Grade III Oli - MRI -No Cancer Present

BenLenBo
BenLenBo Member Posts: 145
in Brain Cancer #1
Diagnoised September 25th with Grade III Oli, 99% of left frontal tumor was removed, nothing showed on MRI after surgery, completed 6 weeks Chemo/6 weeks Radiation. Only side effect was I now sport a mohawk. MRI 1 month out from treatment showed no cancer present, but started 5 days Temodar with 28 day break. I am working full time, and living my life. Question I have is Roger Maris Cancer Center, has Grade III Oli patients 18 plus years out, but post on this site state different facts - treatment different in various areas of the country? Will I have a big surprise one day when I least expect it? Side effects that will show up from Chemo and Radiation treatments? Can anyone help?

Comments

  • luvs2run
    luvs2run Member Posts: 9
    #2
    Ben, I also have a grade III
    Ben, I also have a grade III oligodendroglioma with the deletions. My NO has been very positive and has patients 18 years out with no recurrence. The deletions are very significant but every situation is different. I have seen several studies that indicate that half of people in our situation are still around 12 to 15 years out. Also these studies have participants who were diagnosed before some of the new treatments and the importance of the deletions was known. I believe that all of the studies are pessimistic because of this lag. While there are no guarantees in life, I am expecting to be around for a very long time. Everything I read says a positive attitude is a big predictor of favorable outcomes, I am banking on that. Also we live in an amazing time where more is being learned every day, and I am optimistic that this will benefit us. I thank God every day for the brave volunteers who are participating in clinical trials.

    I am very sorry that you have to deal with this diagnosis, and I wish you a long and happy life.

    Dave
  • luvs2run
    luvs2run Member Posts: 9
    #3
    Ben, I also have a grade III
    Ben, I also have a grade III oligodendroglioma with the deletions. My NO has been very positive and has patients 18 years out with no recurrence. The deletions are very significant but every situation is different. I have seen several studies that indicate that half of people in our situation are still around 12 to 15 years out. Also these studies have participants who were diagnosed before some of the new treatments and the importance of the deletions was known. I believe that all of the studies are pessimistic because of this lag. While there are no guarantees in life, I am expecting to be around for a very long time. Everything I read says a positive attitude is a big predictor of favorable outcomes, I am banking on that. Also we live in an amazing time where more is being learned every day, and I am optimistic that this will benefit us. I thank God every day for the brave volunteers who are participating in clinical trials.

    I am very sorry that you have to deal with this diagnosis, and I wish you a long and happy life.

    Dave
  • BenLenBo
    BenLenBo Member Posts: 145
    #4
    luvs2run said:

    Ben, I also have a grade III
    Ben, I also have a grade III oligodendroglioma with the deletions. My NO has been very positive and has patients 18 years out with no recurrence. The deletions are very significant but every situation is different. I have seen several studies that indicate that half of people in our situation are still around 12 to 15 years out. Also these studies have participants who were diagnosed before some of the new treatments and the importance of the deletions was known. I believe that all of the studies are pessimistic because of this lag. While there are no guarantees in life, I am expecting to be around for a very long time. Everything I read says a positive attitude is a big predictor of favorable outcomes, I am banking on that. Also we live in an amazing time where more is being learned every day, and I am optimistic that this will benefit us. I thank God every day for the brave volunteers who are participating in clinical trials.

    I am very sorry that you have to deal with this diagnosis, and I wish you a long and happy life.

    Dave

    Dave
    Thank you for your encouragement. This has been hard on my family, first neurologist told my parents 6 months to 3 years, right after surgery. Once diagnoised, everything changed,and my doctors have been so positive with their outcome predictions. I guess, just reading this site puts doubts in ones mind. I just haven't had any problems, keeping active, and enjoying ice fishing on the weekends with buds. Roger Maris Cancer Center in Fargo, has been outstanding, putting their patients first with top notch treatments. Did you loose your hair and how long before it came back? and have you had any side effects from the chemo and radiation?

    Again, thank you for your positive response!! :o)

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