I am frustrated UPDATE

betina61
betina61 Member Posts: 642 Member
edited March 2014 in Colorectal Cancer #1
Little story,had my colon surgery 2006, stage 3a everything have been fine since,I did chemo, pet scans, cat scans, lab work. This year my insurannce didn't approved a pet scan,because they said that with my history the guideline were not for a pet but a ct scan,so that is what was done last Sep. 2th,but in a different facility than the one that I have been going since the beginning, I didn't like that either again because of the insurance,O.K to make s long story short,they called me from my Dr. office 5 days later, and left a message saying that my scan was fine,but anyway I needed to keep my appoitment 1 week later,that appoitment was yesterday and now he tells me that he wanted to order a copy of my last ct scan so that the radiologist can compare apples to apples, because the radiologist compare it to my last pet/ct,now I have to wait til next Tuesday because he will no be at his office tomorrow or Monday, he repeated "don't worry everything is fine",I am very frustrated because when he saw the transcript of the results if he wanted to compare apples to apples, he had plenty of time to have it done and ready for my yesterday appoitment, now I am all worry for another 6 days,yesterday I almost did not sleep. My question " do you think is that necessary to compare same kind of scans?"
Thanks for any comments that you have.

UPDATE:
First of all thanks to the 3 persons than answered my post, I never get too many answers to my posts, I have good news!! Dr. finally compared ct acan to ct scan, or how he said apples to apples and both scans were identical, year colonoscopy clear as well, so I am oficially celebrating my 4 years and 2 months NED!!! I will continue praying for all of you day by day, God bless you all.
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Comments

  • ketziah35
    ketziah35 Member Posts: 1,145
    I am sorry
    I am sorry that you have to go through this, but I hope that you keep pressing the issue with your insurance company.
  • Kerry S
    Kerry S Member Posts: 606 Member
    Hell yes they are important
    This is why I get a CD copy of every scan I get. I have them all on my hard drive.

    They can take an old scan and have the computer do the comparison of the new to the old. This is even better then a human could do it. If something is different the computer software will see it.

    Kerry
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    Be happy
    Be happy that he is being so diligent. If he said not to worry, try not to. Comparing apples to apples just to be positive is a good thing. And then it will be in place from here forward.
  • betina61
    betina61 Member Posts: 642 Member
    I am frustrated
    UPDATE
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    betina61 said:

    I am frustrated
    UPDATE

    Great news!
    I'm so glad to hear that all is clear! Now you have your baseline in place for future comparisions too.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    betina61 said:

    I am frustrated
    UPDATE

    4 years and 2 months.....great job......
    Ya think maybe ya deserve it...LOL...I think so...congratulations on the longevity of your nedness.......and I am frustrated that I didn't post, my apologies, I will do better.....Love to you and yours ...Buzz
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    Great to know your excellent
    Great to know your excellent news.This is another milestone,congrats to you.
  • Sigma34
    Sigma34 Member Posts: 203

    Great to know your excellent
    Great to know your excellent news.This is another milestone,congrats to you.

    That is wonderful! So happy
    That is wonderful! So happy for you.

    Peace and Calm,

    Christine
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Awesome
    This can be very scary with the scans but so glad that when they compared apples to apples glad that all came back fine. You should go out and celebrate a wonderful week of good news. Sorry for not posting earlier as I'm not on much lately. So happy for you though :)

    Kim
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    late reply!
    I'm sorry to be posting so late on this. I would have before, but my son in-law worked from home today, so I didn't have access to the computer. I'm glad everything turned out okay. I can certainly understand why you were frustrated!

    *hugs*
    Gail
  • sasjourney
    sasjourney Member Posts: 395 Member
    tootsie1 said:

    late reply!
    I'm sorry to be posting so late on this. I would have before, but my son in-law worked from home today, so I didn't have access to the computer. I'm glad everything turned out okay. I can certainly understand why you were frustrated!

    *hugs*
    Gail

    Yeah!!!!!
    I am so happy for you with your great news!!!!!!! My radiologist likes to compare PET to PET and CT to CT. It is easier to spot any differences that way. Enjoy your wonderful news and God bless you.

    Hugs,
    Sara
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    CT Scan
    Normally, big mouth me, would have replied to your post and I would have said:
    "OMG, I understand your frustration, kind of like the military, visiting the onc, hurry up and wait, you get to your appointment, waiting for an answer that still isn't there, (I've been waiting 3 months to find out about surgery now), but it's how it seems to work, and I'm so sorry for your frustration!!!"
    But, I had chemo on the 15th, and due to muscle spasms and taking care of the fingers (gosh the oxy loves to tingle and the cold to hurt them) I'm not usually typing for a couple of days, or typing just a few sentences.
    Now, on to today, I'm so happy for you, that you are celebrating your 4 years and 2 months!!!! I at some point hope to be saying the same.
    You go girl!!!!!
    Winter marie
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Hi Betina
    Congratulations on your good news! I am sorry I didn't post earlier, but to be honest, I have never had a PET scan, only CTs, so I didn't think I could offer any knowledge. Take good care!
  • HollyID
    HollyID Member Posts: 946 Member
    Congrats!!
    Good news on 4 years and 2 months. YAY!!
  • maglets
    maglets Member Posts: 2,576 Member
    HollyID said:

    Congrats!!
    Good news on 4 years and 2 months. YAY!!

    Excellent
    Good good news

    mags
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    maglets said:

    Excellent
    Good good news

    mags

    good!
    excellent news!
    Best from Barcelona!
  • grammadebbie
    grammadebbie Member Posts: 464
    Sorry
    Sorry I didn't respond to your first post. I havn't been posting much....just reading. IIIC I had a CT come back with a new spot on my liver. We were aware of 3 spots and they are cysts and have not changed in 5 years. However my last scan showed a new spot. They did another scan and my oncologist reviewed all my scans and found the spot on a previous scan. She said sometimes depending on the "cut" things show up. Anyway, mine is fine. I understand the concern and will c ontinue to hold you up in prayer.

    Glad that you got good results. Youkeep up the good work.

    Big Hugs and Prayers,
    Debbie
  • Nana b
    Nana b Member Posts: 3,030 Member

    Sorry
    Sorry I didn't respond to your first post. I havn't been posting much....just reading. IIIC I had a CT come back with a new spot on my liver. We were aware of 3 spots and they are cysts and have not changed in 5 years. However my last scan showed a new spot. They did another scan and my oncologist reviewed all my scans and found the spot on a previous scan. She said sometimes depending on the "cut" things show up. Anyway, mine is fine. I understand the concern and will c ontinue to hold you up in prayer.

    Glad that you got good results. Youkeep up the good work.

    Big Hugs and Prayers,
    Debbie

    That's wonderful!
    That's wonderful! Sometimes when I see others have given you (others) the same or more info then I could, I don't reply to posts. But believe me we are reading them and will jump in if we feel you need more info. I am happy that you are at ease now. That is very important in this journey. Relax and be prepared for the hurdles, then relax until the next one. Hopefully you and us will get through the journey without too many rough hurdles.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Hi Betina!
    It's been a long time since I've talked to you.

    4-years and 2 months, huh? You are right there at the doorstep - how wonderful for you and what an accomplishment. You are where everyone wants to be!

    -Craig
  • Erinb
    Erinb Member Posts: 293
    Wow! Thanks for staying on
    Wow! Thanks for staying on the board and offering encouragement to others!
    Erin