Sep 10, 2008 - 11:35 pm
My husband had head and neck cancer stage 4a, but the doctors could not find exactly where the cancer started. We were at one of the best Chicago hospitals with excellent doctors, whom we have much faith in. Husband was diagnosed based on the lymph node involvement in his neck. Two of the three nodes in the neck were malignant. He has squamous cell carcinoma somewhere in his head and neck. The doctors took several exploratory biopsies of the area and could not find the primary source of his cancer. Brain cancer and lymphoma (etc) was all ruled out. I still find this uncomfortable and I was wondering if anyone else had this experience.
I read several of the discussions and everyone seems to know the source of their cancer. The doctors successfully treated my husband for 7 months of chemo and radiation to the general area. They said he would receive the same treatment plus one extra chemo than if they knew where the primary source was. He was part of a study group. It has been 8 months out of treatment and he is cancer free. Thank God. I witnessed how difficult this treatment was first hand and have read many discussion boards. I am grateful for how well he handled the side effects of treatment. He somehow avoided a feeding tube, but he lost 50 lbs. Thank heaven he was a bit overweight to begin with.
I would like to hear from anyone that has had any experience similar with stage 4a H&N squamous cell carcinoma cancer, or from anyone whose doctors never found the primary source of their H&N cancer. This scares me. In the meantime, I will be praying for everyone on the discussion boards. It really helps... 'the power of prayer.' And you have helped me just knowing we are not alone. Thanks.