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Stage III & IV Survivor call !!

alta29's picture
alta29
Posts: 435
Joined: Mar 2005

Hi !!!
I'm starting a journal....and I tried to go back to get this info, but is taking me 4 ever !!! Could you reply just telling us how long have you been NED ? ( just the years..) Besides, is always good to re write this info so the newbies know all about us .....
Thanks,thanks, thanks

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Stage III, dx 11/2004, cancer free 5/2005....so, just passed 2 years!!!

Hugs, Kathi

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

Stage 3 c operated on jan 22/98. Cancer free ever since..91/2 years Cheers ,Ron.

taraHK
Posts: 1961
Joined: Aug 2003

Stage III rectal cancer, diagnosed Dec 02. I've had two recurrences and have officially only been cancer-free for a couple of months (since my last scan) - I finished my last round of chemo a week ago. BUT -- I have been a SURVIVOR since my diagnosis -- 4.5 years ago. I am grateful for every day of those years.
Tara

Lisa Rose's picture
Lisa Rose
Posts: 594
Joined: Mar 2003

Stage 3c operated on March 20, 2002. Cancer free 5 . 3 years. Lisa Rose

jamesrich
Posts: 4
Joined: Jun 2007

8 1/2 years

usakat's picture
usakat
Posts: 625
Joined: Jul 2006

Colon cancer stage III dx 5/17/06, NED 1/05/07. Due for scans now...

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Colon cancer Stage 3, diagnosed 12/19/02. Recurrance 11/04, restaged to Stage 4. Clear scans 3/07, recurrance in lymph nodes 6/07.

Glv49
Posts: 206
Joined: May 2005

Stage IV Dx 7/03 NED since 3/04.

Gail

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

Hello,
Stage 4, dx 8/06, liver resection 2/07, cancer free 3 months
Impactzone

vanser
Posts: 100
Joined: Mar 2004

Hi Everyone -
I am thrilled to be posting here because my mom is officially cancer free since her original diagnosis in January 2003 as Stage 3 (4/20 positive lymph nodes). She unfortunatley had two local recurrences in 2003 which ended up resulting in a permanent colostomy, but since the cancer did not spread anywhere else, they still classify her as stage III.

I still think about her diagnosis every day and wonder "how much time" I really have.. It has been bittersweet because since her diagnosis I got married and am now expecting her first grandchild - it is so precious to me that she is able to share these memories with me...

Vanessa

katienavs's picture
katienavs
Posts: 88
Joined: Nov 2006

dx stage iv rectal 6/06. NED since surgery that was in 10/06, so eight months :)
Katie

CAMaura
Posts: 719
Joined: Feb 2005

Diagnosed stage III October of 2004; as of now, over two years out, still NED!

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Stage III lymph pos sigmoid colon cancer dx'ed 8/01. Surgery to remove tumor, no chemotherapy. NED 6 years no recurrences!! WOOHOO!

peace, emily

dash4
Posts: 304
Joined: Dec 2005

My husband diagnosed Stage IV 10/04...He is not NED, but with weekly chemo--is stable--that makes 2years, 8 months.....figure this counts too!
Dash

shmurciakova's picture
shmurciakova
Posts: 910
Joined: Dec 2002

Stage IV /liver met and 2 lung mets, NED 2 3/4 years...

neon356
Posts: 137
Joined: Mar 2004

diagnosed stage III at age 53, in 1993. That makes 14 years NED! ...Carl

Betsydoglover's picture
Betsydoglover
Posts: 1254
Joined: Jul 2005

Diagnosed Stage IV in May 2005. NED since late August 2005. Off chemo since late November 2005. That's 1 yr and 10 months NED.

rthornton's picture
rthornton
Posts: 346
Joined: May 2005

Diagnosed stage IV in May of 2005, went into remission in October 2005, recurrence in July 2006, but NED since my liver resection last August (but I have this thing on my lung that might be new cancer ... probably not, though, will find out after a needle biopsy on Tuesday).

Patti1
Posts: 109
Joined: Feb 2006

Hello..

Husband diagnosed 1/5/06 with Stage IV Met to Liv and Lymph Node. Surgery 7/13/2006 Complete Lower Resection and Liver Resection.NED since 7/13/06.Wow. 2 weeks short of a year. Just had a scan last month.
Thank all for your support
Patti

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

DX April 05 stage IV colon cancer, had recurrence 10/06 in stomach had chemo and NED as of April 07. So just a few months NED.

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

diagnosed at 46, no family history, stage 3
NED since 6/26/03 4 years NED YIPPEEE!!!

Maureen

foxy
Posts: 190
Joined: Oct 2005

Stage IV Dec 20th 1993, NED 14 1/2 years.

Virginia.

drmrgirl47's picture
drmrgirl47
Posts: 129
Joined: Mar 2004

stage 3, 3 out of 6 nodes. Operated Jan. 2004. Had chemo, radiation. 3 1/2 years NED thank God.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

dxed stage IV (mets to liver and left lung) March 2004 at age 49, no family history. NED since Oct. 2004.....2 years 8 months.

Lisa P.

jams67's picture
jams67
Posts: 927
Joined: May 2006

stage iv. NED since 9/05.
Jo Ann

sladich's picture
sladich
Posts: 430
Joined: May 2007

Diagnosed at age 48 in 9/04. Stage 4 due to tumor in lower left lung. Colon resection (9/04), lower left lobe of lung removed (11/04), chemo (Folfox, 6 mos), recurrence in liver (9/05), Liver resection (11/05), chemo, recurrence in liver 9/06, chemoembolization (11/06), RFA (12/06, chemoembolization (1/07). NED since. Watching a growth in my upper left lung. It measures about 7mm. No change since last scan. I get scanned every 2 months.

Debbie

lfondots63's picture
lfondots63
Posts: 822
Joined: Jan 2006

Love this post!!!

Stage 3 dx Dec. 19, 2005 (day before my birthday!). Tumor out on my birthday. Finished chemo July '06. As far as I know NED since.

Lisa F.

apache4's picture
apache4
Posts: 272
Joined: Jul 2007

I am getting confused. I read all the posts and I was told there was no remission for my Stage IV colon cancer with mets to the liver. After a year the tumors have shrunk and are stable. I am now on chemo every three weeks after 15 sessions. I also had the colon surgery ASAP last year. Any comments? Also, I may be ignorant, but what does NED mean?

usakat's picture
usakat
Posts: 625
Joined: Jul 2006

NED = No evidence of disease. There is remission for stage IV folks if CT and/or PET scans indicate NED. I hope your tumors will vacate soon so you can be restaged NED.

By the way - welcome to the SemiColons! Sorry about your tough time with your cancer, but I'm glad you found us. I have a strong feeling that you will give and receive much encouragement and inspiration here.

renee2u's picture
renee2u
Posts: 27
Joined: Feb 2008

Stage IV Anal Squamous Cell Carcinoma cancer survivor... about 1 month since my first PET/CT/Biopsy... I'm a monther...

changing
Posts: 135
Joined: Oct 2006

Hi, dx'd 3c july 06. NED so far....colonoscopy due this month!

Fb489
Posts: 69
Joined: Sep 2009

Hopeful this will be all of us one day.

Kerry S's picture
Kerry S
Posts: 607
Joined: Dec 2009

stage 4
dx 5/08
13 months

TxKayaker's picture
TxKayaker
Posts: 177
Joined: Jun 2009

Stage 3C DX 4-3-09 - 9 months

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

I consider myself a stage IV survivor even though I'm not NED.

Diagnosed stage IV w/ liver and lung mets Aug. 2007.
Treatments: Folfox w/ Avastin, radiation, liver resection, Folfiri w/Avastin two years in a row following recurrences, and currently taking interferon and lovastatin & am awaiting results of this treatment (scan Feb. 12).

Lisa

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

These old threads make me sad. :-(

I was dx'd 13 months ago today, Stage III. NED since surgery, 13 months ago.

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

DX 3/2008 SURGERY 7/2008 NED 10/2008,Stage III after chemo& radiation,Permanant colostomy.

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

first grandbaby, Andy was born 5-16-08
I was dx'd with stage 3B cc on 5-20-08
Surgery on June 7, 2008
NED for 20 months

P_I_T_A's picture
P_I_T_A
Posts: 133
Joined: Oct 2009

Dx - 8/18/09
Surgery - 9/12/09 stage IIIa (1 lymph pos)
NED since (5mo, short timer)

-DJ

grammadebbie's picture
grammadebbie
Posts: 429
Joined: Jun 2009

Stage IIIc 8of 38 lymph nodes positive

Surgery Oct 17 2007 Chemo 6 months

NED 2 years 4 mos. Yeah

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

dx 9/06...still here....
Chip

drmrgirl47's picture
drmrgirl47
Posts: 129
Joined: Mar 2004

Surgery Jan. 17, 2004. Stage 3. Ned 6 years.

steven12
Posts: 52
Joined: Dec 2008

Stage 3c, operated 7/04, NED 3.5 yrs, recurrence 11/07, chemo on/off since then not NED
Best wishes,
Steven

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