Hi !! NEW UPDATE ON SON

Lori-S
Lori-S Member Posts: 1,277 Member
edited March 2014 in Colorectal Cancer #1
I spent the day at the clinic as this last round of FOLFOX hit me very hard. Everything that could happen seems to have happened. I survived it so there! They gave me iv fluids and platelets and told me to go home to bed. So before I do the bed part I wanted to say a quick hello and let everyone know I am doing ok. Miserable but ok. Ha!

My son had to have a 2nd tube placed yesterday in an attempt to keep from doing surgery. They are hoping that the 2nd tube will help get rid of the air pocket that has developed in the lung. He now has 2 tubes and 2 suctions going. UGH. So far we are still in wait and hope mode. I appreciate all the kind thoughts and prayers.

UPDATE ON SON: Argh! we are now fighting another bout of chicken pox. He has no immune system so he gets anything and everything any number of times and doesn't develop immunity. This is his 3rd cicken pox outbreak this year. He doesn't get shingles ... he gets actual chicken pox each time. The last one was responsible for the bout of his viral pneumonia about 5 months ago. We are currently treating him with antibiotics and now will have to add antivirals and hope that he doesn't develope a viral pnuemonia in his one functioning lung. Sheesh. I'm very concerned about him. While I was sicker from the chemo, I missed seeing him for a couple of days and yesterday was at the clinic all day. Today was the first I've seen him since last week and he looks so much worse that I am really starting to worry. His coloring is gray (not just pale) with dark red and purple splotches everywhere. I've never seen him with such bad coloring. His current sat rate without oxygen is 52. dang! Today he told me that he didn't think he was going to make it out of the hospital this time. We requested a consultation appointment with the doctor to sit down and review his chart when I am there to go over things and help interpret them for him. Since his stroke a couple of months ago, I have noticed that he is slower to process things and it really frustrates him. Thoughts and Prayers are appreciated.

Thanks to my semi-colon family for being here. You guys are the best!

HUGS
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Comments

  • Friendinpenn
    Friendinpenn Member Posts: 70
    Hey Lori
    I know we all are rooting for you and your son....

    Please take care of yourself too...

    You are one tough lady!!!!

    Friend
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Lori
    I am so sorry you + your son are having a rough time. I hope tomorrow is a better day for both of you.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    Hugs to you
    Good to hear from you, Lori. Sorry you're having such a lousy time w/ the chemo and have the worries of your son on top of it all. I will continue praying for you both.
    Hope you get rest tonight and that the steroids don't keep you up in the middle of the night. You WILL get through this-

    Hugs and prayers,
    Lisa
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Thoughts and Prayers
    Both you and your son are in my thoughts and prayers. Sorry the chemo is hitting you so hard, but the more you get the harder it is on your system. Hoping that this new tube for your son works. He has been through so much recently. A speedy recovery to both of you. Thanks for the update, it's good to know you are still here even though you don't feel well:(

    Kim
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    Oh Lori, I'm so sorry that

    Oh Lori, I'm so sorry that you have to worry about your son while your going through such a difficult chemo treatment. My thoughts and prayers go out to you you both. Big hugs! Cynthia
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Thanks for the update
    Thanks for letting us know. Praying for great things for both you and your son.

    *hugs*
    Gail
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Lori
    Thinking about you and your son. Fingers crossed for your son, a prayer or two both your ways.
    Hope your in bed sound asleep having wonderful dreams at this moment.
    Winter Marie
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Glad you survived!
    So sorry to hear that this last treatment was so rough on you. I am sure the stress you are under is a factor.

    Prayers for your speedy recovery and for your son that this second tube does the trick.

    Sleep well.

    Hugs,

    Marie who loves kitties
  • TMac52
    TMac52 Member Posts: 352

    Glad you survived!
    So sorry to hear that this last treatment was so rough on you. I am sure the stress you are under is a factor.

    Prayers for your speedy recovery and for your son that this second tube does the trick.

    Sleep well.

    Hugs,

    Marie who loves kitties

    Thoughts and prayers out to
    Thoughts and prayers out to you and your son Lori xoxo
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Lori
    Lori,

    Thinking about and praying for you and your son. So very, sorry that you are going through this and that you have the worry of your son. Huge hug going out to you.

    Aloha,
    Kathleen
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    Lori
    Lori,

    Thinking about and praying for you and your son. So very, sorry that you are going through this and that you have the worry of your son. Huge hug going out to you.

    Aloha,
    Kathleen

    Lori,
    I pray for you and your son, have a big hug!
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Hi Lori, I hope you are
    Hi Lori, I hope you are feeling better today. I loved talking with you the other day. You are a great inspiration my friend! (Along with soo soo many other's)

    I will be saying a prayer that your son get's some good new's with that second chest tube and see's some signs of improvement.

    Folfox #3 for me today so I might not be around as much for a few days.

    Take lot's of care, Gail
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    plh4gail said:

    Hi Lori, I hope you are
    Hi Lori, I hope you are feeling better today. I loved talking with you the other day. You are a great inspiration my friend! (Along with soo soo many other's)

    I will be saying a prayer that your son get's some good new's with that second chest tube and see's some signs of improvement.

    Folfox #3 for me today so I might not be around as much for a few days.

    Take lot's of care, Gail

    Hey Lori!
    Dang... so sorry to hear about all this rotten crap. GET GOOD! Be praying for you and your son and sending BIG hugggsss!!!!!!

    Jennie
  • sasjourney
    sasjourney Member Posts: 395 Member
    Hugs to you
    Lori,

    I am sending big hugs to you and know you will feel much better real soon. Your son continues to be in my prayers as well. Get lots of rest and take care.

    Hugs,
    Sara
  • newperson
    newperson Member Posts: 76
    Good vibes and best wishes to you
    Lori, You are in my thoughts. You've been having too much. But hang in there. My best wishes and good vibes to you. Hugs. - Lucy
  • okthen
    okthen Member Posts: 232
    Hi Lori...I haven't been on
    Hi Lori...I haven't been on much so I was not aware of the news about your son...I am so sorry he is going through this! You are both in my prayers!
    Hugs back at ya!
    Chriss
  • CherylHutch
    CherylHutch Member Posts: 1,375
    Double Ouch!
    Awwwww Lori, I'm so sorry to hear this last session is the one you will probably remember and it was the worst one :/ I know it's not much consolation at the moment until you are feeling better but the good news is this was your LAST round of FOLFOX!! Yayayayaya! No more of that nasty, nasty Oxy!!! It is the absolute worse and every round of it it gets that much harder to take and that much worse in side affects. But you did it, girl!! You finished them all!!

    I missed the posts of what has happened to your son that he is in the hospital... but I'm really sorry that you have this worry on top of your own chemo woes. Hopefully you will be feeling much better in the next day or so and you can go see your son and find out that he is doing much better because of this second tube. It will all work out just fine, it's just too bad that it has had to happen in the first place :)

    Glad to see that you could pop in for a couple of seconds to let us know. Now rest up!

    Cheryl
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Prayers coming your way
    Dear Lori,

    So sorry to hear that your son is suffering so much. Your update is worrisome for sure. I hope that the doctors can give you some reasurances about his prognosis.

    If there is anything I can do from a distance, please don't hesitate to let me know.

    Take care of yourself to dear.

    Hugs,

    Marie who loves kitties
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    Prayers coming your way
    Dear Lori,

    So sorry to hear that your son is suffering so much. Your update is worrisome for sure. I hope that the doctors can give you some reasurances about his prognosis.

    If there is anything I can do from a distance, please don't hesitate to let me know.

    Take care of yourself to dear.

    Hugs,

    Marie who loves kitties

    Prayers and good vibes from here Lori!
    Have a huge hug!
  • Prayers coming your way
    Dear Lori,

    So sorry to hear that your son is suffering so much. Your update is worrisome for sure. I hope that the doctors can give you some reasurances about his prognosis.

    If there is anything I can do from a distance, please don't hesitate to let me know.

    Take care of yourself to dear.

    Hugs,

    Marie who loves kitties

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