Shew........

pinkflutterby
pinkflutterby Member Posts: 615 Member
saw my onc, changing my meds up tumor markers went from 43 to 123 which is a concern to her so she wants to change my meds asap, starting "gemzar" on Tuesday its via IV drip, well through my power port. It's 3 weeks on 1 week off and I will still get the treatment in my head for the CF fluid cancer.

still getting a pet scan in early March and she OK'd me for my vacation :)

also was able to donate my $4000 worth of xeloda for a patient with no insurance so that makes me feel good!!!

still stiches but I'm feeling so much better about everything else!!!!!!!!!!!

♥♥♥♥
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Comments

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    I am sorry about your
    I am sorry about your markers but happy you are getting a quick response. Just wanted to say that you are in my thoughts and prayers.
  • fauxma
    fauxma Member Posts: 3,577 Member

    I am sorry about your
    I am sorry about your markers but happy you are getting a quick response. Just wanted to say that you are in my thoughts and prayers.

    Glad you know what is up.
    Glad you know what is up. Hoping the change in meds will help the markers. And isn't it a good sign that she okayed your vacation. Will keep you in my good thoughts and prayers that the change in meds is effective.
    Stef
  • Cindy54
    Cindy54 Member Posts: 452
    fauxma said:

    Glad you know what is up.
    Glad you know what is up. Hoping the change in meds will help the markers. And isn't it a good sign that she okayed your vacation. Will keep you in my good thoughts and prayers that the change in meds is effective.
    Stef

    You
    Please focus on the vacation to come. I am hoping right along with everyone else that the chancge in meds is a change for the better. Cindy
  • lynn1950
    lynn1950 Member Posts: 2,570
    Shew and Whew! Sorry for
    Shew and Whew! Sorry for the markers; glad that your spirits are good. Praying for you, dear Libby. xoxoxoxo Lynn
  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    I'm sorry to hear your
    I'm sorry to hear your marker went up and praying the new meds do there job. Plan your vacation and enjoy it. I just hope your not going north into that storm up there. take care Kay
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    Libby, I am so glad that you
    Libby, I am so glad that you have an onc that seems to be on the ball. I am hoping that changing up the meds does the trick. Like others have said, concentrate on your vacation. When is that by the way and what do you have planned? I hope something as special as YOU are!! Sending you strength, courage and lots and lots of love!! Take care of yourself Libby.
  • Kylez
    Kylez Member Posts: 3,761 Member
    fauxma said:

    Glad you know what is up.
    Glad you know what is up. Hoping the change in meds will help the markers. And isn't it a good sign that she okayed your vacation. Will keep you in my good thoughts and prayers that the change in meds is effective.
    Stef

    Whew! Happy to know that
    Whew! Happy to know that she wanted to change your meds and that you can get the scan later. When and where are you going on vacation?


    Praying for you,


    Kylez
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    MyTurnNow said:

    Libby, I am so glad that you
    Libby, I am so glad that you have an onc that seems to be on the ball. I am hoping that changing up the meds does the trick. Like others have said, concentrate on your vacation. When is that by the way and what do you have planned? I hope something as special as YOU are!! Sending you strength, courage and lots and lots of love!! Take care of yourself Libby.

    Going to Orlando March
    Going to Orlando March 25-April 3rd soooo excited!!! Going to meet with Cheryl/Shy violet. My Dad puts on conventions every year and this year its in Orlando and hes paying our way!!!

    thank you all so much for holding my hand today I needed you all there Ü
  • cindycflynn
    cindycflynn Member Posts: 1,132 Member
    Vacation - Yay!!!
    So glad to hear you have something great to look forward to, and that your doctor seems to be keeping on top of your treatment so that any small steps backward will be corrected quickly.

    Enjoy your vacation!!!!!!!!!
  • aysemari
    aysemari Member Posts: 1,596 Member
    How fitting
    I am sure you let out a deep exhale followed by a happy squeal....

    I sure did when I read your post.

    GO AHEAD, enjoy your vacation! How nice of you donate your
    xeloda. What a nice thing to do.

    Hugs,
    Ayse
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    It's great to hear your onc
    It's great to hear your onc is on top of the situation and has started you on a new treatment program. I will pray this new regiment brings down your tumor markers.

    How wonderful to hear you were able to donate Xeloda to someone in need. It must have made your heart smile.

    Yeah for YOU! I am so happy to hear that you and your family will be going to Florida on vacation!!! This is a much deserved vacation and couldn't have come at a better time. I have never been to Florida, but I am sure it is a beautiful state. I am picturing you on the beach, lounging on a chair, with a fancy umbrella drink in hand, and Jackie O sunglasses! I am green with envy.

    God bless.
    BL
  • susie09
    susie09 Member Posts: 2,930

    It's great to hear your onc
    It's great to hear your onc is on top of the situation and has started you on a new treatment program. I will pray this new regiment brings down your tumor markers.

    How wonderful to hear you were able to donate Xeloda to someone in need. It must have made your heart smile.

    Yeah for YOU! I am so happy to hear that you and your family will be going to Florida on vacation!!! This is a much deserved vacation and couldn't have come at a better time. I have never been to Florida, but I am sure it is a beautiful state. I am picturing you on the beach, lounging on a chair, with a fancy umbrella drink in hand, and Jackie O sunglasses! I am green with envy.

    God bless.
    BL

    That is so generous of you
    That is so generous of you Libby to donate your meds. But, not surprising as to how sweet you are on here.

    Wishing you good luck with the new meds and I am praying for you!
  • susie09
    susie09 Member Posts: 2,930

    It's great to hear your onc
    It's great to hear your onc is on top of the situation and has started you on a new treatment program. I will pray this new regiment brings down your tumor markers.

    How wonderful to hear you were able to donate Xeloda to someone in need. It must have made your heart smile.

    Yeah for YOU! I am so happy to hear that you and your family will be going to Florida on vacation!!! This is a much deserved vacation and couldn't have come at a better time. I have never been to Florida, but I am sure it is a beautiful state. I am picturing you on the beach, lounging on a chair, with a fancy umbrella drink in hand, and Jackie O sunglasses! I am green with envy.

    God bless.
    BL

    That is so generous of you
    That is so generous of you Libby to donate your meds. But, not surprising as to how sweet you are on here.

    Wishing you good luck with the new meds and I am praying for you!
  • PinkPearl
    PinkPearl Member Posts: 280
    Vacation okayed!
    That vacation will be so much fun for you and you deserve every fun moment of it. Sounds like your onc. is doing just what you need. Thanks for keeping us in the loop.
  • Marsha Mulvey
    Marsha Mulvey Member Posts: 597 Member
    PinkPearl said:

    Vacation okayed!
    That vacation will be so much fun for you and you deserve every fun moment of it. Sounds like your onc. is doing just what you need. Thanks for keeping us in the loop.

    libby
    Happy for you that you'll be getting to go on vacation next month. Surely the weather will be good by then! Hoping the Gemzar and your other treatment work well for you. Stay strong.
    Marsha
  • cahjah75
    cahjah75 Member Posts: 2,631
    Glad to hear
    your onc is changing your meds. Sorry markers are up though. That was really nice of you to donate your unused meds to someone who can't afford. When you go on vacation enjoy! Will keep you in my thoughts and prayers.
    {{hugs}} Char
  • phoenixrising
    phoenixrising Member Posts: 1,508
    Glad your doc is on the ball
    Glad your doc is on the ball and is taking quick measure to get you treatment but so sorry to hear about your markers. Fabulous donating your meds. Someone is going to be very very happy!! And enjoy your vacation you've earned it. A little sun and warmth can only do good right now.
    hugs
    jan
  • RE
    RE Member Posts: 4,591 Member
    Path
    Hello Pink, sounds like your doctor is on top of things and taking action to get those markers down! The fact that you have an upcoming vacation scheduled is wonderful, get out there and enjoy your time!

    How wonderful that you were able to help someone else with you donation of Xeloda, I am sure they were extremely grateful!

    Hugs,

    RE
  • linpsu
    linpsu Member Posts: 747
    thank goodness
    Thank goodness your dr.'s appointment wasn't as bad as you had feared and that she is so on top of things. Have a wonderful vacation in Orlando! I'm going to be there Ap. 11-14, so will just miss you. Hugs, Linda
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    linpsu said:

    thank goodness
    Thank goodness your dr.'s appointment wasn't as bad as you had feared and that she is so on top of things. Have a wonderful vacation in Orlando! I'm going to be there Ap. 11-14, so will just miss you. Hugs, Linda

    Shew indeed
    Glad to hear a new plan is in place.
    Suzanne