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Post treatment PET scan turns up new cancer cells in my lungs
I went in today for my 90 day Post treatment PET scan and it tured up new cancer cells in my lungs. I’m 64 years old and prior to this episode had never spent the night in the hospital. My original diagnosis was likely tonsil cancer, HPV related, that spread to the lymph nodes on the right side of my neck. I completed the…
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Recent Japan Data Released Increases In Mortality Rates of all Cancer & Head & Neck Cancer
Hello everyone, there is a new report out from Japan about increased cancer rates of all cancers and specifically some head & neck cancers, released on 4/8/24. Statistically significant increases in age-adjusted mortality rates of all cancer and some specific types of cancer, namely, ovarian cancer, leukemia, prostate,…
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2 years post treatment - 52 yo - quitting flouride, embracing flossing
I had left tonsil excision as well as a lymphectomy plus 33 rounds of max 70Gy radiation treatments coupled with 6 rounds of chemo, half cisplatin until my hearing suffered and then half carboplatin and taxol. The cisplatin roasted the main veinous pathway in my right arm. I returned to competitive master swimming last…
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"Total Metabolic Response to Treatment" :: but questions about recurrence
I'm a guy who likes to know the numbers, although I do completely understand the opposite mindset. 9 months ago I was diagnosed with a late stage SCC (P16+) advanced to local lymph nodes. They gave me 6 months to live. Last week I was given the all clear, completely clear PET scan with a report indicating "total metabolic…
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Cancer Survivor Interview: Oropharyngeal Cancer, Treated With Robotic Surgery
Direct interview with a cancer survivor and his story of treatment and recovery… Cancer Survivor Interview: Oropharyngeal Cancer, treated with Robotic Surgery Take Care God Bless Russ
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Dr Itzhak Brook Keynote Address. “ Back to Life” After Laryngectomy
This is a short video of Dr Itzhak Brook giving the keynote address. He is a Head and Neck cancer survivor who goes over the many aspects of H&N cancer including things like your diagnosis and thoughts that go through your mind like suddenly you are in a major crisis, it shatters your invincibility, and you are suddenly…
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Tonsil cancer stage 4
Hi everyone just wanted to share today that my husband is cancer free for 13 years! Am not saying it’s not been hard but he is alive and with me. Keep the faith Linda
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Happy Birthday, if I may...
Today is my beloved husband's 61st birthday. After spending a "relaxing" 8 hours in chemo, our family went to dinner and celebrated him. As some of you on this board know, he is being treated for metastatic head and neck cancer...now in his lungs. His ct scan on the 3rd of July showed SO MUCH improvement. It was a…
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Hot spots on follow up PET scan
My husband has been fighting cancer since January. Tumor on base of tongue and cancer spread to lymph nodes on both sides. After concurrent chemo/radiation treatments ending this past March, he had the follow up PET scan last Thursday. We were called into office for Friday and told that the cancer in his tongue and lymph…
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Got told today that I almost certainly have cancer
Hello group, This is just a random chain of thought because I can't sleep. I'm in my early 30s and I've been feeling sick the past couple of months and on Friday night, I realized that I couldn't eat solid food and that I have this large bleeding tumor thing under my tongue. On Saturday I went to the hospital and they took…
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How to move on post head and neck cancer
Hi Everyone, Hoping for some advice for my husband. He had mouth and tonsil cancer the end of 2021, he was 43 at the time. He had surgery to remove 1/3 of his tongue, the tissue on floor of his mouth, all his teeth and 4 lymph nodes. This surgery included skin graphs from his arm and thigh to replace the tissue in the…
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neck swelling after radiation
I had HPV-tonsil cancer in 2016 and had 35 rounds of radiation and 7 chemo treatments with cisplatin. I finished the radiation treatments in October of 2016. I have the lingering effects of no taste and no slaiva but deal with that. My neck started swelling in the past few weeks and I went to my ENT doctor and they…
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ROLL CALL 2024
How is everyone doing, I hope all is well with each of you. I hope you are recovering nicely from your cancer treatments and are returning to your life as it was prior to your diagnosis. Well, this will be my last time running the entire Roll Call by myself. Over the past few years I have continued to fall further behind…
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This April marks Oral, Head, and Neck Cancer Awareness Month
There are many support groups and some are having special activities. Check out some of the groups you may find something helpful in one of them. Support for People with Oral and Head and Neck Cancer (SPOHNC) pronounced "Spunk" is a nonprofit organization involved in the development of programs of support. As such it can…
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Treatment Complete - Let the Healing Begin
Hi everyone. My husband completed his last of 7 chemos last Monday and his last of 35 radiation treatments on Friday. It was a very emotional week as it was as taxing as everyone describes. know that this first week after treatment can be the worst and it is shaping up to be so. We were lucky in that he did not have any…
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Joe Tippen Cancer Story-Recently Shared With Me-For Your Consideration
Joe Tippen's personal story of battling cancer. He was given 3 months to live. His story is certainly different let's say but when your life is in the balance that changes things. I am just going to leave a link to his blog covering the whole story and my friends you can draw your own conclusions. It is a worthwhile read.…
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Cancer Survivorship – Patient Education on Post-Treatment Care
Hello everyone. Survivorship is not always easy but we persevere. There is help out there in many places these days. Here is something I found on the American Head and Neck Society (AHNS). It is a long list of post-treatment issues you can click on and it takes you to a page covering that subject, explaining how to…
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Loss of swallowing after radiation therapy
Welcome, I hope you are fine, Ask about the veterans who lost swallowing after IMRT, and how long did the problem last? What are the solutions before us? My father, after 5 months of IMRT, completely lost his ability to swallow and fluids began to come out of his nose. And now we are very disappointed Loss of swallowing…
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Update on throat cancer journey.
I posted some info about my throat cancer journey and the potential for neuropathy in my hands. I play several instruments and I was very worried. Luck was with me and I had no neuropathy at all. I did use cold therapy every time I had chemo. I don't know if that is what helped but it's how I dealt with it. I did have an…
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Good news
Hello good night, I want to share the joy that my husband no longer has Cancer, after 37 radiations and 3 chemotherapies he was discharged, he still has a gastric tube because it was in the throat but here we go [Content removed by CSN Support Staff]
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Introduction to Skin Cancer – For Patients - This Covers It All - Very Extensive Guide
Below is a very extensive guide on skin cancer from the "American Head & Neck Society". I believe it covers every kind of skin cancer with pictures for comparison and identification and printable handouts along the way you can print out. As we all know the sooner and smaller we get any cancer taken care of the better. I…
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Throat Cancer From A Virus-Facts You Should Know
Below is a link to a small quick chart for information on the subject and is a PDF. you can download and print it out if desired. Take care, God Bless Russ
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NAV Test moving upward after treatments not down
I had a biopsy of my lymph nodes and which showed the presence of squamous cells. I then had a NAV Blood Test that was positive prior to any surgery, or treatment. Immediately following the pre-treatment NAV Blood test, I had a tonsilectomy of my right tonsil, eight weeks of radiation, and the same for Chemotherapy. I then…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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Desperately need advice, think I might have cancer
Hello everyone, I am posting here because no one in my family will listen to my concerns. First about me; I'm a 23 year old female, don't smoke/or drink. The troubles in my mouth started earlier this April when I came down with a sore throat but only on the right side. I also had one swollen bleeding tonsil and horrible…
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Pain in Jaw- 8 years after radiation treatment
Hi everyone, I had SCC in my left tonsil. I had surgery of tonsil and lymphnodes from righ side of my neck 2 camepositive for SCC and than had 70 Gy radiation treatment in 2016. I had severe osteoradionecrosis in my maxilla (uper jaw) started in 2018, two teeths came out on their own as the bone was not able to support…
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Sinus Area Cancer And Skull Base Surgery Information
Here is some information and links on sinus cancers and their types and treatments. AHNS Skull Base Surgery Section---Sinosal Patient Information INTRODUCTION Cancers of the nose and sinuses are a rare group of diseases that make up 3% of head and neck cancers and affect about 1-3 per 100,000 people per year. There a many…
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Stress and its affect on our immune system - hpv+
Approximately one year, or more, prior to my diagnosis, I experienced an extremely stressful time that lasted for some duration. I have always felt that this extraordinary stress was the trigger that started my whole ordeal. The doctors don't seem to want to engage in speculation as to the cause... other than asking about…
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HELP
Good morning, someone knows where you can help me with this month's rent, we haven't asked for help anywhere, during the process, but our savings have already been exhausted 🙈thank you
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American Head & Neck Society - Self-Examination of Neck Lymph Nodes
Short Video and explanation of Lymph Node self-exam. If you feel anything unusual get to your ENT or doctor right away. American Head & Neck Society - Self-Examination of Neck Lymph Nodes Take care, God Bless Russ