Treatment 7 ...I think

okthen
okthen Member Posts: 232
in Colorectal Cancer #1
If anyone out there is more aware of what treatment we are on feel free to chime in...I'm a little confuzzled after all the changes...(o;

Anyway... I think we are on treatment 7. Second treatment without the Oxal, just the 5fu.

Jack is doing good....only complaint is fatigue and his "system just isn't right".
I write that with a smile (relieving a little stress...not laughing at his discomfort by any means)...
He has the NICEST oncologist in the world, very compassionate, very patient, very any other nice word you could think of.
But today, at the end of our appointment with him, I think I saw just a smidgen of "oh no, do I have to tell this man that his "system" will retrain itself AGAIN??...just a smidgen of it, and maybe I was wrong...
maybe "I" was thinking "oh no, does he have to tell this man that his "system" will retrain itself AGAIN?"

Please forgive me..if it were my colon that was sliced I would be poor me-ing up a storm...thats for sure.

The poor man just wants to have a normal "system". He doesn't want to live in a bathroom, he doesn't want to take a pill to make things do what they are supposed to do. I think that a new normal is a hard thing to adjust to...he'll get there and I'll know he's there when the last thing he says to the Onc is NOT "my system still isn't right".

We met the sweetest man in the waiting room today...drove 25 miles in a blizzard to get his scan results. Said he was 87 and was really excited to hear if he was cancer free... he wasn't going to miss it because of a little snow....now we're talking 7 inches, 30 mph winds and -15 windchill. He didn't elaborate, but when he came back to chemo room he told us he didn't get the results he wanted, but he wasn't going to let a little cancer get him after being here 87 years. (o: gotta love it!

Hugs to you all!
Chriss

Comments

  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #2
    Where are you located Chriss
    I am in Paducah Ky and we are getting a little freeze on the wet roads but not much...The temp did drop here at 6 pm to 7 pm from 56* to 35*
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #3
    chriss
    Chriss,
    I know what you mean about Jack's system not being right. A bit frustrating and it can cause pain as well. **** was told on Monday after his colonoscopy that he only has 2 1/2 feet of colon and he will needs meds to get the water out of his system. The frequent watery poops are just causing too much soreness. So, we meet with the GI doc next Tuesday. Yes, a new normal for sure.

    The elderly man you meet at the docs today sounds like a gem. :)

    Aloha,
    Kathleen
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #4
    Buzzard said:

    Where are you located Chriss
    I am in Paducah Ky and we are getting a little freeze on the wet roads but not much...The temp did drop here at 6 pm to 7 pm from 56* to 35*

    Buzz
    Buzz,
    What the heck are you doing awake? It's 10:10 here and must be 2:10am (or 3:10am) there. Go to bed my friend.

    Aloha,
    Kathleen
  • okthen
    okthen Member Posts: 232
    #5
    Buzzard said:

    Where are you located Chriss
    I am in Paducah Ky and we are getting a little freeze on the wet roads but not much...The temp did drop here at 6 pm to 7 pm from 56* to 35*

    Kansas
    Wichita Kansas. Just looked at computer, it is now 5. 5. This is ridiculous.(o:
  • okthen
    okthen Member Posts: 232
    #6
    Kathleen808 said:

    chriss
    Chriss,
    I know what you mean about Jack's system not being right. A bit frustrating and it can cause pain as well. **** was told on Monday after his colonoscopy that he only has 2 1/2 feet of colon and he will needs meds to get the water out of his system. The frequent watery poops are just causing too much soreness. So, we meet with the GI doc next Tuesday. Yes, a new normal for sure.

    The elderly man you meet at the docs today sounds like a gem. :)

    Aloha,
    Kathleen

    Aloha Kathleen! You and ****
    Aloha Kathleen! You and **** have been in my prayers, I hope you are both getting along okay. (o:
    Calmoseptine cream was about the only thing that stopped the "burn" for Jack...heck, you might have been the one that suggested it, I can't remember now, but I learned of it here.

    I'm gonna take your advice to Buzz and get to bed..ha, it is 220 am, time flies when your having umbrella drinks with winter Marie in California while your celebrating Pete. (o:
  • CherylHutch
    CherylHutch Member Posts: 1,375
    #7
    Hey Chriss!
    That older man... what a sweetie, and what a great attitude! I bet his attitude is what has gotten him to his 87th year and I think we all can learn a good lesson from that. A little old cancer is not going to get any of us down... and if there are some discomforts or frustrations that come with the beast, well, so be it... it's still not going to get us down :)

    I'm not sure about the "system is not right" problem. I've never had a problem (knock on wood) with that end. Ever since the surgery when they took 18 inches out of my colon out and sewed me back up, the plumbing has worked great! I didn't even know it wasn't working great before I was diagnosed, but I sure noticed a difference after the surgery... and for the better. While I was on FOLFOX I did have a few bouts of diarrhea... nothing serious but it was definitely happening. But I found if I took the immodium before I needed it, it seemed to work like a charm. I'm about to start a new (to me) chemo on Monday - Irinotecan and folk have been telling me that diarrhea can be a big side affect. Soooo, I'm stocking up on my Immodium and when I see my onc on Friday I will be checking with her on just what she is planning to give me to hopefully eliminate this problem.

    Hehehe... for all the possible side affects we can get from the various chemos, the two that I hate the most and will do anything to avoid, are nausea and diarrhea.

    Anywho... I hope your hubby is feeling pretty good most of the time... and these other problems will eventually pass :)

    Cheryl
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #8
    CherylHutch said:

    Hey Chriss!
    That older man... what a sweetie, and what a great attitude! I bet his attitude is what has gotten him to his 87th year and I think we all can learn a good lesson from that. A little old cancer is not going to get any of us down... and if there are some discomforts or frustrations that come with the beast, well, so be it... it's still not going to get us down :)

    I'm not sure about the "system is not right" problem. I've never had a problem (knock on wood) with that end. Ever since the surgery when they took 18 inches out of my colon out and sewed me back up, the plumbing has worked great! I didn't even know it wasn't working great before I was diagnosed, but I sure noticed a difference after the surgery... and for the better. While I was on FOLFOX I did have a few bouts of diarrhea... nothing serious but it was definitely happening. But I found if I took the immodium before I needed it, it seemed to work like a charm. I'm about to start a new (to me) chemo on Monday - Irinotecan and folk have been telling me that diarrhea can be a big side affect. Soooo, I'm stocking up on my Immodium and when I see my onc on Friday I will be checking with her on just what she is planning to give me to hopefully eliminate this problem.

    Hehehe... for all the possible side affects we can get from the various chemos, the two that I hate the most and will do anything to avoid, are nausea and diarrhea.

    Anywho... I hope your hubby is feeling pretty good most of the time... and these other problems will eventually pass :)

    Cheryl

    Kathleen.......I am at work...and yeah I would love to be asleep
    but Im getting paid for this...hehe...aw the love of government work.......it is 2:25 right now...Love Peace and flat worn out. Buzz with a ZZZZZZZZZZ
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #9
    Understand
    My hmmm, thinking here, stupid chemo brain, what are they called, the ones that take your colon parts out???
    Any rate, whatever she is called, she took out two feet, I had four feet total, anything over the two feet would have "changed" everything forever. I'm glad it was just the two feet. Having said all that, she did inform me, it would never be the same, never. And by golly she was right. It isn't right, it made a difference, now when I have to go, I have to go, I need to find a bathroom real soon after realizing this. I feel pain every time, I guess the acknowledgment that it isn't the same anymore.
    Having bitched about that, I'm thankful, they said maybe a bag, when I woke after surgery, I heard the word bag, and then in my drug laden daze, I felt my body up and I couldn't find a bag, I went to sleep peacefully at that moment, well, as peacefully as you can get in the ICU. I squeaked under the radar, I in this particular case was lucky.
    Amongst all this rambling, what I'm saying is our normal will change, but it will become our normal, ask Kerry, Buzz and quite a few others who's normal is now different, it becomes our norm, and it's all right, we still get to love and hold and see the sunshine, rain, snow and sleet, very much like the mail man (LOL).
    My love to you both,
    Winter Marie
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #10
    okthen said:

    Aloha Kathleen! You and ****
    Aloha Kathleen! You and **** have been in my prayers, I hope you are both getting along okay. (o:
    Calmoseptine cream was about the only thing that stopped the "burn" for Jack...heck, you might have been the one that suggested it, I can't remember now, but I learned of it here.

    I'm gonna take your advice to Buzz and get to bed..ha, it is 220 am, time flies when your having umbrella drinks with winter Marie in California while your celebrating Pete. (o:

    ROF
    ROFLMAO!!!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #11
    herdizziness said:

    Understand
    My hmmm, thinking here, stupid chemo brain, what are they called, the ones that take your colon parts out???
    Any rate, whatever she is called, she took out two feet, I had four feet total, anything over the two feet would have "changed" everything forever. I'm glad it was just the two feet. Having said all that, she did inform me, it would never be the same, never. And by golly she was right. It isn't right, it made a difference, now when I have to go, I have to go, I need to find a bathroom real soon after realizing this. I feel pain every time, I guess the acknowledgment that it isn't the same anymore.
    Having bitched about that, I'm thankful, they said maybe a bag, when I woke after surgery, I heard the word bag, and then in my drug laden daze, I felt my body up and I couldn't find a bag, I went to sleep peacefully at that moment, well, as peacefully as you can get in the ICU. I squeaked under the radar, I in this particular case was lucky.
    Amongst all this rambling, what I'm saying is our normal will change, but it will become our normal, ask Kerry, Buzz and quite a few others who's normal is now different, it becomes our norm, and it's all right, we still get to love and hold and see the sunshine, rain, snow and sleet, very much like the mail man (LOL).
    My love to you both,
    Winter Marie

    Chriss maybe this can help to you!
    I had tremendous problems with my stools since i was operated, (1.5 years) many times a day,
    mucous, diarrhea, stomach issues, feel bloated and many other things, but the other day a girl friend suggested me to have KEFIR, a kind of "wild yogurt" you must do it at home with
    a kind of special fungus, well the question is that in 48 hours all my problems were sorted out!! Look for KEFIR at the Internet!
    Hugs!
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #12
    chriss, I hope jacks system picks up!
    We have alot of adjusting to do with bags and chemo and the whole deal post op.
    At least your ONC sounds really good.

    The old man sounds amazing, I love the attitude.

    cheers,

    Pete

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