After the "well, we can prolong your life" talk

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Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Sorry
    Those are some pretty sobbering words. Did you ever think about getting a second opinion. With all the new trials out there, a statement like that shouldn't even be allowed. Hope your flue gets better too. Praying for you.

    Kim
  • luv3jay
    luv3jay Member Posts: 533 Member
    I think plenty of us have
    I think plenty of us have heard that line in some combination or another. All you can do is keep fighting and keep trusting and believing. No one can predict what the outcome will be for any of us...all doctors can do is give you their best guess based on past stats. But you are an individual...a survivor. Keep you spirits high and fight on!

    -Sheri
  • lesvanb
    lesvanb Member Posts: 905

    Hey Les!
    I have quoted this quote before but it is something I always tell myself when I am feeling down..... and it reassures me. This is from a song by my favorite rapper - T.I.

    "The old me is dead and gone...... but the NEW me is gonna be alright!" So will you Les! Take care my friend.

    Jennie

    Jennie
    "The old me is dead and gone...... but the NEW me is gonna be alright!"

    ah the potential for my growing repertoire of country western songs!

    love to you Jennie, Leslie
  • lesvanb
    lesvanb Member Posts: 905
    lisa42 said:

    dear Leslie
    Hi Leslie,

    It sure does get hard sometimes, doesn't it- we just need a boost back up from someone else who has been there "in the mud", as was so eloquently already said.
    I feel your pain, girlfriend- I found myself quite down this past week too, just pondering all the possibilities of my life from here forward.
    Maybe you do need a new perspective from a different onc- something to consider.
    You'll keep looking forward and picking yourself up again because it's what you have to do!

    By the way, I just fell in love with Wyoming when I was there for the first time 2-1/2 years ago. My husband's great aunt lives in Dubois and the Wind River Valley is a beautiful place! Just thinking about that beautiful landscape cheers me up- you live in God's country- that's how I think about it- still so open and free!

    Hugs to you tonight Leslie-
    Lisa

    Lisa
    "I feel your pain, girlfriend- I found myself quite down this past week too, just pondering all the possibilities of my life from here forward."

    I'm so fortunate to know you Lisa.

    Season's tidings from Wyoming; nice to know you knwo what this part of the country looks like.

    love, Leslie
  • lesvanb
    lesvanb Member Posts: 905
    abrub said:

    I was given that line by one of my docs
    Actually he said "Median life expectancy is 2 years, but I think I can get you 3-5". I fired him, and have drs that are in it with me for the long term. At 3 1/2 years out, I'm healthy, and plan to thumb my nose at said dr on my 60th birthday (the 5 year mark.) I also have plans to go to my onc's son's wedding, and my onc agrees. His son is now 3, and we're in no hurry!

    This whole cancer bit mucks with the mind. We all have good days and bad. Know that at least here you have people who truly understand your fears and frustrations. We all share them.

    Sending hugs your way,
    Alice

    Alice
    "This whole cancer bit mucks with the mind. We all have good days and bad. Know that at least here you have people who truly understand your fears and frustrations. We all share them."

    Amen to that Alice

    all the best, Leslie

    PS am consulting with different oncs
  • lesvanb
    lesvanb Member Posts: 905

    leslie just strive to thrive. I love ryming and wish I could spe
    I am strangley glad you heard one doctors honest opinion. Of course I wish like hell it was "we can prolong your life until 150 years" tell the doctor if he can get you close to that age he can have your horse in the photo. it might work.

    We all need to the score, I don't want it withheld or watered down either.

    Get a few others is possible. Tell them you are looking for HOPE. has anyone seen her ?

    Say if tomorrows your last day and you spend it down in the dumps. what a waste.
    Get some warm and wonderful real and virtual friends and fill your life with Joy.

    Its Xmas after all. Pray for a miracle and at least ask the universe for help.
    If I get tested by the same sort of news I hope I have the courage to honest with my feelings like you were. By breaking the ice you really have helped many others contemplate a confronting message and senario.

    Pete

    Pete
    "Say if tomorrows your last day and you spend it down in the dumps. what a waste.
    Get some warm and wonderful real and virtual friends and fill your life with Joy."

    Thanks for the boost Pete!

    all the best, Leslie

    I love your dive photo. Where are you? I've dove in the Sea of Cortez.
  • lesvanb
    lesvanb Member Posts: 905
    Jaylo969 said:

    Leslie
    Leslie, I hope today that you are feeling good and that the friendly voices helped comfort you.I don't really like to use all of the common platitudes so....{{{Hugs}}}from me to you.

    -Pat

    Pat
    ((((hugs))) to you too. Aren't hugs great!

    all the best, Leslie
  • lesvanb
    lesvanb Member Posts: 905

    Sorry
    Those are some pretty sobbering words. Did you ever think about getting a second opinion. With all the new trials out there, a statement like that shouldn't even be allowed. Hope your flue gets better too. Praying for you.

    Kim

    KIm
    always such a comfort to hear your care, your wisdom, and strength.

    Christmas blessings to you!
    Leslie
  • lesvanb
    lesvanb Member Posts: 905
    luv3jay said:

    I think plenty of us have
    I think plenty of us have heard that line in some combination or another. All you can do is keep fighting and keep trusting and believing. No one can predict what the outcome will be for any of us...all doctors can do is give you their best guess based on past stats. But you are an individual...a survivor. Keep you spirits high and fight on!

    -Sheri

    Sheri
    "All you can do is keep fighting and keep trusting and believing."

    These words are a gift. Thank you because they get at the root of it for me right now, especially the trusting and believing. Thanks for sharing this with me, Sheri.

    all the best, Leslie
  • lesvanb
    lesvanb Member Posts: 905
    snommintj said:

    Buying time
    A lot can change in just a few months. Buy as much time as you can. The drs gave me 2 months at diagnosis (mar 08) then they gave me 30 days in Aug (09). During my infection days when I kept getting septic the drs called my family in from out of town and said my death was imminent with maybe 6 hours left. I reached a point where I simply couldn't breathe anymore, it was to hard and painful and wasn't doing me any good when I did. So I said goodbye to my wife and little boy and gave up. I really thought I would die and at that moment became completely cool with the idea. I guess I blacked out. I woke up some 12 hours later feeling better and in a much better emotional state. Death is no longer a burden that weighs on me. In my condition death is the easy way out and the one everyone expects me to take. They may be right, but I'm going to take advantage of every new treatment that comes along. I never know when the next clever idea will come along and buy me another 6-12 months. Right now they seem to be coming along every 6-12 months and that is just fine with me.

    John
    Your straightforward, can do, and caring attitude always is a driver for me. Last week when I asked about Caris testing my tumor, my oncologist asked where I had heard about that. I just said I get around. Thanks always for the ideas, and the support.

    all the best, Leslie
  • lesvanb
    lesvanb Member Posts: 905
    maglets said:

    les
    Leslie I have had hte you have 6 months line.....no promises to prolong....

    don't listen darlin.....just keep trudgin along with the rest of us. Up every day....hopefully out and about, something good to eat...a little exercise and sometimes maybe just a glimmer of joy....getting harder to find but still there.

    sending you best wishes and hugs

    mags

    Mags
    "don't listen darlin" It is about following our own heart isn't it?

    from my porch to yours,
    Leslie
  • lesvanb
    lesvanb Member Posts: 905
    coolvdub said:

    It's been said before
    Leslie,

    There is no expiration date on our foreheads. I'm so sorry you doctor doesn't understand this. If you are feeling reasonably well, that is good. Just take each new day as a blessing,hard to do some days, but a positive attitude can do wonders for you.

    Sorry you and your husband are down with the flu, I'm at home fighting a cold that as been going around at work. It's actually nice to just be feeling sick from a cold versus the cancer, words I never thought about saying before. I will be praying for you to find the strength to fight on and the knowledge to win this fight. Happy Holidays to you and yours.

    Don

    Don
    Thanks so much for your heartfelt words. How wonderful to have you have my back.

    Happy holidays to you all too!
    Leslie
  • lesvanb
    lesvanb Member Posts: 905
    pepebcn said:

    Hey Leslie have my best and sincere hugs from here! I'm
    sure you will be with us for many ,many ,many years, until you become a very very very very old scary woman!
    Again Hugs my dearest friend!.

    Pepe
    Ay querido! Este sentimiento mio pasará con la ayuda de las/los amigas/amigos como tu.

    ((((abrazos))))

    Leslie
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Leslie
    The doctors are not always right. I've heard and read (on here) many stories of being given a certain amount of time and then living years past that. There is absolutely no reason why you can't be one of those stories too.
    -phil
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    Thinking of you Leslie
    sending hugs and love your way from across the pond.

    Sonia
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    lesvanb said:

    Pete
    "Say if tomorrows your last day and you spend it down in the dumps. what a waste.
    Get some warm and wonderful real and virtual friends and fill your life with Joy."

    Thanks for the boost Pete!

    all the best, Leslie

    I love your dive photo. Where are you? I've dove in the Sea of Cortez.

    I was only joking about the horse
    Hi Leslie,

    Its warming to get feedback on my comments.

    The photo is from Christmas Island when I went in an underwater photography competition.

    I got back from that trip and I got diagnosed a few weeks later.

    Bummer, I am going through my childish passionate phase at present.

    My passion is photography, what 's yours ?

    I think using/finding your passion during this sutle battle with cancer is really helpful.

    cheers,

    Pete