Anyone with hemagiopericytoma?
Comments
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Viet Nam vet & have hemangiopericytoma for abot 4 years. I have been on Votrient for about two & a half years. The side effects are getting to me. The diarrhea is terrible. Had a brain tumor removed, now I have it in my right hip.My doctor told me I am his only patient with this cancer. Hang in their
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Same Viet Nam Vet. Still have this disease. Started in left side of head, removed and 30 radiation treatments. Came back in right hip 3 years later. VA though it was arthritis, but my wifes surgeon took an x ray. Sorry, you have cancer. Thank God, my doctor at Emory Hospital knows what he is doing. Pet scan about every 3-4 months. Votrient is the only keeping it in check. Get it free from the drug company.
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