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In remission ... now what

heidinmatt's picture
Posts: 9
Joined: Apr 2002

Hey all! It's been a while since I've been here. Well my CA125 is down to 17.1!!!! Doc finally allows me to call it remission, but he still wants me to continue with chemo, as long as I can, if I can handle it, but it's up to me. I've had 11 treatments now, plus surgery, I've really had enough. However, if I continue with treatments or not, I am going to always have doubt if I did the right thing. There are risks with the amout of treatments I have had and even more risks doing more. Plus, if I don't have anymore and I relapse, then I will wonder if it's because I didn't do more treatments... lovely isn't it? Has anyone had to make this sort of decision or has anyone had more than 11 treatments? (carbo/taxol) what are my risks? when do the side effects kick in? I already have some slight neuropathy in my hands a little in my feet. I welcome any and all responses. I can also be reached at nodual214@aol.com Thank you and God Bless!

Posts: 10
Joined: Apr 2002

Hi Heidi, it's Irene. I am so glad you are doing well. I have thought about you since the last time we"spoke". I hope you had a great holiday. I am kind of in the same boat as you. Are they still wanting you to do treatments every three weeks? If so, maybe they sould look into ding them every other month for a while before having you stop. Once my level went to normal, my Doc decided to do every toher month ans still monitor my labs. I will let you know howit workout. Feel free to emial me here or at my cs address. Again, I am glad things are good for you. Take care and God bless.

Posts: 31
Joined: Mar 2002

Hi Heidi, CONGRATULATIONS! What an achievement, especially since you've had so much chemo! I only had 6 months and that was enough for me! I was stage III, 611 prior to surgery and after the 1st month of chemo was below 14. I took steroids during my tx and it wasn't until after I got off the chemo and other drugs that the after effects kicked in for me. I have severe joint pain, hard to sleep at night. I understand this is a common experience. If I was you I'd say enough of the chemo, get the book Beating Cancer with Nutrition by Patrick Quillin, and start enjoying yourself. Bombarding yourself with all the chemo has bad effects on its own and my doc told me more than 6 months of carbo was uneffective anyway. I'd say your little body needs a rest and a regeneration period. Whatever you choose, you have all my blessings. Sue

Posts: 21
Joined: Dec 2003

Hi Sue,

My name is Rae. I was wondering if your treatment included taxol/carboplatin or carboplatin alone? Could you let me know by email
at drhats1@msn.com because I'm not real good with these thread messages yet.


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