bad scan - very sad

Kathleen808
Kathleen808 Member Posts: 2,342 Member
edited March 2014 in Colorectal Cancer #1
Dear Friends,
Wow that was a slap in the face. We were hoping that ****'s scan would clear him for flying. Instead we are fighting for "more time." He had his CAT yesterday and he has about 16 small nodes total in both lungs. Also a 5 cm mass up near his aorta. Also numerous small to med size lymph nodes. It's back. We were in shock last night, lots of tears and calls to our family. Had to wait till today to tell our 16 year old as she had her last final this morning. Onc in Hawaii thinks CPT11 + Erbitux and will consult with Dr. Lenz. Dr. Lenz called us back and wants a PET on Monday so he knows what he is dealing with. We are in the fight.
Please pray for all of us. Pray that we can keep peace in our family in the midst of this. Pray for our daughters, this is the only Daddy they can have.

Also, we may fly to Sloan Kettering asap. Any info would be very much appreciated.

Thank you for everything.

Aloha,
Kathleen
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Comments

  • lesvanb
    lesvanb Member Posts: 905
    Oh Kathleen
    Oh Kathleen, my heart just broke when I read your post. All I can think of is wrapping you and your family up and rocking you and loving you. There's no more words right now.

    here for you,
    Leslie
  • Crow71
    Crow71 Member Posts: 679 Member
    I thought you guys had it
    I thought you guys had it beat. You've done everything right. I'm so confused, worried for you, and sad.

    Since my last bad scan I've been investigating different alternative treatments. Folfox and Folfori have failed and I'm not sure if trial are right for me. I have not posted on this yet because I'm sure what I'm going to do. PM me if you want to and we can talk about the options I'm considering.
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Kathleen and ****, I am
    Kathleen and ****, I am hugging and holding on to you with all my love and prayers.

    Gail
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Kathleen
    I am so sorry to read this. I really thought everything was going so well for **** + now this bump in the road. This cancer is unpredictable + it is hard to adjust to the bumps. I know you will both fight this hard + win with the help of the medical team. Please know that all of you are in my thoughts.
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    AnneCan said:

    Kathleen
    I am so sorry to read this. I really thought everything was going so well for **** + now this bump in the road. This cancer is unpredictable + it is hard to adjust to the bumps. I know you will both fight this hard + win with the help of the medical team. Please know that all of you are in my thoughts.

    Kathleen
    Dang! So sorry to hear you guys gotta fight the fight...AGAIN!!!! It's just not fair. Give a guy a break! You are all in my prayers! I started with 15+ in both lungs..... chemo wiped them out in a matter of months.... it can be done!!!! Hugs to you both!

    Jennie
  • emrose
    emrose Member Posts: 136
    So sorry
    Kathleen

    I've been following ****'s story through your posts and this just caught me so off gaurd. I can't believe there is so much so soon. I am just devastated for you but also very hopeful! It seems that if anyone can handle this setback, it's ****. I'm so sorry you have to go through this. Please Keep us posted.

    Laura
  • pf78248
    pf78248 Member Posts: 209
    So very sorry
    Kathleen,
    My heart breaks over your news. I will keep you, ****, and the girls in my prayers. Please know there are so many here that love and support you all and we wish for an excellent plan to keep ****'s cancer under control.

    If I can do nothing at all, let me know. David's been gone four months now and I don't want you to have to bear this pain. Oh, I do hate cancer.
    So I will boldly ask God for a miracle for ****.

    Hugs and Healing,
    Priscilla
  • newperson
    newperson Member Posts: 76
    Kathleen
    Oh, Gosh. I so wish this is not true. I'm so sorry for this bad news. I will be thinking of you and ****. Hope you will find a plan to fight again. Keep fighting it. Hugs - Lucy
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    kathleen
    just months ago **** had clear scans now this :( i dont understand it, really dont. i do know as hard as it is to fight again **** will do it and beat this sob. you are in my prayers.love and hugs to you both
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    Sonia32 said:

    kathleen
    just months ago **** had clear scans now this :( i dont understand it, really dont. i do know as hard as it is to fight again **** will do it and beat this sob. you are in my prayers.love and hugs to you both

    I feel so sorry Kathleen!
    You both will be in my prayers!
  • luv3jay
    luv3jay Member Posts: 533 Member
    I'm so sorry to hear this
    I'm so sorry to hear this news. I will keep you both in my prayers. I know we can beat this one step at a time.

    -Sheri
  • luv3jay said:

    I'm so sorry to hear this
    I'm so sorry to hear this news. I will keep you both in my prayers. I know we can beat this one step at a time.

    -Sheri

    This comment has been removed by the Moderator
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    I'll pray for PEACE and HEALING for you and **** and your family
    Dear Kathleen and ****,

    I too am so very sorry to hear of these horrible results.

    Our illness keeps on making our lives so hard and strangely even more vulnerable and precious.

    I loved that you asked us to pray for PEACE IN YOUR family, if that what you desire then I believe thats what you will receive. I firmly belive that PEACE and HEALING are good friends, one follows the other. Don't loose hope even though I know you are really worried.

    God bless you both. I wished my faith were stronger, so even if god is planning to step in don't wait around and get all your next medical options covered.

    Love Pete
  • khl8
    khl8 Member Posts: 807

    I'll pray for PEACE and HEALING for you and **** and your family
    Dear Kathleen and ****,

    I too am so very sorry to hear of these horrible results.

    Our illness keeps on making our lives so hard and strangely even more vulnerable and precious.

    I loved that you asked us to pray for PEACE IN YOUR family, if that what you desire then I believe thats what you will receive. I firmly belive that PEACE and HEALING are good friends, one follows the other. Don't loose hope even though I know you are really worried.

    God bless you both. I wished my faith were stronger, so even if god is planning to step in don't wait around and get all your next medical options covered.

    Love Pete

    Kathleen and ****,
    I am

    Kathleen and ****,
    I am keepning you in my toughts and prayers, and it is with sincere hope that they can find something to do to keep this lastest growth at bay.
    Hugs,
    Kathy
  • jararno
    jararno Member Posts: 186
    So Sorry
    Sorry to hear this news. I know **** has been fighting and will continue to fight will all he has! Hoping for the best for all of you.

    Take Care,

    Barb
  • dorookie
    dorookie Member Posts: 1,731 Member
    Praying
    I am so very sorry, I hate this monster, I will be praying for **** and your daughters and you. God Bless you all..You have been through so much, I am just so sad by this news, my heart hurts for you all..

    HUGS
    Beth
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dear Kathleen
    I know it must feel like the weight of the world is on you both right now as you try to come to terms with this news.

    Know that each and everyone of us here are reaching out with good thoughts, wishes and prayers that you and **** will find the right treatment to beat back the cancer.

    May God hold you in His hands, bring you peace of mind and healing.

    Hugs,

    Marie who loves kitties
  • maglets
    maglets Member Posts: 2,576 Member

    Dear Kathleen
    I know it must feel like the weight of the world is on you both right now as you try to come to terms with this news.

    Know that each and everyone of us here are reaching out with good thoughts, wishes and prayers that you and **** will find the right treatment to beat back the cancer.

    May God hold you in His hands, bring you peace of mind and healing.

    Hugs,

    Marie who loves kitties

    Kathleen
    Kathleen....I am so very sorry for you and **** and your girls....who wanted this crappy news?

    oh Kath...I just don't know what to say....sending you all the love and prayers I can muster

    maggie
  • snommintj
    snommintj Member Posts: 601
    maglets said:

    Kathleen
    Kathleen....I am so very sorry for you and **** and your girls....who wanted this crappy news?

    oh Kath...I just don't know what to say....sending you all the love and prayers I can muster

    maggie

    tough news
    I'm sorry to hear that. I thought the worst was behind you guys. But please don't get too discouraged. His most recent scan sounds almost exactly like my 1st scan after my Dr said I was NED. That was 2 full years ago. They've been happy, good health years. So I know you guys have some hurdles to cross but I think things will be good for quite some time.
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    Oh, Kathleen, I'm so very

    Oh, Kathleen, I'm so very sorry to hear this news. I was expecting a different type of post - but I will pray for him and your family. God Bless you all... Luv and hugs, Cynthia