Stage IV - now NED
This is to those newly diagnosed - *THERE IS HOPE*. I was diagnosed with stage IV in March 2011 with one liver met. At the time I was 46 years old, very healthy, physically active, with no risk factors or family history - but there it is. I am now NED, and hoping and praying that future tests continue to show NED-ness. My treatment was 3 months of chemo (FOLFOX+Avastin), then liver surgery to remove one lobe, then another 3 months of chemo, then the partial colon resection.
Jim
Comments
-
Hi
Hi jim,
You are very fortunate to be NED and I pray that it stays that way.
I was dx 31st dec 2011 with cancer in column and several metatsases to all segments of liver.
The largest in liver being 11 cm x 7 cm x 8 cm.
The Docs in India, where I am, have started me on FOLFOX and erbitux.
Have had three cycles so far , the fourth treatment is next week.
Have side effects of rash due to erbitux, was hospitalised once as my WBC after second
Folfox treatment went down to 1000 and I had a fever for two days.
Neupogen shots gave me side effect of extreme pain in thighs and lower back which
Lasted several hours and i found difficulty in walking for few hours.
I am also taking supplements for enhancing immunity, such as turmeric, AHCC, sprulina,
Juicing on wheatgrass, and on flax seed oil - sort of a bit on bud wig but not entirely.
For side effects I take R alpha lipoic acid and L glutamine at times for neuropathy.
I also do yoga three days a week for an hour.
I would appreciate if you can share your details treatment and supplements.
Also, pl ask your family doc if I am on the correct path.
I would appreciate whatever help , support , and information that u can provide.
Sdp ( shitul)0 -
Want to be NED - from stage 4
Hi jim,
You are very fortunate to be NED and I pray that it stays that way.
I was dx 31st dec 2011 with cancer in column and several metatsases to all segments of liver.
The largest in liver being 11 cm x 7 cm x 8 cm.
The Docs in India, where I am, have started me on FOLFOX and erbitux.
Have had three cycles so far , the fourth treatment is next week.
Have side effects of rash due to erbitux, was hospitalised once as my WBC after second
Folfox treatment went down to 1000 and I had a fever for two days.
Neupogen shots gave me side effect of extreme pain in thighs and lower back which
Lasted several hours and i found difficulty in walking for few hours.
I am also taking supplements for enhancing immunity, such as turmeric, AHCC, sprulina,
Juicing on wheatgrass, and on flax seed oil - sort of a bit on bud wig but not entirely.
For side effects I take R alpha lipoic acid and L glutamine at times for neuropathy.
I also do yoga three days a week for an hour.
I would appreciate if you can share your details treatment and supplements.
Also, pl ask your family doc if I am on the correct path.
I would appreciate whatever help , support , and information that u can provide.
Sdp ( shitul)0 -
Congratulations
Jim,
Great to hear the good news. Prayers for your continued NED Status.
NB0 -
supplementssdp said:Want to be NED - from stage 4
Hi jim,
You are very fortunate to be NED and I pray that it stays that way.
I was dx 31st dec 2011 with cancer in column and several metatsases to all segments of liver.
The largest in liver being 11 cm x 7 cm x 8 cm.
The Docs in India, where I am, have started me on FOLFOX and erbitux.
Have had three cycles so far , the fourth treatment is next week.
Have side effects of rash due to erbitux, was hospitalised once as my WBC after second
Folfox treatment went down to 1000 and I had a fever for two days.
Neupogen shots gave me side effect of extreme pain in thighs and lower back which
Lasted several hours and i found difficulty in walking for few hours.
I am also taking supplements for enhancing immunity, such as turmeric, AHCC, sprulina,
Juicing on wheatgrass, and on flax seed oil - sort of a bit on bud wig but not entirely.
For side effects I take R alpha lipoic acid and L glutamine at times for neuropathy.
I also do yoga three days a week for an hour.
I would appreciate if you can share your details treatment and supplements.
Also, pl ask your family doc if I am on the correct path.
I would appreciate whatever help , support , and information that u can provide.
Sdp ( shitul)
You will probably want to check out information provided by the Angiogenesis Foundation on foods which have research to support their impact on preventing or slowing cancer growth.
http://www.angio.org/understanding/diet.php
http://www.angio.org/0 -
Also stage iv & NED going on 2 years
To all the newly diagnosed & terrified: you see here, in our stories and journeys, that there is reason for hope & optimism. I was dx in sept. 2009 with stage iv rectal cancer, one met in the liver, age 53, busy professionally, single mom, teenage chilldren still at home. How bleak & horrifying & unfair it was. Now -- after radiation, chemo, several surgeries, i am status NED. Will be having another f/u CT Monday, hoping to stay that way. While everyone's case is different, some doing better, some worse, there is hope. Thank goodness for the information & support on this board and good doctors of duke.0 -
Stage IV colon cancer-ENCOURAGEMENT WELCOMEDwmcbane said:Also stage iv & NED going on 2 years
To all the newly diagnosed & terrified: you see here, in our stories and journeys, that there is reason for hope & optimism. I was dx in sept. 2009 with stage iv rectal cancer, one met in the liver, age 53, busy professionally, single mom, teenage chilldren still at home. How bleak & horrifying & unfair it was. Now -- after radiation, chemo, several surgeries, i am status NED. Will be having another f/u CT Monday, hoping to stay that way. While everyone's case is different, some doing better, some worse, there is hope. Thank goodness for the information & support on this board and good doctors of duke.
Thank you for your inspiration. I was diagnosed stage IV - lung mets and 1 liver met and had left lung lobe removed 2 weeks ago. Tomorrow I see lung and liver surgeon to schedule 2nd surgery (other) side lung wedge and liver wedge. The plan is chemo rounds after healed from surgery. I have a 20 & 22 year old young adults with me. This discussion board and information helps me stay positive on this rocky road. I am 53 also and had stage I in 2008. I was feeling great, exercising, etc., and a chest - ray led to lung nodules, biopsy, and diagnosis. I am being treated at N. Western Hospital in Chicago. I wish you the best on your CT.
God bless u and your family0 -
That is great news. I am NED
That is great news. I am NED for the third time over the past 6+ years.0 -
stage iv too
Hi Jim
how are you doing? I had a left lung lobectomy and am healing. Will have a right tumor wedge and liver wedge next. My diagnosis was a shock and I was feeling great.I was stage I in 2008.
My friends are great support and my doctors are positive but I am struggling at times with being positive.
I find this board helpful. Was the surgery for your liver painful? My lobectomy has been painful but I am now walking up my street uphill and plan to increase distance.
Barb
Great news for NED!0
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