Still fighting.

sdevilbiss
sdevilbiss Member Posts: 41 Member
edited March 2014 in Breast Cancer #1
I have now been breast cancer free for 13 years. I had a modified radical mastectomy with no reconstruction. I was on a tamoxifen protocal with the National Cancer Institute. My protocal was no lymph nodes involved and no Chemo with the tamoxifen. I was notified that the results were good with the tamoxifen alone for my group. Unfortunately, I was diagnosed with low grade lyphoma in 1998. It has been a hard pill to swallow, but I will survive the lymphoma as I did the breast ca. No treatment as of yet, because it is indolent and is slow to grow. My oncologist tells me I could go for years without symptoms and by then there may be a cure. They are getting closer everyday. I would appreciate hearing from "sisters" who are also fighting other cancers after breast cancer.

Comments

  • 24242
    24242 Member Posts: 1,398
    Keeping ON,
    yes you will just as you have done before, Survive. I am sorry you have to fight many more days, but we are here for you. Many here have had similar stories as you may have found so you have found a place where there are women such as yourself. I am just a 5 year survivor and can only hope that I have endured all I will have to it has been along road through recovery. Be good to yourself and we do look forward to hearing from you.
    Take good care of yourself first,
    Tara24242
  • nasa2537
    nasa2537 Member Posts: 311
    Hi...I'm not fighting any other kind of cancer, but I wanted to say hi, and that thoughts and prayers are coming your way! I'm glad the protocol worked for the breast cancer. And, I'm sure you WILL beat the lymphoma...you have a great attitude. God bless, Cyndi
  • hummingbyrd
    hummingbyrd Member Posts: 950 Member
    Hey lady, sorry to hear the news. I guess once diagnosed always diagnosed. I'm 41 and was dx w/ breast cancer at age 38. I've got bone mets now treated with radiation to my right arm and low back. I also had another lump removed from my other breast, but I'm doing great. Not technically in remission cause my tumor markers are still on the rise, but they can't find any cancer, thank God. For me that has been my refuge in all of this. I realized when I was first diagnosed, after I quit pushing the Demoral button, that this is just another thing. My diagnosis wasn't a death sentence, it was a new lease on life. I wake up w/ such a grateful attitude, I don't take any day for granted, I make the most of everyday I have because it may be and always has been possibly the last day of my life. Not because I have cancer but because thats the way it is. Who went to the World Trade Center thinking a plane was going to hit thier office? Who wakes up and says I'm going to have a heart attack today or a car wreck? Do you see what I'm saying any day can be anybody's last day. We are actually blessed by knowing that. We can take advantage of that knowledge. Slow down, enjoy life more, the kids, the grandkids, and a new relationship with God. I tell you I could not have done it without him. He will give you the strength to endure the tests, the treatments plus they make some good drugs out there to help also! Laughter helps me a lot. My docs tried to tell me how long I had to live. I said "nope, stop right there, my days are #'ed just like yours. You don't know how long I have to live, you don't know how long you have to live, but one things for sure we'll all be dead before I get this bill paid off!" I'm about 18 months past what I think they thought I would make, but that's not whats important. I'll be here till God calls me home. I may get hit by a truck tomorrow, but I'm not going to sit around and worry about it. As for a cure you're right lymphoma is one of the ones that they are on the verge of curing. I think we are about to see an explosion in medical technology with this gene therapy and stem cell research. Course we may see an explosion in the middle east first! I know I have a strange since of humor. Hey, when you can't sleep don't count sheep, go to the shepherd instead. God bless you, hope this helps. By the way I have Parkinson's, Sarcoidosis, got a divorce last year, lost my job and had to put my house up for sale. Sounds like a country song! But I still got my dog and by the grace of God got to keep my house and two wonderful boys, 13 and 10. Life is good, heavens better, but I'm living till I go.
  • geral
    geral Member Posts: 130

    Hey lady, sorry to hear the news. I guess once diagnosed always diagnosed. I'm 41 and was dx w/ breast cancer at age 38. I've got bone mets now treated with radiation to my right arm and low back. I also had another lump removed from my other breast, but I'm doing great. Not technically in remission cause my tumor markers are still on the rise, but they can't find any cancer, thank God. For me that has been my refuge in all of this. I realized when I was first diagnosed, after I quit pushing the Demoral button, that this is just another thing. My diagnosis wasn't a death sentence, it was a new lease on life. I wake up w/ such a grateful attitude, I don't take any day for granted, I make the most of everyday I have because it may be and always has been possibly the last day of my life. Not because I have cancer but because thats the way it is. Who went to the World Trade Center thinking a plane was going to hit thier office? Who wakes up and says I'm going to have a heart attack today or a car wreck? Do you see what I'm saying any day can be anybody's last day. We are actually blessed by knowing that. We can take advantage of that knowledge. Slow down, enjoy life more, the kids, the grandkids, and a new relationship with God. I tell you I could not have done it without him. He will give you the strength to endure the tests, the treatments plus they make some good drugs out there to help also! Laughter helps me a lot. My docs tried to tell me how long I had to live. I said "nope, stop right there, my days are #'ed just like yours. You don't know how long I have to live, you don't know how long you have to live, but one things for sure we'll all be dead before I get this bill paid off!" I'm about 18 months past what I think they thought I would make, but that's not whats important. I'll be here till God calls me home. I may get hit by a truck tomorrow, but I'm not going to sit around and worry about it. As for a cure you're right lymphoma is one of the ones that they are on the verge of curing. I think we are about to see an explosion in medical technology with this gene therapy and stem cell research. Course we may see an explosion in the middle east first! I know I have a strange since of humor. Hey, when you can't sleep don't count sheep, go to the shepherd instead. God bless you, hope this helps. By the way I have Parkinson's, Sarcoidosis, got a divorce last year, lost my job and had to put my house up for sale. Sounds like a country song! But I still got my dog and by the grace of God got to keep my house and two wonderful boys, 13 and 10. Life is good, heavens better, but I'm living till I go.

    Hi Hummingbird! What a wonderful outlook you have! I don't know which I'm doing more after reading your msg.-crying or laughing! Take care & keep up your sense of humor...Geral
  • sdevilbiss
    sdevilbiss Member Posts: 41 Member
    24242 said:

    Keeping ON,
    yes you will just as you have done before, Survive. I am sorry you have to fight many more days, but we are here for you. Many here have had similar stories as you may have found so you have found a place where there are women such as yourself. I am just a 5 year survivor and can only hope that I have endured all I will have to it has been along road through recovery. Be good to yourself and we do look forward to hearing from you.
    Take good care of yourself first,
    Tara24242

    Thanks for your encouragement. It means a lot to me to be able to have contact with people who understand. I remeber my 5 year anniversary. I stopped taking the tamoxifen. I celebrated life on that day. I am thankful that I have been breast cancer free for 13 years. You are right I will keep fighting and I will take one day at a time. Recovery is a forever because once cancer touches your life you are never the same. Thanks Tara24242
  • sdevilbiss
    sdevilbiss Member Posts: 41 Member
    nasa2537 said:

    Hi...I'm not fighting any other kind of cancer, but I wanted to say hi, and that thoughts and prayers are coming your way! I'm glad the protocol worked for the breast cancer. And, I'm sure you WILL beat the lymphoma...you have a great attitude. God bless, Cyndi

    Thanks Cyndi for your word of encouragement and prayers. I really appreciate hearing from survivors of this uninvited guest. I will fight the lymphoma.