Liver mets

lindatn
lindatn Member Posts: 229
edited March 2014 in Breast Cancer #1
As most of you know I have had liver mets since Dec of 05. All had gone well until I took off a couple weeks for vacation came back and all markers were up as well as the tumor marker. Back to a PET/CT on Monday. Needless to say I am a wreck. So far have been on Taxotere and CarboP it had worked so well. Tired of course but able to do a lot I don't feel any different then i did before vacation so can't figure out what is going on. The PET is on Monday and it will be the following Tuesday before I see the Dr and get the results. Sounds like a long time of waiting. God bless all of you. If anyone has had this happen please write and explain what your outcome was. Linda

Comments

  • LesleyH
    LesleyH Member Posts: 370
    #2
    Hi Linda,

    I can't give you any advice. Just wanted to write and tell you that I'm so sorry you are going through all this and hope for the best. I wish I could be with you at the scan, but I will be thinking of you.

    Hugs.

    Lesley
  • KathiM
    KathiM Member Posts: 8,028 Member
    #3
    Aw, Linda, I hate you have to keep fighting the beast!
    Find some distraction during the wait....and remember, as hard as it is to keep a clear head, worrying won't change the results, and it will only make you feel bad....(feel free to slap a picture of me for being 'suzi sunshine')! I am sending big hugs, and good vibes to you.
    Kathi
  • Susan956
    Susan956 Member Posts: 510
    #4
    No advice... Just wanted to wish you luck.

    Be good to yourself the waiting is terrible...

    Take Care... God Bless...

    Susan
  • LesleyH
    LesleyH Member Posts: 370
    #5
    Susan956 said:

    No advice... Just wanted to wish you luck.

    Be good to yourself the waiting is terrible...

    Take Care... God Bless...

    Susan

    Hope your w/e is going well. I'll be thinking if you tomorrow.

    Hugs.

    Lesley
  • KathiM
    KathiM Member Posts: 8,028 Member
    #6
    Linda, one more thing.....
    I just got my colonoscopy, NED, but wait...
    last CEA was up...2 points....
    As I am feeling better, post-chemo...
    Wonder if recovery/stress release (vacation, like you), etc, influences this stuff....you know, I REALLY believe that the immune system is compromised somewhat by stress...can't work as well...
    Also could be just a difference in assays (lab workups).....
    rambling, will stop now....hugs for PET tomorrow...
    Hugs, kathi
  • krisrey
    krisrey Member Posts: 194
    #7
    Hi Linda,
    Just want to let you know that I will be thinking of you on Monday. I think the worst part is the wait, it just drived me crazy and I find myself short tempered with my kids and I hate that. I too am waiting results from my MRI from Friday.
    If you have not already checked out the webite for HER2 postive at http://www.her2support.org/
    I encourage you to do so. There are so many fine women (and men) on that site that can give you so much advice and info on liver mets, I think you will find the site very helpful (if you haven't already checked it out).
    Anyway Linda I have been following your posts and just want you to know that I am thinking of you.
    Best of luck,
    kristen
  • 24242
    24242 Member Posts: 1,398
    #8
    I too am very sorry you have to face so much. It is difficult to face and meet uncertainty head on but that truly is all there is. One can always wish hope and pray things could be different but they are not.
    I think you have already done amazing things since your diagnosis and you should be patting yourself on the back for the courage it takes to face all you have.
    I am so fortunate I got the fact that there were only two true emotions and everything was because of one or the other. Everything we do is because of LOVE or because of Fear and Loving ourselves as we would our own best friends can change how we feel.
    I think we can always think of everything it could be and not realizing all it can't be. I love that poem or saying about ALL THAT CANCER CANNOT DO! It truly changed my life each time I took the time to read it as it was on my fridge.
    My thoughts are with you and your family hoping this all goes well for you.
    Tara
  • Bobbi2000
    Bobbi2000 Member Posts: 2
    #9
    I was diagnosed with breast cancer 2/2000 following my first mammogram @ age 40(mastectomy, and all baseline scans were then done) when I went for my first tx, I found out that it had metastized to my bone in quite a few places. I was on Taxol and Herceptin for two straight years (along with Tamoxifen). I was lucky to be off the Taxol for 2 years (still continued with Herceptin weekly). October 2004 I went for scans and found that there were several small tumors on my liver. I stopped Tamoxifen and started Femara. I started Navelbine weekly along with Herceptin. October 2005 stopped Navelbine when marker was 19 (normal @ the lab my hospital uses is 0-30). Well...I started having Gallbladder problems about 1.5 months ago...which led to CT scan of abdomen/pelvis and an ultrasound of my gallbladder. Well, in order to view the GB they have to also look @ the liver...enter one tumor being significantly larger. May 11 I had my GB removed and said tumor was resected (found out it was restricting the duct from the liver to the GB and this is what was causing the GB disease). I was very lucky that the surgery was done thru a scope. I will probably have to start on Navelbine again, but it will be several weeks before that happens. I live everyday as normal as possible (I have to admit my 3 teenagers have alot to do with that) and I treat each new occurrence as a speedbump to get over and don't look back. Yeah I have a "meltdown" every rare once and awhile but I get over it quick and keep plugging along. I work full time as an L&D RN and keep busy with all of my kids' activities. I also have a great support system through all my good friends @ work. I wish you well and can only say "keep kicking a..!!" Bobbi
  • krisrey
    krisrey Member Posts: 194
    #10
    24242 said:

    I too am very sorry you have to face so much. It is difficult to face and meet uncertainty head on but that truly is all there is. One can always wish hope and pray things could be different but they are not.
    I think you have already done amazing things since your diagnosis and you should be patting yourself on the back for the courage it takes to face all you have.
    I am so fortunate I got the fact that there were only two true emotions and everything was because of one or the other. Everything we do is because of LOVE or because of Fear and Loving ourselves as we would our own best friends can change how we feel.
    I think we can always think of everything it could be and not realizing all it can't be. I love that poem or saying about ALL THAT CANCER CANNOT DO! It truly changed my life each time I took the time to read it as it was on my fridge.
    My thoughts are with you and your family hoping this all goes well for you.
    Tara

    Hi Tara,
    What poem or saying are you refering to? Could you post it or let me know where I can read it.
    Thanks
    Kristen
  • LesleyH
    LesleyH Member Posts: 370
    #11
    Bobbi2000 said:

    I was diagnosed with breast cancer 2/2000 following my first mammogram @ age 40(mastectomy, and all baseline scans were then done) when I went for my first tx, I found out that it had metastized to my bone in quite a few places. I was on Taxol and Herceptin for two straight years (along with Tamoxifen). I was lucky to be off the Taxol for 2 years (still continued with Herceptin weekly). October 2004 I went for scans and found that there were several small tumors on my liver. I stopped Tamoxifen and started Femara. I started Navelbine weekly along with Herceptin. October 2005 stopped Navelbine when marker was 19 (normal @ the lab my hospital uses is 0-30). Well...I started having Gallbladder problems about 1.5 months ago...which led to CT scan of abdomen/pelvis and an ultrasound of my gallbladder. Well, in order to view the GB they have to also look @ the liver...enter one tumor being significantly larger. May 11 I had my GB removed and said tumor was resected (found out it was restricting the duct from the liver to the GB and this is what was causing the GB disease). I was very lucky that the surgery was done thru a scope. I will probably have to start on Navelbine again, but it will be several weeks before that happens. I live everyday as normal as possible (I have to admit my 3 teenagers have alot to do with that) and I treat each new occurrence as a speedbump to get over and don't look back. Yeah I have a "meltdown" every rare once and awhile but I get over it quick and keep plugging along. I work full time as an L&D RN and keep busy with all of my kids' activities. I also have a great support system through all my good friends @ work. I wish you well and can only say "keep kicking a..!!" Bobbi

    Bobbi,

    You are an inspiration. Thank you for sharing your story.

    Hugs.

    Lesley

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