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CURE
New method eradicates deadly brain tumors by 'starving' them of energy source Go to Science Daily for article.
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Brain Cancer from Mets Breast Cancer
I am on the EC forum because of my mom's resent diagnosis, but my SIL has been diagnosed with brain cancer from her ongoing battle with breast cancer, so I find myself on this forum too. Two spots on the brain (eye and ear areas) that are too dangerous to operate on. She will be undergoing whole brain radiation treatment…
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A life of Brain Tumors
Both my twin brother and I are childhood brain tumor (pineal germinoma) survivors. He was diagnosed at the age of 7 and I was diagnosed with the same tumor 5 years later at the age of 12. Fortunately both were successfully removed via surgery, chemotherapy, and radiation although we both still deal with effects now as…
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Great Update 10 years later anaplastic astrocytoma
When my sister was diagnosed in 2011 with an anaplastic astrocytoma, I must have read every single piece of scientific article and testimony from people surviving, ane surviving well. I am a little early, but my sister has been doing great. It has been 10 years since both surgeries, chemo, radiation. She is right now…
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Secondary Cancer resulting from Brain Radiation
Hey all, I’m new to the group. My husband was diagnosed 6 years ago with an Anaplastic Oligodendroglioma. He had surgery, radiation and PC chemo - he’s been stable since. This past May, he discovered a small bump along his incision line and about a month later, after a biopsy, he was diagnosed with a radiation-induced…
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Husband wiTh metatastic melanoma is in brain and I, the caregiver, have become an angry person
In September, 2016, two and a half years after we were married, my husband was diagnosed with metatastic melanoma (15 tumors in his brain) and two in his lung. Two months later (December 2016) I was diagnosed with breast cancer. Since I am his care taker, I chose a double mastectomy Before we got a 2nd opinion as to his…
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Gliosarcoma - Please Comment with your experiences
Hello to everyone! On February 19, 2010, my dad was diagnosed with Gliosarcoma. At first the doctors said it was Glioblastoma, but now they are saying it is Gliosarcoma. He had a crainomoty on March 24th. Most of the tumor was removed, and 8 wafers were placed in the cavity where the tumor was. He was to begin his…
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Anaplastic astrocytoma grade 3 wild type
I'm looking for some hope. My husband was diagnosed with an Anaplastic Astrocytoma grade 3 wild-type. He is 59 but very healthy. The doctor said he has the heart and arteries of a teenager. His presented with a few instances of olfactory hallucinations then a grand mal seizure back in late Feburary. He had an open biopsy…
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astrocytoma anaplastic 3 wild type looking for hope
Dear all, my mon has a AA3 wild type . Doctors said that wild type is the most aggressive form of AA3 with short survival time. I am looking for long term survivors to find hope! Thanks a lot
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Non operable grade 4 glioblastomas throughout the brain
New here. Dont really know where to start. My 45 yr old completely healthy husband was diagnosed 2 months ago with a more rare, extensive grade 4 glioblastomas. He started every day higher dose radiation 2 weeks ago. 4 weeks left to go. Then they want to start chemo 4 weeks later. There are many tumors with no option of…
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Just diagnosed with Meningioma
Ya i got hit today with the news. I am devastated. I dont even know what to think about it all yet. I knew something was wrong because when i moved my head around a lot with some speed or force I felt like I had a headache, or if i bent over.. Sometimes it was hard for me to focus on seeing words.. and some ringing in my…
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11 Years Post Brain Cancer STILL having Heat Intolerance problems (concerned as Summer approaches)
I am an 11 yr Medulloblastoma Brain Cancer Survivor and I was just wondering if anyone else feels the way I do in the hot summer months. Whenever it's 80 degrees out, I feel like it's 90, and when it's 90 I feel like it's 100 etc. I also get very lightheaded and disoriented with sometimes neuropathy. I've tried everything…
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adult medullablastoma
We have just recently found out that my husband has medullablastoma of which he just went through surgery to remove the brain tumor from his cerebellum. I know this is rare in adults and am interested if there is anyone who has gone through this type of brain cancer? Any contact would be great.
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Anaplastic Astrocytoma Grade 3 Survivor
Hello all, my name is Thomas and I am an AA3 survivor and just recently found this site and have chosen to post my story for encouragement and inspiration to others that have been diagnosed with this or other cancers. I will give you a brief history so you can somewhat see WHO I am. I was born December 29, 1970, this is…
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Astrocytoma Grade 3 survivor
Hello! I am a 17 year (almost) Astrocytoma Grade 3 survivor. Diagnosed in 1997 at the age of 26. Tumor removed on Halloween! Chemo and radiation. Tumor completely removed it seems. I have been a 100% until recent seziures side effects in 2008 due to scar tissue in the surgrey area. If anyone needs more detail about my…
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Gliomatosis Cerebri
Does anyone out there have gliomatosis cerebri or know of someone who does?
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Gliosarcoma
Dear All, My friend (37 years old) was diagnosed with GLIOSARCOMA two and a half years ago. This is a quick rundown on what happened: - He is 37 (35) then. - He was in good health until this incident - about 2.5 years ago one day after lunch he complained about headache. - the headache became severe and by evening he was…
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Low grade astrocytoma starting chemo/radiation
Hi hoping for some guidance and advice on maybe what to expect. I had very bad pressure headaches in fall 2020 mri revealed I had a small mass blocking spinal fluid going to the brain had to do surgery and felt fine recovery time was about 2 months. Had a follow up mri end of January and found the mass/tumor had grown and…
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Glioblastoma Grade IV
5-30-09 My sister was recently diagnosed with Glioblastoma and we are wanting to know as much as possible on treatment options, effects of , and alternative therapies. We understand it is important to educate ourselves but then to decide what our own journey will look and feel like. We know the power of thoughts and how…
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Update 8 years out: Anaplastic Astrocytoma; read if looking for hope.
For anyone looking for hope, I leave (infrequent) updates about my sister. I know I read so many post and journal articles looking for data about long term survival when she was first diagnosed. She was diagnosed with an anaplastic astrocytoma (grade 3) brain tumor in August of 2011 when she was in her late 20s. Chemo, 2…
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Grade 3, an anaplastic astrocytoma
My nephew-in-law was diagnosed with an anaplastic astrocytoma, Grade 3, last December. He had surgery at MD Anderson Cancer Center, recovery, rehab (very little was required) and 6 weeks of radiation He's recovered great, is back at work and driving. I'm hoping to find someone who has beaten the doctor's timeline diagnosis…
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COVID VACCINE BOOSTER GUIDANCE FROM CANCER TEAM
An FYI for Brain as I was diagnosed with an anaplastic astrocytoma 10 years ago but will post to other threads as well... In consultation with my care team at Dana Farber here in Boston I was given the guidance that the current pembrolizumab regimen I am on (infusions every 3 weeks) qualifies me as immunocompromised and I…
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Esthesioneuroblastoma
Anybody out there know of or have information on survivors of olfactory (esthesioneuroblastoma). I am a 2 year survivor and would like to communicate with anybody that has info. Thanks!
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Optic Nerve Glioma
Hi all. i was recently diagnosed with optic nerve pathway glioma. i am being told it is a rare type of brain cancer and i am looking for anyone with this diagnosis to connect with. I am scheduled to start a 6 week course of photon therapy at the end of july. wondering about side effects and if anyone out there has or has…
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Family Member 6 Months Left To Live
My brother in law was diagnosed with brain cancer 15 months ago. A few months ago treatment seemed to work as the tumor shrunk. And then today the doctors said it grew significantly and estimated 6 months left to live. I am trying to be so strong for my wife because i know I need to be there for her. But this news has…
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Recurring medulloblastoma in grandson
September 2018 our 7 year old grandson was diagnosed with medulloblastoma. Everything was going well until October of 2019 when Cat scan showed a small tumor had reemerged. They treated with a different type of chemo but it was ineffective. he started having motor function issues with speech etc and they went to hospitol…
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New Here: Question About Gliomas
Hi! My mom was diagnosed with a mass, presumed a glioma, on her right temporal lobe. She has waited it out to see if it will grow. After almost a year it grew a little and the Doctor is recommending surgical removal. We are all distraught, of course. Can anyone share their similar experiences? Any feedback is appreciated.
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Avastin alone, no chemotherapy with it?!
My husband, Jacob received the first infusion of Avastin yesterday ( failed temodar).It was Avastin alone , no chemotharapy added. When I asked the NO, he said there is no proven benefit of using chemo ( and there is a risk of platelets go down!). However, I read everywhere some type of chemo is always give along with…
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Ladies out there dealing with hair loss
Okay, I realize that in the grand scheme of things, hair loss from radiation is not really that big of a deal - but now that radiation is over (ended mid-September 09) and I'm on the Temodar cycles, I am seeing NO real re-growth! It's frustrating. With a limited life expectancy at this point, I really am trying to enjoy my…
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Medulloblastoma - stronger medication
Our grandson has braincancer medulloblastoma. He is about 17 months post rad and chemo. Last week he was back in Rome to have his nomal scan. My wife is worried because the parents won't divulge why the doctor recommended stronger medication. I have a feeling the cancer returned. Is there anyother reason why the doctor…