my CEA

Kathleen808 · April 2011

Lisa
Lisa,
Oh I wish CEA had gone down. You are doing everything you can. I will keep praying and praying.

Aloha,
Kathleen

tootsie1 · April 2011

Pray something will work
Hey, Lisa.

I'm sorry to read this about your CEA. You have such a lovely attitude. So hopeful, so strong! I do hope and pray that something will make a huge difference for you very soon.

*hugs*
Gail

Kathryn_in_MN · April 2011

Sorry your CEA is going up again
It has to drive you crazy to have it up and down all the time, instead of a steady drop.

Email or PM me if you want some info I have on detoxification. My brother-in-law is a chiropractor that is really heavy into holistic medicine. I don't want to post the info here and sound like an infomercial, but he researches products to the extreme and always pooh-poohs new stuff. But a couple years ago he found one he really endorses. A family friend who ist a stage IV breast cancer survivor (over 10 years now - and has written a couple books, starting with Bigger than Pink), swears by this product too. It is something you might want to look into considering the things you have been trying now.

I have used some of their products - I used the Daily Cleanse after surgery and before my first round of chemo treatment, along with some of their other nutritional products. But the cleanse is not recommended during many chemo regimes, so I don't do it right now. I felt like I was at my best physically in many years before I started my first rounds of chemo, after a month using this system and getting daily exercise. I use one of the products as a nutritional supplement on chemo when I have trouble eating/drinking much.

Just let me know if you want more info. You are always in my thoughts and prayers.

kristasplace · April 2011

Lisa
It sounds to me like you're doing all the right things. A heavy metal flush should help a lot.

I hope that you're doing/adding things in your life that make you happy. At this time in your life, that's ALL you should be doing. I'm not talking about a bucket list, you don't need that. Just laughing, going out and having a blast, and having no worries can only do good. I know it sounds insane while dealing with an illness that's toying with your life, but finding happiness, and not letting ANYTHING stress me out has not only improved my quality of life, but i think it has kept the cancer away. I just got a new diagnosis of something that would devastate anyone to believe their life was over, but i have absolutely no worries about it. It's life, and i'm not going to let the drama of life ruin my life.

I always think about you, and watch for your posts.

Big hugs!
Krista

pete43lost_at_sea · April 2011

sorry but don't loose faith
hi lisa,

sorry to hear your cea has increased.
just don't loose faith, you are an inspirition.

hugs,

Pete

pete43lost_at_sea · April 2011

tanstaafl said:
CEA busters
Sorry for the disappointing news. It's amazing what even one or two bad actors can do to that CEA level.

We are much less further along the metastasis trail. However, our plan is to prevent new metastases with nutritional and targetable inhibitors, and to directly attack the individual masses whenever possible. Some recent 2009-11 literature shows substantial survival benefit attacking large/hot nodes in metastatic cancer patients, at least for surgery, cyberknife, image guided chemical ablation (liver cancer example ).

One surgical interview last week indicated that surgery was not used more in my wife's type case (PALN) because of a "simple" lack of effective antimetastatic tx and misc small worries. The surgeons, as many doctors, had not heard of several non-/low toxicity angiogenic inhibitors, including molecularly targeted (CA19-9, CSLEX1) cimetidine. Unlike many doctors, one is interested enough to consider them long term; now, if we already initiated them.

I assume that cimetidine is likely an active antimetastatic agent for my wife, given the CA19-9 level, previous response, and lack of spread this year with a big node. With the discovery of that unresected node and rising CEA, we've gone back up to 1600 mg cimeditine since there is some preclinical literature suggesting dose dependence, as well as trial experience with 1600 mg. We've increased vitamin D3 (calcium controlled/limited) dosage, restored high dose vitamin K2 (without extra calcium), and more frequent IV vitamin C (hopefully for histamine/VEGF levels, seedlings and encapsulation, not direct cidal action).

One thing that I have discovered literature for in tegafur, a foreign 5FU prodrug, missing in the other 5FU formulas is a cheap, active HIF-1 inhibitor, that reduces VEGF which creates supply blood vessels. HIF1 and VEGF are frequently overexpressed in metastatic colorectal cancer. I know some people use high dose melantonin or low dose naltrexeone, which also claim some HIF-1 inhibition action. Again, against spread in general, and perhaps during invasive procedures, perhaps not so much against established masses.

We are still looking for more information on high dose vitamin D3 and K2(MK-4) that I mentioned previously, as part of the general antimet plan.

I have to say, my experience these last two weeks, leaves me feeling that more effective means of treating individual masses are possible, just not in US practice. I'm looking across borders, too, in emerging economies. US based medicine can get too bogged down in conflicts of interest, artificial standards, and political tarpits to notice cheap answers progressing elsewhere.

I've had to peel eyes open to even get surgeons' attention, for emphatic surgical recommendations by other doctors. Lessons for me, keep looking under every stone, and that insistence may be necessary to get the inconvenient best.

great reply
hi tanstaafl,

I copied your last sentence, its a beauty. We have the same approach.
It sounds like your not leaving any stones unturned. I hope your wife is going well.

"I've had to peel eyes open to even get surgeons' attention, for emphatic surgical recommendations by other doctors. Lessons for me, keep looking under every stone, and that insistence may be necessary to get the inconvenient best."

hugs,
pete

janie1 · April 2011

cea
Sounds like you have a thorough ND. We live in a toxic environment. I had always been very healthy, but as a kid, I helped in our orchard and garden which included spraying everything with DDT (now banned). I remember inhaling it, getting it on my skin, everywhere. I hate to speculate on the cause of my cancer, but it has crossed my mind many times about all that pesticide use. The bad thing about DDT, is that it stays in your tissues, forever.....so I heard. If the metals, etc. can be removed by detox....that would be something i would probably do. Praying for you. janie

thxmiker · April 2011

From the wellness community,
From the wellness community, try raising your blood alkali. Drinking Green teas, Probiotics, and eating more vegetable matter. This is supposed to detoxify the body and bring it back to a more natural state. I started the Zone Diet just before I got diagnosed with cancer. (Signet Ring Cell Cancer in the Colon.) I have lost 45 lbs over 10 months. My CEA went from 125 to 3.2. 44" stomach to a 38", and a 41" waste to a 35" waste. I look better and feel better. My blood test a week ago was that of a healthy person other then my red blood cells were enlarged. (A common side effect of chemo.) My blood went from acid to alkali.

My wife started the same diet as me, since I do the cooking. She lost 35lbs and 4 dress sizes. So, it was not the chemo that caused my weight loss.

Best Always, mike

lisa42 · April 2011

To everyone here
Thank you to everyone for your heartfelt comments, prayers, and even some advice

I will keep pushing on! On another thread I talked about my recent appt with my naturopathic dr & how I am going to do an intense sauna detox therapy the week of May 9th. I don't know what it will do, but I think it can be a good thing for me, and I will be carefully supervised during it all. One nice thing about that week is that my sister in law lives close to the center where I'm going and I'm going to stay at her house that week. That will avoid a lot of stress (otherwise it would have been getting up early and facing an hour commute in traffic each morning to get there & dealiing with the stress of getting the kids up and off in the mornings, etc). So I think this will be nice. I don't know how I'll feel each afternoon and evening after the saunas, as I was told that I could get detox reactions such as fatigue, headache, diarrhea, or even moodiness. Well, I'll be at a child-free house with my sister and brother in law and I get along well with them- so maybe it will be kind of a rest and break for me for a few days.

Cheers,
Lisa

my CEA

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