Mom diagnosed with Cancer of Unknown Origin with lesions spreading in Liver

summercc7
summercc7 Member Posts: 1
edited March 2014 in Liver Cancer #1
My mom was diagnosed with Cancer of Unknown Orgin at the beginning of Sept. She was having this terrible back pain, went in for a scan and they found a tumor on her back (causing the pain) and 11 lesions in her liver. They immediately did radiation on her back and chemotherapy. We received the results back a week ago that while the tumor on her back is dead, the chemo did not work for her liver (since they cant radiate her liver). Not only did it not work, but the report says that they have 'increased significantly'. We are exploring other options at this time but she has lost a lot of hope. We've dealt with cancer in the past and we know when things are not going well. I called up CyperKnife, which is this newer option that is supposed to be able to do very specific radiation. So i was thinking that they could just do that on the lesions on her liver. But when i spoke with the nurse today for an over the phone consult, it didnt sound very good - seems there are too many (but they are looking at the scans) - I wanted to know if anyone is familar with CyperKnife or my mom's type of cancer and what their thoughts were. I've been reading up on it and all the survival rates are not good - in line with 3-4 months. She is only 51, with 4 children and she is not ready to die yet, nor are we ready to lose her. If any one knows of the best specialist in this field, please let me know. We are desperate at this point. Thank you very much.

Comments

  • SarahD
    SarahD Member Posts: 139
    HI my father is 54 with 3
    HI my father is 54 with 3 children i understand how you feel this is the most devestating thing! Can they biopsy the tumors to find OUT what type of cancer it is then they can mabe come up with a better treatment plan? I would get a second opinon fast where do you live?
  • medyer1956
    medyer1956 Member Posts: 1
    Please contact me
    Have cancer of the unknown primary on basal cell cancer in liver. I found some good chemo options for myself.
  • sarge57
    sarge57 Member Posts: 50 Member
    Hi summercc7
    Dont know much

    Hi summercc7

    Dont know much about this type of cancer but here is a link which may explain more about cyberknife for you, good luck.

    http://www.jcc.hhsc.ca/

    John
  • Lenimb
    Lenimb Member Posts: 2
    Poorly Differentiated Neuroendocrine Carcinoma/CUP
    Hello Summer

    My mother in law was diagnosed with the above mid Jan. The cancer has metasticed to her liver. Can you tell me about your Moms experience with Cyperknife? I'm interested to know how things are going. Thank you.