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Superthread (Read only) ~ contributed by Sweetblood22
Welcome new members! This is a read-only post that provides information about resources we, members of the head and neck cancer forum, found helpful as well as our answers to most frequently asked questions in our forum. Please feel free to send Skiffin16 a private message (PM) if you have something you think should be…
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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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NAV Test moving upward after treatments not down
I had a biopsy of my lymph nodes and which showed the presence of squamous cells. I then had a NAV Blood Test that was positive prior to any surgery, or treatment. Immediately following the pre-treatment NAV Blood test, I had a tonsilectomy of my right tonsil, eight weeks of radiation, and the same for Chemotherapy. I then…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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Good news
Hello good night, I want to share the joy that my husband no longer has Cancer, after 37 radiations and 3 chemotherapies he was discharged, he still has a gastric tube because it was in the throat but here we go [Content removed by CSN Support Staff]
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Desperately need advice, think I might have cancer
Hello everyone, I am posting here because no one in my family will listen to my concerns. First about me; I'm a 23 year old female, don't smoke/or drink. The troubles in my mouth started earlier this April when I came down with a sore throat but only on the right side. I also had one swollen bleeding tonsil and horrible…
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Pain in Jaw- 8 years after radiation treatment
Hi everyone, I had SCC in my left tonsil. I had surgery of tonsil and lymphnodes from righ side of my neck 2 camepositive for SCC and than had 70 Gy radiation treatment in 2016. I had severe osteoradionecrosis in my maxilla (uper jaw) started in 2018, two teeths came out on their own as the bone was not able to support…
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Sinus Area Cancer And Skull Base Surgery Information
Here is some information and links on sinus cancers and their types and treatments. AHNS Skull Base Surgery Section---Sinosal Patient Information INTRODUCTION Cancers of the nose and sinuses are a rare group of diseases that make up 3% of head and neck cancers and affect about 1-3 per 100,000 people per year. There a many…
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Got told today that I almost certainly have cancer
Hello group, This is just a random chain of thought because I can't sleep. I'm in my early 30s and I've been feeling sick the past couple of months and on Friday night, I realized that I couldn't eat solid food and that I have this large bleeding tumor thing under my tongue. On Saturday I went to the hospital and they took…
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Post treatment PET scan turns up new cancer cells in my lungs
I went in today for my 90 day Post treatment PET scan and it tured up new cancer cells in my lungs. I’m 64 years old and prior to this episode had never spent the night in the hospital. My original diagnosis was likely tonsil cancer, HPV related, that spread to the lymph nodes on the right side of my neck. I completed the…
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Stress and its affect on our immune system - hpv+
Approximately one year, or more, prior to my diagnosis, I experienced an extremely stressful time that lasted for some duration. I have always felt that this extraordinary stress was the trigger that started my whole ordeal. The doctors don't seem to want to engage in speculation as to the cause... other than asking about…
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HELP
Good morning, someone knows where you can help me with this month's rent, we haven't asked for help anywhere, during the process, but our savings have already been exhausted 🙈thank you
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American Head & Neck Society - Self-Examination of Neck Lymph Nodes
Short Video and explanation of Lymph Node self-exam. If you feel anything unusual get to your ENT or doctor right away. American Head & Neck Society - Self-Examination of Neck Lymph Nodes Take care, God Bless Russ
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Caregiver-question about husband 8 weeks post radiation for tongue cancer
My husband is 8 weeks post radiation after having 37 treatments and 5 chemo treatments for a tumor on his tongue. He seems to be in more pain now than weeks ago. He is on a Fent. patch, gabapentin, and 30 ml of oxy every 4 hours. He has lost 65 pounds and currently does not have a feeding tube. He is very nauseated and…
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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…
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From the American Head & Neck Society - May is Skin Cancer Awareness Month
Hello, friends and fellow H&N folks. I have come across this reminder video that May is skin cancer month. Skin cancer mostly affects the head and neck because of the common exposure. Also recently I found something I had not known before and that is melanoma, a skin cancer that can invade the underlying body. I read a…
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Three Weeks Behind Us
Hi everyone, My husband and I just returned home from his radiation #15 out of 35 so almost halfway there. It's been a bit of a roller coaster, but overall, tolerable so far. As a reminder, he has cancer at the base of his tongue, p16+, T1N2bM0, and began a protocol of 7 weeks with cisplatin chemo each Monday and radiation…
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Advice to Newly Diagnosed Head and Neck Cancer Patients
Christy, Bill, and Terry, who are all survivors living with head and neck cancer, and caregiver Jean share helpful advice to the newly diagnosed. For more information on head and neck cancer, visit https://www.cancersupportcommunity.or.... Take care, God Bless Russ
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AHNS: HPV Related Oropharyngeal Cancer: Epidemiology, Diagnosis & Staging, Treatment and Prevention
From the Cancer Prevention Service of the American Head & Neck Society, a 4-part webinar presentation examining Human Papilloma Virus (HPV) Related Oropharyngeal Cancer discussing 1) epidemiology, 2) diagnosis & staging, 3) treatment, and 4) Prevention. Take Care, God Bless Russ
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The American Head and Neck Society (AHNS)
For whom I may help I have encountered another website you may want to check out and maybe even bookmark, your choice. But I am posting this because I believe people from our H&N community can possibly find something of benefit on there. The American Head and Neck Society (AHNS) https://www.ahns.info/ Society Background On…
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Personal Patient Interview And Review Of His Cancer Experience And Treatment
This is a personal interview with a patient who went through an operation to remove lymph nodes and cancer of the saliva gland with follow-up radiation and chemo. The one lymph node was not encapsulated and starting to spread which to me means it is good they caught it when they did. This all started though with Melanoma…
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NavDX A Case-Based Discussion On The Utility Of NavDX AHNS H&N Conference
This is a discussion of the use of NavDX and covers real-life cases. 1 Hour Video Detection of HPV-Driven OPSCC: Clinical Evidence of an Innovative Blood Test - A Case-based Discussion of the Clinical Role of NavDx in Managing OPSCC Faculty: Dr. Chris Holsinger, Professor of Otolaryngology, Stanford University School of…
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Loss of muscle mass
after the cisplatin chemo, I lost considerable muscle mass. Anyone experienced this? If so, will it ever come back?
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Mike Linn Cancer Victory Story
This is a short video of Mike Linn and how he beat terminal stage 4 Melanoma and then had a recurrence which manifested itself in the lymph nodes in his neck and also in his tongue. Check out his other videos while you are there. Mike Linn says... I'm going to continue to keep making content to help myself and other cancer…
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How Long Do Chemotherapy Side Effects Last? All You Need to Know
I think this video is noteworthy enough to post. Although it is from a breast cancer presenter I believe it applies generally to chemotherapy effects which are much the same as H&N people get. It is well presented. How Long Do Chemotherapy Side Effects Last? Take Care, God Bless Russ
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Recommendations for Dentists with Head & Neck Cancer experience
Hi, I’m looking for a good Dentist with Head & Neck Cancer experience in the Houston, TX area. I was diagnosed with Squamous Cell Carcinoma of the oral tongue in 2012. I received a left partial glossectomy and bilateral neck dissections with left forearm free flap reconstruction and Radiation therapy. I was doing well…
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Food and fluid residue coming out of the nose
Hello all, Four months later, I was two years old when I had a total laryngectomy, and swallowing food during this period went through some fluctuating stages. But these days I have noticed a new condition, which is that when I swallow food (soft food with liquids), I feel it rising into the nasal cavity. For example,…
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How long have you survived
I think this would encouraging for new and old members to read how long you have survived H&N c (cannot give it a capital) I am a 5 month survivor of Right tonsil c, with 1 lymph node involvement T1N1M0 Cheers Jen xxxxx
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Oral Cancer
Hello everyone. I first would like to wish all of you good luck with your treatments and such. August 31st I found out I had a tumor between my lower jaw and inner cheek. After the dentist, the oral surgeon and all my scans I found out I had stage 3 because it spread to the lymph node right under the jaw and the tumor is…
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Feeding Tubes for Head and Neck Cancer (Short Video)
Hopefully, this may help someone now or later... Christy, Jean, Bill, and Terry shares their stories with getting feeding tubes while getting treatment for head and neck cancer. They also share advice on weaning off a feeding tube. Visit https://www.cancersupportcommunity.or... for more information on feeding tubes and…
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ROLL CALL 2024
How is everyone doing, I hope all is well with each of you. I hope you are recovering nicely from your cancer treatments and are returning to your life as it was prior to your diagnosis. Well, this will be my last time running the entire Roll Call by myself. Over the past few years I have continued to fall further behind…
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Christy's Story of Living with Head and Neck Cancer (Short Video)
Sharing to help others...maybe you can relate or find help or comfort through it... Christy, a survivor living with head and neck cancer, shares her cancer story. For more information on head and neck cancer, visit https://www.cancersupportcommunity.or.... Take care, God Bless Russ