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terminal follecular lymphoma

aussiedeb's picture
Posts: 5
Joined: Aug 2007

i have been given 2 to 3 months of life left, doctors say there is nothing more they can treat me with,i have had 8 chop, with mabthera""rituximab"" + 2 eshsap treatments, thats 5 days 24/7 chemo and now vicomicin 1 treatment weekly,with steroids, it started off with a tumor in upper bowel, that was size of a grapefruit,it encased whole upper bowel,rare called ="sclerosing mesenteritus" the tumor was infected with the cancer cells,, and as my glands were in the middle of tumor,all my lymph glands were infected also, i had been treated for diabeties for 4 years previouse,,and now they have found out its been the cancer all along,no diabeties, it has now mutated into a very agressive cancer and spread into my collar bone,,shoulder,hip,,and arm, all on left side of my body,,the glands still infected,mainly throat groin, an stomach,,none of the chemos have done anything,to the cancer except make it mutate,it has actually made it worse, they colected my stem cells 3 months ago,but cannot use them untill my body shows some sighns of being effected by the chemo,? weird hun, if there are any other treatments out there that someone else has had,,with a very similar cancer,,please please let me know what it was , and if it even slightly helped,,2 months is not long,,and i will try anything to give me even 3 or 6 more months,,,please send any messages asap,,as i havent got time to sit and wait for them thank you all, aussiedeb,

Posts: 1560
Joined: May 2006


You may want to contact the American Cancer Society's National Cancer Information Center. They can be reached 24 hours a day and can assist you with your questions. They can be reached at 1-800-227-2345 or by clickin on the "Contact ACS" at the top of this page.

I wish you the very best with your treatments.

Take care and be well,

CSN Dana

Posts: 37
Joined: Dec 2007

Your oncologist could try this. This drug is only available from the FMFs Compassionate Use Program:

Their website link is:

2003: Glucocorticoid Cotreatment Induces Apoptosis Resistance toward Cancer Therapy in Carcinomas1

“....In conclusion, GCs are widely used in high doses in the therapy of leukemias and lymphomas and are also used as antiemetics or preservatives for normal cells during chemotherapy of solid tumors. In addition, GCs are among the most widely used anti-inflammatory drugs. In this study, we have shown that application of GCs renders certain tumors resistant or less susceptible to apoptosis after cancer therapy. This finding urges to carefully reconsider the widespread use of GCs in almost all treatment protocols for patients with solid cancers. In the clinical setting of cancer therapy, e.g., in antiemetic regimens, corticosteroids are usually given transiently to suppress acute side effects of cancer therapy. Although our experiments did not mimic precisely the clinical situation because we administered DEX daily to achieve steady-state levels, short-term exposure to DEX may nevertheless be sufficient to abrogate or diminish the efficacy of concomitant chemotherapy in cancer patients in vivo. This is suggested by our experiments where DEX was found to down-regulate basal and cisplatin-induced expression of apoptosis effectors within 24 h in vitro. Also, endogenous levels of GCs and those existing as a consequence of administered hormones may render solid tumors less susceptible to apoptosis after cancer therapy. The administration of steroid/receptor agonists such as RU486 might be beneficial before chemotherapy and radiotherapy to enhance cell death of solid tumor cells.

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