How's your fatigue Lisha?

allmost60
allmost60 Member Posts: 3,178 Member
Hi Lisha,
Well...now that you've been home for a while have you started to feel a little bit better with your energy level? You did so much while you were in Florida and had so much on your mind, that it probably took more out of you than you even realize. Today is my last day on the prednisone and I was so happy when I popped those 3 pills in my mouth this morning knowing I won't have to do it for another 16 days!I took the bottle and hid it in my underware drawer so that I wouldn't have to look at it again until Nove 2nd...ha! Crazy huh? Always thinking of you and keeping good positive thoughts coming your way.
Love...Sue (FNHL-2-3A-6/10).

Comments

  • forme
    forme Member Posts: 1,161 Member
    Thanks for asking
    Hi Sue,
    Thanks for asking. I seem to be mostly back to my normal clock. The fatigue is another story. I still am very tired and have very little energy. But I can keep my eyes open during the day. Just got home from grocery shopping. My hubby always goes with me these days. Now I am ready to just put my feet up and watch the GIANTS play ball.... Woohooo !!
    It sounds like your getting somewhat used to the Devil P. I am glad that today is the last for the next few weeks.
    This really has been a very difficult time for me on so many levels. I am trying to find the small joys in each day. The great news about Vinny and John is so uplifting. My mom in law is not doing well at all. We think her time is very short. Oh so sad. As for me, thinking about all the up coming medical stuff, well it just sucks..
    I have done the rads before and this time they are upping the total dose. Lame is all I can say to that! When that is done I most likely will go on to the next phase of tx. Did I mention I Hate Cancer..
    Peaceful healing always
    Lisha
  • allmost60
    allmost60 Member Posts: 3,178 Member
    forme said:

    Thanks for asking
    Hi Sue,
    Thanks for asking. I seem to be mostly back to my normal clock. The fatigue is another story. I still am very tired and have very little energy. But I can keep my eyes open during the day. Just got home from grocery shopping. My hubby always goes with me these days. Now I am ready to just put my feet up and watch the GIANTS play ball.... Woohooo !!
    It sounds like your getting somewhat used to the Devil P. I am glad that today is the last for the next few weeks.
    This really has been a very difficult time for me on so many levels. I am trying to find the small joys in each day. The great news about Vinny and John is so uplifting. My mom in law is not doing well at all. We think her time is very short. Oh so sad. As for me, thinking about all the up coming medical stuff, well it just sucks..
    I have done the rads before and this time they are upping the total dose. Lame is all I can say to that! When that is done I most likely will go on to the next phase of tx. Did I mention I Hate Cancer..
    Peaceful healing always
    Lisha

    I "truely" understand!
    Hi Lisha,
    Cancer not only sucks, it's a "**** on wheels"!!! I have barely begun this battle and there are days when I just sit down and cry like a baby. Not just for myself, but for every soul out there dealing with it. When I start thinking about the long haul of what might be ahead, or the "what if's" I get profoundly scared, and sad. Most of the time I am able to put myself in check through my faith and with all of the loving support from my family and friends, but sometimes....well....nothing works. I think about everyone in this group, each day of the week, and I truely think I'd be a terrible mess if I hadn't connected to this site. I think of you also every day and it makes me sad you have so much on your plate. I will continue to keep good positive thoughts and pray that along the way you will get stronger and your burdens lighter. This damn cancer makes you feel so helpless to make things better for those we care about that are hurting. Thats the part that really really "sucks" for me. Libra's are fixers and this is something we just can't fix for anyone...even ourselves. I'm here for you...anytime Lisha. Love, Sue
    (FNHL-2-3A-6/10)
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    allmost60 said:

    I "truely" understand!
    Hi Lisha,
    Cancer not only sucks, it's a "**** on wheels"!!! I have barely begun this battle and there are days when I just sit down and cry like a baby. Not just for myself, but for every soul out there dealing with it. When I start thinking about the long haul of what might be ahead, or the "what if's" I get profoundly scared, and sad. Most of the time I am able to put myself in check through my faith and with all of the loving support from my family and friends, but sometimes....well....nothing works. I think about everyone in this group, each day of the week, and I truely think I'd be a terrible mess if I hadn't connected to this site. I think of you also every day and it makes me sad you have so much on your plate. I will continue to keep good positive thoughts and pray that along the way you will get stronger and your burdens lighter. This damn cancer makes you feel so helpless to make things better for those we care about that are hurting. Thats the part that really really "sucks" for me. Libra's are fixers and this is something we just can't fix for anyone...even ourselves. I'm here for you...anytime Lisha. Love, Sue
    (FNHL-2-3A-6/10)

    Scared Sheetless
    Sue,
    I still remember the 1st time you posted on this site. I could tell you did not know what to do or where to begin. I read your post and realized I was in the same position just a few weeks earlier. We are not only scared, but confused as hell to boot. Nobody other than you and I and all the others here really understand that.I had not even had my first treatment yet, but my short watch and wait was over and I was being scheduled for my 1st chemo.It made me feel good to be able to help even if just a little bit at the time. I was headed into the unknown just like everyone else before me. I had a lot more time to think things out and it became a little easier. When I saw your post It bought back a lot of memories from a few weeks before. It takes a while at first but we do start to settle in after a while. Just like you I have those days of what ifs. They get fewer and further apart after a while, but they are still there. John
    (FNHL-1-4A-5/10)
  • allmost60
    allmost60 Member Posts: 3,178 Member
    COBRA666 said:

    Scared Sheetless
    Sue,
    I still remember the 1st time you posted on this site. I could tell you did not know what to do or where to begin. I read your post and realized I was in the same position just a few weeks earlier. We are not only scared, but confused as hell to boot. Nobody other than you and I and all the others here really understand that.I had not even had my first treatment yet, but my short watch and wait was over and I was being scheduled for my 1st chemo.It made me feel good to be able to help even if just a little bit at the time. I was headed into the unknown just like everyone else before me. I had a lot more time to think things out and it became a little easier. When I saw your post It bought back a lot of memories from a few weeks before. It takes a while at first but we do start to settle in after a while. Just like you I have those days of what ifs. They get fewer and further apart after a while, but they are still there. John
    (FNHL-1-4A-5/10)

    You were the first...
    You were the first to respond back in July. I was diagnosed mid June and until I found this site I was a total complete mess! You helped more than you will ever know John. Your right...it "has" gotten wayyy better. This group is just the "best"!!!...Sue (FNHL-2-3A-6/10)
  • truckingalong
    truckingalong Member Posts: 445 Member
    forme said:

    Thanks for asking
    Hi Sue,
    Thanks for asking. I seem to be mostly back to my normal clock. The fatigue is another story. I still am very tired and have very little energy. But I can keep my eyes open during the day. Just got home from grocery shopping. My hubby always goes with me these days. Now I am ready to just put my feet up and watch the GIANTS play ball.... Woohooo !!
    It sounds like your getting somewhat used to the Devil P. I am glad that today is the last for the next few weeks.
    This really has been a very difficult time for me on so many levels. I am trying to find the small joys in each day. The great news about Vinny and John is so uplifting. My mom in law is not doing well at all. We think her time is very short. Oh so sad. As for me, thinking about all the up coming medical stuff, well it just sucks..
    I have done the rads before and this time they are upping the total dose. Lame is all I can say to that! When that is done I most likely will go on to the next phase of tx. Did I mention I Hate Cancer..
    Peaceful healing always
    Lisha

    I can relate to that
    Hi, Lisha,

    Nice picture of you!! I too have that thing with fatigue - my friend took me to grocery store and just by walking back to the car in parking lot, my heartbeat went too fast and I had to catch my breath which happened from time to time. My dr thinks I should do some strength training but I never had the chance to do much because I got to recover from chemo then the Neupogen shots - with weakness, shortness of breath, bodyaches, sore throat and tense tummy. Not much of a break!! But doing gentle yoga really helped - only if I put my mind to do it.
    I finished 4 chemo then 8 more. I dread that number - a lonnnggg way to go! I know it will go fast but it is eating me up inside. I gotta fight it like Vinny does!! Yes good to hear good news about him!!

    Just found out that my step-mother has cancer but not sure what - more testing tomorrow. Yes, I second you - I HATE CANCER!!

    With comfort healing
    Liz