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round 1 down

cherriann
Posts: 156
Joined: Mar 2006

hi all,
havent posted in awhile, just been lurking in the background. been dealing with alot of issues on top of the cancer but just finished first treatment of folfox today. bad constipation but feel ok. was wondering if this metal taste in my mouth is normal, dont remember getting that with the 5fu. anyways i wish you all well. take care, cherri

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Hi Cherri -

I had oxaliplatin, but never had a metal taste. That said, it is a platinum based drug, and that is a metal, so the metal taste at least makes some sense. I'd ask your oncologist if I were you.

How great to have one treatment behind you!

Betsy

taraHK
Posts: 1961
Joined: Aug 2003

Congratulations on finishing that first round. As you say, One Down. Yes, I had that metallic taste. As I recall, it lasted a couple of days after each cycle, but then went away. I also had constipation after each cycle -- which suddenly turned to diarrhea, on one dramatic day of each cycle. Took some care in my meal/intake planning! Best of luck with the folfox. It ends.

spongebob's picture
spongebob
Posts: 2598
Joined: Apr 2003

Congrats, Cherri!

I didn't do the FolFox regime so I can't comment on metal mouth, but I am glad to know that you are tackling ALL of your dragons and hope you know we're here to support you!

Cheers

- SpongeBob

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

I definitely have the metallic taste for the first 3-5 days. The cold liquids or foods seem to make it worse if I am forgetful and try them during that time. Usually the second week is pretty normal.

Dick

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Cherriann, my darling....so grand to hear from you! One down!!!! Congrats!!!!!
Don't remember much about my rectal chemo....was on MAJOR DRUGS for the pain most of the time!!!!! (mmmmmmmmmm Dilaudin).

Hugs, Kathi

jams67's picture
jams67
Posts: 927
Joined: May 2006

I had the metal mouth. Also the first bite of food can bite back so take small bites, even a lick to get used to the sensation. I had forgotton how wonderful food tastes. After chemo, I didn't have a problem gaining back to my original weight. I thought maybe I could stay a size 6. Glad you have round 1 out of the way. Now keep on going, one step at a time. jams

JADot's picture
JADot
Posts: 720
Joined: Jan 2006

Hi Cherri:

Whoohoo, one down, there you go. Now that wasn't so bad was it. About constipation - there are two things you can try:

1. Make good friends with fruits, veggies, bran, tree bark and Milk of Magnesia
2. Talk to your onc to see if they are giving you Kytril as a nausea drug. Kyril is notoriously associated with constipation. There are other nausea drugs they can try w/ you. I had to get off Kytril myself for the same reason.

Best of luck to you!

JADot

Patrusha
Posts: 488
Joined: Jun 2006

"Metal Mouth." I love that, Bob. So appropriate. So far so good, Cherriann. Guess you've figured out you can get that nasty metal taste. I get it too, just for a while. As for constipation, yep, I take Kytril and had that problem during Round 1 as well. I'll have to talk to my oncs about that, or just try the Compazine they gave me. Thanks JADot! I go in for Round 2 tomorrow! Cheers!

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