round 1 down

cherriann Member Posts: 155
edited March 2014 in Colorectal Cancer #1
hi all,
havent posted in awhile, just been lurking in the background. been dealing with alot of issues on top of the cancer but just finished first treatment of folfox today. bad constipation but feel ok. was wondering if this metal taste in my mouth is normal, dont remember getting that with the 5fu. anyways i wish you all well. take care, cherri


  • Betsydoglover
    Betsydoglover Member Posts: 1,248
    Hi Cherri -

    I had oxaliplatin, but never had a metal taste. That said, it is a platinum based drug, and that is a metal, so the metal taste at least makes some sense. I'd ask your oncologist if I were you.

    How great to have one treatment behind you!

  • taraHK
    taraHK Member Posts: 1,952
    Congratulations on finishing that first round. As you say, One Down. Yes, I had that metallic taste. As I recall, it lasted a couple of days after each cycle, but then went away. I also had constipation after each cycle -- which suddenly turned to diarrhea, on one dramatic day of each cycle. Took some care in my meal/intake planning! Best of luck with the folfox. It ends.
  • spongebob
    spongebob Member Posts: 2,565
    Congrats, Cherri!

    I didn't do the FolFox regime so I can't comment on metal mouth, but I am glad to know that you are tackling ALL of your dragons and hope you know we're here to support you!


    - SpongeBob
  • vinny3
    vinny3 Member Posts: 928
    I definitely have the metallic taste for the first 3-5 days. The cold liquids or foods seem to make it worse if I am forgetful and try them during that time. Usually the second week is pretty normal.

  • KathiM
    KathiM Member Posts: 8,028
    Cherriann, my grand to hear from you! One down!!!! Congrats!!!!!
    Don't remember much about my rectal chemo....was on MAJOR DRUGS for the pain most of the time!!!!! (mmmmmmmmmm Dilaudin).

    Hugs, Kathi
  • jams67
    jams67 Member Posts: 925
    I had the metal mouth. Also the first bite of food can bite back so take small bites, even a lick to get used to the sensation. I had forgotton how wonderful food tastes. After chemo, I didn't have a problem gaining back to my original weight. I thought maybe I could stay a size 6. Glad you have round 1 out of the way. Now keep on going, one step at a time. jams
  • JADot
    JADot Member Posts: 709 Member
    Hi Cherri:

    Whoohoo, one down, there you go. Now that wasn't so bad was it. About constipation - there are two things you can try:

    1. Make good friends with fruits, veggies, bran, tree bark and Milk of Magnesia
    2. Talk to your onc to see if they are giving you Kytril as a nausea drug. Kyril is notoriously associated with constipation. There are other nausea drugs they can try w/ you. I had to get off Kytril myself for the same reason.

    Best of luck to you!

  • Patrusha
    Patrusha Member Posts: 487
    "Metal Mouth." I love that, Bob. So appropriate. So far so good, Cherriann. Guess you've figured out you can get that nasty metal taste. I get it too, just for a while. As for constipation, yep, I take Kytril and had that problem during Round 1 as well. I'll have to talk to my oncs about that, or just try the Compazine they gave me. Thanks JADot! I go in for Round 2 tomorrow! Cheers!