NED

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alta29
alta29 Member Posts: 435 Member
edited March 2014 in Colorectal Cancer #1
I know that it hasn't been that long ( was dx in Jan 04 stage IV colon cancer )finished chemo a month ago and just got the results of pet & ct that are NED.:))))))
I do have a question....I will like to know what treatments if any are you in after quemo and after been dx NED. Any pills ? more chemo ? I have appt. with Dr. on Tuesday.I would like to know what others DR's are doing. Thanks !!!

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  • mikew42
    mikew42 Member Posts: 114 Member
    #2
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    Fantastic news!! Congrats. I was done with my chemo regime in Oct '04 for Stage 4 and have not done any treatments since (still NED). The onc. and I struggled with doing extra chemo directly to the liver, but decided to leave that as an option if it recurs. I am however taking a few vitamins and supplements. Mike
  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    #3
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    Congratulations!!!!!!!!!!!

    I also just had a NED PET after 2 rounds of chemo. Have just had my 3rd and will probably go for 4 - 6. My doc mentioned the possibility of putting me on Avastin only for a while after chemo - will talk more to her about that next week.

    The plan is to keep scanning and then if (when?) I start to "light up" again, I'll probably get sent for liver resection. NOT looking forward to that possibility.

    Betsy
  • taraHK
    taraHK Member Posts: 1,952 Member
    #4
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    Wonderful news about your NED status! Congratulations!

    After I finished tx the first time (Stage 3 rectal), I was on celebrex, calcium and vitamins (had to discontinue the celebrex after about 1 yr). But I have heard from some others on this board who are taking some chemo drugs in pill form for a longer time.....
    Best wishes
    Tara
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    #5
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    CONGRATULATIONS ON NED!!!

    Doesn't that feel great? Every little step remaining in NED is getting farther away from the cancer, yes? So that is GREAT news!!

    Can't help you with the chemo question but I do take supplements to prevent any recurrence......vitamins and minerals and herbs and such.

    peace, emily
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    #6
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    2bhealed said:

    CONGRATULATIONS ON NED!!!

    Doesn't that feel great? Every little step remaining in NED is getting farther away from the cancer, yes? So that is GREAT news!!

    Can't help you with the chemo question but I do take supplements to prevent any recurrence......vitamins and minerals and herbs and such.

    peace, emily

    Congratulations from oz. Any NED news here is good news! Now work toward your first NED anniversary!
    huggs, Ross n Jen

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