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recently diagnosed

sbib
Posts: 3
Joined: Dec 2004

Hi I am a 27 year old female from England who was diagnosed with Hodgkins Lymphoma on the 27th November 2004. Apparently I have been living with cancer for approx one year without even knowing. I first found a lump about this long ago, did not think much about it as I have always suffered from swollen glands and the like. Bugged me for a couple of months and then went to doctors. Not to bore you with these details, I went had numerous tests, ct scan and then did not hear anything for 6 mths. Thinking all was fine went on with life as you do until one month ago when I phoned doctors out of the blue to find out why I had never had a follow up. Apparently I had been lost somehow and so you can imagine the devastation when 6 mths later they tell me they think I have cancer. The next minute I was signing papers for biopsy, Anyway I would very much appreciate response from anyone in the same situation as me or anyone who can give me an idea of what to expect. Has anyone else been having panic attack type things, need help. Thanks.

positive
Posts: 75
Joined: Dec 2003

The diagnosis of having cancer is very traumatic and very scary, the first thing you proabably think of is "Am I going to die" Well your not, Hodgkins disease is a very curable cancer, with precise staging and accurate detail to your treatment you will go into remission sooner than you know. Educate yourself about Hodgkins Disease. The more you know the better you will get through this. Yes the chemo is not fun and it is scary, but you will get through it. My dad age 71 was diagnosed with Hodgkins disease December 2004. He had 4 cycles of ABVD and 17 radiation treatments. He is in remission since APril 2005. Get to know about the side effects and try to cope with them as best as you can. My dad had fatigue and hair loss and a little quezziness in his tummy. My dad is doing quite well today, he remains active and lives a very full life. MY dad had stage IIA nodular sclerosis non-bulky. Make sure your doc has treated lymphoma it's a plus. I know how your feeling and I want you to know youre going to be alright, I pray you have a loving supportive family that will help you sail through this. It's ok to be afraid, and you should always express how you feel its aways best to get things off your chest you'll feel better and do not be afraid to ask your oncologist questions even if you've already asked him and you forgot ask again!
Hugs and support to you, Keep the site posted there are lots of caring loving individuals that will reply to you be patient.

Take care.

JoeShmoe's picture
JoeShmoe
Posts: 4
Joined: Nov 2004

I am just finishing up with Chemo... be sure to ask about the Stanford V regimen, I believe it is to be better than ABVD.

6browns
Posts: 15
Joined: Nov 2004

Hi,
I'm sorry you've had to join this group -- on the other hand, I've never "met" so many kind and compassionate people before joing here! My husband was diagnosed shortly before you and is just about to begin treatment. You might find the posting just a few below this one helpful -- I think I titled it "in shock" as we were!

I can tell you that my husband had many sleepness nights initially and actually lost quite a bit of weight as he didn't have any appetite.

If you're experiencing more stress than you're comfortable living with (and frankly I'm not sure who doesn't after being diagnosed), you might want to check with your PCP. He/She may be able to provide some medication to help with sleep.

For us, it took a few weeks to absorb the news, get the rest of the tests, and begin to deal with what the treatment would be. Generally Hodgkin's is slow moving and taking a week or two to "digest/comprehend" everything doesn't make much of a difference in treatment.

Take care of yourself and remember with this board you aren't alone. I have found it very helpful.

Best wishes,
Lisa

Heatherjb
Posts: 27
Joined: Feb 2004

Cancer has got to be one of the scarriest words to hear. I was diagnosed with Hodgkins Nodular Sclerosing in June of 2002 (I was 29). I was stage IIA. It took 4 doctors for me to finally get diagnosed. My Primary care doc said it was just a swollen thyroid. Another doc said it was Catstratch disease. Another one thought I had a tumor on my voicebox. I had 8 treatments of chemo (ABVD) and 20 radiation treatments. I have been cancer free for 2 years now. Hodgkins really is very curable.
I know what you mean about the panic attacks. I found out that I had cancer when I was at work (the doctor called me and just told me over the phone). For several weeks after that, I would just start freaking out whereever I was. I think I finally got a handle on it when I decided that I wasn't going to let it get me, I was going to fight it with everything I had.
I found an Oncologist that I really like and she is a specialist in Lymphoma's. She was always straight forward and seemed to really care about her patients.
One thing I learned is that you have to be your own advocate. Doctors don't know everything. If something doesn't feel right to you, ask you doctor. I had a friend who went through her treatments not really liking her Oncologist. I would suggest finding someone you are really comfortable with because you will see a lot of them.
My prayers will be with you. Please feel free to e-mail me through this site.
Heather

Demi1
Posts: 4
Joined: Oct 2004

Hi, I am a 28 year old female also from England (London), I was diagnosed with stage IIa Hodgkin's Lymphoma in May of this year. I had 6 ABVD treatments (3 cycles) and responded very well to these (had a clear PET scan after the 3 cycles) I then had 20 radiotherapy sessions just to make sure. I finished my chemotherapy in August and the radiotherapy finished in November. I am now just going for regular check-ups and feel great.

It is very normal to be scared when you receive your diagnosis although you will probably find that once you start treatment your emotions will settle down and you will just get on with it. The chemo isn't nice but it is bearable, as long as you take enough time to recover between treatments and accept help from those around you, you should be fine. The chemo made me feel slightly sick but I never actually was sick, the anti-sickness drugs they give you work pretty well. I felt very tired but I just made sure I got lots of rest. I did eventually lose my hair but not until my treatment had finished (and there was me thinking I had got away with it) it is growing back nicely now though.

Keep us posted on how it is all going and feel free to email me through this site if you have any other questions.

SERRANO's picture
SERRANO
Posts: 1
Joined: Feb 2005

LEAVE YOUR WORRIES TO GOD FOR HODGKINS LYMPHOMA HAS A VEERY HIGH SUCCESS RATE SOME DO WALK OUT W/ COMPLICATIONS BUT MOST DON'T... YES IT IS VERY SCARY JUST REMEMBER ONES MIND IS A VERY POWERFUL REMEDY IT CAN HEAL ALL YOU HAVE TO DO IS STAY POSITIVE NO MATTER WHAT YOU HEAR IT'S ALL UP TO YOU GOOD LUCK AND GOD BLESS------HODGKINS LYMPHOMA SURVIVOR----SERRANO

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