sleeping in the hospital and at home so my wife would hold my hand until I fell asleep. I had a pain on the scar line and it felt like a ridge. I was afraid they left something in me. I would tell the doctor and he said it was normal. I looked online at a message room similar to this one and discovered he was right. While in the hospital God answered another prayer. The results came back as Lymphoma. Very good news for me and my family. I have been through 6 rounds of intense chemo over 4 months. I went 4 months of no chemo and now I have just finished my second round of chemo where I go once a week for 4 weeks. In 4 months I will begin the 4 week treatment again. I will undergo this treatment for 2 years. My latest scan shows no sign of cancer at all. I only lost about 25 pounds from the time the mass was discovered until Chemo started. I have gained about 15 of that back. I do have trouble with diarrhea from time to time. I have discovered beef (anyway it's cooked) does not sit well. My experience was not a pleasant one at all but with God, my wife and 3 children, church family, friends and relatives by me, I am a survivor.

Posts: 1
Joined: Mar 2013

Hi, I just got on this site today, and saw your post, even though it was in 2009, I wanted to let you know my story. I was diagnosed with pancreatic lymphoma on April 2, 2001, I am almost now a 12 survivor...praise God! I went into the emergency room for server pain and uncontrollable vomiting, they admitted me right away, I had needle guided biopsies that afternoon, they were sent out to 3 different labs. I was being setup to be transported to UCLA, for the Whipple surgery, when the results started coming back, 2 of the labs were showing lymphoma cells. A UCLA oncologist came in to see me, and was explaining my results, he, and all of other staff, were shocked by the results, even at UCLA, they had only every seen this type of lymphoma one other time. My tumor was a 7 cm mass, tennis ball size, at the head of the pancreas, aggressive, large cell-type B, stage 2.

I remained in the hospital for 14 days, and had my first CHOP with R. I had 8 cycles, and I have been cancer free since then. I did contact a viral pneumonia after my 2nd chemo, that was horrible, but I'm here today, thanks be to God and UCLA. My oncologist said to me, “My job is to get you well, and your job is to do what I tell you to do”...after that, I never doubted that I wouldn’t get well, It’s a battle, but there is too much to live for...

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