Has Anybody Had Cytoxan - Methotrexate - 5FU (CMF) Chemo?

2

Comments

  • jnl
    jnl Member Posts: 3,869 Member
    #22
    diana42071 said:

    I had just turned 36 in 1989
    I had just turned 36 in 1989 when i found a lump in my breast. Actually the year before i had a lump removed that was benign. Every night when I went to bed I would run my hand over the incision and always felt like there was still a lump there. Every time I would call my surgeons office and try to make an appointment, this idiot receptionist would ask me what my problem was. When I explained to her I still felt like I was feeling a lump she told me it was just scar tissue.This went on for several months. Finally I went to see an ob gyn. When he was examining me I told him I thought I had some scar tissue from a previous biopsy. He said he didnt think it was, and sent me for a mammagram. The mammagram showed it to be a fluid filled cyst.
    When I called my surgeon the next day, guess who answered the phone,? you got it, the receptionist that thinks she's a doctor. When I explained to her I needed to see the doctor that I still felt a lump she tried to tell me it was scar tissue again.I told her it was not and to give me an appointment that day! When the doctor said the mammagram said it was fluid filled he tried to aspirate with a needle. Nothing came out.So he sat me up and told me he didnt think it was anything. The lump the year before was benign, i was only 36, with no history in my family.So I said ok.
    Then I said "but you wont know 100% untill you take it out right"? He said "right". So I said lets do it!
    It was stage 1 with 19 lymph nodes removed, all was clear. Mastectomy followed wth 6 month cmf therapy.I had reconstruction and a subcutaneous mastectomy on the other side.
    Thats my story. It will be 20 years Dec.7,2009.I would tell myself every day." I may die today, but I will not die of breast cancer today".

    I didn't have chemo, but,
    I didn't have chemo, but, wanted to wish you good luck with your treatment!


    Hugs, Leeza
  • debragood1
    debragood1 Member Posts: 48
    #23
    jnl said:

    I didn't have chemo, but,
    I didn't have chemo, but, wanted to wish you good luck with your treatment!


    Hugs, Leeza

    Thanks, Leeza.
    :)
  • Alexis F
    Alexis F Member Posts: 3,598
    #24
    diana42071 said:

    I had just turned 36 in 1989
    I had just turned 36 in 1989 when i found a lump in my breast. Actually the year before i had a lump removed that was benign. Every night when I went to bed I would run my hand over the incision and always felt like there was still a lump there. Every time I would call my surgeons office and try to make an appointment, this idiot receptionist would ask me what my problem was. When I explained to her I still felt like I was feeling a lump she told me it was just scar tissue.This went on for several months. Finally I went to see an ob gyn. When he was examining me I told him I thought I had some scar tissue from a previous biopsy. He said he didnt think it was, and sent me for a mammagram. The mammagram showed it to be a fluid filled cyst.
    When I called my surgeon the next day, guess who answered the phone,? you got it, the receptionist that thinks she's a doctor. When I explained to her I needed to see the doctor that I still felt a lump she tried to tell me it was scar tissue again.I told her it was not and to give me an appointment that day! When the doctor said the mammagram said it was fluid filled he tried to aspirate with a needle. Nothing came out.So he sat me up and told me he didnt think it was anything. The lump the year before was benign, i was only 36, with no history in my family.So I said ok.
    Then I said "but you wont know 100% untill you take it out right"? He said "right". So I said lets do it!
    It was stage 1 with 19 lymph nodes removed, all was clear. Mastectomy followed wth 6 month cmf therapy.I had reconstruction and a subcutaneous mastectomy on the other side.
    Thats my story. It will be 20 years Dec.7,2009.I would tell myself every day." I may die today, but I will not die of breast cancer today".

    Thanks for your story Diana
    Thanks for your story Diana and welcome. And, congrats on the 20 years anniversary!

    Hugs Lex♥
  • carkris
    carkris Member Posts: 4,553 Member
    #25
    Alexis F said:

    Thanks for your story Diana
    Thanks for your story Diana and welcome. And, congrats on the 20 years anniversary!

    Hugs Lex♥

    CMF
    I had CMF 15 years ago. have done well until recently and diagnosed with a new primary. Interesting same story or close about the scar tissue previous biopsy thing on this one. Anyway just had scans and nothing showed so I would say I did well on the CMF. I had nausea and tiredness, hair thinning. but tolerated it pretty well. We will see about the next regime.
  • MAJW
    MAJW Member Posts: 2,510 Member
    #26
    diana42071 said:

    I had just turned 36 in 1989
    I had just turned 36 in 1989 when i found a lump in my breast. Actually the year before i had a lump removed that was benign. Every night when I went to bed I would run my hand over the incision and always felt like there was still a lump there. Every time I would call my surgeons office and try to make an appointment, this idiot receptionist would ask me what my problem was. When I explained to her I still felt like I was feeling a lump she told me it was just scar tissue.This went on for several months. Finally I went to see an ob gyn. When he was examining me I told him I thought I had some scar tissue from a previous biopsy. He said he didnt think it was, and sent me for a mammagram. The mammagram showed it to be a fluid filled cyst.
    When I called my surgeon the next day, guess who answered the phone,? you got it, the receptionist that thinks she's a doctor. When I explained to her I needed to see the doctor that I still felt a lump she tried to tell me it was scar tissue again.I told her it was not and to give me an appointment that day! When the doctor said the mammagram said it was fluid filled he tried to aspirate with a needle. Nothing came out.So he sat me up and told me he didnt think it was anything. The lump the year before was benign, i was only 36, with no history in my family.So I said ok.
    Then I said "but you wont know 100% untill you take it out right"? He said "right". So I said lets do it!
    It was stage 1 with 19 lymph nodes removed, all was clear. Mastectomy followed wth 6 month cmf therapy.I had reconstruction and a subcutaneous mastectomy on the other side.
    Thats my story. It will be 20 years Dec.7,2009.I would tell myself every day." I may die today, but I will not die of breast cancer today".

    THANK YOU
    What an inspiration you are!!!!!! You give us all hope! God bless you and here's to a HEALTHY LIFE!
    Nancy
  • ntswood
    ntswood Member Posts: 1
    #27
    Chemo treatment
    I had your combination of drugs. It was in 1990.
  • dog_lover
    dog_lover Member Posts: 8
    #28
    carkris said:

    CMF
    I had CMF 15 years ago. have done well until recently and diagnosed with a new primary. Interesting same story or close about the scar tissue previous biopsy thing on this one. Anyway just had scans and nothing showed so I would say I did well on the CMF. I had nausea and tiredness, hair thinning. but tolerated it pretty well. We will see about the next regime.

    CMF
    Hi, I think that is the same combination that I had 13 years ago. I just had a new primary also. I had my mastectomy one week ago today. I guess that I don't need to worry about any more breast cancer diagnosises any more!

    I also did OK on that combination. I didn't have much nausea but lots of tiredness. I only lost about 1/4 of my hair.

    I see my oncologist in a week to see what she has planned for this time.

    You will do fine. Time goes by and it will soon be in the past. Easy and trite to say....but is is true. My concern/problem right now is that I can't do any indoor rock climbing for a while. ggrrrrrrr!
  • corina
    corina Member Posts: 2
    #29
    I have stage 4 invasive aggressive metastatic breast cancer that was HER2Positive I took adriomicyn adriomicyn cytoxin it is a rough chemo but the,taxol was worse ,28 days radiation and 18 mo of herceptin they gave me 8 mo.in Sept 2005 I just celebrated 4years out and cancer free any questions feel free to email me at dobnine11@gmail.com recently I have had this terrable pain in my ear, neck, temple and teeth went to primary Dr. 2 rounds antibiotic alergy meds didn't work went to dentist ruled out any abcess or infection the pain has got worse went to ER they took CT of ear and side of head nothing found called My Oncologist they said if it isnt cancer related there is nothing they can do (how am i suposed to know if it is cancer related im not a doctor the pain is unbarable I now have an appointment with a ear nose and throat dr. on tues sept 22 hopefully I can get an answer if anyone has any suggestions please help i am running out of options
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #30
    corina said:

    I have stage 4 invasive aggressive metastatic breast cancer that was HER2Positive I took adriomicyn adriomicyn cytoxin it is a rough chemo but the,taxol was worse ,28 days radiation and 18 mo of herceptin they gave me 8 mo.in Sept 2005 I just celebrated 4years out and cancer free any questions feel free to email me at dobnine11@gmail.com recently I have had this terrable pain in my ear, neck, temple and teeth went to primary Dr. 2 rounds antibiotic alergy meds didn't work went to dentist ruled out any abcess or infection the pain has got worse went to ER they took CT of ear and side of head nothing found called My Oncologist they said if it isnt cancer related there is nothing they can do (how am i suposed to know if it is cancer related im not a doctor the pain is unbarable I now have an appointment with a ear nose and throat dr. on tues sept 22 hopefully I can get an answer if anyone has any suggestions please help i am running out of options

    Corina...
    Hi. I'm not a Doctor either but it sounds as if you may have pain that is nerve related. They usually have a hard time diagnosing these types. If ear,nose,throat Doc can not help, I would consider a nerologist. My PCP gets pain in the side of his face, that he has to take meds for, that are nerve related. I would maybe consider this. Good luck. ♥Pammy
  • mimivac
    mimivac Member Posts: 2,143
    #31
    Hi Debra,
    A question: are you in Canada? I know they do that regimen regularly there. Just a thought. Hope you get answers and good luck!

    Mimi
  • mimivac
    mimivac Member Posts: 2,143
    #32
    diana42071 said:

    I had just turned 36 in 1989
    I had just turned 36 in 1989 when i found a lump in my breast. Actually the year before i had a lump removed that was benign. Every night when I went to bed I would run my hand over the incision and always felt like there was still a lump there. Every time I would call my surgeons office and try to make an appointment, this idiot receptionist would ask me what my problem was. When I explained to her I still felt like I was feeling a lump she told me it was just scar tissue.This went on for several months. Finally I went to see an ob gyn. When he was examining me I told him I thought I had some scar tissue from a previous biopsy. He said he didnt think it was, and sent me for a mammagram. The mammagram showed it to be a fluid filled cyst.
    When I called my surgeon the next day, guess who answered the phone,? you got it, the receptionist that thinks she's a doctor. When I explained to her I needed to see the doctor that I still felt a lump she tried to tell me it was scar tissue again.I told her it was not and to give me an appointment that day! When the doctor said the mammagram said it was fluid filled he tried to aspirate with a needle. Nothing came out.So he sat me up and told me he didnt think it was anything. The lump the year before was benign, i was only 36, with no history in my family.So I said ok.
    Then I said "but you wont know 100% untill you take it out right"? He said "right". So I said lets do it!
    It was stage 1 with 19 lymph nodes removed, all was clear. Mastectomy followed wth 6 month cmf therapy.I had reconstruction and a subcutaneous mastectomy on the other side.
    Thats my story. It will be 20 years Dec.7,2009.I would tell myself every day." I may die today, but I will not die of breast cancer today".

    Diana,
    Thank you for sharing your story. Very inspiring. I am 34 and hope to be on a board 20 years from now sharing my own survivor story.

    Mimi

    edited to add: oh my, I'm 35. Guess I conveniently forgot about my birthday last month.
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #33
    mimivac said:

    Diana,
    Thank you for sharing your story. Very inspiring. I am 34 and hope to be on a board 20 years from now sharing my own survivor story.

    Mimi

    edited to add: oh my, I'm 35. Guess I conveniently forgot about my birthday last month.

    LOL Mimi....
    Remember it this way....Your 34.99 plus shipping and handling!! (couldn't resist!) ♥ Pammy
  • Mesa2009
    Mesa2009 Member Posts: 10
    #34
    CMF - So what did you decide?
    I was searching for someone who took the CMF because I was recommended this cocktail the other day. I had a bad reaction to taxotere and so my onco. decided to take me off and recommended this option.

    I read your entries and I can feel your urgency to find about CMF. So did you end up taking this cocktail?

    If you are still on this discussion board, I hope to hear from you! I really don't want to take AC being there is heart disease on my mother's side of the family.

    If you could help I would appreciate it! Thanks!
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #35
    I had CMF 23 yrs ago. Can
    I had CMF 23 yrs ago. Can you believe? I was 33 at the time. My oncologist had planned a different regimen, but my tumor caught him by surprise and he changed to CMF. I had a mastectomy, CMF chemo, radiation and tamoxifen. I lost my hair, though many on that regimen don't. I had a bone recurrence last year, but am doing well on arimidex and zometa (finished another short course of radiation last year). My tumor was ER+
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #36
    Cytoxin
    Hi debra,
    I had ACT for 16 weeks. First 8 were Adriamyacin and Cytoxin. Then went to Taxol.
  • donna volkswagen
    donna volkswagen Member Posts: 3
    #37
    cmf
    i started on cmf the end of sept 2009 i"ll be done with it the end of feb this year. then i start radiation. the chemo itself has not been that bad. i feel different after every treatment sometimes i throw up for two or three day sometimes i don't at all. the worst part for me is the muscle and joint pain it's really bad a week after my treatment also i get very tired but i try and fight that. the good thing is i never lost any of my hair so im very happy about that. are you still getting treated if so how are you feeling from the cmf? I hope you well
  • ConnieRB
    ConnieRB Member Posts: 3
    #38
    CYTOXAN
    I had Cytoxan as part of my Chemo regement.
  • boppel
    boppel Member Posts: 26
    #39
    chemo
    Hi I had this chemo nearly 8 yrs ago, I tolerated it well, better than the first chemo in 1998. yes I was sick, nausea, had to take Neulasta shots , but I did not loose all my hair. All went well, had radiation after that. I am still here doing well.
    Best wishes emmi
  • desibuff
    desibuff Member Posts: 1
    #40
    How did it go?
    I have also been referred for this kind of treatment and was wondering how did it go with you? Take care, lots of hugss!!
  • Grandma Kath
    Grandma Kath Member Posts: 1
    #41
    Cytoxin, 5FU, Methotrexate, Adriamycin

    I had this cocktail 25 years ago for breast cancer.  I thought if the cancer didn't kill me then surely the drugs would.  I am now 25 years cancer free so apparently the drugs did what they were supposed to do.  I did the "speed" plan and had MASSIVE doses for 4 months.  I'm so glad I was able to see high school graduations, and weddings and grandchildren ... stay with the plan ... you won't regret it.

Discussion Boards