Ending Tamoxifen Side Effects

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barbdorey25
barbdorey25 Member Posts: 2
edited March 2014 in Breast Cancer #1
I recently ended my 5 year usage of Tamoxifen and have been having some strange feelings in my lower pelvic area that I believe are withdrawal symptoms from ending Tamoxifen. Has anyone had symptoms after they stopped Tamoxifen. I'm intersted to hear your stories.

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  • donnar
    donnar Member Posts: 2
    #2
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    I also had this same problem after stopping Tamoxifen. Trying Arimidex, but having lots of joint pain. Have you tried anything else.
  • rutaf
    rutaf Member Posts: 23
    #3
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    I am now six months into taking Tamoxifen and having a lot of all over body swelling. The "team" is trying to figure this out with me. Ended chemo six months ago and am still exhausted. Trying to work, going to physical therapy, and keeping up with Drs appts is plenty. Any suggestions other than eating cucumbers? Yes, that was one suggestion. Anyone ever have trouble getting up out of a sitting position? Ear ringing--it is great when I actually notice a few minutes of quiet. Weight gain-enough is enough.
  • barbdorey25
    barbdorey25 Member Posts: 2
    #4
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    donnar said:

    I also had this same problem after stopping Tamoxifen. Trying Arimidex, but having lots of joint pain. Have you tried anything else.

    Thanks for your reply! My oncologist doesn't want to put me on Arimidex or Femara because they are mostly for post menopausal women and my crazy body still thinks it's 30 sometimes! I've already defied the doctor's expectations that chemo and tamoxifen would push me through menopause. I'm just concerned I guess about not taking anything. It almost makes me feel like I'm not doing anything to stop recurrence. I'm going to go to the gyno just to make sure that it's nothing more. My 1st cycle after stopping tamoxifen has been very strange.

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