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signet-ring cell carcinoma
 |
Jan 08, 2006 - 4:33 am
I have been diagnosed with the rare signet-ring cell carcinoma in my colon about two weeks ago. I am anxiously looking for some survivors out there and a buddy or two to go through this with. Any information will be greatly appreciated. Thanks ahead. JADot |
Joined: Apr 2003
Re: signet-ring cell carcinoma
JADot -
Go to: http://www.colondar.com click on the buttons for model info and go to Anne (I don't have my copy handy so I can't tell you what month she is - blonde, laying down in the water) Anyway, there will be a link that you can contact her via e-mail. If memory serves correctly, Anne also has the signet ring cell carcinoma. Hope this helps.
- Bob (AKA "Mr. July")
Joined: Jan 2006
Re: signet-ring cell carcinoma
Hi Bob:
Thanks for the pointer. I didn't find the mention of signet ring but found some very inspiring survival stories. Colondar - what a scream! I was profoundly touched by the picture of that big incision.
JADot
Joined: Apr 2004
Re: signet-ring cell carcinoma
Hi JADot. I am Terri and I have signet ring. Mine was in my cecum and had mets to my ovaries, tubes, and uterus. Dx February 04. Went through chemo for 6 months...5-fu and lv six
weeks on and 2 weeks off. Just had a recurrence in the pelvis (small tumor). Will find out what will happen on January 17. I hope you are doing ok.
Joined: Jan 2006
Re: signet-ring cell carcinoma
Hi Terri:
Thanks so much for replying to my post. I am doing great recovering from my surgery. Tomorrow I will have the stiches out. Two of my friends will bring dinner to help celebrate.
Terri - Let's beat this thing together! My thoughts are with you for your big day on 1/17. Let me know how it turns out. My mom is a geneticist and she has a lot of colleagues/students in cancer research. They are all out there digging up information for me and you right now. I'll share what I know about new research/treatment for signet ring.
Take good care!
JADot
Joined: Apr 2004
Re: signet-ring cell carcinoma
Hi JADot!!!
Thanks for the info on signet ring!!! You are right...we will beat this thing!!! I will let everyone know how my visit to the onco goes on January 17. My thoughts and prayers to everyone. Terri
Joined: Aug 2008
how are you
JADot Hi, my name is Pat and I also have signet ring cell can you tell me how you are doing with it and what treatments you are on
Thanks Pat
Joined: Aug 2008
hi
seems like you have found several on here that have it... i just want to lead you to one more person. at the same place you found the colandar (the colon club) there is the colon talk section which has a great forum and there is a member there named Dori that also has the signet cell. I am confused though.. looks like you have been a member for quite awhile and was first diagnosed in 2005?? is this a new cancer in your colon or a recurrence?? What did you have the first time around??