Hi !! NEW UPDATE ON SON

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Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    my prayers also lori
    dear lori,
    you are being tested and passing with flying colours. From my perspective you are a great example of the best of our human spirit. You mind is on your mum not your self.

    please trust you gut feeling, I hear the worry behind your words so act urgently with the doctors. If you remember my aunty Val went from planning her release home in the morning being told she had 3 months to live and then passing away completely unexpectedly over just 2 hours from her advanced lung cancer.

    All in the same day.

    My expect the unexpected here means being ready to help. Maybe you can get a nice recliner chair in your sons room and have a nap. Make sure you tell show and tell me you love him and hold his hand.

    love and prayers,
    Pete
  • maglets
    maglets Member Posts: 2,576 Member

    my prayers also lori
    dear lori,
    you are being tested and passing with flying colours. From my perspective you are a great example of the best of our human spirit. You mind is on your mum not your self.

    please trust you gut feeling, I hear the worry behind your words so act urgently with the doctors. If you remember my aunty Val went from planning her release home in the morning being told she had 3 months to live and then passing away completely unexpectedly over just 2 hours from her advanced lung cancer.

    All in the same day.

    My expect the unexpected here means being ready to help. Maybe you can get a nice recliner chair in your sons room and have a nap. Make sure you tell show and tell me you love him and hold his hand.

    love and prayers,
    Pete

    lori
    you poor poor thing....Lori i am so sorry about your son....and of course about you and your continuing oxy struggle.

    sending you both some hugs and well wishes.

    mags
  • lisa42
    lisa42 Member Posts: 3,625 Member
    Hi Lori,
    Re. your update on

    Hi Lori,

    Re. your update on your son... wow- I'm so sorry he's not doing well. I wish I had knowledge or advice to give you. Instead, all I can offer you is that I'm thinking of you, wrapping my arms around you in hugs and in prayer- and your for your son too.
    I will be praying hard-

    Hugs,
    Lisa
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Lori
    Lori, I am so sorry your Son is having a hard time with all this! If you don't see me here much, its because of chemo #3. I will try to get hold of you by phone today. You and your Son have my love, hugs, and prayers.

    Talk to you later, Gail
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Lori
    I cannot tell you how sorry I am to hear about the rough time your son is having, on top of the issues you are having. I am thinking about both of you, hoping you will both "turn around" + start feeling better.
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Lori
    Lori,

    I am praying for your son. I am so sorry that he has had to suffer like this. And, in the midst of what you are going through I know it must just seem like too frick'n much. I will hold you in my prayers.
    When our daughter gets her IVIG today I will think of you and your son. I will hold you in prayer and send my love over the ocean to you.

    Aloha,
    Kathleen
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    Thank you everyone
    All the warm thoughts and prayers are so greatly appreciated. I'm taking the rest of today at home to rest up for a long day at the doctors offices tomorrow, maybe do some laundry and just putz around the house. I was able to schedule things so that I have a break at lunch time to spend with my son between docs tomorrow. Unfortunately his hospital is on the other side of town so I was lucky to get the break between appointments. He is receiving his IVIG this afternoon and he gets premeds (benadryl etc) iv with it so he's going to be pretty much out of it for the rest of the day. Sometimes you just have to remind yourself that life doesn't stop just because you have cancer and don't feel well. Right now my son is feeling worse than I am so I'm really doing my best to take the breaks when I can to stay as healthy as possible so I can keep up with what he needs.

    Again Thank you all .... HUGS!!!!!
  • Kerry S
    Kerry S Member Posts: 606 Member
    AnneCan said:

    Lori
    I cannot tell you how sorry I am to hear about the rough time your son is having, on top of the issues you are having. I am thinking about both of you, hoping you will both "turn around" + start feeling better.

    Ditto to what Ann said

    Yep even old guys pray

    Kerry
  • CherylHutch
    CherylHutch Member Posts: 1,375
    Hang in there, kiddo!
    Awww, Lori... I'm so sorry to hear that you and your son are having to go through this. I did not know why your son was in the hospital, but putting the update and bits and pieces I've gleaned, is it any wonder you are under stress??

    As for your latest treatment hitting you so hard... I'm sorry, I read the first sentence wrong and thought you said this "last round of FOLFOX" and understood that to be this was your last round. I have since been corrected ;) FOLFOX is not the most fun little adventure, by any stretch.... and even when we remind ourselves that it IS fighting our battle and is a great weapon to have in our arsenal, that doesn't make the side affects any more fun to go through. Add to that, the stress of worrying about your son, chances are the side affects are even worse for you than for someone who doesn't have that added stress.

    I know this probably isn't going to be of too much comfort, but know in your heart that your son is in good hands. Meanwhile, you do have to look after yourself and try (I know, impossible as it is) to destress yourself. Your immune system is taking a heck of a beating as well, so you want to be doubly careful that the things your son is exposed to and his immune system can't fight off... you are possibly being exposed too. I just want you to know we all are thinking of you and if we could help we would... but I guess all we can really do is send positive thoughts and energy to both you and your son, and remind you that someone has to take care of you as well.

    Hugggggs,

    Cheryl