How long have you survived

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  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    delnative said:

    Almost two years
    I had Stage III SCC of the right tonsil, one lymph node involved. Had tonsillectomy, 30 rads and two rounds of Cisplatin, followed by a modified radical neck dissection three months after treatment ended. On Oct. 5 I celebrate the second anniversary of the last day of radiation.

    --Jim in Delaware

    woohoo
    Alright Jim, congrats 10/5 coming up....
  • abbimom
    abbimom Member Posts: 87 Member
    still here
    I am 10 years post treatment. I had squamous cell carcinoma of the tongue and it metastisized to the lymphnodes in my neck.
  • JGE
    JGE Member Posts: 51
    abbimom said:

    still here
    I am 10 years post treatment. I had squamous cell carcinoma of the tongue and it metastisized to the lymphnodes in my neck.

    2 YEARS!
    Treatment ended Nov 15, 2008.

    Starting to forget for longer periods of time. Nice.

    :)

    John
  • hawk711
    hawk711 Member Posts: 566
    abbimom said:

    still here
    I am 10 years post treatment. I had squamous cell carcinoma of the tongue and it metastisized to the lymphnodes in my neck.

    6 months
    I love hearing from Sash, Abbimom, etc on the 5-10 years of cancer survivorship!!!!!
    I had a very clean PET scan and my Oncologist says I am in remission and to enjoy life. Still can't eat everything but it is getting better every week-month. I can't wait to put up my 10 year post treatment note on this website in 2020!!!!!!Squamour cell of the tongue and it metastisized to lymphnodes in my neck too.......God bless all you long termers!!!See ya down the road.....
    Steve
  • chark
    chark Member Posts: 14
    hawk711 said:

    6 months
    I love hearing from Sash, Abbimom, etc on the 5-10 years of cancer survivorship!!!!!
    I had a very clean PET scan and my Oncologist says I am in remission and to enjoy life. Still can't eat everything but it is getting better every week-month. I can't wait to put up my 10 year post treatment note on this website in 2020!!!!!!Squamour cell of the tongue and it metastisized to lymphnodes in my neck too.......God bless all you long termers!!!See ya down the road.....
    Steve

    Feels like forever

    Almost 3 months, Esthesioneuroblastoma.

    At this point having trouble remembering what life was life before cancer took over my world. But I am taking it back and look forward to normal, or atleast normal for me.

    This was a good idea.
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    chark said:

    Feels like forever

    Almost 3 months, Esthesioneuroblastoma.

    At this point having trouble remembering what life was life before cancer took over my world. But I am taking it back and look forward to normal, or atleast normal for me.

    This was a good idea.

    Will be two years in October.
    I found my lump in my neck 10/9/08. Stage iv SCC, took out 23 lymph nodes and my salivary gland, 3 nodes bad. 30 rads no chemo. Last day of treatment 5/15/09.
  • MGC
    MGC Member Posts: 72 Member
    D Lewis said:

    You ALL rock!
    Four months today, BOT (base of tongue) SCC with mets to lymph nodes on both sides. T1N2cM0 (that's stage 4). One 3-cm lymph node removed from right neck, 38 rads and 3 rounds of high-dose cisplatin. Three month PET-CT scan showed no evidence of disease!

    Deb xoxoxoxoxo

    4 Months 3 Days
    Finished up on May 13th (at Stanford same as D. Lewis, it's a wonder i didnt see her):-), 33 rads, 2 out of 3 nasty chemo's. Stage 3 or 4 SCC right Tonsil and BOT, Mets to one side only, several nodes. No Surgery. I live over 400 miles from Stanford and it was worth it. Plenty of side effects but that's collateral damage. I love this toppic and look forward to being here many many years from now posting how moany years it has been.
    The power of Prayer.
  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi Pascotty
    8 years from first treatment of NPC and still going strong.
  • abbimom
    abbimom Member Posts: 87 Member
    hawk711 said:

    6 months
    I love hearing from Sash, Abbimom, etc on the 5-10 years of cancer survivorship!!!!!
    I had a very clean PET scan and my Oncologist says I am in remission and to enjoy life. Still can't eat everything but it is getting better every week-month. I can't wait to put up my 10 year post treatment note on this website in 2020!!!!!!Squamour cell of the tongue and it metastisized to lymphnodes in my neck too.......God bless all you long termers!!!See ya down the road.....
    Steve

    10 years
    hey steve
    I'm always amazed when I can say it has been 10 years. I was diagnosed when I was 21 years old. I had part of the tongue removed and the radical neck dissection and then radiation and chemo and I guess it worked. 6 months is awesome. It is nice because now sometimes I forget what it was like going through all of that. The eating will get better but mine is different. I find drinking milk when I eat helps me. Enjoy life and congrats!! And take great care of your teeth!!!!
    Best wishes,
    Linda
  • pascotty
    pascotty Member Posts: 174 Member
    Hondo said:

    Hi Pascotty
    8 years from first treatment of NPC and still going strong.

    Awesome
    That is sooooo inspiring to me. Thank you for your strength and for giving me and others so much hope xxx
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    pascotty said:

    Awesome
    That is sooooo inspiring to me. Thank you for your strength and for giving me and others so much hope xxx

    TOO SOON TO JOIN THE CELEBRATION
    Great to read for the positive attitude thing. All I have to hang onto is "I hope this stuff works." Seems like my main difference from allot of posters is the number of Nodes infected. I was 19 Cancer out of 21. Hope that does not "tarnish" my odds of beating this??

    enough of my carrying on!!

    CONGRATS TO ALL WHO ARE ENJOYING BEING NED!!!

    GOD BLESS ALL OF YOU!!!

    MIKE
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member

    TOO SOON TO JOIN THE CELEBRATION
    Great to read for the positive attitude thing. All I have to hang onto is "I hope this stuff works." Seems like my main difference from allot of posters is the number of Nodes infected. I was 19 Cancer out of 21. Hope that does not "tarnish" my odds of beating this??

    enough of my carrying on!!

    CONGRATS TO ALL WHO ARE ENJOYING BEING NED!!!

    GOD BLESS ALL OF YOU!!!

    MIKE

    No way it is too soon
    The day your are diagnosed with this uglyness is the day your survivorship starts. I like to call it our new birthdate,

    There are no odds to beating it, there are two results, survive and the other. You will survive, if you maintain a positive mental attitude, believe you will be fine and you will be, Continue your walk with faith, never, never, never give up and accept help from others as you can not do this yourself.

    Keep it going.

    John
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    Oral Cancer Foundation Web-site!
    I haven't even had my 1st post PET scan so I won't post myself yet! But this is why I like the oral cancer foundation web-site. This site tends to have alot of people 1 year or less. They have alot of survivor stories of 5 years or more :)! God Bless!!

    Charles

    Abby
    Alright Charles...you got your new little girl posted. Congrats, Abby is just adorable....

    Best,
    John
  • denistd
    denistd Member Posts: 597
    fisrpotpe said:

    No way it is too soon
    The day your are diagnosed with this uglyness is the day your survivorship starts. I like to call it our new birthdate,

    There are no odds to beating it, there are two results, survive and the other. You will survive, if you maintain a positive mental attitude, believe you will be fine and you will be, Continue your walk with faith, never, never, never give up and accept help from others as you can not do this yourself.

    Keep it going.

    John

    15 months
    stage 3 laryngeal cancer, last treatment 6/17/09 clean pet today.
  • pascotty
    pascotty Member Posts: 174 Member
    denistd said:

    15 months
    stage 3 laryngeal cancer, last treatment 6/17/09 clean pet today.

    Awesome
    That great denistd, clean scan is the best news. xxxx
  • Glenna M
    Glenna M Member Posts: 1,576

    Oral Cancer Foundation Web-site!
    I haven't even had my 1st post PET scan so I won't post myself yet! But this is why I like the oral cancer foundation web-site. This site tends to have alot of people 1 year or less. They have alot of survivor stories of 5 years or more :)! God Bless!!

    Charles

    Abby
    Sorry to get off topic but I just wanted to tell you Charles that I am sooooo jealous. Looking at Abby's picture brings back so many fond memories of when my boys were that age. Enjoy her, she will bring you hours of fun and the loving never stops. I miss the puppy kisses!!!

    I just want to pick her up and hug her forever - she's beautiful!!!

    Enjoy,
    Glenna
  • Hondo
    Hondo Member Posts: 6,636 Member
    fisrpotpe said:

    No way it is too soon
    The day your are diagnosed with this uglyness is the day your survivorship starts. I like to call it our new birthdate,

    There are no odds to beating it, there are two results, survive and the other. You will survive, if you maintain a positive mental attitude, believe you will be fine and you will be, Continue your walk with faith, never, never, never give up and accept help from others as you can not do this yourself.

    Keep it going.

    John

    Hi fisrpotpe
    I like the new birthday idea, you are so right about that.

    take care
  • survivor31
    survivor31 Member Posts: 72
    Hondo said:

    Hi fisrpotpe
    I like the new birthday idea, you are so right about that.

    take care

    im an 8th month survivor
    im an 8th month survivor cancer of nasopharnx carcinoma two in throat and two on neck and pimaray site is in my nose and far im cancer free by gods grace and mercey God bless
  • ~11 years
    squamous cell

    ~11 years

    squamous cell carcinoma of the tongue... I don't recall the classification, but they whisked me pretty much immediately into surgery. 1 coma, 1 month in the hospital, 3 months of radiation.
  • buzz99
    buzz99 Member Posts: 404
    D Lewis said:

    You ALL rock!
    Four months today, BOT (base of tongue) SCC with mets to lymph nodes on both sides. T1N2cM0 (that's stage 4). One 3-cm lymph node removed from right neck, 38 rads and 3 rounds of high-dose cisplatin. Three month PET-CT scan showed no evidence of disease!

    Deb xoxoxoxoxo

    Oh that is such good news!
    We are now where you were 4 months ago. Husband diagnosed with BOT SCC (Stage IV) with 1 positive lymph node. He started chemo 4 days ago. We hope we can be celebrating by the first of the year. We hope you continue to be disease free!