RRP followed by PSA Rise

hewhositsoncushions
hewhositsoncushions Member Posts: 409 Member
edited March 2018 in Prostate Cancer #1

HI all

So I went in on Thursday morning for my RP.

Spinals and catheters were a bit of a drama but got there in the end. Don't even remember going down or waking up.

Felt woozy for the remainder of the day which made getting used to the catheter fun.

Consultant said the surgery went well and that he managed full nerve sparing on the left hand side and the rest went perfectly. Six weeks to wait for the biopsy review.

Had lots of chats about after care and have a load of meds and laxatives to work through plus 28 days if blood thinning injections.

Have got massive bloating but not where I expected. Face was fine, abdomen slightly distended and getting floating gas in my shoulders but the suprise was, well... lets just say the word cantaloupe describes my current underwear containment needs :)

Had one porthole leak on me but we are managing that.

No sensation loss anywhere that I can feel (bloody toes hurt this morning being stuck in the DVT stockings overnight) and Mr Willy doesn't appear to have lost any feeling. No pneumatic reaction though which was not surprising.

Feel worse today I suspect as the operation meds are wearing off. Working really hard to take it easy.

Constipation is going to be my big battle - I have not gone yet and ever time I try it feels like I am tearing my innards up. Need to be patient!

Only big hit I have had was the job offer I was waiting for got pulled due to budgets. Gonna have a fight to get back to the real world soon.

I have to say I attribute a lot of the success outside of the medical team skills to the fact that I lost over a stone (more to go) and went on a hardcore training regime for two months before the op. My fitness levels are now the same as someone a lot younger, but I will need some work to recover what I am going to lose over the next month of recovery. Something to bear in mind!

Thanks for all your support, folks!

Cushions

PS - watch out for laughing and coughing.

«13456

Comments

  • Lucky64
    Lucky64 Member Posts: 29
    edited June 2017 #2
    Glad you're feeling well!

    Hi Cushions,

    I'm leaning towards surgery, I'm a Gleason 4+3, what is your age and #? Was it robotic? My surgeon says I can stay two nights in the hospital, did you need two? What excecise prep did you do to help with surgery? Why will it take 6 weeks for the biopsy?

    All the best,

    Nick

  • Old Salt
    Old Salt Member Posts: 952 Member
    Sorry about that job offer; Brexit?

    But glad to hear that the surgery appeared to have gone well. 

    Hope that the catheter bags (and multiple diapers) will be a thing of the past before too long. In the USA, the advice for most prostatectomy patients is to start walking ASAP, but be gentle to yourself, for obvious reasons.

  • RobLee
    RobLee Member Posts: 269 Member
    edited June 2017 #4
    Glad it's over

    Congratulations on pulling thru without complications. The constipation thing is always a problem. Give it three or four days. I've had three abdominal surgeries in the past year (two in recent weeks) and start with a stool softener immediately, first night add a stimulant and another the next morning. Increase the dose each day, morning and night. If by day four still nothing (including your post-op day) then do something drastic like magnesium citrate, double the normal dose. I always hate having to deal with this, but it is unavoidable.

    BTW Lucky, my robotic involved only one overnight in the hospital.

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 409 Member
    edited June 2017 #5
    @Lucky

    @Lucky

    I felt RP was the logical option as I was 51 with four cores G7 (4+3) at T2. It seems to be the consensus that for younger (ish:)) people RP followed by other treatment is better as doing salvage RP after radiotherapy etc. is harder. I stayed one night and was discharged mid afternoon. I could have gone earlier but I had a slightly elevated temperature. Trust me - one night in a 4 person ward cube is enough. I had to be woken every hour overnight for obs. Prep wise I hired a personal trainer and dietician team two months in advance and tried to hit 2-3 sessions a week (HIIT / Tabata with high rep mid level weights as well) with the trainer, kept calories below 2000 per day (with some fasting) and aimed to get as much above 10,000 steps a day as possible. I doubled my fitness levels over that period! I lost over a stone and am convinced that the dient and training made things go far easier and will also make recovery easier. The follow up meeting is six weeks standard for the NHS.

    @Old Salt

    Thanks. I have no idea why they canned the role but it happens a lot in my trade. I seem to be doing OK with the catheters - my wife has been an angel with all the messy fundamentals. I owe her big time! I am moving around and keep getting told off for trying to overdo it. Need to be patient!

    @Rob

    Thanks for the advice. I have a washbasket full of meds to take which include two different types of laxative. They only kicked in today when I tried to pass an elephant. My son was mercilessly ribbing my screams of pain from the bathroom (but he did give me a well done hug afterwards :)) I hope this means things start flowing normally now!

    @Max

    I think you pressed submit too early :)

     

     

     

     

  • VascodaGama
    VascodaGama Member Posts: 3,525 Member
    Best wishes

     Cushions,

    Thanks for the report. As you can see many guys are interested in your story and reading your posts. It is petty that you did not maintain them in a single thread. In any case for those interested, they can follow your story in these links;

    https://csn.cancer.org/node/308573

    https://csn.cancer.org/node/309415

    https://csn.cancer.org/node/310010

    https://csn.cancer.org/node/309464

    So far all seem to be in your favour. The PSA in one month will verify the treatment success. It should be less than 0.06 ng/ml. The pathologist’s findings on the whole gland will be important for future interventions if needed. You should get a copy of the report.

    Best wishes for a final good conclusion on this bad chapter in your life.

    VG

     

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 409 Member

    Best wishes

     Cushions,

    Thanks for the report. As you can see many guys are interested in your story and reading your posts. It is petty that you did not maintain them in a single thread. In any case for those interested, they can follow your story in these links;

    https://csn.cancer.org/node/308573

    https://csn.cancer.org/node/309415

    https://csn.cancer.org/node/310010

    https://csn.cancer.org/node/309464

    So far all seem to be in your favour. The PSA in one month will verify the treatment success. It should be less than 0.06 ng/ml. The pathologist’s findings on the whole gland will be important for future interventions if needed. You should get a copy of the report.

    Best wishes for a final good conclusion on this bad chapter in your life.

    VG

     

    Vasco

    Vasco

    I wasn't being petty - I did not know that was standard protocol. Thank you for clarifying that. I will try and tie everything up going forward.

    I'm just settling back and seeing what happens now.

    C

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,752 Member
    Seating

    Cushions,

    I'm glad you are along the path toward sitting wheresoever you wish, on whatever you wish.

    Two facts you shared intrigued me:

    1. Why will the pathology report take 6 weeks ? In the US, men get a pathology summary in the recovery room when they wake up (if they ask).  I asked, and the doc shared that the tumor(s) size was different (larger) than thought, and had been adjusted to Stage II.   He gave a great deal of detail, which had come to him from the pathologist.  Why on earth six weeks ?  I got a surgeon's summary of the whole proceedure (per my request) within two weeks or so following discharge.  It is good to have this; questions will arise later that have not even occured to you yet.

    2. You said nerve-sparing was successful on one side. What occured on the other side ?

    Urinary: In the US, post-op hospitalization is usually over the next day.  Cath time is usually under one week, and because of when the weekend hit, I got mine removed by the RN on Day 4 post op.  Cath removal is painless.   I took a disposable adult male diaper per direction for cath removal, and wore it the remainder of that day. Uncertain how things were working, I wore a diaper most of the next day also, but by then I transitioned to a large pad, and never wore a diaper again.  I had relatively good urinary control by three days following cath removal. Pad use can easily last weeks, and sometimes much longer.  Pads and liners come in an assortment of sizes to tailor to your needs.    I have much better urinary contol post RP than I had before, and will never have stricture issues.

    Sexual:  My pelvic region was TOTALLY numb for some time thereafter (well over a month), but I was having sex via injections by I believe within two months or less (this is from memories of 2.5 years ago).  Sex was not good prior to the surgery, due to the disease -- some particulars that the tumor caused that I do not feel ok sharing here.  Sex was encumbered post-surgery, but it was encumbered pre-surgery also, so how could I blame surgery ??

    Pelvic sensation to touch can easily take several months to a year or more to return.  As I have written here many times, I was in ICU decades ago following massive trauma, mostly to my chest, but also had a surgical incision on the side of my hip a foot long for rod insertion of the femur and wiring together of the hip.  My pelvic region, including all of the genitilia, was totally devoid of sensation for  OVER A YEAR.  But sensation returned to normal.   The only doctor I was routinely seeing at that time was the orthopedic surgeon, and he said he did not know what had caused the loss of sensation (I was 30 years old then). 

    I asked my urological surgeon about this history two years ago during an office visit following the RP, and he said his best guess was that it had been drug induced, since I was on a morphine and muscle relaxers IV (Darvon and others) for 24 days.   My point is that the pelvic region can be numb a long, long time and then recover, as mine fortunately did.

    But what any given individual's does only time will reveal to them.  I simply suggest tht if you have no pelvic feeling for months, do not dispair.   Sex returns much more slowly than continence. Get on Cialias as soon as possible to maintain blood flow to the vascular tissue in the penis, this is critically important.

    Wishing you well,

    max

  • RobLee
    RobLee Member Posts: 269 Member

    Seating

    Cushions,

    I'm glad you are along the path toward sitting wheresoever you wish, on whatever you wish.

    Two facts you shared intrigued me:

    1. Why will the pathology report take 6 weeks ? In the US, men get a pathology summary in the recovery room when they wake up (if they ask).  I asked, and the doc shared that the tumor(s) size was different (larger) than thought, and had been adjusted to Stage II.   He gave a great deal of detail, which had come to him from the pathologist.  Why on earth six weeks ?  I got a surgeon's summary of the whole proceedure (per my request) within two weeks or so following discharge.  It is good to have this; questions will arise later that have not even occured to you yet.

    2. You said nerve-sparing was successful on one side. What occured on the other side ?

    Urinary: In the US, post-op hospitalization is usually over the next day.  Cath time is usually under one week, and because of when the weekend hit, I got mine removed by the RN on Day 4 post op.  Cath removal is painless.   I took a disposable adult male diaper per direction for cath removal, and wore it the remainder of that day. Uncertain how things were working, I wore a diaper most of the next day also, but by then I transitioned to a large pad, and never wore a diaper again.  I had relatively good urinary control by three days following cath removal. Pad use can easily last weeks, and sometimes much longer.  Pads and liners come in an assortment of sizes to tailor to your needs.    I have much better urinary contol post RP than I had before, and will never have stricture issues.

    Sexual:  My pelvic region was TOTALLY numb for some time thereafter (well over a month), but I was having sex via injections by I believe within two months or less (this is from memories of 2.5 years ago).  Sex was not good prior to the surgery, due to the disease -- some particulars that the tumor caused that I do not feel ok sharing here.  Sex was encumbered post-surgery, but it was encumbered pre-surgery also, so how could I blame surgery ??

    Pelvic sensation to touch can easily take several months to a year or more to return.  As I have written here many times, I was in ICU decades ago following massive trauma, mostly to my chest, but also had a surgical incision on the side of my hip a foot long for rod insertion of the femur and wiring together of the hip.  My pelvic region, including all of the genitilia, was totally devoid of sensation for  OVER A YEAR.  But sensation returned to normal.   The only doctor I was routinely seeing at that time was the orthopedic surgeon, and he said he did not know what had caused the loss of sensation (I was 30 years old then). 

    I asked my urological surgeon about this history two years ago during an office visit following the RP, and he said his best guess was that it had been drug induced, since I was on a morphine and muscle relaxers IV (Darvon and others) for 24 days.   My point is that the pelvic region can be numb a long, long time and then recover, as mine fortunately did.

    But what any given individual's does only time will reveal to them.  I simply suggest tht if you have no pelvic feeling for months, do not dispair.   Sex returns much more slowly than continence. Get on Cialias as soon as possible to maintain blood flow to the vascular tissue in the penis, this is critically important.

    Wishing you well,

    max

    Why will the pathology report take 6 weeks ?

    Max - That's called "socialized medicine". There are probably ay least a dozen offices that need to sign off on the report before the patient is allowed to see it.

    After all, they've got to give the bureaucrats something to do!

  • Grinder
    Grinder Member Posts: 487 Member
    edited June 2017 #10
    Maybe a typo?

    Maybe VdG meant to say it is a pity (???) and spell check changed it.  Glad to hear you made it through. I was also dealing with a GI infection during my RP. After what you want through, maybe it was a blessing that I did not recognize. :) 

    Be patient, it took me longer than the expected three months of incontinence, but eventually this amazing creation of our bodies adapts. Sometimes it takes longer than usual.

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 409 Member
    The story so far

    Hi all

    I've been TWOC'd (Trial without Catheter not Taken without Consent!) and have been suffering some nerve pain for a few days so I gave things a break but am back now.

    I thought it worth (bearing in mind the suggestion aboove to have a single story thread) to roll up my progress todate. Here goes...

    "The story so far", to the tune of (those of you who watch Supernatural will get this :))

    Chapter 1

    Arguing with Gp about T therapy led to me getting a bunch of blood tests, which led to him noting my PSA was 4. Two more tests over the following year gave similar numbers so I got sent into the Urology department.

    Chapter 2

    After some shenanigans about being dropped into a biopsy with no preparation, I eventually had two biopsies. The first (plain sailing) came back with ASAP cells and the second (bled like a stuck pig) came back G7 (4+3) intermediate with normal sized prostate.

    Chapter 3

    Went for an MRI which put me at T2 likely contained. Had a long chat with the consultant and we ended up where he wanted (and I knew was inevitable ) - Da Vinci RP.

    Chapter 4

    Surgery (a week and a half ago now) went well although I was terrified beforehand as I have bats in the belfry (GAD etc.). Canula insertion issues meant I needed two of the damn things. Ditto spinal. Don't remember a thing from the moment they touched the syringe to the canula to waking up in recovery. Surgery went well and the consultant said I had full nerve sparing on the left and a good clean job overall. An overnight stay in the ward and I was home the next afternoon. Totally spaced out and very stiff and sore, wired up to a catheter for the win and loaded down with enough meds to fill an "Oxy bus"!

    Chapter 5

    A week on catheter and drugs dragged especially as the cather balloon made me feel like I wanted to pee all the time. Had massive swelling in my nether regions (think small coconut) and my hips looked like they had been hit by steel pipes. My cuts started to heal but as the superglue fell off, some leaked a bit which meant new dressings every day or more. Generally stiff and sore. Three days after my surgery I had my first BM. Ohhh Godddd!!!!!! Never again!!!!!

    Chapter 6

    Had my catheter taken out a few days ago. That was another "never again!" moment. Amazingly (I should not put the mockers on) I was pretty much fully continent from the get go. I leak when I cough, laugh, sneeze or whatever but otherwise pretty good. Main downside is bladder sensitivity and shrinkage meaning frequent trips to the loo and it hurts like hell when the peeing stops. I am trying to keep up with my kegels but keep forgetting. I'll pay the price if I don't pull my finger out! Bowel taking a battering due to the laxatives but hey ho. The blood thinning jabs are a pain in the stomach :) I hate doing them and they cause mini bruises due to the thinners. On the bruising front, I blossomed on my arm and sides for a good few days before they started to fade. Other annoying side effect is nerve pain started yesterday mainly on the outside of my thighs at hip joint level, mainly on the left with some random traversing pain, especially as my innards do their thing. At (short) times this is crippling. I will monitor and get it checked it it continues or worsens. I also (ahem) got a semi yesterday (terrified me!) so that is a good sign but I am not pushing it! Biopsy review in August.

    EDIT: Forgot to mention I reckon I've lost an inch flaccid but hard to tell due to swelling.

    EDIT: Also not sure if swelling has any lymphodaema elements yet.

    Positive takewaways

    Losing weight and getting fit was what got me through in the state I did.

    Negative takeaways

    My fear and negativity was far worse than it should have been (I think the consultant thought I was a big wuss) and I keep getting dark thoughts about job prospects, family issues and long term health. My only cure at the moment is to soldier on. At least I have job prospects on the boil now. I am slacking off on med timing and walking - getting complacent. Need to sort that out along with the kegels.

     

     

    Thanks for all the support folks!

    Cushions

  • Grinder
    Grinder Member Posts: 487 Member
    edited July 2017 #12
    Lucky, if that's possible

    Only an inch?

    Partially continent already?

    Mr. Happy is starting to smile?

    That was fast... Here's some more positives to add to your RP list...

    No more fingers up your keester. By the time I had a biopsy, I had had more fingers up my butt than Boston Pops has fingers playing instruments. 

    No more Foley catheters. I had five Foleys inserted, occasionally in humiliating circumstances. I never got used to it. It is probably the most hated but necessary invention. Emergency room personnel often screwed it up, but the urologist office PAs were much more proficient. One time I had one male and two female ER nurses struggling to get one in while I laid there in naked misery, as I started bleeding all over them and myself since they couldn't get it past my ginormous prostate. After thirty some minutes they gave up and the head ER doctor called up Urol of Ind and said I was their problem and they better do something about it. And people wonder why I opted for RP. I

    No more UTIs... I don't know if you had this problem, but mine are gone. The urinary tract always got inflamed when the prostate got infected. Much worse inflammation than an STD, which makes it all the harder to get any stream of it burns like hell. And with the inflamed UTIs, it makes the Foley, or worse the self catheter, feel like a hot poker going up your business. 

    No more fingers in your butt, no more Foley catheters, no more inflamed UTIs...  No more Flomax either. No more prostate biopsy, that's supposed to feel like a little sting but the last six weren't numb yet and felt like Excalibur being run through your rectum.

    That's a lot of "no mores" that are worth celebrating, come what may.

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 409 Member
    Cheers Grinder

    Cheers Grinder

    Lots of positives as you say but I am struggling to not dwell on the negatives.

    Being unemployed (I paused work as a contractor to get this sorted and am now trying to get a gig which is a worry even though I have some cash), having lots of stomach / GI pain and some nerve pain now the painkillers have run out and generally feeling like a whiney burden to my family is a hard nut to crack.

    I am also still getting very tired after pottering around or even a twenty minute walk and have slept really badly the last half week.

    Any advice on getting over this hump? Is it normal?

    Cheers

    C

  • VascodaGama
    VascodaGama Member Posts: 3,525 Member
    A hard nut to crack

    Cushions,

    Something seems not right in your posts. I understand that all the fuse of the diagnosis and operation was a pain in the neck. The recovery is underway positively but your wording makes me think that you are not satisfied. Something in your mood is not right. You worry too much. Have you checked the testosterone levels? At low levels menopause sets in and the symptoms could be playing a trick without you noticing it.

    I hope you recuperate fully the soonest and that you find a job.

    Best,

    VG

  • Rakendra
    Rakendra Member Posts: 197 Member
    edited July 2017 #15
    Being Tired

    I do not know if this relates, but being tired is also a problem on the Keto Diet.  The first cause can be not drinking enough water.  This may relate to you.  Strangely, another problem is not having enough sodium or a deficiency of Vitamin b5. Anyway, just a few ideas for you.  Best of luck in your recovery.  Your story makes me feel grateful that I only have Stage 4 bone cancer.  Ha Ha!!

    Love, Swami rakendra

  • Grinder
    Grinder Member Posts: 487 Member
    Ditto

    He's right... It could be a vitamin deficiency. You could try sublingual B12 and B complex vitamins. Often mood swings are B vitamin deficiency. Also you can eat foods with mood enhancers. Turkey has tryptophan which the body converts to serotonin. You should also avoid red meat. But you need certain vitamins and foods for your body to produce endorphins which improve your mood. And you want to avoid foods that have or will produce fear and flight hormones like adrenaline. Like red meat that hasn't been bled kosher style. 

    Anytime you have mood swings that can't be explained environmentally, I would look at diet and vitamins first, and the resulting production of mood enhancing brain chemicals versus the trauma fear and flight hormones. And like VdG said, add lower T-levels just makes it worse. 

    And then what Paul the Apostle said... Contentment with godliness is great gain.

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 409 Member
    Hi folks

    Hi folks

    Thanks for replying!

    I feel a bit of a wuss complaining over trivial things like leg and gut pain as so much has gone well but MH issues are part and parcel of my baggage from prior to the PCa game so I guess I am stuck with them and have to keep hacking away :)

    @Vasco - you are right. I'm off my game mentally. And you are correct about my T levels. That was what started this bloody thing. I had a running debate about my T levels with my GP because they were right on the borderline of hypogadism and the only picked up the PSA because he added that to the battery of tests I was having during that debate. I have the same T levels as an 80 year old man. Problem is that at the moment there is not a lot I can do about that as it is playing Russian Roulette until I get the all clear. I suspect my low mood is directly related to the low T but will have to take other means to get my head straight!

    @Rakendra - I was on keto for a long time before diagnosis and yes, it did make me struggle as I was in and out of ketosis all the time. I also don't drink enough water (I live on black coffee). I may well have vitamin deficiencies but I need to be careful about addressing that as there are contra-indications about some vitamins. I need to do some research and review my vegan / pescatarian diet. And somehow I think I got off lightly compared to Stage 4 bone mets!

    @Grinder - you are confirming the above. Diet and vitamins. I'm pretty much vegan / pescatarian but frankly sice the operation I have been winging the diet planning because I have been so wiped out.

    Overall, I suspect I need to up my game with regards to self care. The first step was that I've consulted the ward and resupplied myself on painkillers and anti-constipation meds so hopefully I will start getting some sleep and a clearer head.

    Cheers

    C

  • Will Doran
    Will Doran Member Posts: 207
    No Fingers?

    Cushions,

    Aaaa,  I don't know about the "no more fingers deal".  I had my RP in Dec. 2013.  Followed by 8 weeks of daily Radiation and two full years of Hormone Therapy.  At my yearly physical at Radiation Oncology, I still have to have a DRE to check that there is no swelling or lumps in the empty cavity.  They check because of the radiation treatments to the prostate cavity area, that was done as follow up.  I hope you don't have to have any more DRE's.  That would be great.  Again---we are all different and all of our cases are different so you might avoid the further exams.

    The hormone treatments and the radiation treatments will pull you down.  I went through the mental thing as well.  Now after being off the hormone treatment (Lupron) my testosterone is back up in the middle of the normal levels.  I feel like a different person.  Thank God my wife was an is very understanding.

    As to the constipation problem, My doctors told me to take Benefiber every morning.  I eat my wife's home made whole grain bread every day and lots of fruit and Veggies, and cut back on the red meat.  Still eat a little, but not like I used to.  By doing that, I was back on solid food the day after my surgery and had no problems.  In fact Dr. M insisted they take away my semi solid diet at lunch, the next day, and he made me eat a full solid meal before he would let me go home that afternoon.  I Had no BM problems.  Again---our cases are all different, So, can't tell you what to do.

    As to your pain, I can't relate to that, becasue I didn't have that and never took any of the pain medication they sent home with me.  I was back on my Aleve and Arthritis Tylenol two days after (doctors orders) so I geuss that took care of any pain.  But I did not take any of the Opioids they sent home.  I had been warned about the removal of the Catheter, so I took two of those pills before I went in to have the catheter removed.  I walked in with my catheter bag in a State Liquor Store Bag and they all laughed.  I was on "the table", looked at the nurse and sadi, Let's get this over with."  She held up the catheter and it had already been removed.  I didn't feel a thing.  I was in La La Land, they had a good time, and to this day tease me about that day.

    An Inch?  Yep, I understand completely.  I was warned about that.  However now that I'm coming up on 4 years post surgery, things are getting almost back to "normal" ( for me).

    Best of luck

    Peace and God Bless

    Will

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 409 Member
    edited July 2017 #19
    Cheers Will

    Cheers Will

    Your experience puts me to shame :)

    You are right - no Prostate, no DRE which is a relief - just the dreaded ongoing PSA tests for the rest of my natural.

    I have three weeks to go before I get my final results. I'm getting a grip on my anxiety so I'm not catastrophising the situation as much anymore.

    With regards to hormones, I'm lucky in that I have just had RP - the hormone issue I have is very low T (like I'm 80 hormonally) which really does eff with my moods and confidence. This on top of being a total burn out case (work issues) prior to the diagnosis pathway meant I have been a total wuss oved the course of the diagnosis and treatment. I'm really rather ashamed at myself but I finally decided what I did or what people think of me doesn't matter now. I just have to (excuse me) nut up and get on with it.

    Constipation wise, I extended my post op treatment with the pills and powders and I seem to have settled down a lot. I need to get my diet back on track as although it has not been bad, it has not been on point.

    What I find really interesting is that post surgery even with no calorie tracking I still continued to lose weight. I wonder if the recovery process burns calories?

    Pain wise, I can now live with the twinges and aches and am just monitoring them.

    I'm still finding it hard to decide how much length I have lost as I have a lot of lymphodaema around my meat and veg and the semis seemed to have died down. I'll just have to be patient and see whats happens.

    Thanks again for your input!

    C

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 409 Member
    Big news

    Literally a moment after saving the above I had a call from my consultant.

    My first words (typical me) were "do I need to panic"?

    He said "No!"

    He said the gland had a lot of tumour (need to find out how much at the consult) but the margins were clear and so were the vesicles and glands. I see him in three weeks for the details but I am so glad he rang up to tell me know. I suspect I may have had a significant upgrade but we will see.

    I'm shaking right now!

    Thanks for all your support!

    C

  • RobLee
    RobLee Member Posts: 269 Member
    Congrats Cushions

    Congrats Cushions... negative margins and SV keeps you out of the SRT realm, and I assume the negative glands refers to lymph nodes? If so, even better!