-
R chop
Hello, My mom started mini r-chop for her lymphoplasmacytic lymphoma with richters transformation . Her first treatment went ok but she had a reaction to one of the meds which was stopped. Her white blood cell count went from 158 down to 29.5 the day after treatment. The number now is up a bit to 58 a week after treatment.…
-
Waiting for Diagnosis
Hello, I had a neck CT for a follow up to parathyroid surgery I had in the summer, and the report came back showing "3 x 2 cm pathologically enlarged left supraclavicular lymph node. Pathologically enlarged bilateral level 1B lymph nodes, up to 15 mm in long axis diameter. Several greater in number than size lymph nodes in…
-
Support for survivor teen daughter
Hello I was wondering if there are any support groups meeting in Connecticut that can help my 17 year old daughter cope. She says that nobody understands how she feels and we can’t possibly relate. I really hope to get her the help she needs here, so her life can have more meaning, and she can cope with having to relive…
-
Losing Your Smile
Did anyone's teeth start to break so easily after receiving intensive radiation? I have completely lost most of my teeth and I get excruciating pain in my teeth for days and since I was homeless I didn't have the means to go to a dentist and check them out and I'm so afraid my smile is horrible I hate speaking to people I…
-
"To infinity and beyond"
My never-boring, fifteen-year HL adventure has a new twist: I'm scheduled for a liver biopsy in about a month. My enzymes won't play right, and the gastro people want to find out why. I've already had a lot of lab and ultrasound work. It is NOT believed to be malignant in causality. Their best-guess is that it is a long…
-
Biopsy journey
Hi, I just wanted to see about getting other opinions on my whole journey I’ve been on for the last three months. The week before Thanksgiving, I noticed there was a big ball formed under my left armpit. Went to urgent care, she said it was an enlarged lymph node. We did blood work and CBC came back showing high LDH, low…
-
4 vs 6 cycles of R-CHOP for DBC-NHL
Does anyone have any experience or research on going 4 cycles instead of the recommended 6-8 for diffuse large B cell non-hodgkins lymphoma? I found an article titled: (this site won't let me share the link but you can find it via Google search) Treatment With Four Cycles of R-CHOP Is Non-Inferior to Six Cycles in Some…
-
Autologous stem cell transplants
I'm set to have an autologous stem cell transplant next week. I finished six cycles of chemo and the chemo has beaten the cancer into remission. I have EATL lymphoma which is a T-cell lymphoma. I'd love to hear from anyone who has undergone the procedure. I don't really know what to expect other than the fact that the…
-
Husband just diagnosed with MCL
After 6 weeks of testing, my husband has been diagnosed with a rare cancer, mantle cell lymphoma. We are waiting for Mayo Clinic in Rochester to call us. We are in the small town of Ironwood in the upper peninsula of Michigan. Our oncologist is out of Chicago. He said he would start my husband on chemo here, while we wait.…
-
My daughter 28 has been diagnosed
I need advice on how to cope and be strong for her
-
Soft tissue Density in Peritoneal
Good evening. Said I wasn’t gonna do it yet her I am. In Aug my Onco ordered CT scan of abdomen & chest due to me being symptomatic -night sweats started in April & now low grade fevers nightly along with fatigue. Have been in remission from FNHL stage 3b since 12/2016. Did 8 rounds of Rituxan for maintenance. the CT scan…
-
Anyone else get triggered like me?
I’ve noticed lately that I’m always seeing on tv shows or movies where they say so and so died of cancer. When they do this I always get a flood of anxiety all over my body like an adrenaline rush. It also happens on social media. I will see someone post about how their relative or this famous actor died of cancer and it…
-
Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I was recently diagnosed with Nodular lymphocyte predominant Hodgkin's lymphoma. Stage 2a with a bilateral presentation of lymph nodes with disease above the diaphragm. I just started R-ABVD, will do 3-4 cycles followed by radiation. Was hoping to hear from others with this condition and who have done this chemo…
-
Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
-
AITL T-Cell Lymphoma & Returning Rash
Husband had a bad rash all over his body last November with swelling in his hands and ankles. His rash lasted 2 months. He didn't get an official diagnosis until September of this year. He's had 2 rounds of CHOEP and the rash is starting to return. Has anyone had the rash return while on chemo?
-
Looking for someone who understands
This is my first time using this website but I just wanted to make a post to see if there was another 21 year old with stage 3 lymphoblastic lymphoma out there who can understand what I’m going through and maybe needs someone to talk to as well.
-
Primary central nervous system lymphoma
Can anyone help direct me to a list of hospitals in Illinois that administer high dose methotrexate? My wife was diagnosed with PCNSL in October 2021. She did not do the HDMTX treatment at that time but her cancer has returned and we are considering that treatment option this time. I had found a list somewhere that only…
-
Please Share Your Diffuse Large B-Cell Lymphoma Journey
Hello, I was just wondering if anyone would like to share their journey with me and others about having diffuse large b-cell lymphoma. How their treatment went and if they had a relapse or not. If they had a transplant, how long has it been since that happened and how they are doing? If you read the print down below, some…
-
looking for similar experiences
I just want to start by saying I appreciate that many of you are not health care professionals and I am not looking for a diagnosis from anyone and also I understand that everyone’s experiences and symptoms are different. I am a 30yo(f) for the last few months I have been experiencing extreme fatigue in all aspects…
-
Looking for experience with R2 Treatment, Rituximab and Revlimid
I’m looking for people with experience with 2nd line treatment and R2. I remain with widespread nodal swelling near my stomach, kidneys, IVC and small bowel. The Follicular NHL has been deemed refractive after 8 cycles of G-CHop which ended in April 23. New treatment is advised as cancer cells were found in chylothorax…
-
AITCL - CHOEP & Side Effects
For those that have went through treatments with (CHOEP - Doxorubicin, Vincristine, Cyclophosphamide, Etoposide, Prednisone), what cycle of treatment did you start losing taste? Husband is having his second cycle next week and I’m wondering if he will still be able to enjoy Thanksgiving food on the 23rd.
-
Weed
Hello All, I have a question! Has anyone here smoked weed or ate edibles during the chemo treatment? At home of course. Just curious if it actually helps/works. Thank you!
-
Scared and Anxious!
Hello all, I am a 24 year old female who was diagnosed with Classical Hodgkins Lymphoma in March. I started my 6 cycles of chemotherapy at the end of July and I have had a horrible time coping with my new reality. The first couple of treatments were really rough and though it’s getting better and each treatment gets…
-
Frightened about possible diagnosis
Hi all, I'm a 31 year old female. A year ago I was diagnosised with ovarian cysts, and my gyno sent me off for a PET scan to measure the cysts, because they were quite large on the ultrasound. On the PET, an enlarged lymph node was seen in my retroperitineum, and my spleen was enlarged to 15 cm. My gyno sent me to an gyno…
-
EATL LYMPHOMA
I recently started treatment for EATL lymphoma which as I understand it mainly affects people with Celiac disease (which I have). It is in the T-cell lymphoma family. Do any members have this variety of cancer? I would like to hear from people going through treatment, especially survivors. All comments are welcomed. Thanks.
-
The Un-known Here we go Again
My husband had head and neck cancer 12 years ago. He had some heavy doses of chemo and 32 rounds of radiation. He's a survivor for 12 years. Last November he broke out all over his body except his head. Not to long after, his feet, ankles, and hands were swelled. We went to the family doc, and he was referred to a…
-
Splenic Cystic Lesion - further evaluation with MRI
Hello. I am in my mid 50's and a year ago I was diagnosed with testicular cancer. At that time a CT scan of the abdomen and pelvis was done and an incidental finding was a 5cm simple cyst in my spleen. Every few months I get a CT scan of the abdomen and pelvis to make sure that the testicular cancer has not come back.…
-
I NEED HELP WITH DIAGNOSIS - LYMPHOMA
I will try to be as short as possible. I am 18 years old - Male Around 10 months ago i noticed an increased lymph node on the back of my neck (occipital lymph node)- ignored it as many say oh it’s just your body fighting ilness. Month after that, I noticed the second lymp node appear right beneath it - also occipital lymph…
-
Adriamycin?
I have recently been diagnosed with atrial fibrillation (afib). I don't have any of the usual causes: high blood pressure, high cholesterol levels, diabetes or high blood sugar, sleep apnea, obesity, and smoking. There is a genetic dispensation and my mother had afib but not until she was 90 and she had been treated for…
-
PORT & pleural effusions
Can a PORT still be placed if there is large right and moderate left pleural effusions? Husband is getting the Port put in tomorrow morning.