Sorry Guys

lady4darknight
lady4darknight Member Posts: 90 Member
edited March 2014 in Head and Neck Cancer #1
To all my new family,
As promised I would update as soon as the results were in...I do have another tumor. This one appears to go from the left tonsil into the soft palette. The ENT wanted it to be that the spot showing on the PET was hot from my rads but no such luck. The radiologist confirm another mass and when scoped, this new mass is visible as soon as the scope leaves my sinus cavities. The good news was that the original tumor has shrunk and appears to be dying but this new one seems to be growing as fast as the first. This one also appears to be in the nodes. Surgery is being scheduled for Friday as the doctor wants to go in and remove as much as possible and get the biopsies done so that we can decide the best course of treatment. My family and I want to personally thank each of you for prayers and support and words of encouragement. We know we are not alone.
For the newbies coming on here and reading this...DO NOT let this discourage you. Keep up the fight and think positive. Fighting this is like riding a roller coaster. Full of ups and downs. I might be down but I ain't out. I fought this once and I can do it again.
I think the hardest part of this was having to tell everyone I have to start over. Poor Joey..he is so strong but I could hear his voice when I broke the news and I think it broke his heart. But he said we will prevail. We have battled for 2 years and he would rather we find this out now instead of finding out a month or so down the road when I couldn't swallow or something. My kids were devastated to say the least but they are strong and are trying to coordinated schedules for being with me..hard to do with school starting and Max..well he isn't moving out for school. He said he will just commute so he can be with me while everyone else works. But I told him that he will go to college and I expect no less that what his GPA was at his high school graduation. His response was gee mom thanks..lol.
As always I will be faithfully staying in touch thru here and the chat. I love you all and thank you.

Debbie
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Comments

  • johnlax38
    johnlax38 Member Posts: 136
    Sorry Debbie..my heart broke
    Sorry Debbie..my heart broke reading this. Stay strong, easier said than done.
  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    Dear Debbie, I am just
    Dear Debbie, I am just heartbroken and I cannot begin to know how you feel. I am so sorry that you have to fight this horrific battel again. I'm glad you have Joey and your kids to be with you. Please let me know if I can do ANYTHING!! You and your family are definitely in my prayers. I you need to talk you can call me 513-931-6693. My heart just goes out to your and your family.
    Take care and try to stay strong and positive.
    God bless you, friend,
    Debbiejeanne
  • Hal61
    Hal61 Member Posts: 655
    Dang It
    Debbie, sorry to hear about the new obstacle. I'm glad it was spotted and you are proceeding with surgery. As you said, letting it go would have caused problems that can now be avoided. I was touched by your concern at having to tell your family. You're a champ. You're doing everything right to keep the fight, and as I know you know, you're lucky to have such a caring family around you.

    My prayers for you, keep posting

    Hal
  • Pam M
    Pam M Member Posts: 2,196
    Bleep!
    Debbie,
    Like I said before - this just means extra innings for this game. I'm sorry you have to keep fighting, and glad you have great weapons to fight with. This is not a loss - just a postponed win. So frustrated for you. And resentful. Time to dig in again. Hope you can pig out until Friday's surgery. Hoping it goes well, and your recovery is boring. Let us know.
  • Joel4
    Joel4 Member Posts: 263 Member
    Hal61 said:

    Dang It
    Debbie, sorry to hear about the new obstacle. I'm glad it was spotted and you are proceeding with surgery. As you said, letting it go would have caused problems that can now be avoided. I was touched by your concern at having to tell your family. You're a champ. You're doing everything right to keep the fight, and as I know you know, you're lucky to have such a caring family around you.

    My prayers for you, keep posting

    Hal

    Inspired
    I am very sorry to hear of this latest development but at the same time I am inspired by your attitiude.
    Debbie, my whole family will be praying for you and we take our praying very seriously...
    I can feel God moving through this already, all will be well. I wish you the best on Friday and will be praying for a speedy recovery.

    Joel
  • Kimba1505
    Kimba1505 Member Posts: 557
    Pam M said:

    Bleep!
    Debbie,
    Like I said before - this just means extra innings for this game. I'm sorry you have to keep fighting, and glad you have great weapons to fight with. This is not a loss - just a postponed win. So frustrated for you. And resentful. Time to dig in again. Hope you can pig out until Friday's surgery. Hoping it goes well, and your recovery is boring. Let us know.

    Your strength shines through.
    Debbie,
    I read your hard to hear words and at the same time felt the strength within you. You will fight, and you will have armies of support with you all the way. Your family is there, your medical team is there, and we are here. You are a fighter! Kick the sh-- out of that tumor!
    Kim
  • JUDYV5
    JUDYV5 Member Posts: 392
    So Sorry
    So sorry that you have to fight another battle. You are tough and an inspiration to me. I have a son who was also in the class of 2010. The picture that you had posted at your sons graduation was a big force in my going to my sons H.S. graduation (bucket and all).
    You know you are surrounded by love - stay positive.
  • Glenna M
    Glenna M Member Posts: 1,576
    JUDYV5 said:

    So Sorry
    So sorry that you have to fight another battle. You are tough and an inspiration to me. I have a son who was also in the class of 2010. The picture that you had posted at your sons graduation was a big force in my going to my sons H.S. graduation (bucket and all).
    You know you are surrounded by love - stay positive.

    Debbie, your strength and
    Debbie, your strength and attitude amaze me. You are a very strong woman and I know your strength will see you through this next battle. You obbviously have many family and friends who love you and will be by your side through all of this. You also have your family here who will be praying for you daily and helping you through this in any way we can.

    I know that what you are going through is what we all fear. I only pray that I can be as courageous as you are if it ever happens to me. You truly are an inspiration to all of us.

    Sending hugs and prayers to you and your family.

    Glenna
  • stevenl
    stevenl Member Posts: 587
    Glenna M said:

    Debbie, your strength and
    Debbie, your strength and attitude amaze me. You are a very strong woman and I know your strength will see you through this next battle. You obbviously have many family and friends who love you and will be by your side through all of this. You also have your family here who will be praying for you daily and helping you through this in any way we can.

    I know that what you are going through is what we all fear. I only pray that I can be as courageous as you are if it ever happens to me. You truly are an inspiration to all of us.

    Sending hugs and prayers to you and your family.

    Glenna

    Strength
    Hi Debbie,

    Where do you get all of this strength? You are amazing and I know you will beat this.
    Prayers and support are being sent your way.

    Best,
    Steve
  • rozaroo
    rozaroo Member Posts: 665
    stevenl said:

    Strength
    Hi Debbie,

    Where do you get all of this strength? You are amazing and I know you will beat this.
    Prayers and support are being sent your way.

    Best,
    Steve

    Debbie!
    I am so sorry you have to go through this terrible ordeal again. Your courage & strength are an inspiration to us all. My thought's & prayer's are with you & your family.
    Roz
  • delnative
    delnative Member Posts: 450
    rozaroo said:

    Debbie!
    I am so sorry you have to go through this terrible ordeal again. Your courage & strength are an inspiration to us all. My thought's & prayer's are with you & your family.
    Roz

    Cancer sucks
    Let me join in the chorus: I too am sorry you have to battle the beast once again.
    But if attitude makes any difference -- and I believe it makes a lot of difference -- you're going to kick cancer's a*s to the curb.
    May God bless and keep you.

    --Jim in Delaware
  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi Debbie
    I am sorry to hear the news but I am glad to see your positive attitude. I like you love being here with my CSN family so please keep us up to date on how you are doing.
  • kimmygarland
    kimmygarland Member Posts: 312
    Hondo said:

    Hi Debbie
    I am sorry to hear the news but I am glad to see your positive attitude. I like you love being here with my CSN family so please keep us up to date on how you are doing.

    You are Amazing
    What a wonderful attitude. I hope the surgery is very uneventful and you are on the road to recovery and further treatment to get rid of the beast - SOON!
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    Hondo said:

    Hi Debbie
    I am sorry to hear the news but I am glad to see your positive attitude. I like you love being here with my CSN family so please keep us up to date on how you are doing.

    Wow, so sorry to hear the
    Wow, so sorry to hear the latest. Stay strong Debbie.

    Jimbo
  • davidgskinner
    davidgskinner Member Posts: 81
    Bleep again
    Nothing else to be said...
    I hope I can be as strong as you. We are all pulling for you.
  • Scambuster
    Scambuster Member Posts: 973
    Inspiration
    Debbie,

    Very disturbed to hear your news and very sorry to know you have to get back in the ring for another round.

    You can beat this Debbie. You are an inspiration to all of us and just know we all here as part of your extended family. Your warmth and kindness comes through these pages in waves, as does your courage and will to fight.

    Stay strong Debbie.

    Scam
  • greg from pa
    greg from pa Member Posts: 86
    Hi Debbie
    I am sorry to hear that you have to go another round . But you can do it! You have not come this far for nothing. Stay stromg and know that we will all be praying for you. And we know that prayer can move moutains. Greg
  • Dragons7-7-2010
    Dragons7-7-2010 Member Posts: 79
    you're an inspiration
    You're an inspiration your positive attitude gives me a positive role model as I just begin my journey. I meet with my surgical oncologist to discuss the results of my tonsil biopsy Thursday and hope that I can learn from the courage you have shown.

    I pray your surgery goes well. Thank you for the blessing you are to all of us on the discussion board.

    ~ E. Cib
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    AWESOME ATTITUDE
    your positive attitude will see you through this. I too have a son leaving for college next week 6 hours away and he WILL go and have his college experience.

    stay strong, i am pulling for you and your familiy.
  • lady4darknight
    lady4darknight Member Posts: 90 Member

    AWESOME ATTITUDE
    your positive attitude will see you through this. I too have a son leaving for college next week 6 hours away and he WILL go and have his college experience.

    stay strong, i am pulling for you and your familiy.

    Thanks isn't enough
    Hi all,

    As I sit here reading all the outpouring of love from all you, I have tears falling on my laptop. I met with the onco today and it appears I actually have two tumors...one above in the palette and one in the tonsil area. she has already set it up for me to get fitted for the (horrors) mask from hell on Monday the 23rd. I will find out about the chemo next week. My onco said this needs to be hit hard and fast as these tumors were not visible 7 weeks ago.

    I want to share a funny story with all of you. Everyone comments on my attitude and I wanted to explain where I get it. I am of scotch-irish-french descent. Apparently I was the most bull headed kid growing up. My family says if I had a notion to do something I did it regardless of whether I was punished or not. Apparently I would take my punishment and then proceed to do whatever it was I was doing to begin with. My nick name growing up?..Johnny Bull..lol. So when I put my mind to it, I guess there is no stopping me. I also credit my father (gone 11 years now after a 3 year battle of colon cancer). My father never gave up. Even with a full colonostomy and wearing a bag, he continue to play softball and bowl right up till 6 weeks before he lost the fight. O by the way..did I tell you I was red headed? LOL.

    So I am sitting here amazed with all of your positive attitudes and well wishes and prayers and am very thankful for finding you all. You all have given me strength with your positive attitudes. Pam..this game may have gone into extra innings but I will win. Glenna, Scam, Greg, Hondo, Kimba,Joel,Hal ...all of you. God bless you and know you are all in my prayers. Debbie..I took note of your number and be prepared..I will call. I wish we could all get together and meet as this would be most awesome to me. But for now I will be content to "see" you all this way. Hugs to all you.

    Debbie

    ps..Dragon, you will get thru this..Please let me know how everything goes.