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Fighting Rhabdomyosarcoma
Hello all, My beautiful 1 year and a half old son was recently diagnosed with embryonal rhabdomyosarcoma in his middle ear. We have completed 4 cycles of chemotherapy and just discovered that the cancer has progressed. At first, his tumor showed great response to chemo and reduced significantly in size after just 2 cycles.…
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Childhood cancer survivor
I was diagnosed February 14, 1989 with a mixture I’m so brain tumor I was given a 5% chance of living. I am now 43 years old realizing that I’ve had problems all my life with commitment and holding down job. The job part was not that I could not do the job or that I was not good at the job. It’s just something that was…
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Wilms Tumor Survivors
Hi, I am a Wilms Tumor survivor. Were any of you who survived Wilms Tumor as a child had a mother who was a smoker by chance?
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8-year-old Chinese boy diagnosed with rare brain cancer, parents seek treatment experience
Hello everyone, I am the father of an 8-year-old boy from China. My son suffered an epileptic seizure in August this year and was diagnosed with a brain tumor. Puncture biopsy and craniotomy were performed, and the pathological diagnosis was polymorphic xanthoastrocytoma grade 2-3 (APXA), which is a high-grade glioma.…
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long term survivors
Are there any other long term childhood cancer survivors out there ? Does anyone need to talk to a long term survivor.
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Looking for childhood AML survivors
Hello, I survived AML when I was 6. I am 27 now and finding it hard to relate to most people given they don't understand the struggles I went through as a child and the impact those experiences had on me. Does anyone else feel this way?
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Clear Cell Sarcoma of the Kidney
Our son was recently diagnosed with Stage 1 CCSK. He is currently undergoing chemo per the COG protocol (Regimen I). It has been very difficult and terrifying but we are trying our very best to stay strong and positive. We would love to connect with any family out there who is going through this rare diagnosis of CCSK.
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Side pain after ovarian transposition
Last year, when I was 18, I was diagnosed with Ewing's Sarcoma in my lower abdomen, and I received chemo and radiation treatment, which I finished in January of this year. Before starting radiation, in October 2022, I had my right ovary moved up out of the radiation field to try and preserve it, they didn't move my left…
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Have any childhood cancer survivors experienced mental difficulties in their adult years?
I've had this overwhelming depression on my shoulders ever since I hit my late teens. A lot of simple conflict situations in social environments give me a life or death feeling like I need to either escape or my life is in danger. I have anxiety at times that seems to make the people around me feel uncomfortable. They'll…
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The Other Space - An Animated Short Film for Pediatric Cancer Patients
Hello! I was diagnosed with stage 4 osteosarcoma in 2012. My tumor was in my tibia and had already spread to my lungs at the time I got diagnosed. Now as of July 16th I have been in remission for 10 years! Just before I was diagnosed, I toured CalArts for the first time as I was aspiring to go into the animation industry.…
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Germ Cell tumor - help needed
Hi is anyone suffering from germ cell embroynal carcinoma stage 3(2c) metastisez to brain lungs and abdomen and testis
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ACUTE LEUKEMIA SURVIVOR
I WANTED TO BE IN CONTACT WITH SOMEBODY WHO HAS HAD THE SAME EXPIRENCE OF ACUTE LEUKEMIA AND SIMILAR TREATMENTS.
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LOOKING FOR A.L.L survivors in their 30's
I AM LOOKING FOR ANYONE WHO WAS TREATED FOR A.L.L FROM THE MID 70,S THROUGH THE LATE 80,S. WOULD LIKE TO DISCUSS ANY LATE EFFECTS. I AM NOW 37 YEARS OLD, WAS DIAGNOSED IN 76 AND WENT THROUGH APP. 12 YEARS OF CHEMO/RAD "3 RELAPSES" ENDING IN 1988. I WOULD JUST LIKE TO COMPARE NOTES AND SEE IF ANYONE WITH A SIMILAR HISTORY…
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Childhood Rhabdomyosarcoma, Adult Acoustic Neuroma, Current Meningioma tumor & 3 Dozen Late Effects
"Content removed by CSN Support Team" This explains my nightmare, due to my health from multiple cancers originating first from childhood cancer at the age of 2 my life has been a nightmare. This truly is my last hope or chance, I have lost everything and everyone because of the late effects of my cancer and the treatments…
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Wilms Tumor Survior
Hi. I'm 25 and I was diagnosed with a wilms' tumor at the age of 4 through a series of events. I was hospitalized for a routine appendectomy. My appendix was removed but after recovery I still had severe abdomonial pain. I was again hospitalized and had an exploritory operation. They discoverd that my intestine had twisted…
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Rhabdomyosarcoma survivors
Hello, I'm 22 year old rhabdo survivor (embryonal). Looking to see how many of us there are and to connect!
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anxiety about late effects
Hello, I was diagnosed with stage 2 Ovarian Cancer at the age of 7 and got my right ovary removed along with the tumor. They then realized that my cancer had spread to my lymph nodes and I had to do chemo therapy. I have been in remission for 12 years and for the past 2 years have been having anxiety and great fear…
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Adults that had Wilms Tumor as a child
Hello My name is Elizabeth and i am looking for anyone else, who had wilms tumor as a child or know anyone that did? I am 28 years old right now, I have been cancer free for 22 years.
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Leukemia survior making a documentary
Hey Everyone, I am a 20 year old survivor of Leukemia. I am a media studies and sociology major at the Claremont Colleges in Califonia. I am currently working on a documentary about the experience of cancer. I would love to hear peoples stories to include in my film. I am also open to talking to anyone, off the record.…
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ALL SURVIVOR/NEW WANTING TO SAY HELLO!
Hello! My name is April! I was diagnosed with ALL in 1986 at the age of 4. I received treatment at the Children’s Hospital of Philadelphia. During this time I was also allowed to receive treatments at home with a visiting nurse that came out to my house. My mom remembers everything from when I was sick, but I only really…
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hodgkin's disease childhood cancer survivors
Dear all, I wonder if there are any childhood cancer survivors of hodgkins disease. I would like to write to you, as I am a survivor myself, and am new to this. Thanks Jaye
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I survived.
Hey All I'm Michelle I'm 41 and a childhood cancer survivor. I had A.L.L. Acute lymphblasticc Lukimia whoever that's spelled I was also and experiment as well and a survivor out of 35 kids yes they all died I lived with another survivor a boy but I'm not sure he's alive or if I'm the only one. I been sick My whole life…
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Child Brain tumor
I am Looking for some people who have or are currently going through treatments with their child with a brain tumor. My four year old niece was diagnosed in april this year with a pineoblastoma brain tumor. Has undergone so much and would love to hear from others
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Wilm's Tumor
Hi! I'm new here and new to this idea of reaching out to other cancer survivors, so I was hoping to connect with someone who had Wilm's Tumor as a child. I was diagnosed at 9 years old and am now 27. I went through intense treatment and am lucky to be alive (as we all are, I'm sure!). I just wanted to connect with others…
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Ewings Sarcoma Survivor
Hey guys! I am a ewings sarcoma survivor of about 9 years. I am 20 years old now, and was treated in 2013. I have been struggling with health anxiety lately. I am constantly worried that something bad is going to happen to my health again. Does anyone else experience this?
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Any 'older' neuroblastoma survivors out there?
Hi all-- I'm a 51 year old survivor from neuroblastoma, discovered when I was 8 weeks old in 1958. Is there anyone else out there who has survived a neuroblastoma from the '50s or 60's? I'm wondering if anyone has had problem with ganglioneuromas? Anyway, I'd be interested in talking with others who have survived this…
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30 year childhood Leukemia cancer survivor
Hi, my name is Rebecca. I was diagnosed with ALL November 15, 1988. I was 12 and in 7th grade. I was treated at the Valerie Center in Summit, NJ. This year will be 30 years since my diagnosis and I'm doing pretty well . I'm looking to chat with fellow childhood cancer survivor and see how everyone is doing in their…
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Survivors who have excelled
Growing up a childhood cancer survivor I never felt that my cancer defined me, or made me different than other people. This belief was largely instilled in me by my Mother, who probably did not want people treating me different from other children, but as I have gotten older I have researched more on childhood cancer, and…
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The tough side of childhood cancer
Hello all, I'm new here. I was diagnosed with neuroblastoma when I was 4 months old and am now 21. I was very lucky they found my tumor, most nurses could not feel it. I feel proud and lucky to be a cancer survivor. But, I've had a lot of challenges growing up. One of my main challenges is not remembering the experience at…
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Childhood cancer survivor in the 1970's
I am a cancer survivor who was diagnosed at age 5 with ALL in 1972. I was treated with the St. Jude's protocol at my local hospital. I am now about to turn 55 and have had multiple health issues as I've grown older. I'm reaching out to see if there are any of you that were diagnosed in the 70's , treated and survived. I'm…