Pain in the Head HONDO Up-date 12-16-10

Hondo
Hondo Member Posts: 6,636 Member
edited March 2014 in Head and Neck Cancer #1
As survivors we need to be on watch about possible infections that can happen at anytime and to any one of us. As most of you know I have been having very bad pain in my head for the passed many months, I have seen 2 different Oncal doc’s and 3 ENT’s about the pain and none of them could find anything wrong. Well never give up is what I always say. My wife and I found another 4th ENT doc at the Houston Medical Center; I told him nothing at first about me having Cancer because I needed him to give me an open opinion about my pain.

After he looked into my ear he realized that there was a lot more to the story and so I told him yes I had Cancer at one times in my life but on my last PET at MD Anderson I showed that I was Cancer free.

After he finished his examination he told us that I have a very bad Bilateral Mastoid Infection, I ask him to explain what he was talking about, and he did a very good job at that.

Most if not all of my pain in the head for the passed many months could be coming from this Infection. He has me on some very strong antibiotics trying to kill the infection. I am glad that we were persistence and did not give up when first told possible just more side affects of your treatment.

If any of you are suffering with pain in your head get your ENT to check you for possible Mastoid Infection and don’t give up until you are satisfied that you have an answer. I know that as a survivor my life has pain in it that I must learn to live with; I just don’t need any additional pain.

Take care my friends, I am hopping for the pains to start to ease up some over the next few days.
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Comments

  • MJ70
    MJ70 Member Posts: 75
    #2
    Honda
    Great Job on getting to the right Doc...In my 30 years in the medical equipment marketing business (retired) I know they are out there...and it sounds like this one might be it for you.....Good Luck.
  • MJ70
    MJ70 Member Posts: 75
    #3
    Honda
    Great Job on getting to the right Doc...In my 30 years in the medical equipment marketing business (retired) I know they are out there...and it sounds like this one might be it for you.....Good Luck.
  • Pam M
    Pam M Member Posts: 2,196
    #4
    FINALLY
    Hoping the antibiotics beat down the pain soon, Hondo. Glad this doc didn't see cancer and assume cancer treatment side effects.
  • MarineE5
    MarineE5 Member Posts: 1,030 Member
    #5
    Sounds promising
    Hondo,

    This sounds promising to say the least. I hope that in a few days you are back here telling us that the med's are working. I truely hope so as you have been through enough as it is.

    You Take Care of Yourself, I'm sure you will because you don't give up and have that CAN-DO attitude...

    My Best to You and Everyone Here
  • Scambuster
    Scambuster Member Posts: 973
    #6
    Pam M said:

    FINALLY
    Hoping the antibiotics beat down the pain soon, Hondo. Glad this doc didn't see cancer and assume cancer treatment side effects.

    Waiting for your 'Pain Free' Flag Hondo
    hat sound like great news Hondo and I hope the pains goes as soon as the infection is knocked out.

    Amazing how that could have been missed ! I do hope we hear your NO PAIN note very soon big brother Hondo.

    Scam
  • Hondo
    Hondo Member Posts: 6,636 Member
    #7
    MJ70 said:

    Honda
    Great Job on getting to the right Doc...In my 30 years in the medical equipment marketing business (retired) I know they are out there...and it sounds like this one might be it for you.....Good Luck.

    Hi MJ70
    Hopping for some relieve soon,

    Thanks my friend
  • Hondo
    Hondo Member Posts: 6,636 Member
    #8
    MarineE5 said:

    Sounds promising
    Hondo,

    This sounds promising to say the least. I hope that in a few days you are back here telling us that the med's are working. I truely hope so as you have been through enough as it is.

    You Take Care of Yourself, I'm sure you will because you don't give up and have that CAN-DO attitude...

    My Best to You and Everyone Here

    Hi Marine
    You are so right, but it is not me, it is the Wife behind me.

    Yep I really love her now, hope to post on how the pain is in a few days

    Take care my friend
  • Hondo
    Hondo Member Posts: 6,636 Member
    #9
    Scambuster said:

    Waiting for your 'Pain Free' Flag Hondo
    hat sound like great news Hondo and I hope the pains goes as soon as the infection is knocked out.

    Amazing how that could have been missed ! I do hope we hear your NO PAIN note very soon big brother Hondo.

    Scam

    Hi Scam
    What we found is that once a doctor hears the word Cancer that is what they start looking for. So this time we said nothing about Cancer until asked by the doctor and then he started asking me questions about my ear and pain that is when he told us about the infection. Having tubes in both ears he said just one little drop of water can cause terrible problems and infection for the inner ear.

    All the best to you my friend
  • Hondo
    Hondo Member Posts: 6,636 Member
    #10
    Pam M said:

    FINALLY
    Hoping the antibiotics beat down the pain soon, Hondo. Glad this doc didn't see cancer and assume cancer treatment side effects.

    Hi Pan
    Just knowing that you are praying for me helps keep the pain down, and remember I too have your name taped to my wall in prayer.

    May God watch between us in our prayers
  • DrMary
    DrMary Member Posts: 531 Member
    #11
    Hondo said:

    Hi Marine
    You are so right, but it is not me, it is the Wife behind me.

    Yep I really love her now, hope to post on how the pain is in a few days

    Take care my friend

    Art, not science
    My brother-in-law the doctor/researcher recently reminded me that medicine was an art and not a science (otherwise, we could use computers now). I'm glad you seem to be on the right track for your head pain. Infections can be difficult, and picking the right antibiotic can be tough without a culture. Make sure you take the antibiotic prescribed exactly as directed so that the doctor will be able to make good choices in a day or two if it does not seem to be helping (one of the doctors' biggest questions can be: is the drug not working or is the patient just not taking it consistently?).

    Good luck!
  • Hondo
    Hondo Member Posts: 6,636 Member
    #12
    DrMary said:

    Art, not science
    My brother-in-law the doctor/researcher recently reminded me that medicine was an art and not a science (otherwise, we could use computers now). I'm glad you seem to be on the right track for your head pain. Infections can be difficult, and picking the right antibiotic can be tough without a culture. Make sure you take the antibiotic prescribed exactly as directed so that the doctor will be able to make good choices in a day or two if it does not seem to be helping (one of the doctors' biggest questions can be: is the drug not working or is the patient just not taking it consistently?).

    Good luck!

    DrMary
    Good advice I am just glad my Wife keeps track of stuff like that for me

    I am too forgetful my self

    Thanks and all the best to you
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #13
    Hondo said:

    DrMary
    Good advice I am just glad my Wife keeps track of stuff like that for me

    I am too forgetful my self

    Thanks and all the best to you

    Hondo
    I am hoping that this is finally an answer to out prayers to get you to pain free.
  • skipper85
    skipper85 Member Posts: 229
    #14
    Hondo

    Sounds like you're on to something. Hoping you're relieved from your pain soon.

    (((HUGS)))

    Skipper
  • stevenl
    stevenl Member Posts: 587
    #15
    skipper85 said:

    Hondo

    Sounds like you're on to something. Hoping you're relieved from your pain soon.

    (((HUGS)))

    Skipper

    Hoping
    Hondo,
    Hoping for the best my friend.

    Steve
  • Greg53
    Greg53 Member Posts: 849
    #16
    stevenl said:

    Hoping
    Hondo,
    Hoping for the best my friend.

    Steve

    Sounds good
    Hondo,

    Glad you found someone to help alleviate your pain. Here's hoping the new drugs do the trick!

    Positive thoughts!

    Greg
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #17
    SAME SCHOOL OF THOUGHT
    Seems like doctos all think in just one diection if you give them too much infomation to start with. "Oh you have or had Cancer,then there is a pre scripted path to follow."

    It is sad that you have to leave out such a huge piece of your histoy to force the doctor to think outside of the box.

    Anyway, it may have been fustating, but you finally got the answer to a long sought after issue.

    BEST

    Mike
  • Clearblue
    Clearblue Member Posts: 186
    #18
    luv4lacrosse said:

    SAME SCHOOL OF THOUGHT
    Seems like doctos all think in just one diection if you give them too much infomation to start with. "Oh you have or had Cancer,then there is a pre scripted path to follow."

    It is sad that you have to leave out such a huge piece of your histoy to force the doctor to think outside of the box.

    Anyway, it may have been fustating, but you finally got the answer to a long sought after issue.

    BEST

    Mike

    Go Hondo !
    Good for you Hondo, 4 ENT's! I will keep this story in mind.
    You are not just a believer , you are a doer.

    Look forward to hearing your progress.

    Take care as always
    Clear
  • meinken
    meinken Member Posts: 38
    #19
    DrMary said:

    Art, not science
    My brother-in-law the doctor/researcher recently reminded me that medicine was an art and not a science (otherwise, we could use computers now). I'm glad you seem to be on the right track for your head pain. Infections can be difficult, and picking the right antibiotic can be tough without a culture. Make sure you take the antibiotic prescribed exactly as directed so that the doctor will be able to make good choices in a day or two if it does not seem to be helping (one of the doctors' biggest questions can be: is the drug not working or is the patient just not taking it consistently?).

    Good luck!

    I kept this quote in mind
    I kept this quote in mind when dealing with my doctors. A little more doctor intervension was needed this time but I still feel there is a great deal of truth in this little quote.

    The art of medicine consists in amusing the patient while nature cures the disease.
    Voltaire
  • Hondo
    Hondo Member Posts: 6,636 Member
    #20
    Hi Everyone 12-16-2010

    Here is the up-date, my Pain for the last 6 months has been between 7 & 8 I am one week into using antibiotic to treat this Mastoid infection and the pain is now down between 2 & 3 which is normal pain for me. I am just glad I finally found a doctor to hear what I was telling him.

    Another problem that is just now coming about and I don’t know if it has anything to do with the infection is my eye sight. For the last few weeks I have been getting darkness in my eyes it is more on the left side where the Mastoid was infected but the eye doctor is concerned because I have it in both eyes. So here we go again I just hope the darkness goes away once the Mastoid infection clears up.

    But the good part is that the Pain is down.
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #21
    Hondo said:

    Hi Everyone 12-16-2010

    Here is the up-date, my Pain for the last 6 months has been between 7 & 8 I am one week into using antibiotic to treat this Mastoid infection and the pain is now down between 2 & 3 which is normal pain for me. I am just glad I finally found a doctor to hear what I was telling him.

    Another problem that is just now coming about and I don’t know if it has anything to do with the infection is my eye sight. For the last few weeks I have been getting darkness in my eyes it is more on the left side where the Mastoid was infected but the eye doctor is concerned because I have it in both eyes. So here we go again I just hope the darkness goes away once the Mastoid infection clears up.

    But the good part is that the Pain is down.

    Well I'm glad that your pain
    Well I'm glad that your pain has decreased but I don't like to hear about the problem with your eyesight. Hoping that the pain continues to lessen and the eyesight returns to normal.

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