Change of pace

im still so new to this world.. but what i have done is stop smoking. huge deal for me, as i've been smoking my entire 'adult' life! once my surgery date was set for jan 6, i knew my quit date. i figured i may as well run with it since i'd be in the hospital for 3-4 days, unable to smoke.. ive had two since, and they tasted gross!

sewmommy said:

Fox... of course, but i didnt

Fox... of course, but i didnt TASTE them then! and holy crap, i can smell everything a mile away!

Yes, lucky you live more than a mile from me..!  

Ron

TillieSOK said:

I've changed my diet almost

I've changed my diet almost 180 degrees.  Lots and LOTS of water! Lots of fresh fruits and veggies, very little red meat, but lots of chicken and fish and fiber. Still not losing weight, but I think my thyroid is out of whack, plus it's got something growing across 1/4 of it.  I don't exercise like I should, but I do climb up and down the stairs (2 story house) at least 15 times a day and walk in the yard.  I'm almost 9 months out from surgery and still feel sluggish.  I may try bike riding again, only this time not go hell bent for leather and ride 2 miles in 20 minutes! Ya think? I'm still getting dizzy and losing my balance ( hence the stoppage on the bike riding and walking very far!), but I'm scheduled for a brain MRI tomorrow morning so at least then I'll know for sure if I've even got one still!  I know I had a brain once upon a time, but I think I just have misplaced it sometime ago. Fingers crossed they find out it's still there and nothing is growing on it.  Then the first week in March, I get to find out if the lung nodules have grown or are stable.

One of these days, I'll have one of those AH HAH moments and I'll figure out what else I need to do to get healthier and stronger.  Heck, maybe I'll trade in my little red Miata for a Harley?

Unfortunately I've also always known that my brain is a weak and pathetic thing .

Before I was diagnosed I'm pretty sure I was in the best shape of my life even though I was in my late fifties . I had worked in the logging and forestry business for over thirty years and I had muscles in places where human beings seldom have muscles . Even on the weekends and other days off I was active and liked to do things to keep in shape . I mowed two acres of lawn and a three acre cemetary with a push mower just for the exercise and because i've just always loved walking. I think I could have walked to Tierra Del Fuego if I could have found a free weekend .

All that changed when I was diagnosed with stage four RCC . I was pretty much convinced that my life was over and that what remained of it would be spent in sickness and misery . I was right for six months . After my surgery I was placed on a treatment which did nothing to stop my cancer and produced side effects that made life an unending stream of pain and sickness . I tried to do things to keep as active as possible . I've always loved gardening and I can remember very clearly trying to plant flowers when I was so weak I had to actually crawl on my hands and knees to do it . I was too weak to keep getting up and down . It was easier to stay down and just get up once after I was finished planting . I'm a big guy and my weight dropped to 138 pounds and I became so weak I could barely walk from one room to another . I landed in the emergency room frequently due to passing out because I was too sick to eat and I would become dehydrated because I couldn't even keep water down.

Then I got into the Nivolumab trial and everything changed . My cancer disappeared in about two months . There were no side effects to speak of . My pain disappeared with the cancer and I started to feel really good . So what did I do ? Did I go back to getting lots of exercise and living a healthy lifestyle ? NOOO ! NOT MEEE! I ate all the unhealthy foods I could get my hands on and would lie in the shade on summer days thinking that I owed it to myself to live a life of ease . I had retired and sold the logging business and had all the free time in the world to vegetate and that is what I did . How dumb can a person be ? Pretty darn dumb as it turns out . 

I put on too many pounds in fat and none in muscle .

Back around Thanksgiving  I made a solemn promise to myself to get back in shape and lose the extra pounds so I started walking on a tredmill and lifting weights . It truly is surprising how fast the body will respond if you treat it right . It took a few weeks of eating healthy foods and gradually increasing the exercise but I'm seeing some real results . I am really angry at myself for being an idot and letting my health go . I am not going to let that happen again no matter what health issues arise in the future and I'm sure they will . After all I'm not a kid any more . But I will always strive to keep myself in the best condition I possibly can . I will not make the mistake again of thinking that I was rewarding myself by relaxing all the time and eating whatever foods I want. I have been given a second chance at life and I won't mess it up again .

CommuterMom said:

Frank,
I have to admit I got

Frank,

I have to admit I got a little hot and bothered reading that first paragraph about all the logging and muscles.

Care to elaborate? ;-)

See ? Right there is all the reason in the world for a guy to keep himself in shape ! I think I'll go do some heavy lifing for a few hours . YEEE HAAWWW !!!

Djinnie said:

Change is a work in progress!

Good luck with your brain MRI Tillie, I hope they don't find a vacant lot for lease! I'll be thinking of you:)

Fox the Pheonix has nothing on you, you have an amazingly strong mind set and tenacity of purpose. This has served to pull you through all the rigors of your treatments, 'Give Up' is not part of your vocabulary!

I have changed many things since my reoccurrence. I only eat fresh organic food now, I have cut out all dairy and all sugar. It is tough walking past the French patisseries though. I used to drink more than 6 cups of tea a day, the English are addicted to it, amazingly I have managed to cut it out. I only drink herbal now along with lots of water. I don't eat red meat anymore, I have organic chicken and fish. I also stick to chemical free products. 

I try to keep up with exercise even when I don't feel like it! I also make sure I have quality me time to destress and clear my mind. I have never sufferred fools gladly and have a bit of a short fuse, I know it's energy wasted, and not good for the immune system, so I am still working to change that. With my recent news the words 'life is too short' become so much more relevant, it's time not to sweat the small stuff, I try to keep negative thoughts at bay and keep plenty of positive minded and upbeat people around me.

 

Djinnie x

Thanks, djinnie.  I spent a little over an hour in the tube this morning.  Guess my brain was playing hide n seek with them.  Pretty sure they actually did find a Brain in there somewhere. Dr will get her report, as well as two other doctors in about 3-4 days...it will take a week for me to get my copy.  Creatinine was 1.69 and GFR was only 31.98 this morning.  That worries me a little, but will just have to watch it a little closer, I guess.  Anyhow, that's how it's going this fine day in warm, sunny southwest Florida.  Hope everyone else is doing good.

Frank302 said:

Hey Commutermom .

See ? Right there is all the reason in the world for a guy to keep himself in shape ! I think I'll go do some heavy lifing for a few hours . YEEE HAAWWW !!!

man... the 'old men' are putting me to shame! wish my body didnt remind me of my recent surgery when the kids wanted me to shovel this stupid snow into a mountain...

TillieSOK said:

Thanks, djinnie.  I spent a

Thanks, djinnie.  I spent a little over an hour in the tube this morning.  Guess my brain was playing hide n seek with them.  Pretty sure they actually did find a Brain in there somewhere. Dr will get her report, as well as two other doctors in about 3-4 days...it will take a week for me to get my copy.  Creatinine was 1.69 and GFR was only 31.98 this morning.  That worries me a little, but will just have to watch it a little closer, I guess.  Anyhow, that's how it's going this fine day in warm, sunny southwest Florida.  Hope everyone else is doing good.

Hey Tillie,

Djinnie is right, an hour is a long time!  I'm glad you got that behind you.  Now it's just a hurry up and wait game. 

I am sailing out of FT Lauderdale on Monday so will likely be out of commission when your results come through, but I wanted you to know I'll be thinking of you and sending good vibes your way.

I am praying for the best possible outcome for you!  Stay strong, my friend.

Sindy 

Hi Fox. Hi everyone. I've just logged on for the first time in some months... Only to get sucked into the first thread i see It sound like you have accomplished a lot over recent months fox. Damn good for you! Your post resonated with a conversation that I had with a friend this week whereby I was describing how when I fell ill in mid 2012, all I could think about was what I would do next, and when i got better, and before I died. Everyone approaches serious illness differently hey. to be honest, the first year was a tricky one for me. Probably because I was taking anti-cancer drugs which competely ruined my quality of life. As you put it, weight loss, strength loss, psychosis. Well, for me not quite the last one but boy was I getting close! but since ceasing treatment in sept last year and still NED, honestly life for me has returned to normal. Just as I wanted it to. Sure, I graduated from uni, got a promotion, went on a tropical holiday with my family etc etc. before I wanted so badly to do something different to show myself (?) that I was appreciating every day alive, but now, well, I just feel good to exist and want to continue my good work in the world. Right now I work with drug addicted offenders. Next I plan to return to uni (sucker!!!). when I was talking to my friend the other day I described how one day I got ill, thought I might die, then every first event after that time was a miracle (e.g. Bday, Xmas). but I quickly got sick of the anxiety and intensity of those emotions. So here I am. Asking myself what I would do if I knew this was my last six months on earth. And the answer, I would be with my family (check), I would be helping people (check), I would be learning (hello uni), and I would be pursuing my passion for fitness (this one i will improve on haha). Go get em guys. if u don't have goals, make some like fox. Think of your ultimate life... who knows what's around the corner. seriously! We just don't know what science has in store for us. let us fight and live with this disease as chronic, rather than a death sentence. And if it tickles your fancy to check off the bucket list then rip into it. But if it tickles your fancy like me to maintain adventure as well as a normal existence, them do that too. Sending inspiration x 

Hanno said:

Pace it how ever you please

Hi Fox. Hi everyone. I've just logged on for the first time in some months... Only to get sucked into the first thread i see It sound like you have accomplished a lot over recent months fox. Damn good for you! Your post resonated with a conversation that I had with a friend this week whereby I was describing how when I fell ill in mid 2012, all I could think about was what I would do next, and when i got better, and before I died. Everyone approaches serious illness differently hey. to be honest, the first year was a tricky one for me. Probably because I was taking anti-cancer drugs which competely ruined my quality of life. As you put it, weight loss, strength loss, psychosis. Well, for me not quite the last one but boy was I getting close! but since ceasing treatment in sept last year and still NED, honestly life for me has returned to normal. Just as I wanted it to. Sure, I graduated from uni, got a promotion, went on a tropical holiday with my family etc etc. before I wanted so badly to do something different to show myself (?) that I was appreciating every day alive, but now, well, I just feel good to exist and want to continue my good work in the world. Right now I work with drug addicted offenders. Next I plan to return to uni (sucker!!!). when I was talking to my friend the other day I described how one day I got ill, thought I might die, then every first event after that time was a miracle (e.g. Bday, Xmas). but I quickly got sick of the anxiety and intensity of those emotions. So here I am. Asking myself what I would do if I knew this was my last six months on earth. And the answer, I would be with my family (check), I would be helping people (check), I would be learning (hello uni), and I would be pursuing my passion for fitness (this one i will improve on haha). Go get em guys. if u don't have goals, make some like fox. Think of your ultimate life... who knows what's around the corner. seriously! We just don't know what science has in store for us. let us fight and live with this disease as chronic, rather than a death sentence. And if it tickles your fancy to check off the bucket list then rip into it. But if it tickles your fancy like me to maintain adventure as well as a normal existence, them do that too. Sending inspiration x 

 

Hi Hanno, 

Good to hear from you again! Yours is an inspirational story! I am so glad you are doing so well now, and just getting on with your young life, which is as it should be. You have so much to look forward to, I am sure your life is going to be rich and fulfilling. Having done battle with cancer you can take on anything!

Djinnie x