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Got my CT/PET results. Mets to the liver. :(

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

They're small (only one slightly larger than a cm & 3 other tiny ones noted on the report that my gyne-onc couldn't even FIND on my scan images) but apparently my uterine cancer has now metasticized to my liver. That can't be good.

The CA125 I had last Monday just prior to my CT/PET was 290, significantly up from the 181 it was 2 weeks before. The scan showed that the Doxil DID work on the enlarged malignant lymph node under my arm which was much smaller and with much less SUV uptake. But the paraortic lymph node that keeps lighting up and then going away, was lit up again and a little bigger. Of course, it's the new liver mets that are the concern. This is the 1st time I've had a metastasis in a vital organ. My whole family is freaked out. ARGH! I knew this would cast a pall over Christmas. :(

My gyne-onc is recommending I start carboplatin. I see my chemo-onc tomorrow afternoon for his recommendation and a treatment plan. I'm a little shell-shocked right now. THE GOOD NEWS I AM TRYING TO STAY FOCUSED ON is that I'm still symptom-free and if I hadn't had the CT/PET I would never even suspect that I had cancer, let alone liver mets. So if I still FEEL healthy, how much real trouble can I be in? RIGHT?? RIGHT??

clscurnutt's picture
clscurnutt
Posts: 26
Joined: Nov 2009

Just read your post. My heart is so full right now thinking of you and this not so great news. I know you'll keep everyone posted regarding your appointment tomorrow. Just want to hug all this right out of you. (((((((Linda)))))))

thank you
Posts: 77
Joined: Jun 2009

RIGHT!!!
Linda right!!!
One thing I am telling to my patients that are concerned about some blood or imaging findings: I have never checked my self, if I do, who knows what I will find. If you DON'T have symptoms, you are NOT sick. Sick people are in the hospital. You have just some findings in the CT - but you are HEALTHY!!
Second: my mom (who has stage III - yes it is not USPC, but still Stage IIIC) after she had a CT-PET 6 months after a diagnosis that just confused us (remember? it lit up on the vaginal cuff, she had a second laparoscopic surgery and was just inflammation), DID NOT have any more imaging. Just the Ca 125 (which we don't know if it is reliant for her) and GYN exam.
She is symptom free. I have told her that this is it, her disease is cured and she doesn't need to be concerned. She is happy (you said: ignorance is a bless some times).
So, you BE FOCUSED that you are symptom free. It is very important. I know you will probably decide to be aggressive - and who could disagree: you are completely healthy, tolerated most of the treatment really well. Linda, when I talk to a wise person like you, I feel that there are no words that I can tell you to make you feel better. But I feel at the same time that I owe you a lot - without even knowing me you changed many aspects of my life and thinking, just with your attitude and your writing on this site.
Please if ever you feel that there is something that I could offer just say it.
You wrote that you are a little shell-shocked right now. I suppose this is how you felt when you were first diagnosed. But here you are more than 2 years later. Yes with recurrence BUT with no symptoms - without hospitalizations, without the need of the others: so you ARE HEALTHY. Don't let numbers, don't let findings, don't let statistics destroy your Christmas. I am trying to make you feel better today at 7 pm, who knows if I have an accident and die tomorrow morning. YOU ARE HEALTHY!!!!!

fuzzytrouble's picture
fuzzytrouble
Posts: 213
Joined: Feb 2009

Well Linda it looks like you and I will both be going through chemo together, I start on the 29th of Dec. with Carbo. I had a biopsy of the vaginal cuff and it came back positive. My lung nodules are stable ( well the older ones are) and some small new ones showed up but they can't be sure those are cancer. I still think the Doxil will help with the liver mets, it's such a slow chemo and I hope the next treatment stage helps too. I am so bummed out about having to go through this again, but it will be in the winter so not much to do anyway. I had a great summer and I can't complain but I want to anyway. I wish I knew more on the liver mets. I feel very healthy too and I don't have any symptoms of recurrence on the vaginal cuff. The doc says it's not a mass yet but a thickening and that's why it did not show up in the ct scan. I just give up with all this stuff and I am just going with the flow. I will be sending you good vibes to you and my thoughts are with you to. I feel like I am in a nightmare and I want to wake up and say "wow that was a bad dream". Take care and many warm hugs to you.

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

Sharon I am so sorry you have to start treatment again with Carbo. Hope you tolerated the Carbo the first time around. Sorry to hear that the biopsy came back positive on the vaginal cuff. So many articles say that is where the recurrence will happen. I can understand you being bummed out about having to start treatment again. Glad to hear that you, too feel healthy. It would be easier to accept if there were symptoms, wouldn't it. Hope your nightmare ends, soon for you. In peace and caring.

Always Hopeful
Posts: 234
Joined: May 2010

I am so sorry to hear about the results of your biopsy on your vaginal cuff. Mine was treated with 10 session of radiation (IMRT) and it has shrunk significantly...almost to being non-existent. I hope and pray that your treatment will do the same for you!

Peace and hope, JJ

paris11
Posts: 159
Joined: Oct 2010

Don't overthink - too much thinking can be dangerous - enjoy your great fun-filled life and your beautiful, loving family.

Re: mets to liver. I had several mets to liver dx in Feb. 2008. Seven rounds of carbo/taxol mets resolved. Never to return. May you too be so blessed.

Merry Christmas.

20 more years !!!

Connie

nempark
Posts: 683
Joined: Apr 2010

I am at a loss for words!!!!! My Goodness, I cannot imagine feeling this way and I haven't even met the sisters on this site. I think of you all the time Linda!!! What shocking news, anyway, you both are fighters and I am sure with more treatment you both will beat this beast. My love and best wishes from my heavy, heavy heart goes out to all! June
I love what connie said she beat the liver mets we can all do the same.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Linda and Fuzzy Trouble
I simply can not find the words to describe how sorry I am to hear about your recent test results! What a BUMMER!! You are both such amazing warriors and I am confident that you will win this battle! I am glad that you are both feeling WELL….that is a good start and a good sign that this is just another bump in the road.

I pray that you will both be able to relax and enjoy the Holidays!!

Wishing you peace!! BIG HUGS!!

Karen

Cindy Bear
Posts: 570
Joined: Jul 2009

No words of wisdom here, but just know how much you are loved and admired by the other women on this site. In my eyes you are ten feet tall and bulletproof. I am sure your doctors will come up with a plan. Good luck tomorrow and keep us updated.
Hugs,
Cindy

bots's picture
bots
Posts: 53
Joined: Sep 2009

I agree with Cindy Bear's comments 100 per cent. As my granddaughter would say, I have my fingers, toes, and eyes crossed for you.
More hugs,
Lori

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

I think feeling healthy is essential. I had some spots or whatever they called them on my liver last year. They show up each time. I was told they are benign cysts. I am praying for you, my dear. Dont' have to preach the positive to you. You are the quintessential symbol of positive thinking. I say RIGHT!!! I think you can't be in that much real trouble. Each day there are miracles happening all around us. You are one of them. Look how far you have come. You have good doctors, a great family and a body that keeps fighting. I think feeling healthy is your body telling you that it is not going to give up that easily. Go with that thought. I admire your spirit.

Have a blessed Christmas, dear heart.

susafina
Posts: 134
Joined: May 2010

Hi Linda,
What can any of us say But THis really STINKS!! I would like to say something stronger but I won't. I am glad that you are feeling well. Just Know that you are STRONGER than anything. This is not going to defeat you. We will all pray for you and be with you through this. You can do it and we will bw here to make sure you do.

Strength in sisterhood!
SUE

jazzy1's picture
jazzy1
Posts: 1385
Joined: Mar 2010

This is the pitts but as I can tell, you've got the same positive attitude you've had on this site from day one! Nothing in life can prepare us for bad news, but we're a better person if we can tower over the news and enjoy our life as best we can. So happy you're feeling good, as that keeps the energy flowing and the positive vibes moving.

You're in my prayers and thoughts...hoping you and your family have a joyous holiday season!!
Jan

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

My heart just skipped a beat when I read your note. I feel so bad for you. You have fought so hard all along, that is makes me feel so terrible. I am glad the Doxil worked on your lymph node under your arm. How can there be mets to the liver? I don't understand, as I am sure you do not understand either. I am shell-shocked, and it is not even me that got the news. I hope if carbo is the drug of choice that it takes care of the mets.

I am glad you feel so good, and do not have any symptoms. I am so happy that you feel healthy. You do all you can to keep yourself healthy. I too wonder if I feel so good how can something so bad be going on? Of course there is no answer to that question.

I appreciate you sharing all of your news. I know it can't be easy to share it. You and your family remain in my prayers. In peace and caring.

Always Hopeful
Posts: 234
Joined: May 2010

Dear Linda,

Feeling healthy is more than half the battle! DO NOT let this set you or your family back. You are right to stay focused on the the fact that you are symptom free. Is there the possibility that what is being seen on the liver is, in fact, NOT mets but simply other thingees that some of us have experienced?

I would guess that we will be hearing from you soon regarding your visit with your chemo onc. I am hoping and praying that the rcommendation is one that is easy to accept and that before long you will be NED again.

Peace and hope,

JJ

Sara Zipora's picture
Sara Zipora
Posts: 231
Joined: Sep 2010

You are the Pathfinder as I have gleaned from your posts. You will find the way out of this temporary tunnel of yucky news. Also it is a known fact that there are many False Positives to PET scans, but anyway you slice it, Attitude goes a long way to physical good health, as one can readily read in your posts.
Blessed Holiday warm wishes and renewed good health to you both,
Sara Zipora

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Yesterday was my gynecologic oncologist. Today I met with my chemo oncologist to come up with a new battle plan. I have to get a 'skin-prick test' to make sure that I have not developed an allergy to platin drugs (as there is a lifetime limit of how much platin drugs you can have and I already did 6 infusions of carboplatin back in late 2008/early 2009 with my initial carbo/taxol rounds.) But assuming I am not allergic, I am starting on single agent carboplatin on Thursday. As long as my blood counts stay decent, I will get this infusion every 3 weeks. If I start to have blood count troubles we will 'fractionate' the dose so that I get it in smaller amounts once a week.

I was reassured by a lot of the things my oncologist said. He noted that the largest tumor in my liver is TINY, less than 1/2", and that a person can have 90% of their liver full of cancer and still have a normally functioning liver. He reminded me that I remain symptom-free and that carboplatin is one of the 'gold standard' chemos and could very well knock this back.

We talked a little about radiofrequency ablation
(http://www.radiologyinfo.org/en/info.cfm?pg=rfa ),
which is a great option we can re-visit if the carboplatin isn't the Magic Bullet we're hoping it will be. They don't like to do the ablation if you have cancer elsewhere besides the liver because if you run into complications you can't get the systemic chemo you truly need. But we will revisit it if the carboplatin doesn't start dropping my CA125 right away. I continue to be hopeful, and Vic and I both took this latest bad news calmly. We're really okay. So don't worry, any of you! Same war, just a new battle.

((((Sharon)))). So sorry for your test results. Back in battle side-by-side again, my sister. I've got your back; you're got mine. HUGS!

fuzzytrouble's picture
fuzzytrouble
Posts: 213
Joined: Feb 2009

I just love that saying Karen, I haven't heard it for a long time and I am now going to use that every time I hear bad news from the doc. : )
Thank you all for your support and I know Linda and I will do great with our next step of treatments. Has anyone lost all their hair with just Carbo? I had Doxil 9 months ago and my hair got thinner, so now I am wondering if I should go have it cut shorter now, just in case.
To all out in cancer land I admire you all so much for what we all go through no matter what kind of cancer it is and still have a stiff upper lip. Hugs to you all.
Sharon

Always Hopeful
Posts: 234
Joined: May 2010

Glad to hear, Linda, that after meeting with your chemo onc you have a doable plan of attack. Calm and logic seem to be the order of the day now. "Same war, just a new battle"...a good way of looking at all of this. Continued prayers and positive energy are coming your way.

Good luck on Thursday.

Peace and hope, JJ

howdybooth
Posts: 44
Joined: Aug 2009

Linda - my sister's third reoccurrence (11/09) was to the liver and we went to Dr. Goldstein of Baylor University Hospital in Dallas. He is the director of transplants at Baylor and a leader in the radiofrequency ablation procedure. However, since the main tumor was in the back of the liver, he was burned off the tumors (01/10). She then started chemo, which ended in April and has been cancer free so far (CA125 in the low teens and scans are clear). But – her gyn/onc first priority after it mets to the liver was to surgically remove the them. She lives in El Paso, TX and there wasn't a doctor that could do that type of surgery - that's why she came to Dallas to have it done AND we found Dr. Goldstein on our own!!! Just goes to show you that you must always take the lead on your own health!

Kaleena's picture
Kaleena
Posts: 1912
Joined: Nov 2009

Linda and Sharon:

So sorry to hear about this latest news. Why does it seem you always have to do something different around the holidays! Such an emotional rollercoaster.

Linda, you are a real trooper. Going places and reporting on the whole ordeal. Always going for the new frontier!

As you said though, same war, new battle. You have so much more information on how to handle these things and you give so much encouragement to everyone.

Linda and Sharon I just want you to know you are in my prayers.

Kathy

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

Linda you amaze me with your calmness. I am so glad you got reasurance from your chemo onocologist. I did not know they could give a skin-prick test for the Carbo. I knew there was a lifetime limit to the platin drugs, but did not know how they determined the limit. I am hoping your blood counts remain good. I hope the Carbo is your "magic bullet".

You always have a plan B in your pocket don't you. That is one of the things I admire about you. Always thinking ahead. And you are always educating us. You and your family remain in my prayers. In peace and caring.

patsplace
Posts: 14
Joined: Nov 2010

Yours is the bad news we all dread, but your manner of handling this is inspiration to us all. I'm rooting for you--and Sharon--and everyone of us who face these horrendous decisions daily.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I was interesting to start Carboplatin yesterday. Once you have had 6 rounds of Carboplatin (and I had 6 carbo/taxols in late 2008/early 2009) you can develop an allergy to it at any time as it accumulates (apparently forever!) in your body. So before EACH infusion now, I have to have a skin prick test. It's really nothing but it takes a HALF HOUR. They jab a little carboplatin under the skin of your arm, and then check it at 5 minutes, again at 15 minutes, and again at 30 minutes, to see if a rash appears. Any rash & the oncologist has to readjust your pre-meds and slow up your drip, or if the reaction is more severe (no idea what they means!) carboplatin may no longer be an option for you. Anyway, Round 1, I had no reaction to the skin prick. & you may remember from your 6 carbo/taxol rounds that the carboplatin bag was the small one on the fast drip that takes around a half-hour. The chemo day is still a pretty long one if you need labs and to review them with your oncologists before your treatments, and then the pre-chemo saline and after chemo 'rinse cycle' of my saline. Christmas time at the chemo lounge was in full swing with tons of goodies to eat. I made cinnamon muffins for the staff and was happy to see that they kept them for themselves and they didn't end up in the overflowing pile of treats in the chemo lounge. And I am AWAY FROM THERE until after Christmas, as I get the carboplatin every 3 weeks as long as my blood counts stay up there. ALL my blood counts were completely normal at my last labs, except for the damn highest ever CA-125 of 292. I came home and slept for 3 hours, and even with the nap and the pre-med steroids, I slept like a baby all night.

I'M SO HAPPY TO HAVE NO TREATMENTS UNTIL AFTER CHRISTMAS! HOHOHOHO!

Always Hopeful
Posts: 234
Joined: May 2010

I'm glad to hear, Linda, that the first round of Carbo went well. I was not aware of the "lifetime" effect of carbo. Thanks for sharing that.

I have my GEMZAR treatment this afternoon and then will be off next week when I'm taking my grandkids to the GREAT WOLF LODGE indoor waterpark for the weekend...part of their Christmas present. I can't wait!!!

Rest up and prepare to have the best Christmas ever!!!

Peace and hope, JJ

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

Glad you did well with the Carbo. Did not realize they would do a skin test before each infusion. I did have a reaction to my Carbo infusions and they ran it over two hours instead of the usual one hour. So I wonder what that will mean for me if I go back on Carbo. Last November the onocologist told me I would go back on the Taxol/Carbo if it was more than 6 months since I finshed chemo. It has been 16 months.

I am so happy you will be treatment free until after Christmas. Enjoy those grandkids. You have Thanksgiving traditions....how about your Christmas traditions. Enjoy. In peace and caring.

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

Wonderful to hear your carbo was uneventful! Wishing you much peace and joy with friends and family, far away from the chemo-lounge., as you celebrate the Season.
Enjoy! Annie

hopeful girl 1
Posts: 454
Joined: May 2010

Linda,

I think you are an amazingly strong inspriational woman. Reading your posts always helps give me strength and hope for myself as well.

I am so sorry to hear about this latest development, but it sounds very encouraging that the carbo can knock this right out. I am so glad you have not had any allergic reaction to the carbo. I had no idea is stays in our systems.

You are in my thoughts and prayers.

Cindy

TiggersDoBounce's picture
TiggersDoBounce
Posts: 413
Joined: Oct 2009

Sending hugs and prayers to you both :)

We are all here for you..

Laurie

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

damn right, same old war! when i had my surgery, i had mets to the liver which the surgeon removed-- as much as he could see with the naked eye, and the standard chemo took care of the rest, i hope. i'm not saying it's a good thing to have mets to the liver, by any means, only that it's handleable. i'm glad you and vic are taking this development in stride; i know how much it helps to have a plan or two already in place. linda, it's great that you feel so well, and amazing too. right now, i'm finally 3 months off pain meds so feel every little pain, big and small, have some energy, but not like i used to--possibly also age-related, some nausea, possibly because i'm now weaning from ativan, but who knows, all this to say, that really, i don't feel great-ok, but not great. so i count your feeling so well as a victory of sorts for all of us in this protracted war.
hugs and sisterhood,
maggie

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Linda, My heart sank when I read your post. I am so sorry you are facing more treatment. I'm glad you are feeling well and that they caught things early. Hopefully the carbo will do the trick. My prayers are with you - big time!!!

And Sharon, the vaginal cuff is supposed to respond well to treatment. Hopefully you will put this recurrence behind you soon. I feel such an affinity to both of you ladies, since we were diagnosed around the same time with that monster UPSC.

Re: carboplatin. I did develop what they called a "sensitivity" (seems like it was an allergic reaction to me) at my 3rd week of recurrence treatment. They did not do the skin test - I did take decadron at home starting 12 hours before my chemo. This did the trick.

God speed, ladies. Love, Mary Ann

Songflower's picture
Songflower
Posts: 631
Joined: Apr 2009

This cancer is so tough. You are so kind and good and I am asking all the questions that we all ask. Carbo is tough and good drug for this; and besides carbo there is plain platinum and oxyplatinum. I wish I could hold your hand, hug you, and tell you thank you for all the tims you made me brave when I felt myself sliding down the hill. Carbo is a good drug and I believe you can do it! I pray for you each night.

Love,
Diane

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I appreciate all the encouraging words; they truly help. I may have bragged too soon about feeling great after the carbo infusion. I DID feel great the day after my infusion, probaby due to the pre-chemo meds. But this weekend and today I feel kinda crappy,...no pain or real nausea, but just that icky feeling like you get when your sinuses have been draining down the back of your throat for weeks or you're just 'off your game' with a general physical malaise you can't put a finger on. I don't have diahrea & I'm not constipated, & I've been eating faithfully but without my normal robust appetite, more 'forced feedings'. I tried a Prilocet (sp? OTC heartburn med) on Saturday hoping that would help in case it was stomach acid since I burped a few times. Didn't help. Yesterday I tried one of the anti-nausea pills they prescribed, that I've never taken in the 2 years I've been in treatment. Didn't help. Today I went out to breakfast with a girlfriend and ate a nice breakfast and 4 cups of coffee, and of course feel yukky again from that. I don't know why I'm going on and on about this; it is really nothing. But I got so used to feeling GOOD while I was on taxol or on Doxil, and so this yukky feeling I'd forgotten about from my long-ago carbo/taxol days caught me by surprise. I'm hoping it's just for a few days after treatment and I'll be my old lively self again any day now.

Sorry for the pity party. But in the spirit of full disclosure, I couldn't let you all think I was super woman, oblivious to any adverse chemo affects! HA!

Kaleena's picture
Kaleena
Posts: 1912
Joined: Nov 2009

{{{Linda}}}}

So sorry you are feeling yucky. It must be like how you feel when you are about to get a cold but don't. It's a feeling you just can't pinpoint. However, I know you are a real trooper and this too will pass. Hey, this is a great place to vent. You listen and help everyone here so we too can help you! So vent away!

Hopefully, it will be like you said, only a few days after treatment and then you will be yourself again.

Hang in there!

Kathy

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

Sorry you are not feeling your best. Hope this feeling does not last long. I am sure you have a very long "to do list". I hope you can start working on that list very soon. You are a "super woman" to us. In peace and caring.

Double Whammy's picture
Double Whammy
Posts: 2826
Joined: Jun 2010

Linda and Sharon-

You're both in the forefront of my prayers. I hope you both have good results with treatments for your recurrences. I'll be standing by for reports.
Suzanne

GracieGold's picture
GracieGold
Posts: 23
Joined: Jun 2010

I am so sorry for your latest health update about the liver mets. As others gave said in these posts, you are an inspiration for all of us. In October, I finished 4 rounds of carbo/taxol for my UPSC and I always felt OK the first few days after chemo. It was the 4th and 5th days where I felt the worst. Hopefully, you are already starting to feel better. I hope you and all our fellow warriors here have a wonderful holiday surrounded by loving family and friends.

kansasgal's picture
kansasgal
Posts: 122
Joined: Aug 2009

I am happy to see that you are still coping so well in spite of your fatigue. It’s nice to know that you have such a great and extensive support team on the home front. You know how cherished you are here! Of course it is very disheartening to find that some chemo treatments have not done what all of us had hoped for you. It’s so good to hear that you are once again able to team up with “good ol’ carbo”! Let’s hope that it quickly gets to work bringing that pesky CA125 down and shrinking those spots to nothing!

As you may recall, I received carbo/Taxol in 2009. Due to the combo, I have no way of knowing which side effects would have been attributed to which chemical. The first couple of days I mainly dealt with diarrhea and exhaustion. The next few days the exhaustion continued (diarrhea abated and was gone by the end of the week) and the additional symptoms of deep bone pain in my arms and legs with the feeling of large weights strapped around my legs began. The extreme fatigue and pain lasted until a day or two prior to the end of the 3 weeks signaling the next round of chemo.

By the end of my very first week of chemo treatment I noticed “chemo brain”. Never having heard that term before or knowing even about the possibility, I thought I was going a bit crazy. I couldn’t remember any new information. I felt like I had fallen down Alice’s rabbit hole and was still in free-fall. I tried to attribute it to fatigue, but I had never in my life experienced such acute memory problems, even when I had missed several nights of sleep or was under a lot of stress. I just could not “figure anything out” or make decisions. I was unable to prioritize. At work (and at home, too) I was accustomed to making many important decisions every day and to deciding who needed to do what and to set deadlines. Now I could do none of those things. It was very, very frightening.

I was very fortunate all during chemo that although my blood labs showed steady erosion away from “healthy” numbers, they stayed OK enough that I needed no supplemental therapy such as transfusions or shots. By the last round of chemo my important blood counts were all just barely out of the desired range – good enough for one last round of chemo, but not good enough for a subsequent round.

By the third round of chemo I really started to notice the effects of peripheral neuropathy in my fingers and toes. I had to lift a cup of coffee with 2 hands rather than with one hand holding the handle. I often was unable to turn a key in a lock, etc. Writing with a pen or pencil was difficult. My gait was unsteady, so I walked much more slowly and deliberately with a wider stance in order to prevent falling. The peripheral neuropathy symptoms PEAKED a few months after chemo ended.

Now the neuropathy symptoms are gone, but some of the “chemo brain” persists. Although the extreme fatigue is gone, my stamina remains far short of my former energy level. If I did not have to go to work, I am quite certain I would take a nap every afternoon. As it is, I go to work late and come home early. Essentially I only work a few hours each day. My work is much harder for me than before any chemo and mentally exhausts me. I reach a point every day where I feel I can take in no more information. I find I can no longer work on several projects at the same time but must concentrate on only one thing at a time. At home I still pretty much limit myself to preparing one pot meals. I try to make lists, but it’s still hard for me to remember I have a list and should refer to it.

Thanks so much for keeping us posted on how you are doing. I always watch four your comments. And thanks again for all the combing of the internet and postings of new studies.

Big cyber hugs from Sally

P.S. Sorry for the long saga!

Northwoodsgirl
Posts: 498
Joined: Oct 2009

Linda,
Yes that pre chemo steroid and other meds gives one a good day and then that day 2 "feeling". Keeping you in my prayers...you are suh an inspiration to all of us in the sisterhood. Enjoy your family and friends in this most blessed season.
Blessings and hugs!
Lori

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