Good day all.. I had my first experience with a well-differentiated liposarcoma in my retroperitoneal area in September 2006. This bugger took the better part of 8 hours to remove . My doctor was a uroligest who performed a fantasyic job removing the toumor wirh out damaging the package or any internal organs. My recovery was a long hard road mostly due to the extent of the surgery in the abdominal area.
I was diognosed with a second toumor four months later in the same area. Although this toumor may have been part of the first the fact remained that it needed to be removed. My second surgery was performed in NYC at MSKCC exactly one year after my first. The surgery was 10 hours with great success. My recovery was much faster largley due to the surgical skills and my attitude that I did not want to be there any longer than I had to.
Both surgerys were abdominal entry. The first toumor was removed from my prostrate, uretha, bladder and a few other bits here and there. The second toumor was removed from my uretha, bladder again and very close to my rectom wall.
Now 18 months later I am diagnosed with yet another bugger in me. This toumor is located along my rectom wall and can be felt with a physical exame. The operation will be from the back end this time. The surgery will remove the coccy bone and with great hope have access to the toumor with out abdominal entry. With fingers crossed the removal of the toumor will be unremarkable and no other resections or complicated surgery will be needed.
The liposarcoma I am dealing with is one that can grow at will and seem to be resident in my Retroperitoneal area. Chemotheropy or radiation have yet to be recommended by MSKCC. My first surgen recommended radiation but not without possiable complications to my intestines, bladder and bows. I had a second opinion in NJ at HUMC and radiation was recommended but not a guarantee that it would have any affect with this cancer.
So it seems at this time that repeated surgery is the only option. I am focusing my positive mental attitude in a direction that will keep my mind and body healthy and fit.
I can not tell you how disappointed I feel because I feel to lucky to be disappointed if that makes any sence. I as others are delt a hand of cards and we have to play the game with what we have. From what I have researched my sarcoma will came back and I will need another surgery and I will face it with the realisation that life has its moments.
It any one has any information to share about this cancer I would be more than greatful to you for it.