Xeloda

wsmsilva
wsmsilva Member Posts: 19
edited March 2014 in Breast Cancer #1
Has anyone been on Xeloda? I start next week? What can I expect?

Comments

  • jeancmici
    jeancmici Member Posts: 665 Member
    #2
    I have not been on Xeloda - YET - but it was one discussed with the oncologist's nurse practitioner. Xeloda can be pretty severe with hands and feet syndrome, but is just as effective - if it is going to be effective - at a lower dose to avoid this. The nurse said my onco starts at the lower dose to see how side effects develop. The nice aspect is it is in pill form to be taken at home.

    Good Luck! You are taking this for metastatic cancer?? I am currently on herceptin for the Her2neu and Navelbine for mets.

    Type in Xeloda on www.google.com and you will get the details.

    Jean
  • jeancmici
    jeancmici Member Posts: 665 Member
    #3
    jeancmici said:

    I have not been on Xeloda - YET - but it was one discussed with the oncologist's nurse practitioner. Xeloda can be pretty severe with hands and feet syndrome, but is just as effective - if it is going to be effective - at a lower dose to avoid this. The nurse said my onco starts at the lower dose to see how side effects develop. The nice aspect is it is in pill form to be taken at home.

    Good Luck! You are taking this for metastatic cancer?? I am currently on herceptin for the Her2neu and Navelbine for mets.

    Type in Xeloda on www.google.com and you will get the details.

    Jean

    To save you time, here is a good site

    http://www.cancerhelp.org.uk/help/default.asp?page=5103
  • DCjr
    DCjr Member Posts: 1
    #4
    hi i have been on xeloda for 5 days and well other than being tired and sick in my stomach so far if thats all i get then wow
  • hummingbyrd
    hummingbyrd Member Posts: 950 Member
    #5
    Tried it, hope you have prescription coverage as it is very expensive. I got a horrible hand and foot syndrome that was so bad I stopped meds during second round. Just as well as I had no Rx coverage, 2 weeks was $1,400! Called my onc and told him he didn't have to worry about me dying of cancer, I was having a heart attack over the price of the xeloda! LOL
    That was over a year ago and NO chemo, praise God I'm still here.
    hummingbyrd
  • 3rdtime
    3rdtime Member Posts: 7
    #6
    I have been on it for four months now. Everyone I know that is on it, has totally different reactions. One lady only has the hand and foot syndrome. I have a little dryness and peeling but not much at all. I have had nauseau, cramping, headaches and watery eyes which most have been resolved by changing the dosage. Another gal I know has no visible symptoms at all. So don't worry about it, it might be just fine. But I would put neutrogena or Zims crack cream on your hands and feet at night with socks and gloves (I have and maybe that is why I don't have the problems that some do) Also my doctor told me that I should take Vit B6 to help alleviate side effects, so check with your doctor on how much. Good Luck
  • gigglegirl
    gigglegirl Member Posts: 11
    #7
    Hi, I did the Xeloda for about 6 months. My hands and bottoms of my feet were red and hot. I wore Birkenstocks most of the time and socks and used that Badgers balm on them. All in all I didn't think it was too bad. It looked worse than it felt. And my feet felt hot. No other side effects and at the time I was able to remain quite active. It has now been long enough since I did the Xeloda that it will be an option when what I am doing currently stops working and it isn't one that I would mine doing again. It's different for everyone. I wish you the very best it was for me one the easiest tolerated. God Bless you Lisa
  • wsmsilva
    wsmsilva Member Posts: 19
    #8
    Thanks everyone. I start on Sat. My onc. gave me a tube of udder cream (yes! used to soften cow udders) for the hand and foot thing. I'm hopeful that it not be too terribly difficult. I need your prayers! Mary

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