Survivor Question

BBK
BBK Member Posts: 53
edited March 2014 in Breast Cancer #1
Silly question, I know...How do you count years of survivorship?...from date of diagnosis, from date of surgery, from date when doctor says you're cancer free or in remission? My diagnosis date was November 22, 2002. My surgery date was January 10, 2003. And, my doctor (oncologist) has yet to commit to the idea that I might be in remission (not sure why...because technically, I'm cancer free, and all my tests keep coming back negative for any spread of cancer). Just curious. Coming up on those dates, and it would be nice to know. Not sure why it would be nice to know...but, it just would. God bless, all! Barb K.

Comments

  • sassysally
    sassysally Member Posts: 150
    HI Barb, I have always counted the date of surgery as the "survivor" date. Thats when they removed the cancer, so that when I count it. It is a personal thing I guess. Dont rip the doctors too much they are always leary to say you are cancer free, just for the fact the in can and at times comes back even after the quote unquote 5 yr waiting period. I know, mine came back after 8. Hope this helps.
  • jmears
    jmears Member Posts: 266
    I've heard at the end of treatment or after surgery and like your doctor my Oncologist will not commit. I feel like the surgery was when I was cancer free but surviving chemo and radiation is also tough. I had surgery on November 1, 2000 and finished chemo and radiation June 25, 2001 and am still on Tamoxifen (that's a treatment too). So I think I'll go with the surgery date! Best of luck to you.
  • DeeNY711
    DeeNY711 Member Posts: 476 Member
    Initially, I thought it would be prudent to wait five years. However, someone suggested that anyone who survives chemotherapy is a survivor for sure, and that certainly had a ring of truth to it. Sassy Sally's reply points out the folly in trying to define the accurate time span calculation criteria. Still, when our local coverage showed the Jones Beach breast cancer walkathon and all of the women there who have been treated for breast cancer were wearing shirts with the word SURVIVOR printed across the back, it seemed entirely appropriate.
  • AnnaB
    AnnaB Member Posts: 9
    I've been told by my onc. that your date of diagnosis is considered your "anniversary" date.
    I was diagnosed November 15, 2002 - we made it!!
  • rizzo15
    rizzo15 Member Posts: 153 Member
    Wow, what a great question! I guess I just thought of myself as a survivor one day at a time until now. After the first rounds of chemo, then surgery, the oncologist told me there was no way to prove, one way or the other, whether there were any cancer cells left to kill. But we were still doing the second kind of chemo for 12 weeks (Taxotere), followed by radiation (28 sessions), for the best statistical results. So I guess counting from the surgery date makes sense.
  • BBK
    BBK Member Posts: 53
    rizzo15 said:

    Wow, what a great question! I guess I just thought of myself as a survivor one day at a time until now. After the first rounds of chemo, then surgery, the oncologist told me there was no way to prove, one way or the other, whether there were any cancer cells left to kill. But we were still doing the second kind of chemo for 12 weeks (Taxotere), followed by radiation (28 sessions), for the best statistical results. So I guess counting from the surgery date makes sense.

    Y'know what? I think that I'll just celebrate them all -- surgery anniversary, diagnosis anniversary, maybe even the finish of chemo! After all we've been through, ladies -- I think we should celebrate LIFE every single day! Now, I don't think that gives us license to party every single day -- but, a few anniversaries a year wouldn't hurt! Right? :-)

    One day at a time, sweet Jesus. As long as He's holding my hand, it doesn't really matter. Although I'm looking forward to heaven, I think He's not finished with me yet here on earth -- so I'm thankful for every breath I draw!

    Thanks for all your insights! Gave us all something fun to think about for a change, didn't it?!

    Now, if I could just get through this 5 years' worth of Tamoxifen without so many side effects! (And, I've only been on it for 4 months!)...hot flashes...(well, I can deal with those most of the time)...vaginal discharge (mildly annoying...)...vaginal dryness (I know, it's weird to have both, but I do...)...joint pain (!!!!!!! BIG TIME...in all major joints. Pain meds aren't doing it for me...) But, part of the treatment. I've gotten through everything else, I can learn to handle this as well. After all, in 5 years, "this, too, shall pass."

    Counting the days until those anniversaries start adding up! Smile! It'll sure make people wonder what's so much fun!

    God bless! Barb K.
  • jake10
    jake10 Member Posts: 202
    BBK said:

    Y'know what? I think that I'll just celebrate them all -- surgery anniversary, diagnosis anniversary, maybe even the finish of chemo! After all we've been through, ladies -- I think we should celebrate LIFE every single day! Now, I don't think that gives us license to party every single day -- but, a few anniversaries a year wouldn't hurt! Right? :-)

    One day at a time, sweet Jesus. As long as He's holding my hand, it doesn't really matter. Although I'm looking forward to heaven, I think He's not finished with me yet here on earth -- so I'm thankful for every breath I draw!

    Thanks for all your insights! Gave us all something fun to think about for a change, didn't it?!

    Now, if I could just get through this 5 years' worth of Tamoxifen without so many side effects! (And, I've only been on it for 4 months!)...hot flashes...(well, I can deal with those most of the time)...vaginal discharge (mildly annoying...)...vaginal dryness (I know, it's weird to have both, but I do...)...joint pain (!!!!!!! BIG TIME...in all major joints. Pain meds aren't doing it for me...) But, part of the treatment. I've gotten through everything else, I can learn to handle this as well. After all, in 5 years, "this, too, shall pass."

    Counting the days until those anniversaries start adding up! Smile! It'll sure make people wonder what's so much fun!

    God bless! Barb K.

    I thought I would use my Dx date, just seems like a remarkable date and easy to remember. 1 year this Friday. (10/24/2002) After that the dates of surgery and treatment all seem to run together and well, The first day I heard the word cancer is the date I will celebrate being alive each year. Actually, I now celebrate each day!!!! Hugs, Beth
  • Snookums
    Snookums Member Posts: 148
    jake10 said:

    I thought I would use my Dx date, just seems like a remarkable date and easy to remember. 1 year this Friday. (10/24/2002) After that the dates of surgery and treatment all seem to run together and well, The first day I heard the word cancer is the date I will celebrate being alive each year. Actually, I now celebrate each day!!!! Hugs, Beth

    jake10 Oh what a great statement that last post of yours! I am also, a person who was going to count Dx day, Dec 19, as my anniversary date and NOW- I definitely (sp?) will. I will tell people that I am celebrating the anniversary of first day I heard the word cancer and that I still VERY MUCH alive. thank you for that FAN TAS TIC idea! Keep that positive attitude and I'll see ya for many more posts in years to come. C
  • wingingit
    wingingit Member Posts: 48
    I can understand your question. It would be interesting to know how the medical world counts years of survivorship. After all, they do come up with numerous statistics--just something for us to prove as wrong! But here's another date to throw into the fray: the day we or a doctor found the lump. Many of us might think of that as the day when our dance wtih cancer began. But it's really just what date you feel has the most significance to you--whether it be diagnosis, treatment beginning/ending, surgery, or just a day that you realized that you were in God's hands and things were going to be okay from thereon. May you enjoy many years of celebrations!
  • inkblot
    inkblot Member Posts: 698 Member
    Hi Barb:

    This IS a very intersting question.

    Most doctors count from dx. Someone told me, early in my dx, that we are survivors from the day we hear our diagnosis of cancer, because from that very day, we begin dealing with it and planning to rid ourselves of it. I guess that makes sense.

    I celebrate the date I finished my very last treatment (that being radiation). Reason being that I plan to never forget the clouds I walked round on for months afterward. That feeling of being free from it all. Just happy to be alive and could again do what I wanted and go where I wanted with no considerations about treatments, etc.. It was a grand time. I floated more than I walked! So, that's the date I recall with the most excitement and positivity.

    At surgery I was still afraid and everything was unsettled as far as pathology, etc.. Beginning chemo was intimidating to say the least and every radiation day (there were 37 of them) was demanding. We all know the drudgery of day in and day out on the rads, 5 days/week! Whew! So, I think we can count "survival" from whatever time suits us best. (I don't even recall what date my surgery was on...only the month and know that it was near the end of the month...same thing with chemo. I don't recall the date I began rads but recall, vividly, the day I completed it!) Whatever date you choose, make it special and don't give much credence to the 5 year thing. That's just more hoopla from the medical community as far as I'm concerned. I believe that, scientifically speaking, the 5 year mark is what's used in coming up with survival percentages. I think the "percentages" we hear about during treatment, etc., are all structured around the 5 year survival period. Someone else may know more about this? Logically, when one survives beyond the 5 year period, then what does that do to "percentages" and what category do the scientific bean counter's place us into then? Ha. Makes little sense beyond the fact that insurance underwriters, etc. rely on that 5 year survival window. As I understand it, one can only obtain limited life insurance prior to 5 years survival but can be rated much differently, thereafter. Guess they all need something to scrutinize and fidget about with! We have to understand that there are people in rooms with computers and all manner of statistical analysis programs, who do nothing else all day, except generate stats, to which there are as many exceptions as there are rules. Go figure.

    Love, light and laughter,
    Ink
  • inkblot
    inkblot Member Posts: 698 Member
    jake10 said:

    I thought I would use my Dx date, just seems like a remarkable date and easy to remember. 1 year this Friday. (10/24/2002) After that the dates of surgery and treatment all seem to run together and well, The first day I heard the word cancer is the date I will celebrate being alive each year. Actually, I now celebrate each day!!!! Hugs, Beth

    I love that attitude Beth and congratulations!

    Love, light and laughter,
    Ink
  • rizzo15
    rizzo15 Member Posts: 153 Member
    inkblot said:

    Hi Barb:

    This IS a very intersting question.

    Most doctors count from dx. Someone told me, early in my dx, that we are survivors from the day we hear our diagnosis of cancer, because from that very day, we begin dealing with it and planning to rid ourselves of it. I guess that makes sense.

    I celebrate the date I finished my very last treatment (that being radiation). Reason being that I plan to never forget the clouds I walked round on for months afterward. That feeling of being free from it all. Just happy to be alive and could again do what I wanted and go where I wanted with no considerations about treatments, etc.. It was a grand time. I floated more than I walked! So, that's the date I recall with the most excitement and positivity.

    At surgery I was still afraid and everything was unsettled as far as pathology, etc.. Beginning chemo was intimidating to say the least and every radiation day (there were 37 of them) was demanding. We all know the drudgery of day in and day out on the rads, 5 days/week! Whew! So, I think we can count "survival" from whatever time suits us best. (I don't even recall what date my surgery was on...only the month and know that it was near the end of the month...same thing with chemo. I don't recall the date I began rads but recall, vividly, the day I completed it!) Whatever date you choose, make it special and don't give much credence to the 5 year thing. That's just more hoopla from the medical community as far as I'm concerned. I believe that, scientifically speaking, the 5 year mark is what's used in coming up with survival percentages. I think the "percentages" we hear about during treatment, etc., are all structured around the 5 year survival period. Someone else may know more about this? Logically, when one survives beyond the 5 year period, then what does that do to "percentages" and what category do the scientific bean counter's place us into then? Ha. Makes little sense beyond the fact that insurance underwriters, etc. rely on that 5 year survival window. As I understand it, one can only obtain limited life insurance prior to 5 years survival but can be rated much differently, thereafter. Guess they all need something to scrutinize and fidget about with! We have to understand that there are people in rooms with computers and all manner of statistical analysis programs, who do nothing else all day, except generate stats, to which there are as many exceptions as there are rules. Go figure.

    Love, light and laughter,
    Ink

    The last "scheduled" treatment was radiation for me also. That is the day I really celebrated. I got the garnet ring that I had been wanting for the past 20 years and my husband and I had a nice dinner at a restaurant. I don't remember being happy the day I got my diagnosis. That is not a good day for me to remember.

    If all goes well, my 2 year anniversary from date of diagnosis may be a good time to celebrate eventually. My doctors say everybody talks about the 5 year anniversary date...but it is the first 2 years that they worry about the most. At the 2 year mark, I also get my chemo port removed. So, I guess I have a while to decide how I want to celebrate that. My husband may be getting a little hint, because I had us apply for passports a couple weeks ago!
  • cinder
    cinder Member Posts: 50
    Hi Barb,
    Very good question, I always figured it as from the day that I had my lumpectomy but when my cancer returned my onc referred to it as when all treatment was done, including the 5 years on tamoxifen, which for me, changed it from almost 10 years to 3 years. Who knows? My prayers are with you and the best of luck to you.
    Cinder