I'm new and about to start radiation.

KristynRuth86
KristynRuth86 Member Posts: 140
edited March 2014 in Head and Neck Cancer #1
Hi everyone, I just joined not too long ago and all of your discussions have been very helpful thus far! Well I was just diagnosed in April with SCC and had surgery to remove my orange sized tumor growing out of my neck. I was 7 months pregnant during the surgery and had to wait to deliver the baby to start my radiation. Last week they pulled out all my wisdom teeth and got me fitted for the mask they used during radiation so I'm just about ready to start. I'm set to do my first treatment Sep 7 and I will go for 7 weeks. I just wanted to ask if y'all had any helpful tips for me during the treatment? I have a 6 week old baby so I know I will probably be quite fatigued during this time due to no sleep at night lol. Any tips would be most appreciated! Thank you all and God bless.
«13

Comments

  • zinniemay
    zinniemay Member Posts: 522
    Rad.
    I don't know if this will halp much but when my husband was going for Radaition treatment they told him wash your face with anti bacterial soap before you come for treatment. So He would do this, his face got red but did not burn like some people did. So bet thing I can say make sure you do not have any kind of makeup or lotion on your face and neck. If you have to go into the bathroom before treatment to wash your face and neck do it.

    Jennie
  • johnlax38
    johnlax38 Member Posts: 136
    There is not much you can do
    There is not much you can do to prepare. Keep an eye on your skin around the field of radiation. If it starts to burn there are prescription creams like Xclair that take the burn out and heal the skin. During treatment try to eat and drink as much as possible. I'm not sure if you have a feeding tube, but your jaw can tighten up quite a bit from not using it. If it starts to get tight stretch it by opening as wide as you can, you should feel a pull, hold for 10sec and then rest, repeat 10 times three times a day. Keep your mouth clean as possible, because radiation kills cells you want to protect your teeth and gums. Like you I had two wisdom teeth pulled and three molars before treatment. You can use standard mouth wash and tooth paste, but your mouth may get burned up. You want to look at Biotene products. They are very gentle and will allow you to keep your mouth clean. I had chemo and radiation at the same time, so I'm not sure how much energy you will have. I was dead tired every day. You can also mix 1tsp of baking soda and 1tsp of salt in 8oz glass of water to keep clean and fresh too.

    Let us know how you progress and have any questions.
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    new baby, too?
    Kristyn,

    Congratulations on your new baby! I'm glad you both came through what was certainly an eventful pregnancy!

    My husband is finishing seven weeks of radiation and three rounds of chemo. He has actually had minimal effects from the treatment. I would say the greatest effect he had was the fatigue mainly from the anti-nausea and pain medications, although it is safe to say he is much more tired than he lets me know :)

    I am concerned because you don't mention anyone who will be helping you with the baby and your housework during your treatments. Please be sure you will have someone who can help you during the treatment and for awhile afterward because I understand it takes some time to regain strength.

    As for your skin: Jim has had good luck with the cream his radiation oncologist recommended - it is called "Udder Balm" and we bought it (a large jar) at Wal-Mart. I have spoken to others who said it worked well for them, too, with the main tip to use it, at a minimum, daily. Right now, Jim is using it twice a day. He does not have very fair skin so any ruddiness the treatment has caused is not really noticeable.

    Hugs and good thoughts coming your way...
  • KristynRuth86
    KristynRuth86 Member Posts: 140

    new baby, too?
    Kristyn,

    Congratulations on your new baby! I'm glad you both came through what was certainly an eventful pregnancy!

    My husband is finishing seven weeks of radiation and three rounds of chemo. He has actually had minimal effects from the treatment. I would say the greatest effect he had was the fatigue mainly from the anti-nausea and pain medications, although it is safe to say he is much more tired than he lets me know :)

    I am concerned because you don't mention anyone who will be helping you with the baby and your housework during your treatments. Please be sure you will have someone who can help you during the treatment and for awhile afterward because I understand it takes some time to regain strength.

    As for your skin: Jim has had good luck with the cream his radiation oncologist recommended - it is called "Udder Balm" and we bought it (a large jar) at Wal-Mart. I have spoken to others who said it worked well for them, too, with the main tip to use it, at a minimum, daily. Right now, Jim is using it twice a day. He does not have very fair skin so any ruddiness the treatment has caused is not really noticeable.

    Hugs and good thoughts coming your way...

    Thank you!
    Thank you all for the insight! I think I will be buying some cream asap! I'm scared about my neck getting irritated b/c my surgery wasn't that long ago and I still have a really long red scar that feels weird and I'm scared it'll hurt under the radiation! We will see though!
    Noellesmom, I'm sorry I didn't mention my wonderful family! My husband, mother in law, mother, and aunt are all extremely helpful and will be there with me to help with the little ones. After my surgery my 3 year old was the biggest help of all! It was amazing seeing him act like such a big boy lol. My Oncologist says it could take up to 3 months to go back to normal after the treatments finish. My mom is so upset b/c they said everything will taste like cardboard for quite a while. She feels we must do Thanksgiving this weekend lol. I am so blessed to have people around who will help!
    I am so sorry your husband had to go through Chemo as well as the radiation, I'm sure he's a very strong man! Where was your husband's radiation targetting? His neck as well? Do they always give you anti-nausea medication or is that b/c maybe his radiation was targetting a different area? Everything is so new to me I'm trying to find out as much as I can! Thanks again!
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    My first concern would be
    My first concern would be your immune system will go down during treatments, with not know where your child will be but they seem to carry anything they come in contact with. Try not to come in contact with other that are or have been sick. Wash, wash and wash more often.

    No matter how bad it gets with your mouth and throat keep swallowing, this is an auto matic muscle reflex and if you loose this it is extremly hard to get back. Keep your mouth flexable as it starts to tighten up. Put thumb on from teeth and fingers on bottom teeth and spreed them like another person has already stated. Your neck will do the same for months to come. Keep streching left and right as far as you can along with the same up and down.

    Accept help from any and all. Most believe they can do this by theirselfs and they might but it would be alot easier to use the help. By using the help others give that creates a smile on those caregivers as they feel they did something and that will keep them positive around you with their smile. Alowing others to help will be easier on your spouse and child.

    Find that box of patience you have been storing for a rainy day, it will be needed. Do not be concerned about the first 2 weeks as it takes some time for most to feel some discomfort that is bad. It will seem like the treatments do not get done fast enough... but you will find out that the recovery will be even slower.

    My doctor told me almost 15 years ago not that beating cancer is 60-70 percent Positive Mental Attitude ( PMA). Well I disagree with him, it is 75-80%. We all that have been thru this know you can whip Cancer's butt. If you know it and believe it you to Will Beat Cancer's Backside.

    Beating cancer is like a huge War... their are daily battles that others help you get thru day by day and hour by hour, and this leads and adds up to winning your war against this ugly sickness.

    Congrats! you are a survivor the day you were told you have cancer.

    Postive Mental Attitude, Believing, Never Never Never give up and Keeping our Lord and
    Savior with you all all the time, God Loves All. These are the four rules I used.
  • staceya
    staceya Member Posts: 720
    fisrpotpe said:

    My first concern would be
    My first concern would be your immune system will go down during treatments, with not know where your child will be but they seem to carry anything they come in contact with. Try not to come in contact with other that are or have been sick. Wash, wash and wash more often.

    No matter how bad it gets with your mouth and throat keep swallowing, this is an auto matic muscle reflex and if you loose this it is extremly hard to get back. Keep your mouth flexable as it starts to tighten up. Put thumb on from teeth and fingers on bottom teeth and spreed them like another person has already stated. Your neck will do the same for months to come. Keep streching left and right as far as you can along with the same up and down.

    Accept help from any and all. Most believe they can do this by theirselfs and they might but it would be alot easier to use the help. By using the help others give that creates a smile on those caregivers as they feel they did something and that will keep them positive around you with their smile. Alowing others to help will be easier on your spouse and child.

    Find that box of patience you have been storing for a rainy day, it will be needed. Do not be concerned about the first 2 weeks as it takes some time for most to feel some discomfort that is bad. It will seem like the treatments do not get done fast enough... but you will find out that the recovery will be even slower.

    My doctor told me almost 15 years ago not that beating cancer is 60-70 percent Positive Mental Attitude ( PMA). Well I disagree with him, it is 75-80%. We all that have been thru this know you can whip Cancer's butt. If you know it and believe it you to Will Beat Cancer's Backside.

    Beating cancer is like a huge War... their are daily battles that others help you get thru day by day and hour by hour, and this leads and adds up to winning your war against this ugly sickness.

    Congrats! you are a survivor the day you were told you have cancer.

    Postive Mental Attitude, Believing, Never Never Never give up and Keeping our Lord and
    Savior with you all all the time, God Loves All. These are the four rules I used.

    I am SO glad to hear from
    I am SO glad to hear from you! I was wondering how you were doing!
    Agree with all that's been posted. I think it is A GREAT idea to have Thanksgiving now.
    I kind of did that with bacon, ate a whole lot while I could still taste it, people thought it was nuts! I called it pre rads bacon loading (kind of like carb loading for a marathon,which I certainly do not do, but should) I was SO afraid before starting, but everything worked out really well. This formum helped me the most of all. Get all the help that you can with the children, housework etc. You will be on my mind.
    Stacey
  • Kimba1505
    Kimba1505 Member Posts: 557
    fisrpotpe said:

    My first concern would be
    My first concern would be your immune system will go down during treatments, with not know where your child will be but they seem to carry anything they come in contact with. Try not to come in contact with other that are or have been sick. Wash, wash and wash more often.

    No matter how bad it gets with your mouth and throat keep swallowing, this is an auto matic muscle reflex and if you loose this it is extremly hard to get back. Keep your mouth flexable as it starts to tighten up. Put thumb on from teeth and fingers on bottom teeth and spreed them like another person has already stated. Your neck will do the same for months to come. Keep streching left and right as far as you can along with the same up and down.

    Accept help from any and all. Most believe they can do this by theirselfs and they might but it would be alot easier to use the help. By using the help others give that creates a smile on those caregivers as they feel they did something and that will keep them positive around you with their smile. Alowing others to help will be easier on your spouse and child.

    Find that box of patience you have been storing for a rainy day, it will be needed. Do not be concerned about the first 2 weeks as it takes some time for most to feel some discomfort that is bad. It will seem like the treatments do not get done fast enough... but you will find out that the recovery will be even slower.

    My doctor told me almost 15 years ago not that beating cancer is 60-70 percent Positive Mental Attitude ( PMA). Well I disagree with him, it is 75-80%. We all that have been thru this know you can whip Cancer's butt. If you know it and believe it you to Will Beat Cancer's Backside.

    Beating cancer is like a huge War... their are daily battles that others help you get thru day by day and hour by hour, and this leads and adds up to winning your war against this ugly sickness.

    Congrats! you are a survivor the day you were told you have cancer.

    Postive Mental Attitude, Believing, Never Never Never give up and Keeping our Lord and
    Savior with you all all the time, God Loves All. These are the four rules I used.

    Stategies for getting through radiation:
    Hi Kristy...
    Congrats on the Baby Boy...he will keep you strong and motivated...and maybe a little pooped out too. Try to balance enjoying him and getting yourself through treatment.
    Radiation tips:
    Use L-glutimine. Mix it in anything you drink. 1 teaspoon twice a day.
    Baking Soda and Salt Water: 1 teaspoon each to 2 qts water. Gargle as much as necessary.
    Protect your teeth. If you haven't seen a dentist, do so, to get floride trays.
    Drink lots of water (fluids - no caffiene). I think 64 oz. is recommended.
    Get a good Aloe. Make sure it has no alcohol in it. Use it as much as necessary.
    Get Aquaphor...it is a baby product, gooey, but helps your skin.
    Keep swallowing.
    Ask about getting the PEG tube...a feeding tube that many say saved thier lives.
    Get a blender and start to figure out how to make high calorie, high nutrient shakes, that you can tolerate while you can still taste. After you lose your taste it doesn't matter so much. We used Ensure, Carnation Instant Breakfast and protein powders to get the calories and nutrients up.
    When you wake in the night rinse and gargle with the baking soda and salt water. Keep a bowl by your bed for spitting.
    Keep your body doing something active every day.
    Keep your mind doing something active every day.
    Get to know your radiation techs...you will be seeing a lot of them.

    This is all I can think of now...good luck.
    Stay connected,
    Kim
  • KristynRuth86
    KristynRuth86 Member Posts: 140
    Kimba1505 said:

    Stategies for getting through radiation:
    Hi Kristy...
    Congrats on the Baby Boy...he will keep you strong and motivated...and maybe a little pooped out too. Try to balance enjoying him and getting yourself through treatment.
    Radiation tips:
    Use L-glutimine. Mix it in anything you drink. 1 teaspoon twice a day.
    Baking Soda and Salt Water: 1 teaspoon each to 2 qts water. Gargle as much as necessary.
    Protect your teeth. If you haven't seen a dentist, do so, to get floride trays.
    Drink lots of water (fluids - no caffiene). I think 64 oz. is recommended.
    Get a good Aloe. Make sure it has no alcohol in it. Use it as much as necessary.
    Get Aquaphor...it is a baby product, gooey, but helps your skin.
    Keep swallowing.
    Ask about getting the PEG tube...a feeding tube that many say saved thier lives.
    Get a blender and start to figure out how to make high calorie, high nutrient shakes, that you can tolerate while you can still taste. After you lose your taste it doesn't matter so much. We used Ensure, Carnation Instant Breakfast and protein powders to get the calories and nutrients up.
    When you wake in the night rinse and gargle with the baking soda and salt water. Keep a bowl by your bed for spitting.
    Keep your body doing something active every day.
    Keep your mind doing something active every day.
    Get to know your radiation techs...you will be seeing a lot of them.

    This is all I can think of now...good luck.
    Stay connected,
    Kim

    You guys are so amazing, I'm
    You guys are so amazing, I'm literally wrtiting all this down. After I had my surgery I thought that was going to be the worst experience of my life, I couldn't swallow for what felt like forever and I was just miserable, so I can't imagine it will be worse than that. If there is anything else you would think will help me through the treatment I will appreciate the tips so so much!
    Thank you thank you!!!
  • timreichhart
    timreichhart Member Posts: 194
    staceya said:

    I am SO glad to hear from
    I am SO glad to hear from you! I was wondering how you were doing!
    Agree with all that's been posted. I think it is A GREAT idea to have Thanksgiving now.
    I kind of did that with bacon, ate a whole lot while I could still taste it, people thought it was nuts! I called it pre rads bacon loading (kind of like carb loading for a marathon,which I certainly do not do, but should) I was SO afraid before starting, but everything worked out really well. This formum helped me the most of all. Get all the help that you can with the children, housework etc. You will be on my mind.
    Stacey

    about start of your radiation
    Ask your doctor about these meds:
    Diflucan 100mg tables to help not getting any fungal in the mouth and throat (if you get from your doctor make sure you take it during your radiation treatments)
    triamcinolone acetonide cream
    salagen 5MG to help with dry mouth and mucus that you may get
    tessalon 100MG perles to help with cough
    Ativan 1MG for nausea I recommend highly getting this med.
    Fentanyl 25mcg/h patch for pain.
    Also make sure you use Aloe with no alcohol and don't use (Aquaphor) because that crap made me so red and made the pain so much worst.
    Also take prilosec otc because you may get heartburn from radiation.

    you may or may not need these meds but ask you radiation doctor about them.
  • RushFan
    RushFan Member Posts: 224
    johnlax38 said:

    There is not much you can do
    There is not much you can do to prepare. Keep an eye on your skin around the field of radiation. If it starts to burn there are prescription creams like Xclair that take the burn out and heal the skin. During treatment try to eat and drink as much as possible. I'm not sure if you have a feeding tube, but your jaw can tighten up quite a bit from not using it. If it starts to get tight stretch it by opening as wide as you can, you should feel a pull, hold for 10sec and then rest, repeat 10 times three times a day. Keep your mouth clean as possible, because radiation kills cells you want to protect your teeth and gums. Like you I had two wisdom teeth pulled and three molars before treatment. You can use standard mouth wash and tooth paste, but your mouth may get burned up. You want to look at Biotene products. They are very gentle and will allow you to keep your mouth clean. I had chemo and radiation at the same time, so I'm not sure how much energy you will have. I was dead tired every day. You can also mix 1tsp of baking soda and 1tsp of salt in 8oz glass of water to keep clean and fresh too.

    Let us know how you progress and have any questions.

    Prepare with education...
    Sorry you have to deal with this, especially with a new baby!

    Ask your radiation oncologist and nurse about possible senarios and monitor this site...it is a great place, with great people who have lots of knowledge and experience. Super glad you have great support, it's key. My wife drove me to every treatment...could not have done so myself after week two.

    I had seven weeks of radiation along with seven once per week chemo treatments. Here, in a very small nutshell was my experience...I need to stress everyone is different regarding side affects. Here goes:

    First two weeks, no problems. My docs said that would probably be the case.
    Week three fatigue and pain were starting to set in. Skin was starting to get "tanned"...but red too. Nausea a problem...solved with Zofran.
    Week four very tired, pain was ramping up. Skin starting to fry.
    Week five through seven sleeping 16-20 hours per day. Pain managed with Lortab and fentanyl patches. Skin fryed, but used Eucerin cream and that worked well. Heavy duty mucositous...thick spit. It's not fun. Went through tons of Kleenex. Also, hair on the back of my neck at colar line fell out.

    I did not have a PEG tube, drank Ensure & Boost almost around the clock as I awoke every hour - hour and a half. I lost 30 pounds.

    Weeks one through three after treatment still a mess, sleeping less but pain still an issue.
    At six weeks after treatment I had weaned off pain meds and was starting to eat soft foods.
    Now almost 14 weeks after treatment I'm eating 95% of calories, drinking an Ensure once a day. Been back to work for about five weeks, two full time.

    During this time I did the following:
    Mouth & swallowing exercises, provided by rad nurse.
    Used prescription high fluoride toothpaste (still do & will forever)
    Mouth rinse with baking soda and salt
    My rad doc really stayed on top of pain management
    Got as much rest as possible, did'nt have much choice.
    Prayed a lot. Recovery is not a day by day process, but week to week.

    All the best to you during this difficult time, we are all here for you.
    Keep posting and let us know how you are doing.

    Chuck.
  • Greg53
    Greg53 Member Posts: 849

    You guys are so amazing, I'm
    You guys are so amazing, I'm literally wrtiting all this down. After I had my surgery I thought that was going to be the worst experience of my life, I couldn't swallow for what felt like forever and I was just miserable, so I can't imagine it will be worse than that. If there is anything else you would think will help me through the treatment I will appreciate the tips so so much!
    Thank you thank you!!!

    Welcome back Kristyn
    Kristyn,

    Not much to add advice-wise. But Congrats on your new baby!! Good luck with upcoming treatments and if I do have one piece of advice it's keep that positive attitude and laugh at everything you can. It helps a lot!

    Greg
  • delnative
    delnative Member Posts: 450

    You guys are so amazing, I'm
    You guys are so amazing, I'm literally wrtiting all this down. After I had my surgery I thought that was going to be the worst experience of my life, I couldn't swallow for what felt like forever and I was just miserable, so I can't imagine it will be worse than that. If there is anything else you would think will help me through the treatment I will appreciate the tips so so much!
    Thank you thank you!!!

    Hey, KrystenRuth
    Not much I can add to what folks here have posted, other than that Emend is a wonder drug when it comes to combating nausea (if you're going to have chemo) and that Biafine, a prescription lotion, really kept my neck from burning -- and I'm a very fair-skinned dude.
    I hesitate to say that when it comes to not being able to swallow, you ain't seen nothing yet. Radiation is very much like the way Timothy Leary described LSD back in the '60s: "To those who've had the experience, no explanation is necessary. To those who haven't, none is possible."
    But if you go into this with a positive attitude and avail yourself of all the educational resources available through your doctors and on this site, you'll do just fine. Radiation sucks big time, but this is what's going to save your life. It's a blessing -- but it sure won't seem so at the time.
    And please, keep coming back here. You'll have plenty of questions as your treatment progresses, and this is a great place to get answers from those who've been there and done that.
    God bless you, and good luck.

    --Jim in Delaware
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member

    You guys are so amazing, I'm
    You guys are so amazing, I'm literally wrtiting all this down. After I had my surgery I thought that was going to be the worst experience of my life, I couldn't swallow for what felt like forever and I was just miserable, so I can't imagine it will be worse than that. If there is anything else you would think will help me through the treatment I will appreciate the tips so so much!
    Thank you thank you!!!

    Attitude
    Attitude as those have shared since your last post today is without a doubt the second most important to Keeping Your Faith the God is there for You!
  • Hondo
    Hondo Member Posts: 6,636 Member

    You guys are so amazing, I'm
    You guys are so amazing, I'm literally wrtiting all this down. After I had my surgery I thought that was going to be the worst experience of my life, I couldn't swallow for what felt like forever and I was just miserable, so I can't imagine it will be worse than that. If there is anything else you would think will help me through the treatment I will appreciate the tips so so much!
    Thank you thank you!!!

    Hi Ruth

    Looks like you got a lot of help already so I just want to say welcome here to our CSN Family
  • micktissue
    micktissue Member Posts: 430

    Thank you!
    Thank you all for the insight! I think I will be buying some cream asap! I'm scared about my neck getting irritated b/c my surgery wasn't that long ago and I still have a really long red scar that feels weird and I'm scared it'll hurt under the radiation! We will see though!
    Noellesmom, I'm sorry I didn't mention my wonderful family! My husband, mother in law, mother, and aunt are all extremely helpful and will be there with me to help with the little ones. After my surgery my 3 year old was the biggest help of all! It was amazing seeing him act like such a big boy lol. My Oncologist says it could take up to 3 months to go back to normal after the treatments finish. My mom is so upset b/c they said everything will taste like cardboard for quite a while. She feels we must do Thanksgiving this weekend lol. I am so blessed to have people around who will help!
    I am so sorry your husband had to go through Chemo as well as the radiation, I'm sure he's a very strong man! Where was your husband's radiation targetting? His neck as well? Do they always give you anti-nausea medication or is that b/c maybe his radiation was targetting a different area? Everything is so new to me I'm trying to find out as much as I can! Thanks again!

    Your 3-year-old
    Hi KristynRuth. I want to first say welcome to this forum and I feel for you. You have a lot of support at home and a lot of support here. What I am about to say assumes a lot and I'm sorry if what I say assumes too much. I offer these thoughts from the best place in my heart.

    It's great that your 3-year-old was so helpful to you after surgery. What I thought of was the stage of development your son is in and what to expect from him as you enter treatment.

    A 3-year-old is emerging from an infant stage into a toddler stage and is seeking independence. You have that working for you because he will likely enjoy the tasks you have for him to distract and keep him busy. I would caution however to not lose sight of what impact both the baby and your illness will have on him. When the baby was born was the last day he was #1 (from his perspective). He will have to contend with not only sharing attention with this new little bundle but also the scary aspect of mom's dwindling strength and ability to engage with him like he's been accustomed to.

    I'd suggest making sure he has the space to get mad or sad or frustrated because his world will most likely be rocked by all this change. It is likely he may become scared as well because you will begin to become sicker (again from his perspective) and that is scary. He may need a lot of understanding and permission to say how he feels and perhaps even permission to act out appropriately (hitting pillows, tearing paper, drawing, etc.). If he's in day-care cluing the teacher in on what's happening at home should also help.

    I'd suggest some children's books on subjects like parental illness (When Mommy is Sick is a good one - http://www.amazon.com/When-Mommy-Sick-Ferne-Sherkin-Langer/dp/0807588946), but also perhaps a book on parenting like Positive Discipline for Pre-Schoolers (http://www.amazon.com/Positive-Discipline-Preschoolers-Revised-Second/dp/0761515151/ref=sr_1_2?ie=UTF8&s=books&qid=1282617077&sr=1-2-spell) that may help the caregivers come from the same place (I assume with so much help he may be in the care of more than one person in a given week).

    I hope you find this helpful.

    Best,

    Mick
  • micktissue
    micktissue Member Posts: 430

    Thank you!
    Thank you all for the insight! I think I will be buying some cream asap! I'm scared about my neck getting irritated b/c my surgery wasn't that long ago and I still have a really long red scar that feels weird and I'm scared it'll hurt under the radiation! We will see though!
    Noellesmom, I'm sorry I didn't mention my wonderful family! My husband, mother in law, mother, and aunt are all extremely helpful and will be there with me to help with the little ones. After my surgery my 3 year old was the biggest help of all! It was amazing seeing him act like such a big boy lol. My Oncologist says it could take up to 3 months to go back to normal after the treatments finish. My mom is so upset b/c they said everything will taste like cardboard for quite a while. She feels we must do Thanksgiving this weekend lol. I am so blessed to have people around who will help!
    I am so sorry your husband had to go through Chemo as well as the radiation, I'm sure he's a very strong man! Where was your husband's radiation targetting? His neck as well? Do they always give you anti-nausea medication or is that b/c maybe his radiation was targetting a different area? Everything is so new to me I'm trying to find out as much as I can! Thanks again!

    Thanksgiving
    Hi again KristynRuth.

    Your mom might be on to something. I am 5 months post treatment and still cannot swallow. It is possible I will miss Thanksgiving even though my treatment ended on April 1. If you had Thanksgiving now at least you can spend time with your family when you are more or less normal. I don't want to scare you but post-treatment is a crapshoot. Some here have been fine in about that timeframe (3 months) but others took longer, some very much longer, to recover. It is better, in my humble opinion, to prepare for a recovery that may take longer than your Dr anticipates. Your body will decide how much time it needs and often it goes against our deepest wishes to feel better sooner.

    Best,

    Mick
  • KristynRuth86
    KristynRuth86 Member Posts: 140
    Hondo said:

    Hi Ruth

    Looks like you got a lot of help already so I just want to say welcome here to our CSN Family

    Thank you everyone for all
    Thank you everyone for all the help! Delaware, I really had no idea the swallowing issue was going to be that bad, but thank you for letting me know! I really really want to know, will I be able to keep working? I really want to keep working, because I have bills to pay and I just took off a lot of time after having my baby, I'm scared to take off another month or so. So did any of you continue to work through the therapy?
  • timreichhart
    timreichhart Member Posts: 194

    Thank you everyone for all
    Thank you everyone for all the help! Delaware, I really had no idea the swallowing issue was going to be that bad, but thank you for letting me know! I really really want to know, will I be able to keep working? I really want to keep working, because I have bills to pay and I just took off a lot of time after having my baby, I'm scared to take off another month or so. So did any of you continue to work through the therapy?

    about work
    I have been off of work since 5-27 right after I started radiation because I didnt know how will I was going to react from radiation and as of today I am still off of work but I am on un-paid FMLA which I am about ready to run out so after that runs out I am going to apply for SSI for while intill I am good and heeled up.
  • RushFan
    RushFan Member Posts: 224

    about work
    I have been off of work since 5-27 right after I started radiation because I didnt know how will I was going to react from radiation and as of today I am still off of work but I am on un-paid FMLA which I am about ready to run out so after that runs out I am going to apply for SSI for while intill I am good and heeled up.

    Work
    I had seven weeks of radiation treatment with chemo, and the chemo set me back for sure.
    I finished 4/30/2010.

    I worked during the first three weeks of treatment and then had to stay home. I returned to work part-time ten weeks after treatment, full time at the eleven week mark...I've been back full time three weeks now.

    I'm sorry, but for me it was tough...and I think I had it relatively easy compared to others here.

    All the best to you, and everyone here.
    Chuck.
  • rozaroo
    rozaroo Member Posts: 665
    RushFan said:

    Work
    I had seven weeks of radiation treatment with chemo, and the chemo set me back for sure.
    I finished 4/30/2010.

    I worked during the first three weeks of treatment and then had to stay home. I returned to work part-time ten weeks after treatment, full time at the eleven week mark...I've been back full time three weeks now.

    I'm sorry, but for me it was tough...and I think I had it relatively easy compared to others here.

    All the best to you, and everyone here.
    Chuck.

    Krystin
    Wellcome to our group! Allthough I am so sorry you have to go through this. You are young & strong & that is a huge bonus when it comes to this disease. Plus make sure to eat anything & everything you wish before starting your treatment. We are all here to help with great advice & genuine care. All of us respond to treatment differently, however, we can offer whatever seemed to make our journey through this a bit easier. God bless & I shall keep you & your family in my prayer's.
    Roz