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UPDATE on the Good news on my PET Scan-NED

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

Hello, me again... I spoke with the ONC's office about the result of the PET Scan from Friday and they said there was no evidence of cancer reoccuring and no mets. So, that is NED from that point of view. I was able to move my meeting up to the ONC to about an hour from now as he wants to speak with me about something in my left ear (I've lost hearing there and do wear a hearing aid) and the s can showed a non-calcified nodule in my left lung. I was told that many people have these and it could be from something earlier like pneumonia or some other scar tissue. I did have pneumonia several times, once bad enough to put me in the hospital for three days. But I'm a non-smoker and have had no other issues with my lungs.

I thought the hearing loss was due to too much jet noise, gunfire and cannonfire from the Navy. Who knows. I'm just happy about the NED right now.

So onward and upward.-Mike

UPDATE: Just got back from the ONC's office. Definitely NED. The ear issue was a cyst. The node in the lung is very small, and he doesn't think it is cancer. It is about 2x3mm. He's very cautious and wants me to see a lung doc about it as well as an ear doc to check out the cyst.

However, this was interesting to me. On Jan. 15, I got tripped up in some chicken wire on a construction sidewalk and took a nasty spill, no chance to prep for a hard fall. And it was hard. I knew I bruised my ribs at least, but he said today the PET scan showed that I had fractured two ribs.

krystiesq's picture
krystiesq
Posts: 242
Joined: Jun 2008

Simply wonderful news.

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

That is good news on your scans! NED is a great friend! Good luck with your ear thing, maybe he can refer a ear/nose/throat guy that can improve your hearing!
mary

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

Thanks for your comments. BTW, that is a beautiful child you're holding on to. Reminds of me my own. Boy or girl?

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

For the double compliment! Actually that is my soon to be 25 year old daughter holding her daughter, Laci! She was 4 months old yesterday! She is just a cutie pie!
mary

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Well Mike, this is great news. I need some right now! I am glad for you.

I have hearing problems as well. My oncologist said he thought it was because of the chemo, but I told him I have been deaf in one ear (75%) since I was 13! He was surprised. I guess I forgot to tell them that on my history....

Doing the happy dance for you! Vicki

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

See the update I added to my original message. The ear issue is a cyst under the skin or something. your support is greatly appreciated and you know mine concern and hope for you is equal. I just can't get over the people on this board. We've all seen the beast or a relative has and it's a common bond.

I don't think the cyst in the ear is related to the cyst, just as I surmised earlier it's probably service related.

Love that happy dance. I'm feeling a case of happy feet myself!

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

YEA YEA YEA YEA YEA YEA YEA!!!

NAKED HAPPY DANCE!!!!

Hugs, Kathi

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trainer's picture
trainer
Posts: 242
Joined: Sep 2008

My two broken ribs hurt too much to jump for joy, at least for a couple more days. Thanks for your encouragement and great words. You all are so encouraging that it is really humbling.-Mike

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

I'm hoping your dancing on the coyote bar. Appreciated the other email. I had a big handful of blue wrist bands, so I passed them out to the ONC staff to do what they wanted with them. Hope they give them to some cc victims. I had to laugh a bit today. I got off the elevator to go to the ONC office and there were four adults lined up right in front of the opening door and all were very glum looking. I figured they'd come from the ONC office. So, I just spoke right up and thanked them for meeting me at the elevator and how appreciated it was and shook one guy's hand. I think I shocked them, but it did get them smiling a bit, probably wondering who the looney character was coming off the elevator. See, I told you your cheery attitude rubbed off on others. I remember back when the cancer journey began and was in the recovery room at the colonoscopy office, when they were encouraging us to break wind to get the gas out before we could leave. It was like a bunch of calling birds and we all were laughing. And then a nurse pulled open the curtain in my space and said, Mr. Walker, you ROCK! After that, we all cracked up for real and left. Little did I know that the polyp snipped out by the GI would get all the cancer. Amazing. Wished I'd have known then. Hindsight is best. Oops, I just did a pun with the hind sight.-Mike

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Mike said "then a nurse pulled open the curtain in my space and said, Mr. Walker, you ROCK!"

When hubby went for his colonoscopy (two weeks after I was DX'd!) the nurse told me I'd better get him outta there fast, becuase he was making all the other patients jealous with his noises! PLUS he snores, so they were happy to see him go...of course, I was more delicate when I had my procedures!!

All these notes are so encouraging. I am beginning to have hope that when they cut 'Fred' out next week, that will be that! Of course, I have to have the mop-up chemo, but I can take it...

Vicki

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

Good luck next week. Just remember Isiah 40:31, my favorte--You shall mount up on wings like eagles, you shall run and not be weary!

I think i'm going to pitch the colonoscopy center to do a newsletter and we'll call it "Hindsight"; what fun that would be to come up with additional goofy names for the different departments or columns. We could have a horoscope column and call it--Flatulence Rising! The editor's column could be called The Poop Deck. And the center's slogan could be "We're behind you all the way"!

Oh we can call the editor Ned Boarp. This, of course stands for No evidence of disease and the last name stands for Besides Other Age Related Problems. Publisher of course would be Ben Dover.

And finally, our cheer or chant can be BOHICA, which of course stands for Bend Over, Here It Comes Again!

OK, everyone, your turn to come up with goofy stuff stuff. We need more editor names and departments.

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

OK, as a publisher and editor, I'll play. Besides, Fred is Dead so I don't have to worry about him!

Executive Editor: Noah Moore Dres (digital rectal exams)

Publisher's Assistant - A. Gain (bend over again)

Vicki

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

I like your spirit! I saw one of your messages to someone and in it you were discussing quilting and one of you wrote something about "quilt SEWERS (caps are mine) and I thought, Yuck, as in sewage? Then I realized it was just one of those great words in our language that can be interpreted in different ways.

As a brain refresher, I came up with a fake magazine title called Popular Tugboating. Even had our artist make up a logo and business cards. It became an inside joke among the boating writers. The publisher was H. Melville. Electronics editor was Sparky Watt, sailing editor was Rebecca Shoals, and other names like Lee Helm came up. Way too many to remember. Sometimes begin silly helps me get through the day. Trouble is, these days are starting to require more silliness. We'll all be like the movie One Flew Over the Cookoo Nest. And sanity will not be recognizable.

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

That's just awesome! Dance all day and night!

*hugs*
Gail

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Mike,
Wonderful news! I bet you don't even care about the ribs. So glad to hear that you are NED.
Aloha,
Kathleen

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

Thanks for your comments. i understand from reading the site that your husband had surgery and a lot done internally. Hope his recovery goes well. I too had to learn about pain management and anticipate needing the painkillers. I was afraid of addiction, but then the pain got to where I figured it would be easier to get off the addiction if it happened than to deal with the pain. Wrong. I still didn't use as much as was authorized. It really helped me tolerate being in the rack for the week.

You're right, I don't think about the ribs and with the good news, I tend to forget about the broken ribs. At least I did until my wife, Mary, forgot about the ribs and playfully poked me in the ribs today. That did get my attention and was painful.

Take care and urge your husband to not try to get back to work so quickly. Everyone does and everyone regrets it.

You'll have to join in on helping create our fake colonoscopy newsletter entitled "Hind Sight" It's slogan is "We're behind you all the way"

MoonDragon's picture
MoonDragon
Posts: 194
Joined: Jun 2005

Congrats on being NED, I'm so happy for you!!
It's amazing that you didn't feel more pain in your ribs! Hope you're feeling much better soon!

Jorie

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

Appreciate your comments, not only to me, but to others. Get this, when I read the PET Scan report it said I had THREE fractured ribs. The ONC in error said I had two.

hopefulone
Posts: 1048
Joined: Jan 2007

AWESOME! Congrats, God Bless, Diane

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

A truly amazing story, I am so happy for you! truly amazed and so glad you are NED!

Congratulations!

~Donna

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

Thanks. Hey, you need to keep taking it easy. I get a kick out of your photo, it looks like a record cover. If your name is Donna, what is Shayenne all about? Maybe you ought to be Ms. Buckeye!

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

I use it as just a nick on some sites, Shayenne is 2 of my daughters names put together, I couldn't think of anything else on sites, when I didn't want to use my real name. Shana is my 13 year old, Cheyenne is my 12 year old, so I put Sha and yenne together from their names to get it...

The photo was taken at a nightclub, I usually take horrible pics, so it was the only one I can find where I'm actually smiling normally haha...

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